Posts - PSP Association | HealthUnlocked

PSP Association

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All posts for April 2013

Has anyone else heard or know of a connection between PSP & NMH (a type of fainting), with a possible solution being a pacemaker?

NMH is Neurally Mediated Hypotension. I had done a lot of research about it to prepare for my next Neuro appt. (tomorrow) and can't find it anywhere. What...

NMH is Neurally Mediated Hypotension. I had done a lot of research about it to p...

JudyJ

•12 years ago

17 Replies

Today's update

http://kathywblog.wordpress.com/2013/04/28/a-bit-like-life/

Kathy

•12 years ago

1 Reply

My sister in law was diagnosed with CBGD about 3 years ago. Did anyone else experience a deterioration of symptoms after Lumbar Puncture.

milfordgirl

•12 years ago

7 Replies

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LATEST NEROLOGY APPOINTMENT RESULTS

Hi all, We had our four month visit to our neurologist at Shands Hospital Neurological Clinic this past week. We go there for an evaluation of Sharyn's PSP...

Hi all, We had our four month visit to our neurologist at Shands Hospital Neurol...

jimandsharynp

•12 years ago

23 Replies

AMANTADINE, ANYONE HAD EXPERIENCE WITH IT POSITIVE OR NEGATIVE?

Just returned this week from our neurologist at University of Florida Neurological Clinic. He said to ease down until totally off Sintement...

Just returned this week from our neurologist at University of Florida Neurologic...

jimandsharynp

•12 years ago

16 Replies

last gift for my mother.

cruel Psp disease. I didnt know about this horrible disease until it hit one of my biggest treasures in my life :"( Description All Angels out there please...

cruel Psp disease. I didnt know about this horrible disease until it hit one of ...

vero11

•12 years ago

Be the first to reply

Took a hard backwards fall this morning.

Got out of bed this morning with both feet solidly on the floor but took a hard fall backwards between the bed and dresser. It was quite unexpected; I didn't...

Got out of bed this morning with both feet solidly on the floor but took a hard ...

JudyJ

•12 years ago

8 Replies

Has anyone experienced rigors as part of PSP symtoms

Hidden

•12 years ago

3 Replies

HOW CAN I

STOP GETTING EMAILS FROM PSPA ? IT IS JUST TOO UPSETTING TO READ ABOUT ALL THE POOR PEOPLE DYING AND SO ILL ?

STOP GETTING EMAILS FROM PSPA ? IT IS JUST TOO UPSETTING TO READ ABOUT ALL THE P...

shasha

•12 years ago

7 Replies

Gingerbread house! This is what a 9 yr old girl wrote this morning after talking about how sad she was about her Daddy who has PSP ...

Life is like a gingerbread house It needs a plan You need need the right ingredients It needs cement It needs to be stable Then it will taste good to...

Life is like a gingerbread house It needs a plan You need need the right ing...

SharonAB

•12 years ago

8 Replies

Anyone hear of stomach pain associated with PSP?

My husband has had lots of stomach problems, has had every test in the book. The tests all come back fine. Now he is having episodes of severe stomach pain. Is...

My husband has had lots of stomach problems, has had every test in the book. The...

laroux

•12 years ago

4 Replies

seizures/ shakes

Hi , does anyone have any experience of pwpsp having shaking episodes? Dad starts to shake furiously hands, arms, legs everything and he grips either our hands...

Hi , does anyone have any experience of pwpsp having shaking episodes? Dad start...

daughter_Julie

•12 years ago

8 Replies

Hospice Care

Hi Dorothy, I live in the Ipswich area of Suffolk. Our local hospice is St. Elizabeths Hospice in Ipswich and that is where they cared for my sister and for...

Hi Dorothy, I live in the Ipswich area of Suffolk. Our local hospice is St. El...

maeve

•12 years ago

4 Replies

Hospice Care

Hi Dorothy, I found our hospice help invaluable when I was looking after my sister. She attended the day centre one day each week which gave me a much needed...

Hi Dorothy, I found our hospice help invaluable when I was looking after my sis...

maeve

•12 years ago

4 Replies

PSP FINANCIAL PLANNING

Just had the paperwork noterised to assure access to my wife's retirement accounts. I'm doing this now while she is still mentally very stable so that if and...

Just had the paperwork noterised to assure access to my wife's retirement accoun...

jimandsharynp

•12 years ago

3 Replies

Can anyone help/advise me? My dad was diagnosed with PSP 2 years ago we have seen a marked deterioration in his health since Christmas

This is putting significant strain on my mum herself diagnosed with Parkinson's 5years ago . Social services are coming later this week to do an assessment....

This is putting significant strain on my mum herself diagnosed with Parkinson's ...

GracieG

•12 years ago

37 Replies

Local Hospice

Has anybody had any help or care from their local Hospice? dorothy-thompson

dorothy-thompson

•12 years ago

9 Replies

New entry on my blog

http://kathywblog.wordpress.com/2013/04/22/a-valuable-lesson/ http://www.justgiving.com/Kathy-Weston-London-to-Brighton-or-Bust

http://kathywblog.wordpress.com/2013/04/22/a-valuable-lesson/ http://www....

Kathy

•12 years ago

3 Replies

Mrs farringdon

Hi Its my first time I've wrote on your site. I've been reading your site for about 10 months now and find it brilliant. My dad has psp for about a year....

Hi Its my first time I've wrote on your site. I've been reading your site for ...

mrsfarringdon

•12 years ago

12 Replies

COCONUT OIL

ANY BODY SEEN DAYBREAK THIS MORNING, TALKING ABOUT COCONUT OIL FOR ALZHEIMER. THEY ARE SAYING 3 TABLESPOONS TWICE A DAY? BUT THEY SAY THEY HAVE A GREAT...

ANY BODY SEEN DAYBREAK THIS MORNING, TALKING ABOUT COCONUT OIL FOR ALZHEIMER. T...

tisha1953

•12 years ago

7 Replies

Heaven gained an angel today

Today at 8:15 a.m. my dad passed away. He suffered 5 years and 1 month of PSP. He passed here in my home, with his wife sleeping next to him, his other...

Today at 8:15 a.m. my dad passed away. He suffered 5 years and 1 month of PSP. ...

Momto5

•12 years ago

22 Replies

RIP Dad

I just wanted to put in writing how truly thankful I am that I found this site. Everyone that I have had contact with helped me enormously whilst trying to...

I just wanted to put in writing how truly thankful I am that I found this site. ...

coleen

•12 years ago

9 Replies

Progressing fast

Since my parents moved in with us 7 weeks ago, my dad has gone from walking with me holding his hands, him sitting in his recliner and taking naps, still...

Since my parents moved in with us 7 weeks ago, my dad has gone from walking with...

Momto5

•12 years ago

10 Replies

Provale cup / RiJe cup

The speech therapist suggested hubby use a Provale cup to stop him coughing when taken large sips. This cup restricts the amount of fluid that can be taken at...

The speech therapist suggested hubby use a Provale cup to stop him coughing when...

MaddyS

•12 years ago

23 Replies

Daddy

My Dad died at 16h00 today. I love u so much and I am relieved you are not suffering anymore.

My Dad died at 16h00 today. I love u so much and I am relieved you are not suffe...

coleen

•12 years ago

8 Replies

My husband's speech is becoming very slurred and very quiet and I find it difficult to understand him

and he gets very annoyed with me out of sheer frustration. How do others handle this? Do you have any tips or advice. I recently spoke with a parkinson's...

and he gets very annoyed with me out of sheer frustration. How do others handl...

dorothy-thompson

•12 years ago

15 Replies

Rita's Passing

My beautiful wife of almost 49 years passed away on 4-4-13. She was diagnosed with PSP in 2008 at the Mayo Clinic. She suffered but never complained so now...

My beautiful wife of almost 49 years passed away on 4-4-13. She was diagnosed w...

DougK

•12 years ago

17 Replies

Falling out of bed

Hi everyone, I am new to this but am fuming about the way my nan and grandad are being treated. My nan does everything for my grandad because the doctors just...

Hi everyone, I am new to this but am fuming about the way my nan and grandad are...

pinkypoo

•12 years ago

18 Replies

Does anyone know or experienced an esophagus spasm due to PSP?

My mum has had PSP for 7-8 years. We were told by neurologist last October that mum is now in the final stages. Mum can no longer walk, her speech some days so...

My mum has had PSP for 7-8 years. We were told by neurologist last October that ...

JoJo-K

•12 years ago

14 Replies

June has passed away after 8 years and 2 months.

June who was diagnosed in 2005 with this terrible condition pass away at home peacefully last night. She stayed at home throughout her entire battle with PSP....

June who was diagnosed in 2005 with this terrible condition pass away at home pe...

Macd

•12 years ago

23 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for April 2013

Has anyone else heard or know of a connection between PSP & NMH (a type of fainting), with a possible solution being a pacemaker?

Today's update

My sister in law was diagnosed with CBGD about 3 years ago. Did anyone else experience a deterioration of symptoms after Lumbar Puncture.

LATEST NEROLOGY APPOINTMENT RESULTS

AMANTADINE, ANYONE HAD EXPERIENCE WITH IT POSITIVE OR NEGATIVE?

last gift for my mother.

Took a hard backwards fall this morning.

Has anyone experienced rigors as part of PSP symtoms

HOW CAN I

Gingerbread house! This is what a 9 yr old girl wrote this morning after talking about how sad she was about her Daddy who has PSP ...

Anyone hear of stomach pain associated with PSP?

seizures/ shakes

Hospice Care

Hospice Care

PSP FINANCIAL PLANNING

Can anyone help/advise me? My dad was diagnosed with PSP 2 years ago we have seen a marked deterioration in his health since Christmas

Local Hospice

New entry on my blog

Mrs farringdon

COCONUT OIL

Heaven gained an angel today

RIP Dad

Progressing fast

Provale cup / RiJe cup

Daddy

My husband's speech is becoming very slurred and very quiet and I find it difficult to understand him

Rita's Passing

Falling out of bed

Does anyone know or experienced an esophagus spasm due to PSP?

June has passed away after 8 years and 2 months.

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive