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PSP Association

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All posts for October 2013

Article by our neurologist at the university of Florida about PSP

Just thought I'd share this article by our neurologist (we really like him). It is about PSP and informative. Here's the link....

Just thought I'd share this article by our neurologist (we really like him). It...

jimandsharynp

•10 years ago

20 Replies

has anybody come across violence in PSP eg puinching?

Hidden

•10 years ago

15 Replies

Has anyone had any success with vitamins and supplements. My husband is 54 and just been diagnosed in January of this year.

He has chose to get off most of his medicines and go the natural way. He is already using a cane and having difficulty swallowing. This is so upsetting to...

He has chose to get off most of his medicines and go the natural way. He is alr...

terrirt

•10 years ago

4 Replies

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PSP Association Family and Friends Day on Saturday 9 November 2013

The PSP Association’s Family and Friends Day will be on Saturday, 9 November 2013 at The Weald of Kent Hotel, Maidstone Road, Headcorn, Kent, TN27 9PT...

The PSP Association’s Family and Friends Day will be on Saturday, 9 November 201...

PSPA_Sharon

•10 years ago

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My niece has set this up for us ,We have not set our dates for travel I'm thinking early 2014.Lots to do in the mean time.Please let me know if you think I...

My niece has set this up for us ,We have not set our dates for travel I'm thinki...

deew

•10 years ago

6 Replies

Do you have members in south africa i live in cape town and would like to start a group that can meet up///.. whisperer

whisperer

•10 years ago

2 Replies

Hi everyone Well dad still hanging on they said 48 hours it's been 5 days the pain and anguish sitting at his bedside is just too hard

to put into words, he's not going without a fight,just hope it's not much longer now don't think his tiny little body can take much more. A big thank you for...

to put into words, he's not going without a fight,just hope it's not much longe...

mrsfarringdon

•10 years ago

22 Replies

Time to Live

Made a bold move today,We bought a motor home (new to us) and are going to do some traveling while my husband is still able.I have never drove a large motor...

Made a bold move today,We bought a motor home (new to us) and are going to do so...

deew

•10 years ago

23 Replies

"One year without falls........BUT"

On this day last year my wife fell. Fractured T12 vertebra. In a brace for 3 months. Resulted in me assisting in every transfer 24/7 from that time on....

On this day last year my wife fell. Fractured T12 vertebra. In a brace for 3 mon...

Hidden

•10 years ago

12 Replies

Ongoing painful constipation with diarrhoea -what can we do? Has anyone else suffered from this?

My dad is in the late stage of psp - he is fed by a tube through his nose and cannot move. Since August he has spent time in n out of hospital due to painful...

My dad is in the late stage of psp - he is fed by a tube through his nose and ca...

Jean_

•10 years ago

13 Replies

My darling dad is finally free of PSP. Another angel is watching down over me.

Yesterday morning at 4.50am dad took his last breaths surrounded by his loving family. I'm absolutely heartbroken. I can't say much right now but I know he's...

Yesterday morning at 4.50am dad took his last breaths surrounded by his loving f...

groovychick

•10 years ago

26 Replies

Hi everyone Sadly dad in hospital only been given 48 hours max ,another one taken by this horrible disease. He was only diagnosed

18 months ago with Parkinson but the last year with p s p .Sitting here at his bedside looking at his tiny little body it's hard to believe he was a big...

18 months ago with Parkinson but the last year with p s p .Sitting here at hi...

mrsfarringdon

•10 years ago

13 Replies

Ear Infection - psp

Did anyone with psp ever complain of pain inside their ears similar to an ear infection? The doctors have looked in the ear but there is no infection.

Did anyone with psp ever complain of pain inside their ears similar to an ear in...

mcfly

•11 years ago

8 Replies

Has anyone tried Pernaton Gel for stiffness?

I recently heard of this UK product and since my husband seems to be increasing his stiffness, I am curious if anyone with PSP has tried it. I gather it is an...

I recently heard of this UK product and since my husband seems to be increasing ...

Christine47

•11 years ago

7 Replies

Mum diagnosed a few weeks ago

Hi. I'm the main carer for my 76yr old mum who has PSP. My dad looks after at the weekends but doesn't watch her like I do and he is a bit hard of hearing so...

Hi. I'm the main carer for my 76yr old mum who has PSP. My dad looks after at th...

lindsey48

•11 years ago

14 Replies

PSP Information Cards

I bought PSP information cards and have nine of them to give to someone who would like them. I am in the US and will drop them in the mail to whomever feels...

I bought PSP information cards and have nine of them to give to someone who woul...

Sugardart

•11 years ago

14 Replies

Is anyone suspicious of Requip actually causing PSP?

I have been watching my neighbor struggle with several diseases. The first was hydroencephalitis from which she fought back bravely. She was doing amazingly...

I have been watching my neighbor struggle with several diseases. The first was ...

sally1117

•11 years ago

13 Replies

Father recently diagnosed, where do I Start in helping him to get the best care?

Hello I have never posted before but have been reading posts for the last month or so. After 18 months of neurologist visits my father has been finally...

Hello I have never posted before but have been reading posts for the last month ...

Didalju

•11 years ago

12 Replies

Pycossis

Hi my mother has been complaining about seeing ghosts which are trying to hurt her.This is one of the reasons she trys to move around away from them, causing...

Hi my mother has been complaining about seeing ghosts which are trying to hurt h...

wendal

•11 years ago

10 Replies

what website do I go to to find out about turmeric

MOMBCD1

•11 years ago

1 Reply

Hi the buffet is ready 4 brunch !k Jill :-)

So where mr u all

jillannf6

•11 years ago

7 Replies

R u there .? Plea se get up and come on the site Tothe party

jillannf6

•11 years ago

1 Reply

Online party tis Now at a11-am

R unready or not for this my2nd go at a party ,! So what music do u want ? Lol Jilll :-)

R unready or not for this my2nd go at a party ,! So what music do u want ? L...

jillannf6

•11 years ago

2 Replies

What great news for psp.

http://m.bbc.co.uk/news/health-24462699

daughter_Julie

•11 years ago

10 Replies

My eyes are very sore all the time. My eye doctor says I don't blink enough. Has anyone found drops that work - I have tried the tear drops.

LyndaEllis

•11 years ago

17 Replies

Tumeric tablets help my father with psp

My father is 67 years old and was diagnosed with PSP 2 1/2 years ago but has had the illness for sometime prior to this but it took them a while to diagnose....

My father is 67 years old and was diagnosed with PSP 2 1/2 years ago but has had...

dnl_46

•11 years ago

36 Replies

My husband's PSP is in the last stages. Eyes, speech, wheelchair bound,swallowing etc. weighs less than 100 lbs. He was put in a nursing

home when I had a ruptured appendix. He has been there for 3 mo. & I was thinking about bringing him back home as he has been getting worse & I don't want to...

home when I had a ruptured appendix. He has been there for 3 mo. & I was thinki...

annielee1

•11 years ago

6 Replies

Suggestions on dealing with the coughing fits each evening and night caused by saliva slipping down the patient's windpipe.

My brother-in-law Victor has PSP, and I do what I can to support my sister. Victor is in quite an advanced state of the disease, being totally immobile, on a...

My brother-in-law Victor has PSP, and I do what I can to support my sister. Vic...

MelvynS

•11 years ago

18 Replies

My mom was diagnosed in 2010 but had symptoms for several years. She' s 85 and has been in a nursing home since March 2013.

She has the typical symptoms: no eye movement , wheelchair, trouble swallowing.

Marykayrenaud

•11 years ago

6 Replies

An online party.?? As at October now so when will it happen .? Next w/end ok?

on 13 October to accommodate our Aussiefriends and 1400 our time O900 their time so Alana, Peter -__andalll.r u ready for it..? Lol Jill :-)

on 13 October to accommodate our Aussiefriends and 1400 our time O900 their t...

jillannf6

•11 years ago

12 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for October 2013

Article by our neurologist at the university of Florida about PSP

has anybody come across violence in PSP eg puinching?

Has anyone had any success with vitamins and supplements. My husband is 54 and just been diagnosed in January of this year.

PSP Association Family and Friends Day on Saturday 9 November 2013

Our blog

Do you have members in south africa i live in cape town and would like to start a group that can meet up///.. whisperer

Hi everyone Well dad still hanging on they said 48 hours it's been 5 days the pain and anguish sitting at his bedside is just too hard

Time to Live

"One year without falls........BUT"

Ongoing painful constipation with diarrhoea -what can we do? Has anyone else suffered from this?

My darling dad is finally free of PSP. Another angel is watching down over me.

Hi everyone Sadly dad in hospital only been given 48 hours max ,another one taken by this horrible disease. He was only diagnosed

Ear Infection - psp

Has anyone tried Pernaton Gel for stiffness?

Mum diagnosed a few weeks ago

PSP Information Cards

Is anyone suspicious of Requip actually causing PSP?

Father recently diagnosed, where do I Start in helping him to get the best care?

Pycossis

what website do I go to to find out about turmeric

Hi the buffet is ready 4 brunch !k Jill :-)

R u there .? Plea se get up and come on the site Tothe party

Online party tis Now at a11-am

What great news for psp.

My eyes are very sore all the time. My eye doctor says I don't blink enough. Has anyone found drops that work - I have tried the tear drops.

Tumeric tablets help my father with psp

My husband's PSP is in the last stages. Eyes, speech, wheelchair bound,swallowing etc. weighs less than 100 lbs. He was put in a nursing

Suggestions on dealing with the coughing fits each evening and night caused by saliva slipping down the patient's windpipe.

My mom was diagnosed in 2010 but had symptoms for several years. She' s 85 and has been in a nursing home since March 2013.

An online party.?? As at October now so when will it happen .? Next w/end ok?

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive