Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for September 2017

A question from my hubby

Hello im David i have CBD and recently ive noticed pains in my fingers as if someone is poking them with a red hot needle has anyone else had this problem?

Hello im David i have CBD and recently ive noticed pains in my fingers as if so...

•7 years ago

Does CBD gradually affect all movements bit by bit?

I haven't had a diagnosis of CBD and atm my official diagnosis is YOPD atm I see the Movement Specialist Clinic on the 4th of October was referred to the...

I haven't had a diagnosis of CBD and atm my official diagnosis is YOPD atm I see...

•7 years ago

Feeding ideas

Hi Folks We had the Speech Therapist out earlier in the week to assess the best way for Liz to eat. Liz has a slowed swallow reflex and is prone to choking on...

Hi Folks We had the Speech Therapist out earlier in the week to assess the best...

•7 years ago

Want to take advantage of all our features? Just log in!

or

Any ideas to help with sleep ?

Hi my dad was recently diagnosed with psp after being told everything from vertigo to depression ! We have managed to do quite well getting referrals to speech...

Hi my dad was recently diagnosed with psp after being told everything from verti...

•7 years ago

Newly Diagnosed PSP

My sister, 57, is recently diagnosed with PSP. She was showing signs and symtopms since almost two years. At the same time she was going through some family...

My sister, 57, is recently diagnosed with PSP. She was showing signs and symtopm...

•7 years ago

Reading is quicker than writing.....

So for a few days I will continue to read all the posts,but I won't be replying. Life is getting hectic at the moment, and I want to give Barry all the time...

So for a few days I will continue to read all the posts,but I won't be replying....

•7 years ago

Emotional?

Crying is this part of CBD? Hubby has had several times where he will start crying, over a movie, cleaning out the garage the least little thing seems to...

Crying is this part of CBD? Hubby has had several times where he will start cryi...

•7 years ago

Endless Loud Coughing

The Doc prescribed liquid antibiotic to J as he said start of chest infection, the bottle has one more dose left and the coughing continues and its driving me...

The Doc prescribed liquid antibiotic to J as he said start of chest infection, t...

•7 years ago

Anniversary

48 years today. Time flies by so quick. Life is not the same as it was but we're still here, together, in our first home. I'm having a takeaway with my...

48 years today. Time flies by so quick. Life is not the same as it was but we're...

•7 years ago

Charlie getting worse

Good morning all, I never thought I would see my husband in a wheelchair but do to him falling so much these past few weeks, he has no choice. Why is it taking...

Good morning all, I never thought I would see my husband in a wheelchair but do ...

•7 years ago

I was Dx on my birthday in 2016

I received my dx at the end of 2016. I think my G. p k wr .

I received my dx at the end of 2016. I think my G. p k wr .

•7 years ago

National council for Palliative Care.

I've just come across this website and thought I would share with everyone as might have some useful information, when the time is right for people to look....

I've just come across this website and thought I would share with everyone as mi...

•7 years ago

MINDFULLNESS

Hi guys, this is for POST PSP & PSP. As anyone tried Mindfullness? I have been going for a couple of months now. It's a meditation class. Don't know if it's...

Hi guys, this is for POST PSP & PSP. As anyone tried Mindfullness? I have been ...

•7 years ago

Palliative Care

Hello All. B went into hospital 9 days ago with groin pain. After several scans and lack of peg feeding for 33 hours, they decided not to operate on the two...

Hello All. B went into hospital 9 days ago with groin pain. After several scans ...

•7 years ago

Care home complaint - reply

Hi all, I received the reply from the care home that caused dad's 11 week hospital stay today. Just wanted to ask opinions on it please. They've admitted they...

Hi all, I received the reply from the care home that caused dad's 11 week hospit...

•7 years ago

PSP Carer Survivor Forum?

Hi Folks I am very good at getting bad ideas. When we loose our loved one the forum becomes, perhaps, less relevant except for the warmth and friendship we may...

Hi Folks I am very good at getting bad ideas. When we loose our loved one the fo...

•7 years ago

Dear Friends

Dear friends it will soon be time for me to leave this site , not just yet but soon . I am finding bereavement very difficult to deal with and I feel I must...

Dear friends it will soon be time for me to leave this site , not just yet but s...

•7 years ago

What is this? What do the anacranime represent?

What is the acriname PCP stad for?

What is the acriname PCP stad for?

•7 years ago

Can't find any Carbidopa/levodopa ER...

My husband takes Carbidopa/levodopa Extended Release 4 times daily. The last time we refilled his prescription, we were told that some manufacturerrs had...

My husband takes Carbidopa/levodopa Extended Release 4 times daily. The last ti...

•7 years ago

Feeling so sad

Well George's coughing has got worse, takes ages to eat, he is choking all the time after coughing, my heart is breaking, I look at him and it breaks my heart,...

Well George's coughing has got worse, takes ages to eat, he is choking all the t...

Yvonneandgeorge

•7 years ago

Warning : Rant

I need to get this out & what better place than here... I get a call last night from my Dad's teatime carer to say he's had a (toilet) accident & that she's...

I need to get this out & what better place than here... I get a call last night ...

•7 years ago

CHC funding - The other route.

Hello folks I'm sitting here feeling rather sad and angry at the plight of so many of us struggling to get CHC funding whilst struggling with the enormity of...

Hello folks I'm sitting here feeling rather sad and angry at the plight of so ma...

•7 years ago

Care at home

I was recently informed that there would be no way of looking after my mum at home once the PSPA progresses. I can't stand the thought of her not being at...

I was recently informed that there would be no way of looking after my mum at ho...

•7 years ago

Sister with CDB declining

My sister with CDB can not sit still or be quiet. She can't speak but she makes noises and screams all of the time. And when she lays down or sits then she...

My sister with CDB can not sit still or be quiet. She can't speak but she makes...

•7 years ago

Home after 5days and a joke

Hi all Archie came home Wednesday and it's been a joke of an holiday with the professional muppets They filled admission form without us and of it wrong best...

Hi all Archie came home Wednesday and it's been a joke of an holiday with the p...

•7 years ago

Depression crisis

My PSP patient has depression crisis every 30-60 days. Against depression he takes daily: 1/2 of Sertraline-50 in breakfast and 1/2 Sertraline-50 in the meal,...

My PSP patient has depression crisis every 30-60 days. Against depression he tak...

LuisRodicioRodicio

•7 years ago

Why CHC was refused

Well Folks, Finally I have the letter telling us the Panel`s decision to withdraw CHC. I have just ploughed through the DST and the Panel`s notes, but the...

Well Folks, Finally I have the letter telling us the Panel`s decision to withdra...

•7 years ago

CHC SUCCESS!

My dad is coming home on Tuesday!!!!! The care agency I found myself (after being told there was NO care available by the hospital) has just been approved by...

My dad is coming home on Tuesday!!!!! The care agency I found myself (after bein...

•7 years ago

PETER lost his fight against psp

Pete has had psp for 5 years he sadly passed away on Friday 15th September. Rest in peace now Pete xx

Pete has had psp for 5 years he sadly passed away on Friday 15th September. Rest...

•7 years ago

Mikah_1

I'm new here. My mom was diagnosed two years ago this December with pap/ cbd. The doctors told me she's 3 1/2 years into this. I see my mom changing all the...

I'm new here. My mom was diagnosed two years ago this December with pap/ cbd. Th...

•7 years ago

1
2
...
4
Next page

Search posts

Latest poll

What are your main concerns as a carer?

Topics

All things PSP Association(134)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2023

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2013

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2012

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2011

Jan

Feb

Apr

May

Jun Jul Aug Sep Oct Nov Dec