Posts - PSP Association | HealthUnlocked

PSP Association

9,232 members • 11,335 posts

All posts for September 2011

From urine infection, to hospital, to PEG, to improvement!

Hello all, Back in July my dad unfortunately caught a urine infection that made him deteriorate rapidly. He ended up in hospital for 4 long weeks and I...

Hello all, Back in July my dad unfortunately caught a urine infection that mad...

mlr82

•13 years ago

4 Replies

PSPA Cambridge Support Group - Saturday, 1st October, 10.30am.

The first meeting of the PSPA Cambridge Support Group takes place this Saturday at Trumpington Village Hall. All welcome! Join Ronc and Faiza and help them...

The first meeting of the PSPA Cambridge Support Group takes place this Saturday ...

PSPA_CameronW

•13 years ago

4 Replies

What a help

I have just taken my sister into hospital to have a PEG tube fitted and read through the PSP information pack. The section marked "going into hospital" I...

I have just taken my sister into hospital to have a PEG tube fitted and read thr...

maeve

•13 years ago

3 Replies

Want to take advantage of all our features? Just log in!

re davunetide assuming the drug is released for more general use by PSP patients] does anyone know if it will b in form of a nasal spray?

i could not take part in the triazl as i already use a nasal spray for allergic rhinitis and wonder if will be aviailabe in tablet form 4 rhe next part of the...

i could not take part in the triazl as i already use a nasal spray for allergic ...

jillannf6

•13 years ago

7 Replies

My PSP Family

Hi All As I say to people, I have my family, my spiritual family at church, which is growing and my PSP Family, which is growing week by week with my...

Hi All As I say to people, I have my family, my spiritual family at church, w...

jennifer-nind

•13 years ago

4 Replies

walking & taking asna result of dvunotay

a sort up date: yes i am still ealking & my spich is much beter. thanks to all the well weshers. israel. if you wish to ask me any question , pleases emai me...

a sort up date: yes i am still ealking & my spich is much beter. thanks to all t...

IsraelZehavi

•13 years ago

4 Replies

PSP SYMPOSIUM

hi every body, I have just got home from the psp symposium in london and i would just like to say what a great day i had great speakers, great people and...

hi every body, I have just got home from the psp symposium in london and i w...

ray-wiffen-1958

•13 years ago

12 Replies

Why is my Mum so tired when going out to the shops in her wheelchair being pushed by us, it can take 2 days to get over a 2 hour outing?

My Mum was diagnosed with PSP in Feb this year after a few years of falling backwards! Mum fell down the stairs and broke her back and multiple ribs she was...

My Mum was diagnosed with PSP in Feb this year after a few years of falling back...

JanStott

•13 years ago

11 Replies

Medication

My Husband is on Stalevo,D.H.C.Continus and Celecoxib with Paracetamol as a back-up but he still gets bad pain and so his D.H.C. Continus is being increased...

My Husband is on Stalevo,D.H.C.Continus and Celecoxib with Paracetamol as a back...

Gwendolyn

•13 years ago

7 Replies

Anyone from NZ

Hi Is there anyone from New Zealand on the site. I live in Auckland and my wife has PSP. Cheers Rob

Hi Is there anyone from New Zealand on the site. I live in Auckland and my wife...

RobTheKiwi

•13 years ago

7 Replies

The first meeting of the Brentwood PSP Group

Have just returned from the first Brentwood PSP support group meeting and found it very useful as it made me realise that families have a varied experience of...

Have just returned from the first Brentwood PSP support group meeting and found...

denmob

•13 years ago

15 Replies

We want to develop the PSPA Support Group network accross the UK and are keen to hear from people who would interested in running a group.

The aim is to have local groups that meet regularly which not only provide support, but also give opportunities for individuals to get involved in a wide range...

The aim is to have local groups that meet regularly which not only provide suppo...

PSPA_CameronW

•13 years ago

11 Replies

Devunetide availability in drugstore?

hi, My father is suffering with PSP. I stay in India, I would like to know if Devunetide drug is available in the drug stores of USA or India? or how...

hi, My father is suffering with PSP. I stay in India, I would like to k...

sopan

•13 years ago

6 Replies

Just come home from the Zumbathon party for PSPA

Dear all Just a quick write up as I have just returned home from the Zumabthon Party event I held in Rochdale. I have to say it was a fantastic night with...

Dear all Just a quick write up as I have just returned home from the Zumabtho...

LesleyB

•13 years ago

10 Replies

Canadian

Since I am new here, first let me say that it is my Dad who has PSP. In my opinion, about 8 years now. I am encouraged by the support offered here and have...

Since I am new here, first let me say that it is my Dad who has PSP. In my opin...

MJ-Mark

•13 years ago

17 Replies

Thank you!!

I just want to say thank you to everybody on here. It's really great to see everybody supporting each other and I've just ready your kind messages about my...

I just want to say thank you to everybody on here. It's really great to see ever...

HannahDaykin

•13 years ago

3 Replies

PSP Matters

Our Autumn issue of PSP Matters is now available and can be downloaded from http://www.pspeur.org/user/docs/PSP%20matters-web%20Autumn.pdf Please write to...

Our Autumn issue of PSP Matters is now available and can be downloaded from http...

PSPA_DebbieB

Partner•13 years ago

Be the first to reply

I am a PSP patient experiencing periods of blurry vision with these periods becoming more frequent and lasting longer.

Will my vision continue to decline? Will a change in my eye-wear prescription help?

Will my vision continue to decline? Will a change in my eye-wear prescripti...

barnett910

•13 years ago

4 Replies

Another blow.

We have had a few days away which on the whole were a nice change for both of us and we did enjoy the time. My husband only had a couple of falls, thankfully...

We have had a few days away which on the whole were a nice change for both of us...

Peter2

•13 years ago

14 Replies

Disabled access holiday let needed.

Does anyone know of a disabled access holiday cottage/apartment (preferably with wet room) that sleeps 4-6 people, within 2 hours drive of London that allows...

Does anyone know of a disabled access holiday cottage/apartment (preferably with...

Kathy

•13 years ago

3 Replies

Anyone who is or has cared for someone with psp living in south London who would like to meet up?

It would be good to meet others in my position.

Victoriab

•13 years ago

9 Replies

Just a quick one..

My Brother spends time with a group of other young carers & they take him out to do activities and just generally spend time with one another for a break....

My Brother spends time with a group of other young carers & they take him out to...

HannahDaykin

•13 years ago

18 Replies

Loss

LOSS I feel it like a physical pain. A heavy, leaden weight sitting on my chest. Gargoyle-like, Grotesque. It's long claw-like fingers Clutching at...

LOSS I feel it like a physical pain. A heavy, leaden weight sitting on my ...

Kathy

•13 years ago

13 Replies

Help us improve your services in the UK

Hi all, I wanted to let you know that we have had a great response so far to the surveys for people living with, and affected by, PSP within the UK....

Hi all, I wanted to let you know that we have had a great response so far to ...

PSPA_HelenP

•13 years ago

Be the first to reply

PSP moment!

Rang GP today to confirm appointment, Said 'Hello I am Edith Booths Mum....no I'm not I'm her daughter!!!! need say no more!

Rang GP today to confirm appointment, Said 'Hello I am Edith Booths Mum....no I'...

Jan_K

•13 years ago

6 Replies

September 11

It was Mum's birthday on Sunday. I think she had a good day although it was no doubt quite a tiring day for her. Lots of visitors and no less than 3 birthday...

It was Mum's birthday on Sunday. I think she had a good day although it was no d...

hmfsli

•13 years ago

13 Replies

Just joined!

This is a weird story but I read some of the entries and felt an affinitity to some of them. I am Jeff's former wife and was his care giver for 7 months until...

This is a weird story but I read some of the entries and felt an affinitity to s...

Jeff

•13 years ago

8 Replies

A sprinkle of pops

Dear all I hope people don't take my blog as being irreverent as I love my dad with all my heart. Pops died 12 weeks ago and today we scattered his ashes in...

Dear all I hope people don't take my blog as being irreverent as I love my da...

LesleyB

•13 years ago

12 Replies

Some interesting/useful Links

My son sent me these links and I thought I'd share them with you. http://www.bbc.co.uk/news/health-14856160 http://www.carers.org/ Hope all are...

My son sent me these links and I thought I'd share them with you. http://www....

Kathy

•13 years ago

2 Replies

do you know any treatment for closing of eyes i have heard about botox shot

IsraelZehavi

•13 years ago

7 Replies

Search posts

Latest poll

See all polls

What are your main concerns as a carer?

Vote

Topics

All posts(133)

All things PSP Association(133)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - PSP Association | HealthUnlocked

PSP Association

All posts for September 2011

From urine infection, to hospital, to PEG, to improvement!

PSPA Cambridge Support Group - Saturday, 1st October, 10.30am.

What a help

re davunetide assuming the drug is released for more general use by PSP patients] does anyone know if it will b in form of a nasal spray?

My PSP Family

walking & taking asna result of dvunotay

PSP SYMPOSIUM

Why is my Mum so tired when going out to the shops in her wheelchair being pushed by us, it can take 2 days to get over a 2 hour outing?

Medication

Anyone from NZ

The first meeting of the Brentwood PSP Group

We want to develop the PSPA Support Group network accross the UK and are keen to hear from people who would interested in running a group.

Devunetide availability in drugstore?

Just come home from the Zumbathon party for PSPA

Canadian

Thank you!!

PSP Matters

I am a PSP patient experiencing periods of blurry vision with these periods becoming more frequent and lasting longer.

Another blow.

Disabled access holiday let needed.

Anyone who is or has cared for someone with psp living in south London who would like to meet up?

Just a quick one..

Loss

Help us improve your services in the UK

PSP moment!

September 11

Just joined!

A sprinkle of pops

Some interesting/useful Links

do you know any treatment for closing of eyes i have heard about botox shot

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive