Posts - PSP Association | HealthUnlocked

PSP Association

9,625 members•11,552 posts

All posts for October 2018

Halloween greetings.....pre-PSP gig....2nd try.

I did it!!! This is the missing photo.

I did it!!! This is the missing photo.

•6 years ago

Halloween greetings and a Gig pre PSP.....

My son, Jeff, wearing a DIA DE LOS MUERTOS t-shirt. Dia de los Muertos is often mistaken for Halloween, but it is not. My son wore this t-shirt for a gig....

My son, Jeff, wearing a DIA DE LOS MUERTOS t-shirt. Dia de los Muertos is ofte...

•6 years ago

So much sadness in his eyes..............

I have just watched this disturbing video............... I can so relate to how he feels but try so hard to not show it. Music was the thing that he loved and...

I have just watched this disturbing video............... I can so relate to how ...

•6 years ago

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Happy Halloween

To those who observe.

To those who observe.

•6 years ago

This brings me JOY

Momma learned to do “Loopity Loop” tonight ... it’s crocheting without needles!!! I’m excited for now anyway ... seeing Momma keeping her hands moving 😊

Momma learned to do “Loopity Loop” tonight ... it’s crocheting without needles!!...

•6 years ago

This brings me JOY

Momma learned to do “Loopity Loop” tonight ... it’s crocheting without needles!!! I’m excited for now anyway ... seeing Momma keeping her hands moving 😊

Momma learned to do “Loopity Loop” tonight ... it’s crocheting without needles!!...

•6 years ago

Trouble with expectoration.... anyone advice on a cough assist?

Hi there, my father was diagnosed with PSP 2 years ago and has been declining slowly, most troublesome at present is his persistent throat clearing and...

Hi there, my father was diagnosed with PSP 2 years ago and has been declining sl...

•6 years ago

A picture is worth a thousand words ...

In the society that we live in today, we certainly have managed to take pictures of so many moments in our lives. I personally no longer have my pictures...

In the society that we live in today, we certainly have managed to take pictures...

•6 years ago

Dads condition

Hi everyone as you might remember my dad has cbd, dad has been in respite care for the last week, just to give mum a break,nurses have noticed dad is getting...

Hi everyone as you might remember my dad has cbd, dad has been in respite care f...

•6 years ago

I broke a molar Sunday

Eating lunch, having pitted prunes after as my attempt at regularity, I bit down on a pit fragment. I check the prunes for pits or fragments before I eat them....

Eating lunch, having pitted prunes after as my attempt at regularity, I bit down...

•6 years ago

Sleep and Constipation with PSP

My husbands PSP is as advanced, yet I don’t think he’s in the final stage. He seems to be sleeping later in the morning . I put him into bed very early now...

My husbands PSP is as advanced, yet I don’t think he’s in the final stage. He s...

•6 years ago

Introduction

As a 44 year old Mom/StepMom of 6 amazing kids, ages 21 to 3, I simply Don't have time to let my Young Onset Parkinson's control my life. It tries... Oh how it...

As a 44 year old Mom/StepMom of 6 amazing kids, ages 21 to 3, I simply Don't hav...

•6 years ago

One Day At a Time ...

This is a picture of my Mom and I in July ... we enjoyed a beautiful sunset, deep conversation of her health, and my promise to her that I will always take...

This is a picture of my Mom and I in July ... we enjoyed a beautiful sunset, dee...

•6 years ago

Swimming - Overcoming a childhood fear

Today was my Moms third swim lesson! As a child, she almost drown thrusting her into a lifelong fear of water. Over the last year, I’ve been struggling with...

Today was my Moms third swim lesson! As a child, she almost drown thrusting her ...

•6 years ago

Swimming - Overcoming a childhood fear

Today was my Moms third swim lesson! As a child , she almost drown thrusting her into a lifelong fear of water. Over the last year, I’ve been struggling with...

Today was my Moms third swim lesson! As a child , she almost drown thrusting her...

•6 years ago

Itching on the head

For a few days we have seen the appearance of itching on the head that have not improved much trying different types of shampoos. The products that are used...

For a few days we have seen the appearance of itching on the head that have not ...

LuisRodicioRodicio

•6 years ago

GOOD FRIENDS

Hi Guys, me with three wonderful friends, who made Steve's and my life, so much more bearable, during his journey. We spent the evening at mine, reminiscing...

Hi Guys, me with three wonderful friends, who made Steve's and my life, so much ...

•6 years ago

Something hopefully uplifting

Took the family camping, last trip of the year since it'll soon be to cold. The leaves here are at about peak color, been a dry summer, and rained...

Took the family camping, last trip of the year since it'll soon be to cold. Th...

•6 years ago

Excessive saluvation

Hi everyone. My husband is in the later stages of psp. He cannot do much, just moved from bed to chair at times . He still ynderstands everything but it is...

Hi everyone. My husband is in the later stages of psp. He cannot do much, just ...

•6 years ago

Goodbye to Andrea Birke

Oh, friends, I am so sad this morning. I had been trying to get in touch with Andrea, whose husband, Bruce, died of PSP just last year. She had stopped...

Oh, friends, I am so sad this morning. I had been trying to get in touch with An...

•6 years ago

ONE SHARED GOAL > CURE

Another awareness and fundraiser initiative by a new Facebook group I recently created. Click on the links below to watch the videos. You may have to turn your...

Another awareness and fundraiser initiative by a new Facebook group I recently c...

•6 years ago

Some holiday snaps.........

My Faro Portugal holiday went well, without any incidents ! Janice my morning carer was brilliant and forgave me many times for calling her Lorraine (my usual...

My Faro Portugal holiday went well, without any incidents ! Janice my morning ca...

•6 years ago

Did you know that proceeds from my book - The PSP Chronicles are pledged to PSPA and Cure PSP?

This a review my book The PSP Chronicles received today by Bookaholic. It validates the writing style I chose - simplistic. The book lends itself to a broader...

This a review my book The PSP Chronicles received today by Bookaholic. It valid...

•6 years ago

I'm new here, i've been reading for awhile.

Never Give Up!!! Good morning to all. My wife "Pam", was officially diagnosed with PSP in January 2017. She had a "DAT" scan in Grand Rapids, Mi. She just...

Never Give Up!!! Good morning to all. My wife "Pam", was officially diagnosed w...

•6 years ago

This is info for US people regarding Medicaid

Today I got a very nice, least the start, letter from our state Medicaid office offering condolences on dad's passing. Then it proceeded to info me I was...

Today I got a very nice, least the start, letter from our state Medicaid offic...

•6 years ago

ASPIRATION PNEUMONIA

My husband has started aspirating when he drinks. He has been put on honey thickened liquids. He's in the hospital with pneumonia. The doctor says he has...

My husband has started aspirating when he drinks. He has been put on honey thick...

•6 years ago

Taking cannibis oil with CBD

My mum has cortical basle degeneration CBD..a month ago..we decided to try her on cannibis oil..has anyone else trued this with there condition? Her gp today...

My mum has cortical basle degeneration CBD..a month ago..we decided to try her o...

•6 years ago

Eyesight problems

Can anyone help? My husband has recently been diagnosed with PSP. He complains much of the time about lights being too bright although he wear sunglasses -...

Can anyone help? My husband has recently been diagnosed with PSP. He complains...

•6 years ago

Anyone with PSP in Hyderabad, India?

My father was diagnosed with PSP 4 years ago. He lives in India and my mom and sister have been taking care of him. Since I live in the USA I'm not much of a...

My father was diagnosed with PSP 4 years ago. He lives in India and my mom and ...

•6 years ago

My dad has recently been diagnosed with PSP

Hi my dad has recently been diagnosed with PSP I don’t really like looking on websites about this so thought I would join to get advice and learn about other...

Hi my dad has recently been diagnosed with PSP I don’t really like looking on we...

•6 years ago

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