Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for February 2021

About two weeks ago I had Botox shots around my eyes. Two week later-I am not able to see clearly, blurred vision dry eyes. Is this PSP?

Since my last visit with my Neurologist, two weeks ago, I have not been able to see clearly. At that visit he injected Botox shots around my eyes to prevent...

Since my last visit with my Neurologist, two weeks ago, I have not been able to ...

JaydeeGee

•4 years ago

4 Replies

10,000 Voices + 1

https://l.facebook.com/l.php?u=https%3A%2F%2Fyoutube.com%2Fwatch%3Fv%3DEa1RF-GgstA%26fbclid%3DIwAR1EqJ6t6acnGft5eRtn7GLHOMOzypZy03HeKuLUqB7sWsugTmsyEAv7igE&h=AT

https://l.facebook.com/l.php?u=https%3A%2F%2Fyoutube.com%2Fwatch%3Fv%3DEa1RF-Ggs...

daddyt

•4 years ago

14 Replies

10,000 Voices + 1 PSP-CBD Awareness

February 28th is Worldwide Rare Disease Day. https://www.youtube.com/watch?v=Ea1RF-GgstA&t=25s Tim

February 28th is Worldwide Rare Disease Day. https://www.youtube.com/watch?v=Ea1...

daddyt

•4 years ago

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Jillannf6

Happy belated birthday, Jillann! It has been a while since I have seen you here, but February 25 was the day, and I’m thinking of you, for many years the...

Happy belated birthday, Jillann! It has been a while since I have seen you here...

easterncedar

•4 years ago

11 Replies

10,000 Voices campaign launch this Sunday

Our new awareness-raising campaign, 10,000 Voices, will be launching later this week on 28 February #RareDiseaseDay There are three main ways you can show your...

Our new awareness-raising campaign, 10,000 Voices, will be launching later this ...

HelenPSPA

Administrator•4 years ago

3 Replies

Inappropriate sexual behavior

I have not seen this subject referred to at all and I am wondering if anyone else is having this problem .My husband has had PSP for over 6 years that I know,...

I have not seen this subject referred to at all and I am wondering if anyone els...

Lord77

•4 years ago

25 Replies

Mental Decline

Good morning, Everyone! It is hard to be despondent on a day like I am enjoying. The sun is beautiful on the snow and the temperatures are heading towards 40...

Good morning, Everyone! It is hard to be despondent on a day like I am enjoying....

Indiana-Girl

•4 years ago

5 Replies

Me

I have been diagnosed with CBD in February 2021. It has taken 2 years for diagnosis just wondered how fast it progresses. I can still walk and do some chores...

I have been diagnosed with CBD in February 2021. It has taken 2 years for diagno...

Mixee

•4 years ago

20 Replies

Coughing/Choking on nothing (mostly at night )

Hello Everyone, Hope you're doing well despite these worldwide circumstances, I was wondring if some of you has already witnessed/lived the "Coughing/Choking...

Hello Everyone, Hope you're doing well despite these worldwide circumstances, I ...

Adamxd

•4 years ago

9 Replies

Osteoarthritis

Hello all I new to the site and was wondering if there is any info you could help me with regarding pain management my Dr has just prescribed alendronic acid...

Hello all I new to the site and was wondering if there is any info you could he...

scragg

•4 years ago

2 Replies

Frustrated

I was watching tv with my husband and I had just taken him to the bathroom. About 15 minutes later he said he needed to go to the bathroom and I said ok wait a...

I was watching tv with my husband and I had just taken him to the bathroom. Abou...

Hidden

•4 years ago

11 Replies

Covid injection

The old bag had her injection with no problems and I have a date for mine . Just wish people would not reject the chance.

The old bag had her injection with no problems and I have a date for mine . Just...

Javan

•4 years ago

10 Replies

Help raise awareness of PSP & CBD this Rare Disease Day

On 28 February, Rare Diseases Day, we'll be launching a new campaign called 10,000 Voices. There will be lots of different ways you can get involved to help...

On 28 February, Rare Diseases Day, we'll be launching a new campaign called 10,0...

HelenPSPA

Administrator•4 years ago

2 Replies

New onset of symptoms.....

My husband is 4 yrs diagnosed with PSP but I am starting to suspect CBD also. Lately had been sweating profusely and complaining of left leg cramps. Does not...

My husband is 4 yrs diagnosed with PSP but I am starting to suspect CBD also. La...

mjtogether

•4 years ago

4 Replies

Death Notice

My husband passed away Monday after a long struggle with PSP. I used to post and got so much kind and loving help from this group. I took care of him a long...

My husband passed away Monday after a long struggle with PSP. I used to post an...

Artteach10

•4 years ago

53 Replies

Has anyone encountered severe choking with or without food where the person almost stops breathing?

Hi all. Ive only joined this forum a few days ago. My dad was diagnosed with PSP in Aug 2019 aged 63. It took a very serious fall from the top of the stairs...

Hi all. Ive only joined this forum a few days ago. My dad was diagnosed with PS...

Banta123

•4 years ago

8 Replies

The 90's Revival Live for PSPA

During the lockdown, The 90's Revival has been fundraising for a different charity each week and on 20 February they will be fundraising for us! If you'd like...

During the lockdown, The 90's Revival has been fundraising for a different chari...

HelenPSPA

Administrator•4 years ago

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Lord77

My husband has had PSP for about 6 years he is unable to walk anymore and uses an electric pride chair in the house, but a new change has happened he used to...

My husband has had PSP for about 6 years he is unable to walk anymore and uses a...

Lord77

•4 years ago

13 Replies

Puried food- How long can one survive on it?

My mother doesn’t speak anymore which I think is one of many cruel symptoms (PSP) and is eating only puried food now. Also, bedridden now. The hospice nurse...

My mother doesn’t speak anymore which I think is one of many cruel symptoms (PSP...

jamrog846

•4 years ago

8 Replies

February 28, 2021 Worldwide Rare Disease Day - Symptoms by the Number

https://l.facebook.com/l.php?u=https%3A%2F%2Fyoutube.com%2Fwatch%3Fv%3DEa1RF-GgstA%26fbclid%3DIwAR3TeXS3z5n8fb9-f1bHDEFKwDFGpBhk_9xV7ecVAbFcMkV3mnJqolNU3nw&h=AT

https://l.facebook.com/l.php?u=https%3A%2F%2Fyoutube.com%2Fwatch%3Fv%3DEa1RF-Ggs...

daddyt

•4 years ago

4 Replies

Anxiety about advanced disease

For those of you who have lost your person with PSP, when you saw that things were heading towards advanced or end stage disease, did you get anxious about how...

For those of you who have lost your person with PSP, when you saw that things we...

Martina_MP

•4 years ago

15 Replies

Significant changes

Does anybody know whether the tau in the brain moves around, or does it just continue to build up over time? I ask this because my husband can be totally...

Does anybody know whether the tau in the brain moves around, or does it just con...

Rustington

•4 years ago

3 Replies

Getting up from a fall

Hello everyone, this is only my second post on this very informative site. My husband was diagnosed with PSP last February. He probably had it a year before...

Hello everyone, this is only my second post on this very informative site. My hu...

Autumnstone

•4 years ago

16 Replies

Care/Nursing Home recommendations in the south

I have a long story but in short my Dad has PSP and has been in Hospital after having COVID, luckily asymptomatic but now they insist on 1on1 24/7 care. We are...

I have a long story but in short my Dad has PSP and has been in Hospital after h...

mrmen

•4 years ago

5 Replies

Hellebore

A bit of winter colour

fishponds

•4 years ago

8 Replies

NHS Scotland

Hi all! Someone recently wrote asking about the “ shielding list “ in Scotland and didn’t get a reply. Being in the US, I have no knowledge, but am hoping...

Hi all! Someone recently wrote asking about the “ shielding list “ in Scotland ...

easterncedar

•4 years ago

4 Replies

Good News on PSP Clinical Trials and Research

For more information, click on the link....

daddyt

•4 years ago

3 Replies

Eyes closed

Sending everyone a warm Good Morning from NY, USA. I saw my ex on video yesterday- I’m still waiting for COVID vaccination so I can see him in person - I saw...

Sending everyone a warm Good Morning from NY, USA. I saw my ex on video yesterd...

ConcernedEx

•4 years ago

13 Replies

CBD Oil

Has anyone used CBD oil for late stage ( or any stage) PSP, Parkinson's, or any neurological condition? If so, I am interested in whether or not Thiamine HCL...

Has anyone used CBD oil for late stage ( or any stage) PSP, Parkinson's, or an...

Boyce3600

•4 years ago

1 Reply

Covid injection

As I had to speak to the doctor on tuesday I asked if the old bag was in the at risk catagory and was told that she would be in the group for her age. We have...

As I had to speak to the doctor on tuesday I asked if the old bag was in the at ...

Javan

•4 years ago

9 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for February 2021

About two weeks ago I had Botox shots around my eyes. Two week later-I am not able to see clearly, blurred vision dry eyes. Is this PSP?

10,000 Voices + 1

10,000 Voices + 1 PSP-CBD Awareness

Jillannf6

10,000 Voices campaign launch this Sunday

Inappropriate sexual behavior

Mental Decline

Me

Coughing/Choking on nothing (mostly at night )

Osteoarthritis

Frustrated

Covid injection

Help raise awareness of PSP & CBD this Rare Disease Day

New onset of symptoms.....

Death Notice

Has anyone encountered severe choking with or without food where the person almost stops breathing?

The 90's Revival Live for PSPA

Lord77

Puried food- How long can one survive on it?

February 28, 2021 Worldwide Rare Disease Day - Symptoms by the Number

Anxiety about advanced disease

Significant changes

Getting up from a fall

Care/Nursing Home recommendations in the south

Hellebore

NHS Scotland

Good News on PSP Clinical Trials and Research

Eyes closed

CBD Oil

Covid injection

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive