Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for October 2017

Wise words...just seen this post on Facebook. Thank you to everyone supporting each other in our hardest & traumatic moments x

When we experience something that causes us to feel shock and sadness, we may feel the urge to withdraw from life. It may seem like remaining withdrawn will...

When we experience something that causes us to feel shock and sadness, we may fe...

•7 years ago

Back from my break

Hi everyone I have just come back from a week away with my daughter and grandsons, yes it was a lovely break, but all I worried about was George, he had a...

Hi everyone I have just come back from a week away with my daughter and grandson...

Yvonneandgeorge

•7 years ago

Is this the end?

My mother in law is only 62 & has been in a full time care home for the past 4 years, she was misdiagnosed with Parkinson's about 7-8 years ago, she is now...

My mother in law is only 62 & has been in a full time care home for the past 4 y...

•7 years ago

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I am now required to be Orpheus!

Hi Folks Orpheus travelled into the Underworld to rescue Eurydice. Our experience of PSP has been that all along. Protecting Liz from various mythical...

Hi Folks Orpheus travelled into the Underworld to rescue Eurydice. Our experienc...

•7 years ago

Don't know what to do

My Father is bedridden. We've been told that all food needs to be pureed. All liquids need to be thickened. Last night he wanted food unaltered. I didnt want...

My Father is bedridden. We've been told that all food needs to be pureed. All li...

•7 years ago

Difficult three weeks

My mum died on 10 October and Dad followed her yesterday afternoon. We knew Dad was going last week and spent time with him. That week John took a big downward...

My mum died on 10 October and Dad followed her yesterday afternoon. We knew Dad ...

•7 years ago

Another Hurdle to Get Over

Tomorrow, B. leaves the Palliative Care Unit at the hospital and goes into a nursing home. It is nearer home and seems to be very nice. I took my sister in...

Tomorrow, B. leaves the Palliative Care Unit at the hospital and goes into a nur...

•7 years ago

Bad day

Have been very tearful today. Hubby on another antibiotic for his chest infection. Can’t believe how much weight he has lost and he is only taking small...

Have been very tearful today. Hubby on another antibiotic for his chest infecti...

•7 years ago

C and G

Coughing and Gagging all night long. Getting antibiotics for Charles again. At some point I guess that will not be happening. Since he's on Hospice there is...

Coughing and Gagging all night long. Getting antibiotics for Charles again. At...

•7 years ago

Nanna had a lovely send off

My nans funeral was last Wednesday. Even though it was heart breaking, it was truly a day to celebrate her life. She had music from westlife-raise me up and...

My nans funeral was last Wednesday. Even though it was heart breaking, it was tr...

•7 years ago

Thank you

Only just joined this site,wish I had done sooner,thank you so so much for all your messages of support,it has given me strength for the days ahead,things not...

Only just joined this site,wish I had done sooner,thank you so so much for all y...

•7 years ago

Wheelchair adapted vehicles

I need to buy a WAV as I am now struggling to get Valerie in and out of our car. Anyone have tips and experience of medium size vehicles ? Best buy ??...

I need to buy a WAV as I am now struggling to get Valerie in and out of our car....

•7 years ago

Gone but not forgotten

Well after the 3rd attempt at getting gers death certificate, and the doctor having to physically go to mortuary to see his body, we actually got it this...

Well after the 3rd attempt at getting gers death certificate, and the doctor hav...

•7 years ago

Weakness?

Hi all I was wondering if you/your loved one complained about weakness? And when they were not mobile anymore was it because of balance or losing the strength...

Hi all I was wondering if you/your loved one complained about weakness? And when...

•7 years ago

Botox for neck

Hi, has anyone had Botox in the neck to help hold neck upright? My hubby’s neck is bent down, and this causes his shoulders and back to lean forward. Would...

Hi, has anyone had Botox in the neck to help hold neck upright? My hubby’s neck ...

•7 years ago

Finally, quiet, calm and peaceful

After another 12 hour coughing and choking night today is quiet and peaceful. Charles and I had quality time together and he apologized for his actions....

After another 12 hour coughing and choking night today is quiet and peaceful. C...

•7 years ago

Gone but not forgotten.

Well yesterday afternoon at 3.40 ger stopped breathing. He went from gasping to peaceful long breaths. All family and couple of friends with him. A lovely...

Well yesterday afternoon at 3.40 ger stopped breathing. He went from gasping to ...

•7 years ago

Gurgling

Hi all Some of you will know from my previous posts that my beautiful mum has PSP. The last couple of days she has been gurgling quite alot. I guess this is...

Hi all Some of you will know from my previous posts that my beautiful mum has P...

•7 years ago

Meu querido pai.

Olá, meu nome é Thiago, meu pai tem 63 anos e foi diagnosticado com Degeneração Córtico Basal a 6 anos, atualmente não caminha mais, não tem mais os movimentos...

Olá, meu nome é Thiago, meu pai tem 63 anos e foi diagnosticado com Degeneração ...

•7 years ago

Neck rigidity,

Dan’s neck is beginning to lean to the left. It looks uncomfortable, and is causing his whole body to lean to one side when he is in his reclining lift chair....

Dan’s neck is beginning to lean to the left. It looks uncomfortable, and is caus...

•7 years ago

Eyes

Hi all sorry wrote anything for a while but I have read the posts daily xx I’m looking for advice just when you think psp can’t throw anything else at us mums...

Hi all sorry wrote anything for a while but I have read the posts daily xx I’m l...

•7 years ago

Bathing

Hi, my mum has PSP and can not do anything unassisted. She really wants a bath, but how do we get her in a bath. Any help and advise much appreciated Thanks...

Hi, my mum has PSP and can not do anything unassisted. She really wants a bath, ...

•7 years ago

just so worried

hi David had CBD and has now finished work as he was stuggling with fatigue and anxiety. he was much better now hes home and can rest more. ive noticed he...

hi David had CBD and has now finished work as he was stuggling with fatigue and ...

•7 years ago

Rapid weight loss

I'm new here. My husband was diagnosed with PSP in February 2016. But like many others a long battle to get the diagnosis. He has recently suffered severe...

I'm new here. My husband was diagnosed with PSP in February 2016. But like many ...

•7 years ago

Wheezing and coughing

Hi there - My mother was diagnosed with PSP two years ago. She has gradually declined in many ways - dizziness and falling, coughing, disorientation,...

Hi there - My mother was diagnosed with PSP two years ago. She has gradually de...

•7 years ago

I will not give up

It took5 years to be told I had cbd, endless drs and scans after a car wreck I became dizzy 24/7. Actually I am still dizzy off and on. One dr in Dallas,...

It took5 years to be told I had cbd, endless drs and scans after a car wreck I b...

•7 years ago

CHC

Hi Feeling exhausted, Rog's yearly review for funding, very nice professional assessors but two hours is enough! Impressed re all the evidence i had gathered...

Hi Feeling exhausted, Rog's yearly review for funding, very nice professional as...

•7 years ago

Why so different with other people?

I apologise firstly for not joining in conversations on here. To be honest, I've gone into hibernation these past 5 months. I'm just not handling psp well. I...

I apologise firstly for not joining in conversations on here. To be honest, I've...

•7 years ago

The battle is over

Sadly my brave father lost his fight against p.s.p. on Saturday morning. The poor man fought bravely but this horrid disease kept pushing! He will be sadly...

Sadly my brave father lost his fight against p.s.p. on Saturday morning. The poo...

•7 years ago

Any one need these ?

I have a waterproof cape for a wheelchair user, navy blue hood etc folds up pretty small so there in an emergency and also a fleece thingy you sit in in the...

I have a waterproof cape for a wheelchair user, navy blue hood etc folds up pr...

•7 years ago

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