Posts - PSP Association | HealthUnlocked

PSP Association

9,232 members • 11,336 posts

All posts for August 2016

Farewell

My lovely husband died at 21.25 on Monday, 29 August. It was all very sudden. When I arrived at the nursing home in the morning Michael was struggling to...

My lovely husband died at 21.25 on Monday, 29 August. It was all very sudden. Wh...

•8 years ago

Please . I need help.

Hi there. It is my first day at this site. I read some of your posts. Finally felt that i am not the only one who is suffering on this planet from psp patient....

Hi there. It is my first day at this site. I read some of your posts. Finally fe...

•8 years ago

Marijuaqna

Well here we go Aunt Bev and I well her are trying something new we started to days ago. and try for 30 days and see if there is any differents. I am taking a...

Well here we go Aunt Bev and I well her are trying something new we started to d...

•8 years ago

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FYI: CurePSP Conference

Coming up in October! the 2016 CurePSP International research Symposium. Our symposiums bring together the best minds in neurology to discuss advances and the...

Coming up in October! the 2016 CurePSP International research Symposium. Our sym...

•8 years ago

Airplane travel

Hello everyone! I'm relatively new to this group and have been more of a silent reader than an active member. My father was diagnosed with psp in 2013 and is...

Hello everyone! I'm relatively new to this group and have been more of a silent ...

•8 years ago

Help with psp

Hello , I am new for this site but I read all the discussions everyday . It's very interesting for me .My loving husband diaognised with parkinsons & psp for...

Hello , I am new for this site but I read all the discussions everyday . It's ve...

•8 years ago

Nurse Georgepa panicking

Everyday there seems to be some new experience which one has to come to terms with . Today one of our district nurses called Sue who is...

Everyday there seems to be some new experience which one has to come to...

•8 years ago

I don't know how to cope

Only 'mid' stage I guess, but I don't want to be here, don't want to do this, doesn't help he says' do you want to put my socks on, etc' like he's doing me a...

Only 'mid' stage I guess, but I don't want to be here, don't want to do this, do...

•8 years ago

Is That OK?

Bruce has had that Catheter...10 days and urine has particulate in the tube...I have read this could be UTI or just bacteria.....I can't take him to urgent...

Bruce has had that Catheter...10 days and urine has particulate in the tube...I ...

•8 years ago

Shortness of breath

Joe is mobile and gets around on his own with no assistance. He was diagnosed with CBD in 2014. This morning and yesterday he complained about not being able...

Joe is mobile and gets around on his own with no assistance. He was diagnosed wi...

•8 years ago

Nursing home-short term

Advice needed. Mum fell 4 weeks ago hurt her arm, took her to a & e, she got an infection from the fall she has been in for 4 weeks, I was told they had done...

Advice needed. Mum fell 4 weeks ago hurt her arm, took her to a & e, she got an...

•8 years ago

Catheter care

Bruce went to his doctor today for a check up on the new catheter. Prior to this catheter, the doctor had ordered an intermittent or what I hear the nurses...

Bruce went to his doctor today for a check up on the new catheter. Prior to thi...

•8 years ago

Spitting feathers......

....for a change!!! S decided to do some floor hugging last night, as I was opening the door to the Carer. He fell off the toilet, well he got up, trying to do...

....for a change!!! S decided to do some floor hugging last night, as I was open...

•8 years ago

worried

hello all, i know u cant know if its the end or not, as on many occassions it has looked that way, but this is the first time ever my dad has decided he doesnt...

hello all, i know u cant know if its the end or not, as on many occassions it ha...

•8 years ago

69th birthday yesterday

My darling was 69 yesterday and we are both exhausted after a hectic but very enjoyable few days. His celebrations began Sunday lunchtime with the arrival of...

My darling was 69 yesterday and we are both exhausted after a hectic but very en...

•8 years ago

Emotional Overload

We are back from a week in Milwaukee to see Charles family. Everyone was there. Each day was filled with family activit because of him. They and we all knew...

We are back from a week in Milwaukee to see Charles family. Everyone was there....

•8 years ago

Sun is already over the yardarm here! Time to party!

I am a bit early! But am raising my glass before heading to bed! Didn't want to miss out cos I will be asleep at 6.00pm! Have a good one jillannf6 and all!...

I am a bit early! But am raising my glass before heading to bed! Didn't want to ...

•8 years ago

How to get medicaid funded in-home care in USA?

From where I'm sitting over here in the cheap seats (haha) it seems like almost everyone on this forum is in the UK and ohh my gosh! You all are SO blessed!...

From where I'm sitting over here in the cheap seats (haha) it seems like almost ...

•8 years ago

PSPA family and friends day Sept 17 Birmingham UK

Is anybody going to this who writes on this forum? Rx

Is anybody going to this who writes on this forum? Rx

•8 years ago

Compulsive counting

We don't have a definite diagnosis yet, but Im sure my husband has PSP. The latest thing is that he has developed as compulsive need to count all the time....

We don't have a definite diagnosis yet, but Im sure my husband has PSP. The lat...

•8 years ago

respite

hi just back from respite in north wales, all fab few issues whilst rog in care home but nothing serious i feel like a new woman!!!! do it! julie

hi just back from respite in north wales, all fab few issues whilst rog in care ...

•8 years ago

10 Tips About Care Fees - Link

Hi folks Angela Sherman (CHC Advocate and Adviser) has just published a 10 Tips about Care Fees. Its a very good list for those who are at the beginning of the...

Hi folks Angela Sherman (CHC Advocate and Adviser) has just published a 10 Tips ...

•8 years ago

PSP can be easily managed.

Not my words. A quote from the physio at DV Hospital. Bugs got up in the early hours of yesterday , went to the bathroom, fell over into the bath and cut the...

Not my words. A quote from the physio at DV Hospital. Bugs got up in the early ...

•8 years ago

Full moon again?!

Anyone else dealing with mad stubbornness today? It's been a nightmare, and he is frozen in the bathroom as I write. I had to walk away when I lost another...

Anyone else dealing with mad stubbornness today? It's been a nightmare, and he i...

•8 years ago

New medication today

We went to my sister's doctor today to get a referral. This is her primary care doctor and he has never really showed any interest in helping her. I wanted a...

We went to my sister's doctor today to get a referral. This is her primary care ...

•8 years ago

Whoopee do!

Good news everyone, at long last I've got 2 weeks respite for Keith, he's going to a newly built, lovely care home 2 minutes walk away from our house, it's...

Good news everyone, at long last I've got 2 weeks respite for Keith, he's going ...

•8 years ago

My life has been saved!!!!

Just heard that the wonderfully CHC office, (sorry Georgepa and anyone else suffering without it!) that they have managed to book S into respite near my...

Just heard that the wonderfully CHC office, (sorry Georgepa and anyone else suff...

•8 years ago

Don't know what to do?

Hi everyone, my dilemma is my morher cares for my dad who has psp, although she does a great job with medication food hygiene etc she doesn't have the patience...

Hi everyone, my dilemma is my morher cares for my dad who has psp, although she ...

•8 years ago

Desperately seeking answers

My husband who is age 38 and up until March this year was a healthy, fit, active, strong man has been suffering from dystonia in his left hand, balance and...

My husband who is age 38 and up until March this year was a healthy, fit, active...

•8 years ago

Power of Attorney

Advice please, I've downloaded the health forms, and filling them in is work in progress, do we need financial ones if we are married? Thanks for any advice...

Advice please, I've downloaded the health forms, and filling them in is work in ...

•8 years ago

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