Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for May 2013

Who Knew???

My husband went into the hospital for an elective hip replacement. Four days later he was on a ventilator because of gall bladder major infection. Came off...

My husband went into the hospital for an elective hip replacement. Four days lat...

carolinesimmons

•11 years ago

Dorothy-Thompson Has anyone any knowledge of the Rascal WeGo mobility scooter or any other kind of wheelchair that is

power assisted that a carer can use. My husband has a standard self-propelling wheelchair but he is unable to use it because he has no strength in his hands...

power assisted that a carer can use. My husband has a standard self-propelling...

dorothy-thompson

•11 years ago

Headaches??

Hi i was just wondering if anyone knows if headaches coincides with deterioration as when ever my dad gets major headaches his eyesight becomes worse and so...

Hi i was just wondering if anyone knows if headaches coincides with deterioratio...

•11 years ago

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Pt. 2 - My 5-23 Hospitalization - Poor Care, The Stuff Nightmares Are Made Off...

Oh, brother!!!#! So after receiving excellent care in the ER from a Doc whose Mother had passed away from PSP, and his nurse, who knew what PSP was from the...

Oh, brother!!!#! So after receiving excellent care in the ER from a Doc whose...

•11 years ago

Pt. 1 - My 5-23 Hospitalization - Something Dangerous Is Happening To Me & I Don't Think It's The Tremors

Please, please read this thru. I have to back up a little to give some background for this to make some sense. I'm scared. And, I would very, very much...

Please, please read this thru. I have to back up a little to give some backgroun...

•11 years ago

How many times does someone rally from psp?

•11 years ago

A Happy Birthday Ante-Post to My Daughters' Recent Birthdays.

Because my girls' birthday's are less than a year a part-same age for 11 days-both presently 21 years old, I thought it would be fun to buy the 3 of us tickets...

Because my girls' birthday's are less than a year a part-same age for 11 days-bo...

•11 years ago

Does any other PSP suffer &/or PSP caretaker notice tremors from mild to whole-body, sometime violent & of long duration?

I used to have more pronounced tremors, sometimes whole body, pre-diagnoses til a few months after I was diagnosed last August. I still do have a mile tremor,...

I used to have more pronounced tremors, sometimes whole body, pre-diagnoses til ...

•11 years ago

My Beautiful Nan

Sadly my nan passed away on Sunday after 5 years of suffering with CBD, thankfully she went peacefully and not how she could have done. She was an amazing and...

Sadly my nan passed away on Sunday after 5 years of suffering with CBD, thankful...

•11 years ago

WHAT IS THE LONGEST SOMEONE HAS HAD PSP? I am wondering how much longer my husband has to suffer, he is going into his sixth year?

•11 years ago

Has anyone ever heard of Slippery Sam bed sheets? Apparently they are used in NZ and Aus to enable the carer to move the patient around

the bed. I know the received wisdom here is don't do it, get help but in real world of the carer that is neither helpful nor practical. Can they or...

the bed. I know the received wisdom here is don't do it, get help but in real...

dorothy-thompson

•11 years ago

my husband has PSP & has been bedridden for 2 yr. Is there a place where he can go be taken care of for the weekend so I can take a trip

•11 years ago

An up and down kind of week!

http://kathywblog.wordpress.com/2013/05/20/highs-and-lows/ As an addendum to my blog I have since discovered that I have fractured one of the small bones...

http://kathywblog.wordpress.com/2013/05/20/highs-and-lows/ As an addendum t...

•11 years ago

Hi My dad has psp he's doing well apart from a very loud choking cough even if he's not eating it keep him awake most of the night

He's had barium xrays and test there's no chest infection somtimes a clear phlegm any surgestions how to calm it dowm a bit Thanks

He's had barium xrays and test there's no chest infection somtimes a clear phle...

•11 years ago

Over the last 2 months, mum keeps becoming unwell with high fever and feels unwell, anyone else experienced these symptoms?

Two doctors have been out to see mum today, the first her GP. He found her blood pressure a little low and has advised staff to take her off 2 medications for...

Two doctors have been out to see mum today, the first her GP. He found her blood...

•11 years ago

Neurologist is suggesting stopping Meds

My wife has had PSP since May 2010 and been on Carbidopa and Ropinirole and they helped a bit. We had a visit to the Neurologist this week and he is suggesting...

My wife has had PSP since May 2010 and been on Carbidopa and Ropinirole and they...

•11 years ago

Does any PSP Patient eligible to Claim Continuing Health Care

Wonder if any body as been succesfull in claiming continuing Health care inb England.

Wonder if any body as been succesfull in claiming continuing Health care inb Eng...

•11 years ago

Does anyone know if carbbidopa is a good drug for PSP patients?

My husband has been taking it since the beginning and does it do any good, he still gets dizzy, has black outs and every time I ask the doctor, the answer is...

My husband has been taking it since the beginning and does it do any good, he st...

•11 years ago

disabled rooms in good hotels seem to be very few in number

hi i like to stay in good hotels wiht my partner but disabled rooms seem very few on the horizon ( jsut got back from a holidayin scotland ) it was in...

hi i like to stay in good hotels wiht my partner but disabled rooms seem very f...

•11 years ago

late stages of cbd?

•11 years ago

Today I Have Two 21-Year Olds!

Wanted to post something positive today, and can't think of a better reason. My youngest, Melissa AKA Missy, turns 21 today. My oldest, Katy is still 21; turns...

Wanted to post something positive today, and can't think of a better reason. My ...

•11 years ago

my wife keeps saying that she feels sick all the time,i tell her sorry nothing i can do,

she was diagnosed with cbd last year any ideas?

she was diagnosed with cbd last year any ideas?

•11 years ago

What are some activities I can do with my mom?

Just little things, she sits at the house and watches tv all day. I can't think of anything that will preoccupie her time better, being that she has barely any...

Just little things, she sits at the house and watches tv all day. I can't think ...

•11 years ago

Study participation scheduled

We received notice today that our annual participation in a study of PSP and PD is scheduled for late August. A very, very LONG MRI and other things while in...

We received notice today that our annual participation in a study of PSP and PD ...

•11 years ago

Is lying down a lot during the day normal? It makes me feel better. I have had PSP for 3.5 years and I am 68.

•11 years ago

UTI treatment or Hospice

Mom has had chronic UTI's since mid December. The urologist believes although she is catheterized the infection is caused from retention of urine. He stated...

Mom has had chronic UTI's since mid December. The urologist believes although s...

•11 years ago

Does any one know what stage my dad is at??

Dad can not walk he is in a wheelchair, his eye sight is non exsistent, he sits with his tongue out regualry. He has bed sores on his bottom and cant bend his...

Dad can not walk he is in a wheelchair, his eye sight is non exsistent, he sits ...

•11 years ago

how can I play golf

•11 years ago

Waiting in Clinics

As you know, I tend to ramble on about medical stuff, but someone recently posted the need to sometimes keep things a bit more lighthearted. I just saw this...

As you know, I tend to ramble on about medical stuff, but someone recently poste...

•11 years ago

Eating concerns

For the last few days my mother has not/will not open her mouth more than 1/2" to eat her food. She says that she is hungry. We increased her Baclofen and...

For the last few days my mother has not/will not open her mouth more than 1/2" t...

•11 years ago

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