Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for October 2012

This is about head support systems especially in a wheelchair. Neck collar has been tried but does not work.

My wife is confined to bed/chair but can be transferred to wheelchair using full hoist. She cannot support her head upright. Might a Savant headrest help? I...

My wife is confined to bed/chair but can be transferred to wheelchair using full...

•12 years ago

Psp pueomia in last stages

My dad has Psp and has been diagnosed over 4 years ago. He is 70 years old He is at the last stage of Psp and currently he is in hospital due to pueomia. My...

My dad has Psp and has been diagnosed over 4 years ago. He is 70 years old He i...

•12 years ago

Carers Information Pack

Mum has to go into hospital in a couple of weeks for a minor procedure so yesterday I downloaded the Carers Infromation Pack from the PSPA website so that I...

Mum has to go into hospital in a couple of weeks for a minor procedure so yester...

•12 years ago

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I don't want to complain but........

Actually I think it's really important to complain when things go wrong. We have had huge problems with the District Nursing service, which caused untold...

Actually I think it's really important to complain when things go wrong. We have...

•12 years ago

I would like to hear from all people who are dizzy. I am so dizzy that I spend the day in bed because I feel okay when I am lying down.

•12 years ago

Dublin Support Group

The Dublin Support Group will take place on Tuesday 6th November 2012 from 12.00 hours to 14.00 hours in Mater Misericordiae University Hospital, Centre for...

The Dublin Support Group will take place on Tuesday 6th November 2012 from 12.00...

Partner•12 years ago

attempting to stand

The staff at the nursing home are having a problem with Frank in the afternoons after lunch, when he is seated in the armchair in the lounge. He WILL attempt...

The staff at the nursing home are having a problem with Frank in the afternoons ...

•12 years ago

Carlisle Support Group

The next Carlisle Support Group meeting will take place on Monday 5th November 2012 from 1.30pm – 3.30pm at Day Hospice, Eden Valley Hospice, Durdar Road,...

The next Carlisle Support Group meeting will take place on Monday 5th November 2...

Partner•12 years ago

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Glasgow Support Group

The next Glasgow Support Group meeting will take place on Monday 5th November 2012 from 13.30 – 15.30 at The Beardmore Hotel and Conference Centre, Beardmore...

The next Glasgow Support Group meeting will take place on Monday 5th November 20...

Partner•12 years ago

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Norwich Support Group

The next Norwich PSPA Support Group meetings will take place from 11.00 to 13.00 at Stoke Mill Restaurant, Mill Road, Stoke Holy Cross, Norwich, Norfolk, NR14...

The next Norwich PSPA Support Group meetings will take place from 11.00 to 13.00...

Partner•12 years ago

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Brentwood Support Group

The next Brentwood meetings will be from 2.30pm at The Marillac, Eagle Way, Warley, Brentwood, Essex, CM13 3BL. (http://goo.gl/maps/P3Eu), on Saturday 27th...

The next Brentwood meetings will be from 2.30pm at The Marillac, Eagle Way, Warl...

Partner•12 years ago

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Antrim Support Group

Doris Mason and Fiona McLaughlin, will be facilitating at a new PSPA Support Group in North Antrim on Wednesday, 24th October 2012 from 1pm – 3pm in The Tweed...

Doris Mason and Fiona McLaughlin, will be facilitating at a new PSPA Support Gro...

Partner•12 years ago

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why there is a complete personality change and why he does only does the oppsite of what is told to him

My husband is dignosed having PSP since March 2010 Dr is of the opinion that we have not noticed the changes earlier as he did not show his inability or he...

My husband is dignosed having PSP since March 2010 Dr is of the opinion that we ...

•12 years ago

Continuing Care Saga

Hi Everyone, Thanks for all your blogs , the support and encouragement. WELL, not good news. The social worker? interviewed my sister and she started to fill...

Hi Everyone, Thanks for all your blogs , the support and encouragement. WELL, n...

•12 years ago

Do anti depressants work for PSP patients?

I'm sure I have read somewhere on here that anti depressants can work for people with psp? My Mum is now confined to her lounge in her chair all day, walking...

I'm sure I have read somewhere on here that anti depressants can work for people...

•12 years ago

Continuing Care

Hi Everyone, Have read all your blogs about the problems getting continuing care. I have been trying on behalf of my sister. Our meeting when a decision...

Hi Everyone, Have read all your blogs about the problems getting continuing c...

•12 years ago

Bromley Symphony Players success

I am really pleased to say that Bromley Symphony Players raised a total of £354 for the PSP Association last Saturday. Not quite as much as Seb Coe but every...

I am really pleased to say that Bromley Symphony Players raised a total of £354 ...

•12 years ago

Support for Sir Sebastian Coe for the Progressive Nuclear Palsy Association

I welcome his invaluable intervention. In theses days a high profile is needed to attract attention. It is good that because of his eminence in the sporting...

I welcome his invaluable intervention. In theses days a high profile is needed t...

•12 years ago

RESPITE CARE IN NORTHERN IRELAND

I would be very grateful if someone could advise me care homes in County Antrim. My mother-in-law needs to go in for respite care, would any of them have...

I would be very grateful if someone could advise me care homes in County Antrim....

•12 years ago

Warrington Support Group - CANCELLED

PLEASE NOTE: The Warrington Support Group on Thursday 8th November 2012 at Fairfield and Howley Neighbourhood Project, Fairfield Street, Warrington, WA1 3AJ...

PLEASE NOTE: The Warrington Support Group on Thursday 8th November 2012 at Fairf...

Partner•12 years ago

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The HelterSkelter

You've climbed to the top of life's helterskelter, You are sitting and watching, Enjoying the view. A nudge from behind sends you off on a journey. Quite...

You've climbed to the top of life's helterskelter, You are sitting and watching...

•12 years ago

Anyone experienced Shingles on top of PSP?

What treatment did you experience with Shingles and was it successful?

What treatment did you experience with Shingles and was it successful?

•12 years ago

Sir Sebastion Coe

Read in the Birmingham Evening Mail that Seb is trying to raise awareness of this terrible illness because his MUM who died in 2005 had the disease. If he can...

Read in the Birmingham Evening Mail that Seb is trying to raise awareness of thi...

•12 years ago

Any support Groups around Sussex (Gatwick area) because Parkinson's group is no help!

Hi, My dad has PSP. He is very unsteady on his feet and walks with a frame but he does fall over a lot. My dad Ian lives in a town called East Grinstead about...

Hi, My dad has PSP. He is very unsteady on his feet and walks with a frame but h...

•12 years ago

Continuing Care Brickwall

My husband was admitted for long term nursing care to a place for ex military at the beginning of September. His PSP, diagnosed in October 2010, has done what...

My husband was admitted for long term nursing care to a place for ex military at...

•12 years ago

Tired yet, this is not an uplifting post

Anyone tired of being positive, hearing it will be o.k., how do you feel, one more test, hospitals, medications, frustrations, lack of money, tired, worn...

Anyone tired of being positive, hearing it will be o.k., how do you feel, one m...

•12 years ago

continuing care

I am happy that members are being granted continuing care. I feel as though I am drowning in information but no results with anything. I was told this month...

I am happy that members are being granted continuing care. I feel as though I a...

•12 years ago

Thank you all

I always read your blogs and questions so thank you everyone for taking the time to put your feelings and advice on this site. It is sad to know we are not...

I always read your blogs and questions so thank you everyone for taking the time...

•12 years ago

3rd month after death

I am in the third month after my beloved one's death. I got through the illness, I got through the hospital, I got through watching him die and taking care of...

I am in the third month after my beloved one's death. I got through the illness...

•12 years ago

Message for Ray Wiffen

Hi Ray, now are you doing? Haven't seen you for a while at Brentwood Support group and just wondering how things were. Liz and I have missed you. Hope you...

Hi Ray, now are you doing? Haven't seen you for a while at Brentwood Support gr...

•12 years ago

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