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PSP Association

9,229 members • 11,328 posts

All posts for May 2022

May 2022 Calendar

Your May 2022 PSP-CBD Ice Cream Challenge Calendar Enjoy Tim

Your May 2022 PSP-CBD Ice Cream Challenge Calendar Enjoy Tim

•2 years ago

The PSP-CBD Ice Cream Challenge

A nod to the PSPA Klondike Bar, strawberry frosting and lettering made from white chocolate. Tim

A nod to the PSPA Klondike Bar, strawberry frosting and lettering made from whit...

•2 years ago

The PSP-CBD Ice Cream Challenge 2022 Day 31 - Finale

Day 31 The Dish of Bliss for Two I enjoyed this dessert so much so; working from last year's picture, I recreated it for this year's ice cream challenge....

Day 31 The Dish of Bliss for Two I enjoyed this dessert so much so; working from...

•2 years ago

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URINARY PROBLEMS

URINARY PROBLEMS Ask for your GP to refer for a continence nurse assessment with a view to repeat prescription pads.

URINARY PROBLEMS Ask for your GP to refer for a continence nurse assessment with...

•2 years ago

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Today is a good day!

Cheers! Celebrating the cherished moments! We have had three good days in a row of swallowing; not perfect, but much better. I have made some changes in how I...

Cheers! Celebrating the cherished moments! We have had three good days in a row ...

•2 years ago

The PSP-CBD Ice Cream Challenge Day 30

Day 30 Tim... Unleashed Maple Crunch ice cream, strawberry, caramel and peanut butter toppings. I added to the mix whipped cream, Smucker's Chocolate Magic...

Day 30 Tim... Unleashed Maple Crunch ice cream, strawberry, caramel and peanut b...

•2 years ago

The PSP-CBD Ice Cream Challenge Day 29

Day 29 - Picking Strawberries Maple Crunch ice cream covered with strawberry tops and pieces. I made the picker from three different sized strawberries. The...

Day 29 - Picking Strawberries Maple Crunch ice cream covered with strawberry top...

•2 years ago

The PSP-CBD Ice Cream Challenge 2022 - Day 28

Day 28 - Salty Dawg Waffle bowl filled with vanilla bean ice cream, whipped cream, drizzled caramel syrup, and topped with peanuts, salted toffee chippets and...

Day 28 - Salty Dawg Waffle bowl filled with vanilla bean ice cream, whipped crea...

•2 years ago

The PSP-CBD Ice Cream Challenge 2022 Day 27

Day 27 - Hawaiian Delightbowl Waffle bowl filled with vanilla bean ice cream, banana slices, chunks of fresh pineapple, bbq pistachios and a drizzle of a rum...

Day 27 - Hawaiian Delightbowl Waffle bowl filled with vanilla bean ice cream, ba...

•2 years ago

The PSP-CBD Ice Cream Challenge 2022

Day 26 - Yummy and Yummier Yummy - Meringue nest, layered with sliced bananas, strawberries, drizzled caramel and vanilla bean ice cream topped strawberry...

Day 26 - Yummy and Yummier Yummy - Meringue nest, layered with sliced bananas, ...

•2 years ago

Suddenly developing allergies/angioedema/lip swelling?

Hello again, all, My husband's progression of disease has sped up over the last year--but the new wrinkle is suddenly developing new, fairly severe allergies....

Hello again, all, My husband's progression of disease has sped up over the last...

LostinHeadSpace

•2 years ago

The PSP-CBD Ice Cream Challenge

Day 25 - Double Brownie Delight for Two Decadently rich brownie, chocolate chips, Klondike bar, then layered with another brownie square, more chocolate...

Day 25 - Double Brownie Delight for Two Decadently rich brownie, chocolate chip...

•2 years ago

The inspiration behind Ed's Lace

You can now listen to Scott Smith, the creator of Ed's Lace, talk to the PSPA Podcast about the inspiration behind the fun awareness campaign. Scott’s grandad...

You can now listen to Scott Smith, the creator of Ed's Lace, talk to the PSPA Po...

Administrator•2 years ago

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Who qualifies for continuing health care (CHC).

Good Morning, My dad was diagnosed with CBD in May 2021 (symptoms began way before this). My mom is his full time carer. I help on my non working days. We...

Good Morning, My dad was diagnosed with CBD in May 2021 (symptoms began way bef...

•2 years ago

Swallowing has slowed down

I hope everyone is doing well - We have entered a new normal of significant challenge in swallowing this week. I am trying to come up with ideas of what to try...

I hope everyone is doing well - We have entered a new normal of significant chal...

•2 years ago

Getting outside help.

I am learning as I go. I don’t know how to go about finding help for my husband. Such as ,does he need a hospital bed? And other medical technique’s that...

I am learning as I go. I don’t know how to go about finding help for my husband...

•2 years ago

The PSP-CBD Ice Cream Challenge Day 24

Day 24 - Hot Sweet N' Salty Peanut Cluster Sundae A waffle bowl full of vanilla bean ice cream topped with hot sweet n' salty peanut cluster topping and a...

Day 24 - Hot Sweet N' Salty Peanut Cluster Sundae A waffle bowl full of vanilla...

•2 years ago

Wear Ed's Lace this PSP & CBD Awareness Week

PSP & CBD Awareness Week starts today! As part of our awareness-raising, we are asking our supporters to wear Ed’s Lace with pride to help start conversations...

PSP & CBD Awareness Week starts today! As part of our awareness-raising, we are ...

Administrator•2 years ago

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The PSP-CBD Ice Cream Challenge Day 21

Today marks the first unofficial day of summer, or as we Canuks call it, 24 (two-four) long weekend. Many Canuks will go camping over this time. So, in...

Today marks the first unofficial day of summer, or as we Canuks call it, 24 (tw...

•2 years ago

Diet and Feeding information for people with PSP

I posted this link in a question I asked recently and thought it deserved a post of its own. The link is to a .pdf document on the PSP society of Canada's...

I posted this link in a question I asked recently and thought it deserved a post...

•2 years ago

Transport A Scooter

Good morning everyone. We are considering purchasing a new vehicle, probably an SUV. I need help figuring out what type of carrier/ramp/lift would be best to...

Good morning everyone. We are considering purchasing a new vehicle, probably an ...

•2 years ago

The PSP-CBD Ice Cream Challenge Day 20

Day 20 - A Treat for Tony Vanilla bean ice cream, Smucker's chocolate magic shell and sprinkles. #icecreamchallengeforpspcbd Tim

Day 20 - A Treat for Tony Vanilla bean ice cream, Smucker's chocolate magic shel...

•2 years ago

The PSP-CBD Ice Cream Challenge

Day 19 - I'm Nuts About You Waffle Bowl, Vanilla bean ice cream, whipped cream, Brazil nuts, cashews, peanuts, almonds, filberts, pecans, walnuts pieces and...

Day 19 - I'm Nuts About You Waffle Bowl, Vanilla bean ice cream, whipped cream,...

•2 years ago

Any ideas to prompt chewing?

My wife has been finding it increasingly difficult to chew her food; her tongue does not always respond so the food does not get moved under the teeth, she...

My wife has been finding it increasingly difficult to chew her food; her tongue ...

•2 years ago

Ed's Lace now available to buy

Ed’s Lace are now available to purchase from the PSPA website shop! Snap up your Ed’s Lace, in purple or orange, so you can wear it with pride this PSP & CBD...

Ed’s Lace are now available to purchase from the PSPA website shop! Snap up your...

Administrator•2 years ago

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The PSP-CBD Ice Cream Challenge 2022 Bonus

Bonus Photo Tim

Bonus Photo Tim

•2 years ago

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The PSP-CBD Ice Cream Challenge Day 17

Day 17 - PB & J Nothing says classic like a peanut butter and jam sandwich. Vanilla bean ice cream bread, crushed graham wafer crust topped with peanut butter...

Day 17 - PB & J Nothing says classic like a peanut butter and jam sandwich. Vani...

•2 years ago

Praying for peace without understanding.

Hello, I have followed along on this forum for a couple of years now. You have brought tears to my eyes, a smile on my face and warmth to my heart. I read your...

Hello, I have followed along on this forum for a couple of years now. You have b...

•2 years ago

The PSP-CBD Ice Cream Challenge Day 16

Day 16 - Snap, Crackle and Pop Chicago Style The perfect snack... Vanilla bean ice cream layered between two halves of a Rice Krispie square. Topped with...

Day 16 - Snap, Crackle and Pop Chicago Style The perfect snack... Vanilla bean...

•2 years ago

Newly diagnosed: my husband was diagnosed 2 months ago with PSP and we cannot get into see the Chapel Hill Specialists. How can we get in?

My husband is declining quickly with PSP and local neurologist does not know anything about the disease. We have been trying to get in to Chapel Hill Neurology...

My husband is declining quickly with PSP and local neurologist does not know any...

•2 years ago

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