Posts - PSP Association | HealthUnlocked

PSP Association

9,962 members•11,768 posts

All posts for November 2021

PSP and Dementia

My husband (74) has had PSP for at least 7 years and has now been bedbound for the last 18 months. He is starting to show non PSP symptoms such as attacking...

My husband (74) has had PSP for at least 7 years and has now been bedbound for t...

•3 years ago

Deteriorating quickly with psp …is this normal?

I have experienced a rapid decline in the past month and was wondering if this has happened to anyone else.

I have experienced a rapid decline in the past month and was wondering if this h...

•3 years ago

USA Thanksgiving Day

My heart and soul are smiling today; so thankful for another year with my sweet Momma (Marlene). I reminisced with her today about all the years that prepared...

My heart and soul are smiling today; so thankful for another year with my sweet ...

•3 years ago

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PSPA Medical Alert Cards for PSP & CBD

Our Medical Alert Cards are handy to keep on your person at all times. Not only will they help others to better understand the symptoms you may be...

Our Medical Alert Cards are handy to keep on your person at all times. Not only ...

Administrator•3 years ago

PSP has taken my sister

My Sister never gave up. She went to exercise room everyday and was always out of bed in the activities room. Playing checkers and the nurses, aids and even...

My Sister never gave up. She went to exercise room everyday and was always out o...

•3 years ago

Reviews... not the same as ratings

A warm hello to readers and followers of my personal journey with early onset dementia and a rare terminal brain disease, PSP - progressive supranuclear palsy....

A warm hello to readers and followers of my personal journey with early onset de...

•3 years ago

PSPA's Newly Diagnosed Group

Our third group of newly diagnosed people will begin their monthly meetings tomorrow at 11am. During the meeting tomorrow, attendees will get the chance to...

Our third group of newly diagnosed people will begin their monthly meetings tomo...

Administrator•3 years ago

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Sleep disturbance in PSP

Can anyone advise on how to help disturbed sleep with PSP. My mum wakes 6-7 times in the night to get up and go to toilet and is very restless. My dad is main...

Can anyone advise on how to help disturbed sleep with PSP. My mum wakes 6-7 time...

•3 years ago

Sunday Football 🏈 Cheerleaders

Today was a special day of reminiscing … I bought us both our hometown team T-shirts, and told Mom we were going to watch the game and cheer the boys on. She...

Today was a special day of reminiscing … I bought us both our hometown team T-sh...

•3 years ago

Choking seizure

Good morning all, has anyone come across what looks like a mini seizure caused by choking/coughing. My mum has psp and her swallowing is declining but twice...

Good morning all, has anyone come across what looks like a mini seizure caused b...

•3 years ago

Dealing with extreme depression

Hi all, This is my first posting on here as my wife was diagnosed approx 2 months ago, but we're certain she had this condition unrecognised for years. The...

Hi all, This is my first posting on here as my wife was diagnosed approx 2 mont...

•3 years ago

Life

Hi everyone I hope you are all keeping as well as you can be. I have been off here for a while as I almost lost my son to covid on September 2nd . He was...

Hi everyone I hope you are all keeping as well as you can be. I have been off he...

•3 years ago

End Stage of PSP

What happens at the end stage of PSP? The doctor said that my mom has entered the end stage of PSP

What happens at the end stage of PSP? The doctor said that my mom has entered th...

•3 years ago

Share your experience of CBD

We understand how important it is to talk to and read about other peoples' experiences of CBD. To help ensure people living with CBD feel well supported, we...

We understand how important it is to talk to and read about other peoples' exper...

Administrator•3 years ago

Snowy Birthday

Our first snowfall in Ohio, and on Momma’s birthday! Here is a snapshot of our little Frosty the Snowman wishing Momma a Happy Birthday! Beautiful flower...

Our first snowfall in Ohio, and on Momma’s birthday! Here is a snapshot of our l...

•3 years ago

Happy Birthday Celebration!

Yesterday we celebrated another year with Momma! She was all smiles when the doorbell rang several times with birthday deliveries! Flowers, balloons,...

Yesterday we celebrated another year with Momma! She was all smiles when the doo...

•3 years ago

neck pain

My husband has PSP, for almost 7 years now. His progression has been a slow decline so far, but lately he is complaining of neck and shoulder pain at night...

My husband has PSP, for almost 7 years now. His progression has been a slow de...

•3 years ago

"I can't see"

My Mum has PSP (diagnosed in Dec 2019). She is frequently saying that she can't see. But if you ask her if she can see how many fingers you are holding up she...

My Mum has PSP (diagnosed in Dec 2019). She is frequently saying that she can't ...

•3 years ago

Pathology Report

Hello everyone, I received the pathology report on Jeff's brain yesterday. It showed he certainly had PSP, but an atypical type. They found pathology in parts...

Hello everyone, I received the pathology report on Jeff's brain yesterday. It sh...

•3 years ago

Nominate PSPA to be in with a chance of receiving £1,000

The Ecclesiastical Insurance Group is kindly running their 12 Days of Giving campaign again to give charities the chance of receiving a £1,000 donation. Could...

The Ecclesiastical Insurance Group is kindly running their 12 Days of Giving cam...

Administrator•3 years ago

Muscle spasms

My husband has just started having muscle spasms in his legs. He was diagnosed with PSP April. He is bed bound. Does anyone know of any kind of relief that...

My husband has just started having muscle spasms in his legs. He was diagnosed ...

•3 years ago

We call him Leo - Clenching Hands

I wanted to share something that has really made the clenching of Moms right hand a little better 😄 First, it helps that mom loves animal prints — I found...

I wanted to share something that has really made the clenching of Moms right han...

•3 years ago

PEG tube

My mother is getting more progression of the disease , she has malnutrition and her doctor is suggesting a PEG tube or a feeding tube. Did anyone passed the...

My mother is getting more progression of the disease , she has malnutrition and ...

•3 years ago

Massage Therapy

This has been such a beautiful experience for Mom. She is so relaxed … hands, arms, shoulders, legs, and her most favorite is her scalp. In-home therapist is...

This has been such a beautiful experience for Mom. She is so relaxed … hands, ar...

•3 years ago

Saturday Special

Momma loves bologna! I took her out today to get her flu shot …. And we started laughing at our love for bologna 🤣🤣🤣 I know this is random and silly … but...

Momma loves bologna! I took her out today to get her flu shot …. And we started ...

•3 years ago

Sudden return of speech.

My dad has a diagnosis of PSP and is currently in a care home. He has lost all mobility, is peg fed, finds it difficult to open his eyes and has not spoken...

My dad has a diagnosis of PSP and is currently in a care home. He has lost all m...

•3 years ago

The final sigh

My lovely dad finally succumbed to PSP today- pretty much two years to the day he was diagnosed. He had a sudden decline in his health on Monday and after four...

My lovely dad finally succumbed to PSP today- pretty much two years to the day h...

•3 years ago

craftygardener

I would like to know, how I can purchase Tim Brown's books. PSP Chronicles (trilogy) ? Can you please help .

I would like to know, how I can purchase Tim Brown's books. PSP Chronicles (tril...

•3 years ago

Bowel problems

My husband has PSP and alternates between very loose stools and bowel urgency/ incontinence, then no BM for 4-5 days. I think its a motility problem, not...

My husband has PSP and alternates between very loose stools and bowel urgency/ ...

•3 years ago

Belt for walking aid?

Hi all, Just a quick question. As my mum doesn't want to give up hope and put my dad in a wheelchair, I fear he his so close to falling. I wanted to know if...

Hi all, Just a quick question. As my mum doesn't want to give up hope and put m...

•3 years ago

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