Posts - PSP Association | HealthUnlocked

PSP Association

9,625 members•11,552 posts

All posts for February 2019

BBC TWO PARKINSON TRIAL

Oh boy, that was hard watching. Same hospital, same consultant, same waiting rooms. Not that I am bitter, if it works, but no wonder Steve's doctor had no time...

Oh boy, that was hard watching. Same hospital, same consultant, same waiting roo...

Heady

•6 years ago

64 Replies

CHC Articles in Daily Telegraph 28th Feb

Front page headline "Disabled pensioners hit by care crackdown" and half of page 2 dedicated to articles on CHC care lottery. Not happy reading, one can only...

Front page headline "Disabled pensioners hit by care crackdown" and half of page...

AJK2001

•6 years ago

1 Reply

I can’t find my...

Husband (CBD): where’s my phone? Wife (Carer): It’s probably on the dresser. Hubby: It’s on someone’s dresser? Wife: Honey, we only have one dresser....

Husband (CBD): where’s my phone? Wife (Carer): It’s probably on the dresser. H...

SewBears

•6 years ago

11 Replies

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My Husband Has PSP

Hello to you all! My husband was diagnosed with PD 4.5 years ago but had symptoms many years before diagnosis. Now, he has PSP and everything is changing. His...

Hello to you all! My husband was diagnosed with PD 4.5 years ago but had symptom...

Bettina545

•6 years ago

21 Replies

Webinar

Hello is anyone going to join the webinar today ?

Northstar1

•6 years ago

12 Replies

Rare Disease Day

February 28, 2019 is Rare Disease Day. PSP, CBD, MSA and MN disease are but a few of the 6000 rare diseases. Tim

February 28, 2019 is Rare Disease Day. PSP, CBD, MSA and MN disease are but a fe...

daddyt

•6 years ago

5 Replies

London Marathon

I have volunteered to the PSPA to help out at their fundraising at the London Marathon. I failed at the fourth or fifth attempt to get a place, so wanted to...

I have volunteered to the PSPA to help out at their fundraising at the London Ma...

Ratcliffe

•6 years ago

6 Replies

Anyone else got a hangover?

Hi Jillannf6 and all the other birthday bashers. How are we all feeling this morning? It's another lovely bright & sunny morning here in the UK but after the...

Hi Jillannf6 and all the other birthday bashers. How are we all feeling this mor...

AJK2001

•6 years ago

13 Replies

CRISPR

Research help....where are we? http://enewspaper.latimes.com/infinity/article_share.aspx?guid=93d11376-e79c-4810-9c0f-f9abbbe240a1

Research help....where are we? http://enewspaper.latimes.com/infinity/article_sh...

enjoysalud

•6 years ago

2 Replies

Lost my father

Morning all hope your all well especially your loved ones. I lost my dad to PSP last year May. He was 59. He was disgnosed with illness after a few years...

Morning all hope your all well especially your loved ones. I lost my dad to PSP ...

Naz001

•6 years ago

15 Replies

Psp

Hello my husband has just been diagnosed with psp plus dementia very scared as we had never heard of this awful disease, perhaps you can help me on my journey...

Hello my husband has just been diagnosed with psp plus dementia very scared as w...

Jazzercise

•6 years ago

14 Replies

PSP-P Diagnosis

Has anyone been diagnosed as non classic PSP? My neurologist has diagnosed my father with PSP-P, I am trying to distinguish the difference. Thanks

Has anyone been diagnosed as non classic PSP? My neurologist has diagnosed my f...

YoungPSP

•6 years ago

8 Replies

It's February 25 here in NZ!

HAPPY BIRTHDAY jillannf6 !!!!!! Starting a 24 hour Round-The-World Party!!! Am shouting as loud as I can so you can here me! It's still only sparrowfart here...

HAPPY BIRTHDAY jillannf6 !!!!!! Starting a 24 hour Round-The-World Party!!! Am s...

honjen43

•6 years ago

34 Replies

Trying to regain my life following Steve’s passing

Hello lovely people, I haven’t posted on here for a while as I haven’t really known where to start. As you all know my wonderful husband of only a couple of...

Hello lovely people, I haven’t posted on here for a while as I haven’t really kn...

Hiking13

•6 years ago

28 Replies

CBD Victory !!!

Don’t post very often, but thought I’d share my Mums “ little adventure”. We were invited to a cousins 50th Birthday celebrations, transport options were a 6/7...

Don’t post very often, but thought I’d share my Mums “ little adventure”. We wer...

Hidden

•6 years ago

20 Replies

Mini Vacation

I took a short trip out west, Sheridan, WY, to visit some family. It was a good trip but chilly. I caught this snow coming in across the Big Horn Mountains....

I took a short trip out west, Sheridan, WY, to visit some family. It was a good...

Dadshelper

•6 years ago

10 Replies

Life expectancy

My wife was diagnosed with P.S.P.in 2016.In 2017 were were told that sufferers life expectancy was an average of 7 years,I know that all cases are not the same...

My wife was diagnosed with P.S.P.in 2016.In 2017 were were told that sufferers l...

acorneater

•6 years ago

28 Replies

Really struggling

Hello everyone I haven't posted on here for a while. I'm a full time carer for my mum who got diagnosed with CBD almost 2 years ago. She's been homeless since...

Hello everyone I haven't posted on here for a while. I'm a full time carer for m...

Bobbiejo21

•6 years ago

14 Replies

Thank you

Thank you all for your comments with regards to PSP, it does make you feel a little easier knowing you are not alone in these matters. Although I doubt that...

Thank you all for your comments with regards to PSP, it does make you feel a lit...

Shakalak

•6 years ago

6 Replies

CBD

Hi my husband has CBD and I'm not sure I'm on the right chat group. I know they are close illnesses. He was diagnosed in 2015 but I think he had it before...

Hi my husband has CBD and I'm not sure I'm on the right chat group. I know they...

Michigan341

•6 years ago

13 Replies

Happy Birthday Jillanf -The Birthday Party party starts here!

Hi Jill :) Happy Birthday!!!! You are such a wonderful, loving and fun lady, For so many years you have been a star on this site, I am so seriously going to...

Hi Jill :) Happy Birthday!!!! You are such a wonderful, loving and fun lady, F...

Kevin_1

•6 years ago

31 Replies

Caring at home

My Mum is not settling at all in her extra care sheltered housing. Although early days, 5 months, I am breaking my heart leaving her each night. I feel that...

My Mum is not settling at all in her extra care sheltered housing. Although earl...

eurolynch

•6 years ago

10 Replies

Are Speech Issues a Pre-cursor to Swallowing Issues in CBD?

Hello, I have been a member of the site for over a year and have found it a wealth of information and appreciate everyone's input and perspective. My mother...

Hello, I have been a member of the site for over a year and have found it a weal...

choclab511

•6 years ago

16 Replies

Clinical Trials For PSP

I am new to the site and currently going through the process of being diagnosed with PSP, my father has also recently been diagnosed with PSP. I am 40 years...

I am new to the site and currently going through the process of being diagnosed ...

YoungPSP

•6 years ago

12 Replies

New PSPA Group - Macclesfield

PSPA has a new support group starting up in Macclesfield. The first meeting will be in April and is open to all. Whether you are living with a diagnosis of...

PSPA has a new support group starting up in Macclesfield. The first meeting will...

pspa-helpline

PSPA•6 years ago

1 Reply

Description of PSP

Hi Everyone, I'm wondering if anyone has attempted to write a general description of PSP which could be filed and printed or copy/pasted as necessary when a...

Hi Everyone, I'm wondering if anyone has attempted to write a general descripti...

nayook

•6 years ago

6 Replies

Stem cell therapy for PSP

I am reading quite a lot on Stem cell therapy for neurological brain degenerative disorders being done in China and now in Japan. Stem cells are available in...

I am reading quite a lot on Stem cell therapy for neurological brain degenerativ...

Bhakthan

•6 years ago

9 Replies

Stressed?

On a visit to the hospice my wife was introduced to aromatherepy.She was told it has calming effects so we decided to give it a go.Purchased a diffuser and...

On a visit to the hospice my wife was introduced to aromatherepy.She was told it...

acorneater

•6 years ago

6 Replies

Quick question

Hi everyone,I'm writing as my boyfriends dad has PSP. He was diagnosed more than 4 years ago. I see him every Sunday and I can see his deterioration. We know...

Hi everyone,I'm writing as my boyfriends dad has PSP. He was diagnosed more than...

JoJoB88

•6 years ago

7 Replies

First timer here

I was wondering at my last visit to the neruology ALS clinic why I couldn't focus back and forth from my computer screen to the computer keyboard. I was told...

I was wondering at my last visit to the neruology ALS clinic why I couldn't focu...

OleJoel

•6 years ago

15 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for February 2019

BBC TWO PARKINSON TRIAL

CHC Articles in Daily Telegraph 28th Feb

I can’t find my...

My Husband Has PSP

Webinar

Rare Disease Day

London Marathon

Anyone else got a hangover?

CRISPR

Lost my father

Psp

PSP-P Diagnosis

It's February 25 here in NZ!

Trying to regain my life following Steve’s passing

CBD Victory !!!

Mini Vacation

Life expectancy

Really struggling

Thank you

CBD

Happy Birthday Jillanf -The Birthday Party party starts here!

Caring at home

Are Speech Issues a Pre-cursor to Swallowing Issues in CBD?

Clinical Trials For PSP

New PSPA Group - Macclesfield

Description of PSP

Stem cell therapy for PSP

Stressed?

Quick question

First timer here

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive