Posts - PSP Association | HealthUnlocked

PSP Association

9,255 members • 11,351 posts

All posts for February 2018

How to improve balance and gait, excerzising

The following article is based on the latest research and a Parkinson’s Foundation Expert Briefings about Parkinson’s-related freezing, balance and falls...

The following article is based on the latest research and a Parkinson’s Foundati...

•6 years ago

Question

I have read in some of the posts about the "hummingbird or penguin" ? I'm assuming on a MRI? Would someone please explain what they are? Thanks so much,...

I have read in some of the posts about the "hummingbird or penguin" ? I'm assum...

•6 years ago

Thank you!

Wow - I am overwhelmed by everyone's warm welcome and so encouraged by the support. Thank you! Bittersweet to say the least. I felt so alone, yet...

Wow - I am overwhelmed by everyone's warm welcome and so encouraged by the suppo...

•6 years ago

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Palative nurses in yesterday

Another stage reached. Mum going down hill fast. Hospital bed arriving today for downstairs. Mum sleeps most of the time. Not eating and drinking very little....

Another stage reached. Mum going down hill fast. Hospital bed arriving today for...

•6 years ago

Coughing, choking and trouble swallowing + pain

As I write this I am crying. Charles is traveling down this road and has had several awful choking incidents. Just now on a pill. He still wants to eat but...

As I write this I am crying. Charles is traveling down this road and has had sev...

•6 years ago

Atrophy or progression?

Hi my husband Jack was diagnosed with PSP in February 2017. Like so many others it took 2 1/2 years to get the correct diagnosis. My question today ; Jack...

Hi my husband Jack was diagnosed with PSP in February 2017. Like so many others...

•6 years ago

Chair dancing..

Most of the time I ask for advice on here or just have a moan but today (inspired by Kevin's uplifting post) I want to tell you that I had a good visit with my...

Most of the time I ask for advice on here or just have a moan but today (inspire...

•6 years ago

Supplements

Along with our Neurologist, we have been seeing a Function Medicine doctor who has prescribed a number of supplements for John to take. I really can't say...

Along with our Neurologist, we have been seeing a Function Medicine doctor who ...

•6 years ago

Hello! My name is Alice.

I joined about a month ago, but this is my first posting. My husband John has PSP - diagnosed about 2 years ago. We are not as advanced as most of the texts I...

I joined about a month ago, but this is my first posting. My husband John has PS...

•6 years ago

A big hug to everyone and running out of lipstick!

So many wonderful replies on the lipstick thread. I'm replying here. You all made me (good) tearful all over again! It is phenomenal how open hearted and...

So many wonderful replies on the lipstick thread. I'm replying here. You all ma...

•6 years ago

Six months

Six months ago today, I lost the person who meant the most to me in the whole world. David was a wonderful person, and put up such a good fight against PSP,...

Six months ago today, I lost the person who meant the most to me in the whole wo...

•6 years ago

Just having a word with myself

Hi all Not been on for a while but have read all the posts At the moment my head thinks it up my backside Archie has been up and down for last couple of...

Hi all Not been on for a while but have read all the posts At the moment my he...

•6 years ago

A lipstick heart day 💖

If I had a paper calendar I would put a big red heart in for today with lipstick! 💖 My visit with Liz was wonderful. Liz actually tried to smile when I...

If I had a paper calendar I would put a big red heart in for today with lipstick...

•6 years ago

G died February 19

I write with relief and overwhelming sadness of my husband’s death. He chose medical assistance in dying ( MAiD) legal in canada since 2016. He was the first...

I write with relief and overwhelming sadness of my husband’s death. He chose me...

•6 years ago

sadly passed away

Sadly my only sister, 69 years old, passed away yesterday, Saturday 2.24.2018. She was diagnosed with PSP in 2015 but we family knew something was wrong...

Sadly my only sister, 69 years old, passed away yesterday, Saturday 2.24.2018. ...

•6 years ago

Has anyone dealt with aggression, hallucinations with CBD?

Trying hard to not weep as I read these sharings. Being at the nursing home with my husband (CBD) isn't a comfortable place to let myself feel. I miss my best...

Trying hard to not weep as I read these sharings. Being at the nursing home with...

•6 years ago

Parkinson’s ▶️ PSP

So, here’s my question. If initially diagnosed with Parkinson’s and then an MRI showed the hummingbird six years later, was it ever really Parkinson’s or was...

So, here’s my question. If initially diagnosed with Parkinson’s and then an MRI...

•6 years ago

Good day

Best day for a long time - Valerie was awake and smiley. It really gave me a lift. Couldn't get my priorities right this afternoon though - did I watch the...

Best day for a long time - Valerie was awake and smiley. It really gave me a lif...

•6 years ago

Scared...

My Dad as some of you may know is in a nursing home & in the past month he has had two chest infections. This time last year was when the back to back...

My Dad as some of you may know is in a nursing home & in the past month he has h...

•6 years ago

Need some advice please

Hi, Colin is struggling to stand and get up from his bed now, I’m trying to encourage him to carry on and being very patient, but it can take 15 mins just to...

Hi, Colin is struggling to stand and get up from his bed now, I’m trying to enco...

•6 years ago

Medical retirement.

Would anyone mind giving me some advice please? After yet another fall at work our gp and ourselves feel it is time for P to medically retire. He has had 50+...

Would anyone mind giving me some advice please? After yet another fall at work o...

•6 years ago

First International Research Symposium on PSP & CBD at Royal College of Physicians, London

https://www.psp.org/wp-content/uploads/2018/01/2018_LONDON_SYMPOSIUM_Agenda.pdf I'm pleased to see an item on the agenda for "In Home Care for PSP Patients"....

https://www.psp.org/wp-content/uploads/2018/01/2018_LONDON_SYMPOSIUM_Agenda.pdf ...

•6 years ago

Grumpiness the lighter side.

Its been a rough week. Every time I have visited my lovely she has been very grumpy (read truculent and hostile). She was never a grumpy person and in the...

Its been a rough week. Every time I have visited my lovely she has been very g...

•6 years ago

CHC appeal refused

Well folks, as I had feared - we have had P`s CHC funding appeal denied after he had been funded for 2 years. Since the annual assessment in July was negative...

Well folks, as I had feared - we have had P`s CHC funding appeal denied after he...

•6 years ago

Mucus sucking machine

Hello .......... my name is Chris .... and i am new here.......does anyone here have information where i can buy a mucus sucking machine ......thanks in...

Hello .......... my name is Chris .... and i am new here.......does anyone her...

•6 years ago

CHC

I have a social worker calling tomorrow to go through the CHC check list. My main concern is that mother will get up and walk unaided although this almost...

I have a social worker calling tomorrow to go through the CHC check list. My mai...

•6 years ago

Hospice...how often do Hospice workers come to the home?

How often do Hospice ppl come to the home?

How often do Hospice ppl come to the home?

•6 years ago

Teeth clenching again

Still having trouble with Valerie clenching her teeth. We moved from normal cutlery to plastic after she broke two teeth but she still hangs on to it. I...

Still having trouble with Valerie clenching her teeth. We moved from normal cutl...

•6 years ago

VENICE REVISITED IN MY MIND

three years ao when i was still ok we stayed in a small hotel just off st mark' square with a landing stage. To get to it involved a water taxi trip down the...

three years ao when i was still ok we stayed in a small hotel just off st mark' ...

•6 years ago

Tme standing still

Struggling tonight looking back a the day... same as the one before. Not looking forward to the end... just wondering if it ever will.

Struggling tonight looking back a the day... same as the one before. Not looking...

•6 years ago

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