Posts - PSP Association | HealthUnlocked

PSP Association

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All posts for August 2019

"Evaluating/Treating Urinary Issues in PD, CBD, etc" - Webinar Notes, Recording + Resources

Brain Support Network (brainsupportnetwork.org) and Stanford University co-hosted a webinar Friday, August 23, 2019 about “Evaluating and Treating Urinary...

Brain Support Network (brainsupportnetwork.org) and Stanford University co-hoste...

rriddle

•5 years ago

3 Replies

Nighttime meds?

If your spouse is sawing logs, do you wake them to administer their good night medication?

If your spouse is sawing logs, do you wake them to administer their good night m...

SewBears

•5 years ago

13 Replies

Sleepover & Breakfast with Grandma!

Mom goes to bed early (8:30 - 9:30 pm) ... she woke up this morning and was surprised by a couple of her grandkids and a full breakfast that they prepared for...

Mom goes to bed early (8:30 - 9:30 pm) ... she woke up this morning and was surp...

bazooka111

•5 years ago

9 Replies

Want to take advantage of all our features? Just log in!

Mum has CBD and now an electric wheelchair to promote independence but it’s not going well 😕

Mum now has an electric wheelchair, but her confidence to control it herself doesn’t seem to be getting any easier, is there help out there to train her up in...

Mum now has an electric wheelchair, but her confidence to control it herself doe...

MumwithCBD

•5 years ago

16 Replies

Routine visit with neurologist today - different diagnosis?

Sandy had his routine visit with the movement disorder specialist today. Didn't learn anything new. I'm always hoping someone will give us a prognosis. Once...

Sandy had his routine visit with the movement disorder specialist today. Didn't ...

journeyofjoy

•5 years ago

52 Replies

She is gone

My sister has passed away in her sleep this morning. She was diagnosed two years ago and was somewhere in the mid phase of the disease. She slept and never...

My sister has passed away in her sleep this morning. She was diagnosed two years...

PSPCarer

•5 years ago

85 Replies

You can't make this stuff up!

Please do not read if you are squeamish although I think most people on this site are pretty seasoned warriors when it comes to basic bodily functions. Had to...

Please do not read if you are squeamish although I think most people on this sit...

journeyofjoy

•5 years ago

42 Replies

Holiday

I have come on holiday with my daughter and family, I have had an amazing time, we started of in Spain and have driven down into Portugal, we have stayed in...

I have come on holiday with my daughter and family, I have had an amazing time, ...

Yvonneandgeorge

•5 years ago

35 Replies

Can’t cough

I can't cough when I need to and I have a cold. Is this a symptom of PSP?

Norsksue

•5 years ago

4 Replies

Help asap please

Hi I'm looking for some advice. My mum has CBD diagnosed almost 3 years ago She has poor mobility and has been told she cant walk without supervision. Last...

Hi I'm looking for some advice. My mum has CBD diagnosed almost 3 years ago She ...

Bobbiejo21

•5 years ago

6 Replies

Corny summer treat!

So this has been a wonderful kitchen activity for my sweet Momma - the bundt cake pan made all the difference in this activity; so much, that my Mom has asked...

So this has been a wonderful kitchen activity for my sweet Momma - the bundt cak...

bazooka111

•5 years ago

3 Replies

Red light therapy

Hello all Does anyone have any experience of red light therapy helmets please.

Hello all Does anyone have any experience of red light therapy helmets please. ...

Northstar1

•5 years ago

4 Replies

Hospice-ask your doctor and look into it.

Our neurologist recommended hospice for my husband in dec 2018. My father was dying and put off until now. We met, he was approved and I can’t tell you how...

Our neurologist recommended hospice for my husband in dec 2018. My father was dy...

susantigner

•5 years ago

6 Replies

Dog days ... all smiles

We spent the afternoon sitting outside and enjoying the summer breeze .. Sam our Newfoundland loves hanging close by and he brings great joy to Momma...

We spent the afternoon sitting outside and enjoying the summer breeze .. Sam our...

bazooka111

•5 years ago

2 Replies

Fast progressing PSP and overwhelmed - I am new here

My husband David was diagnosed with PSP on April 2nd, 2019, previously diagnosed with cognitive impairment in September 2018. Mobility problems began in...

My husband David was diagnosed with PSP on April 2nd, 2019, previously diagnosed...

Boutska

•5 years ago

22 Replies

Care homes

Has anyone had to cope with having a loved one go into a care home my beloved 92 year old my rock. Suddenly took a stroke now in a nursing home. He was so...

Has anyone had to cope with having a loved one go into a care home my beloved 92...

Brodiebrown

•5 years ago

4 Replies

PSP and Sleep

My dad has PSP and we are to the point now where he is having trouble sleeping almost nightly. I have read as much as I can and it doesn't look like there is...

My dad has PSP and we are to the point now where he is having trouble sleeping a...

DaughterSLC

•5 years ago

16 Replies

Deterioration??

I’m not sure whether anyone can help. My husband seems to have gone down hill recently. He is getting far more fatigued and also falling a lot more (four...

I’m not sure whether anyone can help. My husband seems to have gone down hill r...

Toddet

•5 years ago

20 Replies

Another bird.

What are the chances? After getting Larry showered I came downstairs to get a hot compress for his eyes. There was another Juvenile starling flying around in...

What are the chances? After getting Larry showered I came downstairs to get a h...

Hidden

•5 years ago

16 Replies

Genetic trsting

On August 14th my husband was tested for genetic component of FTD. He also has PSP AND CBD. My oldest son wants to know if he has to deal with this terrible...

On August 14th my husband was tested for genetic component of FTD. He also has P...

susantigner

•5 years ago

12 Replies

Palliative/Hospice Care Part 2 The Disaster.

Two weeks ago on Monday I got this odd robo call from the palliative/hospice care organization the primary care doctor recommended asking 5 questions. One...

Two weeks ago on Monday I got this odd robo call from the palliative/hospice car...

Hidden

•5 years ago

13 Replies

Deep vein thrombosis DVT

Feel really rude coming on here after been away so long, but have no one else to ask. Has anyone had any experience in DVT as I think this is what mum has....

Feel really rude coming on here after been away so long, but have no one else to...

Sarah1972

•5 years ago

8 Replies

WAV

I am looking for advice on wheelchair accessible vehicles. If anybody has an experience with upfront or in back?

I am looking for advice on wheelchair accessible vehicles. If anybody has an exp...

eurolynch

•5 years ago

10 Replies

Thursday

Got to sleep until 4:30 today. Got up exhausted. Walking into Larry’s bedroom. He was half on the floor holding a plastic urinal in his hands. He was trying to...

Got to sleep until 4:30 today. Got up exhausted. Walking into Larry’s bedroom. H...

Hidden

•5 years ago

104 Replies

Unconditional love

My heart goes out to all the patients who are suffering with this disease and to all the people in their lives who are caring for them. #unconditionallove. My...

My heart goes out to all the patients who are suffering with this disease and to...

K3ts55

•5 years ago

14 Replies

One more battle

Trying to make a claim on my life policy which includes terminal illness cover. What a nightmare seems I have the wrong type of terminal illness if I had...

Trying to make a claim on my life policy which includes terminal illness cover. ...

Kimmyliz12

•5 years ago

12 Replies

Sweet Success

Wow! I discovered a way to include my mom in a summer tradition of freezing sweet corn! I was really concerned about having her cut, but using the bundt cake...

Wow! I discovered a way to include my mom in a summer tradition of freezing swee...

bazooka111

•5 years ago

12 Replies

Made the trip outwest

Well....we survived the 10 day trip outwest. Mike fell only once, 2nd night in bathroom. Luckily, my brother and a friend who also went got him up. The tour...

Well....we survived the 10 day trip outwest. Mike fell only once, 2nd night in b...

mjtogether

•5 years ago

9 Replies

Morphine

Hi all. My dad has PSP and has been diagnosed earlier this year, in March. He was misdiagnosed with Parkinson’s for about 5 years prior to March. He’s in a...

Hi all. My dad has PSP and has been diagnosed earlier this year, in March. He wa...

Emilysmarties34

•5 years ago

11 Replies

Has anyone reduced their dosage of venlafaxine / effexor? I have decreases from 150mg to 75mg. What type of symptoms should I expect?

Hi, has anyone personally experienced or know someone who has reduced their dosage of venlafaxine / Effexor ( SNRIs- serotonin and norepinephrine reuptake...

Hi, has anyone personally experienced or know someone who has reduced their dosa...

moparkie715

•5 years ago

17 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for August 2019

"Evaluating/Treating Urinary Issues in PD, CBD, etc" - Webinar Notes, Recording + Resources

Nighttime meds?

Sleepover & Breakfast with Grandma!

Mum has CBD and now an electric wheelchair to promote independence but it’s not going well 😕

Routine visit with neurologist today - different diagnosis?

She is gone

You can't make this stuff up!

Holiday

Can’t cough

Help asap please

Corny summer treat!

Red light therapy

Hospice-ask your doctor and look into it.

Dog days ... all smiles

Fast progressing PSP and overwhelmed - I am new here

Care homes

PSP and Sleep

Deterioration??

Another bird.

Genetic trsting

Palliative/Hospice Care Part 2 The Disaster.

Deep vein thrombosis DVT

WAV

Thursday

Unconditional love

One more battle

Sweet Success

Made the trip outwest

Morphine

Has anyone reduced their dosage of venlafaxine / effexor? I have decreases from 150mg to 75mg. What type of symptoms should I expect?

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive