Posts - PSP Association | HealthUnlocked

PSP Association

9,625 members•11,552 posts

All posts for December 2012

continuing care

Social Services have arranged an assessment for 3rd January to see if Frank qualifies for this allowance, there seems to be such deterioration in his...

Social Services have arranged an assessment for 3rd January to see if Frank qual...

•12 years ago

Scopoderm

My husband was prescribed scopoderm for drooling (they are primarily for travel sickness) and it had the most remarkable effect He was able to speak, walk...

My husband was prescribed scopoderm for drooling (they are primarily for travel ...

•12 years ago

Loud coughing/throat noise

Tony seems to be suffering from a cold, sore throat. Problem is he is making the most horrendous noise trying to clear his throat or cough. This went on for 5...

Tony seems to be suffering from a cold, sore throat. Problem is he is making the...

•12 years ago

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how far could dad be into the psp

my dad has the double vision blurry vision alot of the time in one eye, he is somedays not real steady, he gets the shaky hands I have noticed he does,not have...

my dad has the double vision blurry vision alot of the time in one eye, he is so...

•12 years ago

CBD

Hello,just writing to get things off my mind today,feeling very :( dad has had cbd for 8 years and i miss him so much. He just fought off a nasty bought of...

Hello,just writing to get things off my mind today,feeling very :( dad has had c...

•12 years ago

I have a lot of trouble sleeping. EVEN THOUGHi MAY BE VERY TIRED I DON'T SEEM TO SLEEP WELL.Does anyone else with PSP have this problem?

I have a lot of trouble sleeping. Even though I am very tired, I don't seem to sleep well. Does anyone else with PSP have this problem?..

I have a lot of trouble sleeping. Even though I am very tired, I don't seem to ...

•12 years ago

Upward gazing eyes and neck retraction.

My husband recently has started to have problems with his head retracting backwards and his eyes gazing upwards along with periods of his eyelids being closed....

My husband recently has started to have problems with his head retracting backwa...

•12 years ago

Peace at Christmas.

My lovely Eddie died peacefully in the early hours of Christmas Day. We knew he was getting weaker and when pneumonia was disgnosed he went onto the Liverpool...

My lovely Eddie died peacefully in the early hours of Christmas Day. We knew he ...

•12 years ago

Is falling one of the main symptons with psp

my dad was diagnosed with psp this year. the thing I here a lot is peoplr who know someone with psp say they fall backwards. my dad seems to be getting worse...

my dad was diagnosed with psp this year. the thing I here a lot is peoplr who kn...

•12 years ago

the cancer has gone!!HAPPY CHRIST MAS TO YHOU ALL AND MANY THANKS FOR ALL YOUR PRAYERS

hi i have go the all clear from the breast cancer surgeon i have to go for radiotherapy and be ona pill for the rest of my life as a bel tand braces job but...

hi i have go the all clear from the breast cancer surgeon i have to go for rad...

•12 years ago

Message for Ray Wiffem

Hi Ray how are you doing? Thinking of you and wishing you a peaceful Christmas and New Year. Love and best wishes Jenni

Hi Ray how are you doing? Thinking of you and wishing you a peaceful Christm...

•12 years ago

Constipation

Dorothy-Thompson This seems to be another thing that goes with PSP, a nurse told me that it goes with inactivity. Anyway, does anyone have any helpful...

Dorothy-Thompson This seems to be another thing that goes with PSP, a nurse t...

dorothy-thompson

•12 years ago

Peace at last

My darling husband is now at peace after a long battle with C B D he passed away on the 14th he donated his brain for research hope it will help someone in...

My darling husband is now at peace after a long battle with C B D he passed away...

•12 years ago

Downward step -

Frank has been on such a level stage with his PSP that we had become a little complacent. but this past week or so sees a difference in him, sleeping so much...

Frank has been on such a level stage with his PSP that we had become a little co...

•12 years ago

Davunetide clinical trials.

We have just been told that Allon Therapeutics Inc have reported that, sadly, they found no evidence of the efficacy of the drug Davunetide, in the treatment...

We have just been told that Allon Therapeutics Inc have reported that, sadly, th...

dorothy-thompson

•12 years ago

My dad was diagnosed with CBD - needing to urinate a lot is a big problem and he wakes mum 3-4 times a night for help, any suggestions?

•12 years ago

I was diagnosed with PSAP in March of 2011. The problem is I am depressed along with other symptoms of PSP. What anti-depressants work?

•12 years ago

Has anyone used a care home near the New Forest in Hampshire?

I'm looking for a care/nursing home for some respite if anyone knows of one they would recommend please let me know. Tony spent a week in a nursing home but it...

I'm looking for a care/nursing home for some respite if anyone knows of one they...

•12 years ago

When/how do you tell someone that PSP is terminal?

My husband was diagnosed with PSP just over a year ago. As soon as I found out, I was straight onto the internet and found out everything I could. He's not...

My husband was diagnosed with PSP just over a year ago. As soon as I found out, ...

•12 years ago

Hello from spain i need your experiences for my father with psp

Hi everyone..i,m from spain i´m 37 years old and i now i´m taking care of my father ( 83 years old) who is suffering PSP and Dementia with Lewy Bodies (both...

Hi everyone..i,m from spain i´m 37 years old and i now i´m taking care of my fat...

•12 years ago

Lack of Speech

I can relate to the problems you are having with your Mum and her inability to communicate her needs/pain. I have the same problem with my sister because she...

I can relate to the problems you are having with your Mum and her inability to c...

•12 years ago

Extending Communication when Speech is Gone

Today I realised that my mother is losing her speech very rapidly and can scarcely answer Yes/No questions any more. Speaking was clearly so much effort for...

Today I realised that my mother is losing her speech very rapidly and can scarce...

•12 years ago

NHS Continuing Care

Following my recent post I spoke to the GP at my husband's care home today. The home is a registered charity for ex servicemen here in Scotland. The GP told...

Following my recent post I spoke to the GP at my husband's care home today. The...

•12 years ago

CHC

At last after a lot of sweat toil and persistence we have got CHC funding. We shouldn't have to fight to get what our loved ones need but that's life....

At last after a lot of sweat toil and persistence we have got CHC funding. We ...

•12 years ago

Dad is now in peace.

To all my friends on this board, my Dad passed on Saturday. He is now at peace. I could not have made it through these last couple of years without all of...

To all my friends on this board, my Dad passed on Saturday. He is now at peace....

•12 years ago

No treatment

I have one other question. The hospital have advised us that they feel that my mum should not be given antibiotics should she suffer another infection or...

I have one other question. The hospital have advised us that they feel that my m...

•12 years ago

Continuing care question

My mum has recently been awarded continuing care and is in hospital awaiting transfer to a care home. There are not really any vacancies at the moment so she...

My mum has recently been awarded continuing care and is in hospital awaiting tra...

•12 years ago

An Ode to Carers

You're tired, you're exhausted. Your get up and go has gone. But someone you love needs you, So you take a deep breath and keep on. Your head and your...

You're tired, you're exhausted. Your get up and go has gone. But someone you l...

•12 years ago

Psp uk

I live in Canada and tried in vain to call the psp society in the uk. Says the number is no longer in service??? Can I have the correct number and is the...

I live in Canada and tried in vain to call the psp society in the uk. Says the ...

•12 years ago

Finally an answer to the Continuing Care question.

After seven weeks, during which I suspect my enquiry was forgotten, I finally got the answer I needed. It was what I had suspected and anticipated. The NHS...

After seven weeks, during which I suspect my enquiry was forgotten, I finally go...

•12 years ago

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