Posts - PSP Association | HealthUnlocked

PSP Association

9,382 members • 11,414 posts

All posts for November 2019

The PSP Chronicles Volume II Keep On, Keeping On

Soon to be published, my continued journey - The PSP Chronicles Volume II Keep On, Keeping On. As with Volume I, proceeds from Volume II and subsequent books...

Soon to be published, my continued journey - The PSP Chronicles Volume II Keep O...

•5 years ago

Ho-ho-ho

Too early? This is last year’s project

Too early? This is last year’s project

•5 years ago

Perfect Daily dose of JOY (Sam)

I wanted to share the daily dose of Sam, our 5 year old Newfoundland. He is such a daily dose of joy for my Mom. Newfies are known as the “gentle giant”, and...

I wanted to share the daily dose of Sam, our 5 year old Newfoundland. He is such...

•5 years ago

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Holly Berry Feast

A beautiful sunny frosty morning here and the holly berries are at their tastiest, have a constant stream of thrushes, blackbirds & redwings chasing each other...

A beautiful sunny frosty morning here and the holly berries are at their tasties...

•5 years ago

Chronic wasting and PSP

Has anyone heard of a mid stage psp patient getting cachexia (chronic wasting). My spouse who was diagnosed with PSP 2.5 years ago after being misdiagnosed...

Has anyone heard of a mid stage psp patient getting cachexia (chronic wasting). ...

•5 years ago

Pumpkin Roll Recipe

A couple of notes ... the pan does not have to be greased and floured; we used wax paper, and it works just fine. Jelly roll pan - is a small rectangular...

A couple of notes ... the pan does not have to be greased and floured; we used w...

•5 years ago

PSP- is fever a symptom?

Sandy was cold last night so I put an extra blanket on him, on top of the three blankets he already had. I just got up and he feels like he has a fever. He is...

Sandy was cold last night so I put an extra blanket on him, on top of the three ...

•5 years ago

Electronic hoist & Hospice arrived the same day

We were just getting started with Palliative Care and it was decided that we were better suited for Hospice. I had no idea we would qualify for Hospice this...

We were just getting started with Palliative Care and it was decided that we wer...

•5 years ago

Can I lick the spoon?

Cherished moments ... I love capturing moments like this with Mom! We finished her pumpkin rolls today, and she wanted to lick the spoon (beater)! After we...

Cherished moments ... I love capturing moments like this with Mom! We finished h...

•5 years ago

Red flags suggesting atypical parkinsonism disorders + treatment for these disorders (incl PSP, CBD)

In a recent issue of the “Handbook of Clinical Neurology,” a chapter is devoted to the four atypical parkinsonism disorders — dementia with Lewy bodies (DLB),...

In a recent issue of the “Handbook of Clinical Neurology,” a chapter is devoted ...

•5 years ago

Does anyone need some used home care equipment?

My wife died of CBD a couple of years ago and I have a number of small items of equipment I used when caring for her in the last weeks of her life (baby alarm,...

My wife died of CBD a couple of years ago and I have a number of small items of ...

•5 years ago

Counting the memories, not the calories! Momma is in the kitchen! Sweet Success!

Oh the joy of seeing my Mom in the kitchen over the years; always whipping up something wonderful to eat! My Moms house was a place that you did not visit...

Oh the joy of seeing my Mom in the kitchen over the years; always whipping up so...

•5 years ago

Depression

Husband suffering from PSP. Can still walk with walker and eat normally but is more and more depressed. No longer social or speaking much although he is...

Husband suffering from PSP. Can still walk with walker and eat normally but is ...

•5 years ago

Well heck..travelling the path again

Brief summary of past several months. My MIL got herself in a bit of a bind and moved in with us. I have suspected for a while something was "off" but her...

Brief summary of past several months. My MIL got herself in a bit of a bind and...

•5 years ago

Droning

That’s hubby wearing the hat and a neighbor who is helping to make memories and fulfill a wish. Beautiful sunshiny day and 45 degrees outside. It was a perfect...

That’s hubby wearing the hat and a neighbor who is helping to make memories and ...

•5 years ago

Rough Patch

Seems quite a few of our members are going through rough times as the holidays approach. Wife and I were driving home other night, she was driving, and mother...

Seems quite a few of our members are going through rough times as the holidays a...

•5 years ago

Doesn't want a PEG but getting one!?

My father was against getting a PEG when we discussed it with him in earlier stages of PSP. He was pretty much against everything to do with PSP and hospitals...

My father was against getting a PEG when we discussed it with him in earlier sta...

•5 years ago

Just having a bad time of it.

I keep saying I can't keep doing this ,it just feels like someone has a foot on the back of my neck . my husband who is now into his 11th year is definitely...

I keep saying I can't keep doing this ,it just feels like someone has a foot on ...

•5 years ago

Trouble Communicating

My husband is end stage PSP and under hospice care. He can no longer communicate verbally. He can still give a thumbs up but only occasionally. When I visit...

My husband is end stage PSP and under hospice care. He can no longer communicate...

•5 years ago

Feeding tube

Wondering if anyone else with a feeding tube has had experience they could share. My husband ( diagnosed with CBD in 2007) has had his since 2013. We have put...

Wondering if anyone else with a feeding tube has had experience they could share...

•5 years ago

Infection aftermath

It's been a pretty torrid last few weeks which have made me so appreciative of the great carers we have for Mum (the organisation of rotas may not always be...

It's been a pretty torrid last few weeks which have made me so appreciative of t...

•5 years ago

Wheelchair uncomfortable

My wife has had a major stroke and is now at home she is unable to walk or stand and has lost the use of her left side. She is hoisted out of bed and into the...

My wife has had a major stroke and is now at home she is unable to walk or stand...

•5 years ago

Easy to remove /put on cosy clothes for winter.

Dear All. My father is in the advanced stage of PSP and is increasingly stiff. It is getting harder and harder to dress him. I'm wondering if anyone can...

Dear All. My father is in the advanced stage of PSP and is increasingly stiff. ...

•5 years ago

Trouble going toilet

My dad who's got psp is having trouble going for a wee .he tried for a hour last night said could feel wanted to go but couldn't do it .wasn't until this...

My dad who's got psp is having trouble going for a wee .he tried for a hour last...

•5 years ago

Response to sexual urges

I suffered years of unreasonable behavour, verbal abuse, mood swings before my husband was diagnosed with this awful disease. Now PSP has took hold , mentally...

I suffered years of unreasonable behavour, verbal abuse, mood swings before my h...

•5 years ago

Making Memories!

I have been a member for over a year but have never written. However, I read the posts every day. My husband, 76, was DX with Parkinson's in January 2017 and...

I have been a member for over a year but have never written. However, I read th...

•5 years ago

Happy Birthday from so many...

I had posted on social media that I wanted to shower my Mom with birthday cards from friends and family ... she was overwhelmed with so many wishes!! She...

I had posted on social media that I wanted to shower my Mom with birthday cards ...

•5 years ago

CBD supplier to relieve the symptoms of stroke

I am looking for a CBD supplier to relieve the symptoms of stroke. Found a USA based supplier but they do not supply the UK....

I am looking for a CBD supplier to relieve the symptoms of stroke. Found a USA b...

•5 years ago

Sleep and disease progression.

A few weeks ago Dan began sleeping more. It turned out he had a UTI . He was put on an anti-biotic and got better . Now he is sleeping over 1/2 of the day....

A few weeks ago Dan began sleeping more. It turned out he had a UTI . He was p...

•5 years ago

Morning coffee

This bear is for someone who can’t function without their morning fix. She’ll be wearing a deep purple dress and a black apron as soon as I make it 😂. Blow...

This bear is for someone who can’t function without their morning fix. She’ll b...

•5 years ago

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