Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for October 2021

New PSPA Podcast episode available - voice banking

Our new #podcast is out now! In episode six, our host, Liz, talks to Samanta and her husband Chris about their experiences of voice banking. Through our...

Our new #podcast is out now! In episode six, our host, Liz, talks to Samanta an...

HelenPSPA

Administrator•3 years ago

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Help test a survey looking into the impact of PSP & CBD on partners and families

Researchers at Cardiff University are looking into the impact of PSP & CBD on partners and families. They have drafted a survey and would like PSPA supporters...

Researchers at Cardiff University are looking into the impact of PSP & CBD on pa...

HelenPSPA

Administrator•3 years ago

1 Reply

Swallowing issues

My sister has PSP she is losing weight because she is not eating enough. Swallowing problems so I think they are going to insert a feeding tube. I am going to...

My sister has PSP she is losing weight because she is not eating enough. Swallow...

Outrigger

•3 years ago

20 Replies

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Wheelchair or Seat in Shower

Hi All. A little advice if you please. We are moving house, our current four bedroom, large garden house is just too much for me to manage and look after My...

Hi All. A little advice if you please. We are moving house, our current four be...

Birdman42

•3 years ago

19 Replies

dribbling

Just been advised by nurse to try Peppercorns three in the morning has anyone else heard of this for dribbling, may be better than some side affects of...

Just been advised by nurse to try Peppercorns three in the morning has anyone el...

Poppypolo

•3 years ago

12 Replies

Enlightenment 5K - for Corticbasal Degeneration

I’ve been in contact with a lot of ppl around the globe dealing with CBD, and have joined with CurePSP in NY, to create a 5k specifically for CBD families and...

I’ve been in contact with a lot of ppl around the globe dealing with CBD, and ha...

ARutzen

•3 years ago

5 Replies

Any ideas for alternative medication for CBD?

We have tried various medication for PD (Parkinson's Disease) for my mum's CBD with little or no success. I've been told by the Parkinson's nurses and...

We have tried various medication for PD (Parkinson's Disease) for my mum's CBD w...

charlieford

•3 years ago

3 Replies

Dealing with a loved one with CBD Dementia

Is there any one else out there dealing with this cruel disease

Hastings2021

•3 years ago

20 Replies

PSPA supported by Global's Make Some Noise campaign

We are pleased to confirm PSPA has been selected to be part of the 2021 Global Make Some Noise campaign this year. Being part of the campaign is a really...

We are pleased to confirm PSPA has been selected to be part of the 2021 Global M...

HelenPSPA

Administrator•3 years ago

1 Reply

dry eyes vs tearing eyes

My husband who has PSP, has been experiencing tears flowing from his eyes and he is not crying. He also complains of eye discomfort. Eye Dr has prescribed...

My husband who has PSP, has been experiencing tears flowing from his eyes and he...

ncgardener799

•3 years ago

13 Replies

Prayer to Saint Rita of Cascia

Dear Saint Rita of Cascia Saint of impossible causes. Please intercede today on behalf of all patients suffering with PSP. Please ask the Lord to send an angel...

Dear Saint Rita of Cascia Saint of impossible causes. Please intercede today on ...

Hidden

•3 years ago

7 Replies

Non-verbal Tool

A beautiful creation from some friends! Mom no longer can speak, and this jar full of words has been a massive help!!! For those noticing the word “cemetery”...

A beautiful creation from some friends! Mom no longer can speak, and this jar fu...

bazooka111

•3 years ago

14 Replies

Screeching

Hi, I'm new here. Mum was diagnosed with PSP in March of this year after displaying symptoms for three years. She has recently started screeching when she...

Hi, I'm new here. Mum was diagnosed with PSP in March of this year after displa...

GeorgeMMXVI

•3 years ago

6 Replies

Is incontinence a feature with PSP. After her recent fall my Lady is constantly passing urine

PSP incontinence

BlairWit

•3 years ago

11 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for October 2021

New PSPA Podcast episode available - voice banking

Help test a survey looking into the impact of PSP & CBD on partners and families

Swallowing issues

Wheelchair or Seat in Shower

dribbling

Enlightenment 5K - for Corticbasal Degeneration

Any ideas for alternative medication for CBD?

Dealing with a loved one with CBD Dementia

PSPA supported by Global's Make Some Noise campaign

dry eyes vs tearing eyes

Prayer to Saint Rita of Cascia

Non-verbal Tool

Screeching

Is incontinence a feature with PSP. After her recent fall my Lady is constantly passing urine

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive