Posts - PSP Association | HealthUnlocked

PSP Association

9,250 members • 11,347 posts

All posts for January 2020

Hands shaking

Has anyone else noticed shaking of your loved one hands? It’s not a lot and only sometimes.

Has anyone else noticed shaking of your loved one hands? It’s not a lot and only...

Y2U4

•4 years ago

12 Replies

medicare bed available

Am hoping this helps us find a home for such a great bit of kit and helps someone else on this forum Am wondering if anyone can make use of a fully...

Am hoping this helps us find a home for such a great bit of kit and helps someon...

Cazash

•4 years ago

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Tax relief for Carers, Nursing Homes and Medical Expenses UK

Hi folks Late Edit I have made a mistake. The information I found was for Ireland....

Hi folks Late Edit I have made a mistake. The information I found was for Irela...

Kevin_1

•4 years ago

34 Replies

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How does a small charity tackle the need to support people living with PSP & CBD across Scotland?

Following recent support from the Scottish Government, we now have a dedicated PSPA Country Manager, Gill Dickson. Here Gill shares her thoughts about the...

Following recent support from the Scottish Government, we now have a dedicated P...

HelenPSPA

Administrator•4 years ago

2 Replies

FTD

Anyone tried Trazadone for agitation, depression and apathy, apparently one of the few drugs that is ok to take with FTD ?

Anyone tried Trazadone for agitation, depression and apathy, apparently one of ...

Hidden

•4 years ago

12 Replies

Offloading again.

OK, so I know I am some kind of superwoman, but I am feeling a little concerned about Ian's present stage of deterioration. I don't think I'm looking for...

OK, so I know I am some kind of superwoman, but I am feeling a little concerned ...

JCRy

•4 years ago

22 Replies

Lets Get Personal -- Caretakers

So, I thought I would share something this morning that I am dealing with ... I am a full-time caretaker for my sweet Momma, and would have it no other way....

So, I thought I would share something this morning that I am dealing with ... I...

bazooka111

•4 years ago

20 Replies

I wish I could run still

I can't even walk without help and it's happened too fast, I stretch when I'm in my chair but I want to do something else as I spend a lot of time on my own,...

I can't even walk without help and it's happened too fast, I stretch when I'm in...

knitting62

•4 years ago

27 Replies

Personality Changes

Ok so how does everybody deal with the personality changes of their loved ones my husband has PSP he’s like a stranger and please don’t say wonder how he...

Ok so how does everybody deal with the personality changes of their loved ones ...

Dance1955

•4 years ago

77 Replies

Volunteers needed!

A number of volunteer support group coordinators are stepping down from their groups in the next couple of months. To ensure the groups continue to provide...

A number of volunteer support group coordinators are stepping down from their gr...

HelenPSPA

Administrator•4 years ago

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Thankful for Technology

I thought I would share this image of my Mom, just a few days ago, laughing as she listens to her sisters share childhood memories I had asked them to...

I thought I would share this image of my Mom, just a few days ago, laughing as s...

bazooka111

•4 years ago

8 Replies

Free to good home - Memrabel

If it is of any use to anyone on here, I’ll post it to you. I found it when sorting out a box of bits from my mums house, hopefully someone might find it...

If it is of any use to anyone on here, I’ll post it to you. I found it when sort...

Ratcliffe

•4 years ago

5 Replies

Flummoxed

I just can't work out how to use this forum. How do I find the people I was following? and why can't I complete my profile - it says it doesn't recognise my...

I just can't work out how to use this forum. How do I find the people I was foll...

Gardening51

•4 years ago

7 Replies

Not Sure If My Husband is Declining

Hi, I have been a member of this group for at least a year or longer but, have not written much. My husband John is 72 and was diagnosed with Parkinsons about...

Hi, I have been a member of this group for at least a year or longer but, have n...

Quarter

•4 years ago

10 Replies

SARA STEDY ---

I am trying to anticipate the needs for some changes with Mom and her mobility -- I have been looking at Sara Stedy's here in the USA --- whew they are...

I am trying to anticipate the needs for some changes with Mom and her mobility -...

bazooka111

•4 years ago

31 Replies

Voice aids

Whilst my husband has been having speech therapy for his PSP his voice has got a lot weaker and he is difficult to hear. Has anyone known of any electronic...

Whilst my husband has been having speech therapy for his PSP his voice has got a...

Toddet

•4 years ago

6 Replies

Missing my hubby

Hey all, I'm still kind of reeling here. I lost my George this morning to CBD. He was in hospice and had gone into respite care last week to give all of us...

Hey all, I'm still kind of reeling here. I lost my George this morning to CBD. H...

Cinnylou

•4 years ago

48 Replies

Olive's PSP journey is over

Sadly our lovely Olive passed away on 29 Dec, aged 78 years. We haven't really posted much on this community over the years (but we look every day) but we just...

Sadly our lovely Olive passed away on 29 Dec, aged 78 years. We haven't really p...

claredavieswales

•4 years ago

16 Replies

An introduction to PSP & CBD

The updated 'An introduction to PSP & CBD' information leaflet is now available! The revised leaflet contains essential information, helping to answer some of...

The updated 'An introduction to PSP & CBD' information leaflet is now available!...

HelenPSPA

Administrator•4 years ago

3 Replies

Downhill slide

Hi all so sorry to be a pain but since diagnosis I seem to be on a downhill course. I notice in myself changes I know are real. Choking and being unable to...

Hi all so sorry to be a pain but since diagnosis I seem to be on a downhill cour...

Upturned

•4 years ago

9 Replies

Constipation with cbd

Following on from my post on bladder incontinence, is being constipated a symptom of CBD, mum said he is taking laxatives, as he is having difficulty in that...

Following on from my post on bladder incontinence, is being constipated a sympto...

Signor

•4 years ago

12 Replies

Dang it!!

My truck is down there somewhere....... :) I am at top of the local ski resort. Ron

My truck is down there somewhere....... :) I am at top of the local ski resor...

Dadshelper

•4 years ago

10 Replies

Intro!

New to the site. My husband has been diagnosed with PSP so just joined to find out more. Never heard of it before.

New to the site. My husband has been diagnosed with PSP so just joined to find o...

Dusty1956

•4 years ago

13 Replies

Low blood pressure in CBD or dementia?

I have been recently diagnosed with CBD and frontotemporal dementia. In the last few months, my blood pressure has been dropping, on the verge of hypotension....

I have been recently diagnosed with CBD and frontotemporal dementia. In the las...

Drjazz

•4 years ago

13 Replies

Peg

So there’s a bed available in hospital so mam gone in tonight but don’t know when peg will be fitted maybe not till Monday so very hard she won’t communicate...

So there’s a bed available in hospital so mam gone in tonight but don’t know whe...

Teddies

•4 years ago

6 Replies

Something to ponder...

Hoping some will find some comfort in these words by Elizabeth Ammons. Tim x

daddyt

•4 years ago

22 Replies

Going to the loo at night (cbd)

Has anyone had experience of CBD sufferer's going to the loo excessively at night, say10 times. in researching for my dad, it seems Parkinson patients excrete...

Has anyone had experience of CBD sufferer's going to the loo excessively at nigh...

Signor

•4 years ago

21 Replies

PSP and Hydrocephalus

Hi, I'm new here and appreciate My husband has both PSP and Hydrocephalus. The hydro was diagnosed first, and he got a shunt in the fall of 2018, clearing up...

Hi, I'm new here and appreciate My husband has both PSP and Hydrocephalus. The...

Hukilu

•4 years ago

10 Replies

Stomach tube for life

Stomach tube for feeding when the time comes or not?

Espink50

•4 years ago

9 Replies

Morphine reduction and withdrawal

Hi, Can anyone share their experience of an elderly loved one addicted to morphine? My husband and I are trying to get his mothers GP to put in place a...

Hi, Can anyone share their experience of an elderly loved one addicted to morphi...

ClearBlueSky

•4 years ago

2 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for January 2020

Hands shaking

medicare bed available

Tax relief for Carers, Nursing Homes and Medical Expenses UK

How does a small charity tackle the need to support people living with PSP & CBD across Scotland?

FTD

Offloading again.

Lets Get Personal -- Caretakers

I wish I could run still

Personality Changes

Volunteers needed!

Thankful for Technology

Free to good home - Memrabel

Flummoxed

Not Sure If My Husband is Declining

SARA STEDY ---

Voice aids

Missing my hubby

Olive's PSP journey is over

An introduction to PSP & CBD

Downhill slide

Constipation with cbd

Dang it!!

Intro!

Low blood pressure in CBD or dementia?

Peg

Something to ponder...

Going to the loo at night (cbd)

PSP and Hydrocephalus

Stomach tube for life

Morphine reduction and withdrawal

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive