Posts - PSP Association | HealthUnlocked

PSP Association

9,252 members • 11,348 posts

All posts for October 2016

Six hours of freedom !!

Today I had six glorious hours of freedom . As some of you may know I am an antique dealer , although I have done precious little dealing over...

Today I had six glorious hours of freedom . As some of you may know I a...

•7 years ago

Following on from the choking on tea

Is this normal, F does not have his liquids thickened, although he gurgles like the bath water going down, thickener has been prescribed and is on standby, he...

Is this normal, F does not have his liquids thickened, although he gurgles like ...

•7 years ago

Choking after drinking tea

My husband coughed and coughed until he was red in the face this evening. He had just finished a cup of tea. Luckily my daughter arrived then as she was...

My husband coughed and coughed until he was red in the face this evening. He ha...

•7 years ago

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Marie Curie - any use?

I would be interested to hear if others have used Marie Curie nurses at a late stage of CBD. I have asked my parents' gp to refer them and am really hoping...

I would be interested to hear if others have used Marie Curie nurses at a late s...

•7 years ago

Nerve Support Product from Real Health Products (a combination of Benfotiamine - Vitamin B1 and Methylcobalamin - Vitamin B12)

I received this mail about their Nerve Support Product from RealHealth Products: " Our Nerve Support products are nutritional supplements that are...

I received this mail about their Nerve Support Product from RealHealth Products:...

•7 years ago

Mum

Mum had a weird episode last night was confused just for a short while and her eyes rolled to the top of her head, no temperature her oxygen levels are only 79...

Mum had a weird episode last night was confused just for a short while and her e...

•7 years ago

Thinking about starting a support group

Hi there my wonderful support group. I must admit, that although I do not always respond to things that are written on this site, I usually read everything,...

Hi there my wonderful support group. I must admit, that although I do not alway...

•7 years ago

Blue badge eligability

i have just turned 65 and have severe arthhritis in my ankle which requires surgey i am still working and do not claim any benefits can i get a blue badge to...

i have just turned 65 and have severe arthhritis in my ankle which requires surg...

•7 years ago

An Inkling

Charles is asking for Hospice. We are investigating. Today he was feeling poorly and the carefiver has just called me but he wanted to stay home. I'm at...

Charles is asking for Hospice. We are investigating. Today he was feeling poor...

•7 years ago

PEG advice advantage/disadvantage

Hello everyone, I know you talked before about the PEG but I need to know how was/is your experience with the PEG? My father's doctor is saying that the PEG...

Hello everyone, I know you talked before about the PEG but I need to know how wa...

•7 years ago

Surviving!

Hi All. How are all of you holding up? Those who are where I am (having recently lost the ones they love), and those of you in the trenches (dealing with...

Hi All. How are all of you holding up? Those who are where I am (having recentl...

•7 years ago

Sleeping

Can anyone recommend a sleeping pill that works ? Mum just can't sleep ! Thank you x

Can anyone recommend a sleeping pill that works ? Mum just can't sleep ! Thank...

•7 years ago

PSP Support Groups

Has anyone been to the psp support groups? If so did you find them useful? The nearest one to me in Wales (2 hrs away) has its first meeting on the weekend and...

Has anyone been to the psp support groups? If so did you find them useful? The n...

•7 years ago

Totally Overwhelmed!

I am totally overwhelmed by all the lovely moving posts I have received from so many of you. I apologise for not replying to you all personally which I really...

I am totally overwhelmed by all the lovely moving posts I have received from so ...

•8 years ago

Psp

My mother finds difficult to eat. She takes 2 hours to eat one roti that also semi solid, and she also find difficult to pass a urine

My mother finds difficult to eat. She takes 2 hours to eat one roti that also se...

•8 years ago

If Only.........

I have just come across this PSP Association site and read with tears in my eyes. I lost my dear Mum 18 months ago and have just been sorting out old medical...

I have just come across this PSP Association site and read with tears in my eyes...

•8 years ago

Rog

My dear cyber friends Your prayers please to whoever is your God for my brave, uncomplaining dearest man. Very very ill with septaceamia from a brutal...

My dear cyber friends Your prayers please to whoever is your God for my brave, ...

•8 years ago

Info and support dealing with CBD

Hi,I am the sister of Scottie1960.She recommended I also join the site to find out info on this terrible disease. Some of your comments however hard to read...

Hi,I am the sister of Scottie1960.She recommended I also join the site to find o...

•8 years ago

Not again

Do you think someone out there doesn't like me, George been agitated all the afternoon, doctor just left, he has a chest infection again, feeling totally fed...

Do you think someone out there doesn't like me, George been agitated all the aft...

Yvonneandgeorge

•8 years ago

Advice on CBD Please

Hi, I am new to the forum and can cope with anything as long as I know about it. My sister aged 57 has been diagnosed with CBD, it's taken over 2 years to get...

Hi, I am new to the forum and can cope with anything as long as I know about it....

•8 years ago

Impcrovement

How soon after diagnosis which comes after falling often do the symptoms get really bad? I was diagnosed over a year ago and so far vision therapy has improved...

How soon after diagnosis which comes after falling often do the symptoms get rea...

•8 years ago

I cry.

As I sit here at 2 am, with dad, S., and Gracie fast asleep, have read everybodies post about recently losing your loved ones, I cry for all of you. After...

As I sit here at 2 am, with dad, S., and Gracie fast asleep, have read everybodi...

•8 years ago

My darling has finally left me.

Colin finally went peacefully this evening. I have been with him 24 hours a day, "sleeping" on a chair beside him for the last 13 nights. This evening I sat...

Colin finally went peacefully this evening. I have been with him 24 hours a da...

•8 years ago

Feeling confused

Well George is much better, but he has turned into this horrible person, he is being really horrible to me, say I made him sick, that I don't care about him,...

Well George is much better, but he has turned into this horrible person, he is b...

Yvonneandgeorge

•8 years ago

worried

hi everyone. my dad has been in hospital the last month with infections. He's in the advanced stages of psp. Two days ago we could still walk him to the...

hi everyone. my dad has been in hospital the last month with infections. He's in...

•8 years ago

SENT D BACK TO REHAB

HE WAS GETTING WORSE AND WORSE EVERY DAY, HAD NO CHOICE. COULD NOT GET ANY MORE HELP. CHOKING ON HIS FLUIDS AND HIS PILLS. DID NOT WANT TO EAT MUCH OF...

HE WAS GETTING WORSE AND WORSE EVERY DAY, HAD NO CHOICE. COULD NOT GET ANY MORE ...

•8 years ago

Belated picture

•8 years ago

What a Day

I met with some old friends this morning, that I'd not fallen out with, but sort of lost touch with, but sympathetic friends, so good, also viewed a house,...

I met with some old friends this morning, that I'd not fallen out with, but sort...

•8 years ago

Never a dull moment

Wednesday ,the seventh catheter night , now that really sounds like a Swedish movie " THE NIGHT OF THE SEVENTH CATHETER " was eventful in more ways...

Wednesday ,the seventh catheter night , now that really sounds like a Swed...

•8 years ago

UN here we come!

Reading all our posts, don't you think we ought to offer our joint services to the UN? Between us, I am positive we could sort out a lot of the world's...

Reading all our posts, don't you think we ought to offer our joint services to t...

•8 years ago

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