Posts - PSP Association | HealthUnlocked

PSP Association

9,232 members • 11,334 posts

All posts for February 2020

CBD confirmation

Not a good day yesterday. My CBD has been confirmed. I feel a bit confused. But that's how it is from now on I guess.

Not a good day yesterday. My CBD has been confirmed. I feel a bit confused. But ...

•4 years ago

Today

We had doctors appointment today we had to get up at 6 am and then leave our house at 7 to be at the dr by 8. Get 15 minutes from the office and my husband...

We had doctors appointment today we had to get up at 6 am and then leave our hou...

•4 years ago

Medications causing severe side effects PSP need ideas for non medical alternatives

Hello All, My sister, 68, has mid stage PSP diagnosed in October, 2019. She is having toxic reactions to antidepressants, Wellbutrin, Mirtzapine, Cymbalta....

Hello All, My sister, 68, has mid stage PSP diagnosed in October, 2019. She is h...

•4 years ago

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Disabled facilities grant

Hi all Does anyone have any experience of of this grant application and the thresholds of income/savings please. Many thanks

Hi all Does anyone have any experience of of this grant application and the thre...

•4 years ago

On the road again ...

Mom got invited to a 50th Wedding Anniversary party for a cousin she hasn’t seen in years ... and it happens to be in Florida! So.. I looked at Momma and...

Mom got invited to a 50th Wedding Anniversary party for a cousin she hasn’t seen...

•4 years ago

Life with PSP

It is so exhausting, on Monday Rick fell while trying to pick up some crackers luckily it was just a small fall. Then he fell out of bed the next day, and then...

It is so exhausting, on Monday Rick fell while trying to pick up some crackers l...

•4 years ago

Cost of home care

New to this board. My dad is in mid stag3s of PSP — he is currently in an assisted living facility that used to be a school so it just is not equipped to...

New to this board. My dad is in mid stag3s of PSP — he is currently in an assis...

•4 years ago

Irish PSP suffers are you aware of PSP Association in Ireland?

Very supportive and local knowledge which is very important - contact them and become a member for 20 euro per year. See website pspaireland.ie

Very supportive and local knowledge which is very important - contact them and b...

•4 years ago

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How do you describe your PSP or CBD?

Do you say it is a Neurological condition or a Rare brain disease

Do you say it is a Neurological condition or a Rare brain disease

Administrator•4 years ago

IRELAND - nursing home care - Seeking recommendations and advice Midlands/Mullingar possibly Dublin area.

I am wondering if there are any members on this platform who have experience of care homes in Ireland they can recommend for individuals with advanced PSP? My...

I am wondering if there are any members on this platform who have experience of ...

•4 years ago

Special specs

Prism glasses are a great aid for people living with PSP who experience visual problems. In particular, if you have difficulties looking up or down, the prisms...

Prism glasses are a great aid for people living with PSP who experience visual p...

Administrator•4 years ago

Hallucinations

My husband is recently on a feeding tube following a hospital stint brought on by an outside catalyst ( removal of amantadine with movement disorder...

My husband is recently on a feeding tube following a hospital stint brought on b...

•4 years ago

No letter of condolence from neurologist.

Has anyone received a letter or phone call from the movement disorder specialist after losing your loved one? Different people walk this journey with us as we...

Has anyone received a letter or phone call from the movement disorder specialist...

•4 years ago

Cure for Parkinson

Today's news is that it person with advanced Parkinson has been cured completely at Nanavati Hospital, Mumbai, India. As per the news clippings, the patient...

Today's news is that it person with advanced Parkinson has been cured completely...

•4 years ago

LOCAL GROUP CANCELLATIONS

Unfortunately, the County Durham Local Group meeting today has been cancelled due to the weather. The next meeting will take place on 6 April. The Northampton...

Unfortunately, the County Durham Local Group meeting today has been cancelled du...

Administrator•4 years ago

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A beautiful moment... must share!

My hubby and I were able to get out tonight and celebrate our 29th wedding anniversary! He has been incredibly supportive these past two years, as I care for...

My hubby and I were able to get out tonight and celebrate our 29th wedding anniv...

•4 years ago

Better get Karma points

I was heading up a canyon road to a trail head so I could snowshoe. It is basically a 1 lane gravel road and it does not get plowed in the winter. I was...

I was heading up a canyon road to a trail head so I could snowshoe. It is basic...

•4 years ago

29 Years ago today ...

Today my husband and I celebrate 29 years of marriage, and I found this beautiful picture of sweet Momma and I on my wedding day! Look how absolutely beautiful...

Today my husband and I celebrate 29 years of marriage, and I found this beautifu...

•4 years ago

Reflections on a PSP journey

I've been a member of this community since my husband, Tony, was finally diagnosed with PSP a year ago - but haven't posted any messages until now. Sadly Tony...

I've been a member of this community since my husband, Tony, was finally diagnos...

•4 years ago

Child hugs are the best

I love this picture! Mom absolutely comes alive when she is around any of her grandchildren ... All smiles!

I love this picture! Mom absolutely comes alive when she is around any of her gr...

•4 years ago

Local Group Co-ordinator wanted

We've established a need for a local group in the Newbury area. We have a lovely venue lined up and lots of people interested in attending, but currently no...

We've established a need for a local group in the Newbury area. We have a lovel...

Administrator•4 years ago

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Pulmonary Embolism

I have only just joined this fabulous forum as my husband has sadly been diagnosed with PSP. Sadly on Tuesday I had to take him to A&E as he had a severe...

I have only just joined this fabulous forum as my husband has sadly been diagnos...

•4 years ago

Mum has lost her battle

Sadly mum lost her battle with this horrible disease on Tuesday morning, she became very poorly on Thursday evening and taken into hospital. The pneumonia was...

Sadly mum lost her battle with this horrible disease on Tuesday morning, she bec...

•4 years ago

Multiple Family Members with PSP

Does anyone else have multiple family members with PSP? My grandfather was diagnosed with Parkinson’s but looking back it was probably PSP, my father has been...

Does anyone else have multiple family members with PSP? My grandfather was diag...

•4 years ago

John

Just thought I would like to let everyone know that John lost his battle with PSP last evening. At least he is free of this terrible disease. He was so...

Just thought I would like to let everyone know that John lost his battle with PS...

•4 years ago

Morning Pillow Talk

So this is just funny, I thought I would share with my fellow Gladiators! This morning, early before sunrise, I woke up before Mom and had to go to the...

So this is just funny, I thought I would share with my fellow Gladiators! This m...

•4 years ago

Azp2006 Trials

Has anyone been to the azp2006 clinical trials for PSP? Just wanted to get information if at all there is any light at the end of the tunnel...

Has anyone been to the azp2006 clinical trials for PSP? Just wanted to get infor...

•4 years ago

Me again... progression with mum

Hi all It’s been a while since I wrote. Previously I have mentioned how I have struggled with my mum not being mum anymore and having a pending wedding coming...

Hi all It’s been a while since I wrote. Previously I have mentioned how I have ...

•4 years ago

Scotland Family and Friends Day Cancelled

Today we have made the difficult decision to cancel the Family and Friends Day due to take place on 14 March in Scotland. Unfortunately, not enough people...

Today we have made the difficult decision to cancel the Family and Friends Day d...

Administrator•4 years ago

Hard Day

Today we are reminded that it has been 3 years since my Dad passed away, after an 18 month fight of colon cancer. Momma wanted to take flowers to the cemetery...

Today we are reminded that it has been 3 years since my Dad passed away, after a...

•4 years ago

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