Posts - PSP Association | HealthUnlocked

PSP Association

9,247 members • 11,346 posts

All posts for July 2012

Message for Cate

Hi Cate, Just wanted to say I'm thinking of you and hoping things are improving xx love Kathy xx

Hi Cate, Just wanted to say I'm thinking of you and hoping things are improvi...

Kathy

•12 years ago

5 Replies

Brilliantly simple, simply brilliant!

In recent days Mum seems to have "forgotten" how to drink :-( When we put the cup to her lips instead of putting her lips round the cup she clamps them tight...

In recent days Mum seems to have "forgotten" how to drink :-( When we put the cu...

Kathy

•12 years ago

12 Replies

PEG or not

Hi Coleen Please be advised thatonce a peg is in.it cant be removed and if his suffering is so severe,he may stay alive only because of the PEG,which is not...

Hi Coleen Please be advised thatonce a peg is in.it cant be removed and if hi...

Pinda

•12 years ago

7 Replies

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Bell Ringing

Hi to everyone who has written comments about this problem of my sister ringing her bell in the home. She is checked on regularly by the staff and I am...

Hi to everyone who has written comments about this problem of my sister ringing ...

maeve

•12 years ago

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What makes the PSP diagnosis positive? Can anyone explain what are the composite symptoms that make it a sure PSP condition?

The neurologist is saying he has a 70% chance that it's PSP, but will know more in 4 months..

The neurologist is saying he has a 70% chance that it's PSP, but will know more ...

hicval

•12 years ago

8 Replies

No to PEG

As expected my Dad has opted not to have a PEG fitted. My Mom is battling with this decision, as she is convinced that she will watch him starve to death. I...

As expected my Dad has opted not to have a PEG fitted. My Mom is battling with ...

coleen

•12 years ago

10 Replies

Any suggestions

Can anybody help me with this problem. My sister is in a nursing home - the care is wonderful and staff are kind. My sister keeps ringing her bell constantly...

Can anybody help me with this problem. My sister is in a nursing home - the car...

maeve

•12 years ago

8 Replies

Exercises for dysphagia

Hi to everyone, last week we had a visit to a speech therapist.,My father will start speech therapies in September, unfortunately the speech therapist will not...

Hi to everyone, last week we had a visit to a speech therapist.,My father will s...

john_z

•12 years ago

5 Replies

have to pay for carers??

is this correct? my mum cares for my stepdad 24hrs she contacted social services to enquire 1 day a wk for herself a break they have written back saying she...

is this correct? my mum cares for my stepdad 24hrs she contacted social services...

emazros

•12 years ago

13 Replies

My husband has always been verbally aggressive towards me but now he is becoming physically aggressive. It may be the PSP but I am

becoming nervous and wary of him. He is not any any medication. PLEASE has anyone got a suggestions or solutions? dorothy-thompson

becoming nervous and wary of him. He is not any any medication. PLEASE has ...

dorothy-thompson

•12 years ago

11 Replies

Cambridge Support Group meets tomorrow at 2.30pm in Trumpington Village Hall, Trumpington CB2 9HZ.

Just a quick reminder... Tim Rittman and Cameron Wood will both be joining us. Tim has joined us before and is Research Fellow @ Cambridge University...

Just a quick reminder... Tim Rittman and Cameron Wood will both be joining us...

VerW

•12 years ago

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My first Blog P.S.P

My name is Sandy And have been living with PSP for about 3 years now.I have had every test that you can emagine.to solve my problems. Falling back wards...

My name is Sandy And have been living with PSP for about 3 years now.I have had ...

kittens

•12 years ago

24 Replies

stuff

http://youtu.be/zWPobcJ19Og

jprall

•12 years ago

1 Reply

I wonder what folk think about using audio visual monitoring of vulnerable people (those who cannot report abuse).

i used it for Mum when she was at home to prevent opening her bedroom door during the night to check on her and disturbing her. It worked well. It meant that I...

i used it for Mum when she was at home to prevent opening her bedroom door durin...

barbren

•12 years ago

8 Replies

my latest blog: how i am at present

hi all i am now in my grea tground floor aparmtment with my partner. and it has been a v stressful move but i am here, falling less, and apart from another...

hi all i am now in my grea tground floor aparmtment with my partner. and it h...

jillannf6

•12 years ago

11 Replies

Thickening agent review

I would appreciate information regarding thickening agents for liquids. We are moving into this phase rapidly and would like any feedback you have to share....

I would appreciate information regarding thickening agents for liquids. We are ...

Sugardart

•12 years ago

13 Replies

Care Home

Just arrived back after spending the morning at the care home with Frank. Such a glorious day the staff wheeled a lot of the residents to the garden. Talk...

Just arrived back after spending the morning at the care home with Frank. Such a...

kay1

•12 years ago

2 Replies

Dementia

My wife is mentally fine at the moment. Brain and memory working fine just a bit slow. Is this the experience of most and if not at what point does the mind...

My wife is mentally fine at the moment. Brain and memory working fine just a bi...

jimandsharynp

•12 years ago

11 Replies

Adapted cups

Does anyone know where I can get an adapted cup that DOESN'T look like a child's beaker?? Mum has difficulty tipping her head back far enough to drink properly...

Does anyone know where I can get an adapted cup that DOESN'T look like a child's...

Kathy

•12 years ago

12 Replies

Final stages

Hello everybody, We had a meeting with a team of doctors etc at the hospital where my mum is being treated for a very resilient urinary tract infection and...

Hello everybody, We had a meeting with a team of doctors etc at the hospital ...

CateT

•12 years ago

22 Replies

For Sale

Milford Person Lift. £1500 ( £3000 if new) This enables a person to be lifted by hoist in and out of a car. See www.autochair.co.uk for details....

Milford Person Lift. £1500 ( £3000 if new) This enables a person to be li...

LizPeel

•12 years ago

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More sad news

Hi everybody....as some of you may know, my daughter-in -law has been seriously ill, having been treated for a brain tumour then contracted MRSA. It's now...

Hi everybody....as some of you may know, my daughter-in -law has been seriously ...

hazelb

•12 years ago

19 Replies

Loss of Hope

My husband passed away a little over two months ago. I am slowly, but surely, recapturing myself. Now that I look back on our ordeal, I realize that one of...

My husband passed away a little over two months ago. I am slowly, but surely, re...

BarbR

•12 years ago

12 Replies

Devunetide drug ????

Hi any views on this drug i am curious about the following information: rough idea of when in 2013 it may be out? reviews on people who trialed it?...

Hi any views on this drug i am curious about the following information: r...

kades

•12 years ago

3 Replies

hi anyone living in the Bolton/ Greater Manchester area with PSP?

Hi dad had been diagnosed 6 months ago would love to hear from people in our local area with the illness either patients, carers or family so dad can perhaps...

Hi dad had been diagnosed 6 months ago would love to hear from people in our loc...

kades

•12 years ago

7 Replies

Swallowing Issues

I'm wondering if a PSP patient with beginning swallowing problems is better off sipping from a bottle (water) or drinking it (water) from a glass. Maybe it...

I'm wondering if a PSP patient with beginning swallowing problems is better off ...

jimandsharynp

•12 years ago

16 Replies

this one is for all the family members and carers!!

Hi everyone, i'm new to the site and have had wonderfull feedback regarding my dads illness, this site is a great support for family members and carers to...

Hi everyone, i'm new to the site and have had wonderfull feedback regarding ...

kades

•12 years ago

33 Replies

A useful idea?

Recently it has been getting harder and harder to get Mum's bathrobe on after I've given her a shower - largely because Mum's elbows don't bend very easily...

Recently it has been getting harder and harder to get Mum's bathrobe on after I'...

Kathy

•12 years ago

10 Replies

Pocklington Support Group

On Saturday, 28th July the Pocklington Support Group will be having a Charity Stall in York City Centre if anyone would like to go along. For more...

On Saturday, 28th July the Pocklington Support Group will be having a Charity St...

PSPA_DebbieB

Partner•12 years ago

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Davunetide

Hello everybody.. I'm a 22 years old girl.. My mother has Psp .. I can't be able to accept this terrible illness.. I've read recently about Davunetide...

Hello everybody.. I'm a 22 years old girl.. My mother has Psp .. I can't be able...

rosaria90

•12 years ago

21 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for July 2012

Message for Cate

Brilliantly simple, simply brilliant!

PEG or not

Bell Ringing

What makes the PSP diagnosis positive? Can anyone explain what are the composite symptoms that make it a sure PSP condition?

No to PEG

Any suggestions

Exercises for dysphagia

have to pay for carers??

My husband has always been verbally aggressive towards me but now he is becoming physically aggressive. It may be the PSP but I am

Cambridge Support Group meets tomorrow at 2.30pm in Trumpington Village Hall, Trumpington CB2 9HZ.

My first Blog P.S.P

stuff

I wonder what folk think about using audio visual monitoring of vulnerable people (those who cannot report abuse).

my latest blog: how i am at present

Thickening agent review

Care Home

Dementia

Adapted cups

Final stages

For Sale

More sad news

Loss of Hope

Devunetide drug ????

hi anyone living in the Bolton/ Greater Manchester area with PSP?

Swallowing Issues

this one is for all the family members and carers!!

A useful idea?

Pocklington Support Group

Davunetide

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive