Posts - PSP Association | HealthUnlocked

PSP Association

9,625 members•11,552 posts

All posts for April 2024

Stuck cough on the throat

Hi Everyone, My mum had her meal this evening and looks like the food went the wrong way, she has been coughing, she feels like there is cough around her...

Hi Everyone, My mum had her meal this evening and looks like the food went the...

Candor8

•6 months ago

15 Replies

London Marathon

Hi everyone, I just wanted to give an updat on the London Marathon. As many of you know, I posted in here that I was doing it for the PSPA, and quite a few of...

Hi everyone, I just wanted to give an updat on the London Marathon. As many of ...

Ratcliffe

•6 months ago

6 Replies

May 2024 Support Group

It's nearly that time again, hopefully see some of you there. ___________________________________ We are pleased to invite you to our next face-to-face meeting...

It's nearly that time again, hopefully see some of you there. __________________...

Zerachiel

•6 months ago

3 Replies

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Congested nose

Hi, looking for some advice on how to assist someone with breathing when nose is congested. Unable to open mouth so really tricky when nose is stuffy. We are...

Hi, looking for some advice on how to assist someone with breathing when nose is...

HNGM

•6 months ago

2 Replies

My poor mum 😞

Not only has mum got psp ,been to the hospital today only be told by the heart specialist that she has severe heart failure as well .I know she is 86 years of...

Not only has mum got psp ,been to the hospital today only be told by the heart s...

Blitzford72

•6 months ago

4 Replies

Flashing lights

As posted previously about my mum's eye sight ,but a new one appeared today .She has flashing lights in her eyes ,is this a common complaint with psp ??

As posted previously about my mum's eye sight ,but a new one appeared today .She...

Blitzford72

•6 months ago

4 Replies

~Am I really?

two years ago I was diagnosed with PSP. I had had over 200 falls in 3 years then dizzyness that won't stop. Now I walk with a rollator which I have used for 2...

two years ago I was diagnosed with PSP. I had had over 200 falls in 3 years then...

rocklady73

•6 months ago

18 Replies

Our Dad's journey

Our hearts are broken as our dad passed away on April 15th. We wanted to summarise his journey and symptoms to hopefully help others and to also raise...

Our hearts are broken as our dad passed away on April 15th. We wanted to summari...

DALLY123

•6 months ago

19 Replies

At peace

My beautiful Ben passed away on Monday and is now free of this terrible disease. My heartfelt thanks to everyone who contributes to this site. My partner died...

My beautiful Ben passed away on Monday and is now free of this terrible disease....

Goodact

•6 months ago

18 Replies

psp2024

my father was diagnosed Psp.

angy24

•6 months ago

3 Replies

Dad's Walking getting worse.

Hi there. My dad was diagnosed last year and my sister and I are just trying to help him navigate this awful disease as much as we can. He is still quite...

Hi there. My dad was diagnosed last year and my sister and I are just trying to ...

mamamermaid1

•6 months ago

17 Replies

Progressive supranuclear palsy research participation

Hello Sir/Madam, Please find the patient details I have submitted to participate in research and treatment of progressive supranuclear palsy. 1 PSP –...

Hello Sir/Madam, Please find the patient details I have submitted to particip...

1Brijesh

•6 months ago

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Mum's PSP

Mum was only diagnosed with PSP last Octobershe is falling alot more now and ,her speech has really got very bad over the past month and I just wondered if...

Mum was only diagnosed with PSP last Octobershe is falling alot more now and ,he...

Blitzford72

•6 months ago

9 Replies

Choking with psp.

Hi only just joined this group and was hoping for a little information/ advise. My mum has psp and is now choking on everything she tries to eat and drink. My...

Hi only just joined this group and was hoping for a little information/ advise. ...

Jellybean219

•6 months ago

17 Replies

psp awareness week #wecare

Just noticed this on X today. And huge well done to everyone who ran in the London Marathon today raising funds for PSPA!!

Just noticed this on X today. And huge well done to everyone who ran in the Lond...

NicolaD15

•7 months ago

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Speech production technology

Has anyone tried speech production technology, such as Stephen Hawking used, for PSP patients? Was it successful or not? Our speech therapist is asking us to...

Has anyone tried speech production technology, such as Stephen Hawking used, for...

TourEiffel

•7 months ago

4 Replies

London Marathon

Good Luck to James Weston and Luke Catleugh who are both running for the PSPA tomorrow in memory of Chris Weston. We'll all be cheering you on. xx

Good Luck to James Weston and Luke Catleugh who are both running for the PSPA to...

AnneandChris

•7 months ago

2 Replies

Orangetrunk

This is the first time I've posted. I live in California and heard about HealthUnlocked so thought I'd give it a try. My husband of 53 years has been...

This is the first time I've posted. I live in California and heard about Health...

Orangetrunk

•7 months ago

9 Replies

London marathon

Good luck James and Derek running in the London marathon tomorrow waving the PSPA banner!

Good luck James and Derek running in the London marathon tomorrow waving the PSP...

Doublereeder

•7 months ago

2 Replies

Drooling

Hi Karol has had a dry mouth since having peg fitted and nil by mouth for fluids . However he has started drooling a lot this week and I wouldn’t say clenching...

Hi Karol has had a dry mouth since having peg fitted and nil by mouth for fluids...

45purple

•7 months ago

5 Replies

Ensure liquid meals

Please could I ask if anyone has experience of surviving on liquid meals only. My 64 year old husband has PSP and is in advanced stages. He does not want to...

Please could I ask if anyone has experience of surviving on liquid meals only. ...

Sun-flowerwearer

•7 months ago

8 Replies

Things to do for PSP – sing a PSP country song (badly!)

A bit of fun for a good cause. You have to watch the video - sorry! https://youtu.be/sTjJA8bBIY8 We have Tim Brown (Daddyt on this site) to thank – he...

A bit of fun for a good cause. You have to watch the video - sorry! https://you...

Richard33

•7 months ago

25 Replies

This Morning

Is anyone watching This Morning with the Salt Path couple?!

Old_Hall

•7 months ago

13 Replies

i hate PSP

my mum was diagnosed with PSP 3.5 years ago, and it has progressed so so quickly, i wonder where the time has went, it is unfortunate now that she has been...

my mum was diagnosed with PSP 3.5 years ago, and it has progressed so so quickly...

Hidden

•7 months ago

6 Replies

Eye sight

My mum has double vision ,one on top of each other not side to side ,she has a real problem with sunlight Has anyone heard of glasses you can get ? Concerned...

My mum has double vision ,one on top of each other not side to side ,she has a ...

Blitzford72

•7 months ago

9 Replies

Travel Insurance

I meant to say I don’t know if this is because I answered No to the question can your husband wash, dress and feed himself. In 2022 when we took the policy out...

I meant to say I don’t know if this is because I answered No to the question can...

Licquoricelover

•7 months ago

6 Replies

Travel Insurance

has anyone been successful in obtaining an Annual worldwide multi trip travel insurance policy including Cruise cover. We had one with Avanti which expired...

has anyone been successful in obtaining an Annual worldwide multi trip travel in...

Licquoricelover

•7 months ago

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Mum update (CBD)

Thought I had finally better give you all an update on mum. Mum had a fall back in Feb which resulted in a broken nose and slight skull fracture, still...

Thought I had finally better give you all an update on mum. Mum had a fall bac...

Araucana

•7 months ago

4 Replies

medicine

my wife was diagnosed yet, she is meeting next week to discuss different meds, does anyone have any recommendations or experiences that might want to share...

my wife was diagnosed yet, she is meeting next week to discuss different meds, d...

Advocate10

•7 months ago

5 Replies

Marathon!

Hi All I hope this is allowed. I came to this site to read about other peoples experiences with PSPA, as we navigate this journey with my Mother in law who...

Hi All I hope this is allowed. I came to this site to read about other people...

bananapancakes16

•7 months ago

1 Reply

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for April 2024

Stuck cough on the throat

London Marathon

May 2024 Support Group

Congested nose

My poor mum 😞

Flashing lights

~Am I really?

Our Dad's journey

At peace

psp2024

Dad's Walking getting worse.

Progressive supranuclear palsy research participation

Mum's PSP

Choking with psp.

psp awareness week #wecare

Speech production technology

London Marathon

Orangetrunk

London marathon

Drooling

Ensure liquid meals

Things to do for PSP – sing a PSP country song (badly!)

This Morning

i hate PSP

Eye sight

Travel Insurance

Travel Insurance

Mum update (CBD)

medicine

Marathon!

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive