Posts - PSP Association | HealthUnlocked

PSP Association

9,255 members • 11,351 posts

All posts for April 2023

Extra long Hospital bed sheets ...

CBD sufferer just got an extended Hospital bed installed at home and my fitted sheets don't fit it! Any advice please.

CBD sufferer just got an extended Hospital bed installed at home and my fitted s...

charliedog36

•1 year ago

3 Replies

Father with PSP

Hi All, I’m a first time poster from New Zealand, my dad 81 was diagnosed with Parkinson’s in 2018 and then diagnosed with PSP in 2020. He had been living...

Hi All, I’m a first time poster from New Zealand, my dad 81 was diagnosed with ...

Kiwibirdnz

•1 year ago

8 Replies

Illness, PSP & CBD

Does anyone have any advice on PSP & CBD sufferers and the effect of another illness? Mums currently got shingles and she seems to have got worse in her...

Does anyone have any advice on PSP & CBD sufferers and the effect of another ill...

Kelmisty

•1 year ago

6 Replies

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Very vague

Evening Tonight my husband went to see his parents, on his return he said his dad didnt look well ie very vague and following his mums every move. On Thursday...

Evening Tonight my husband went to see his parents, on his return he said his da...

Happysole

•1 year ago

2 Replies

how can I help?

hi everyone, this is my first post on here as I only came across the site today. My mum has PSP, she is 70. She’s at a stage where she cannot really walk...

hi everyone, this is my first post on here as I only came across the site today....

Janice52

•1 year ago

14 Replies

Onset/diagnosis after years

Good morning. I welcome you very warmly. This is my first post. I am not from UK, so my English is poor, sorry for any mistakes. In a nutshell: my aunt got...

Good morning. I welcome you very warmly. This is my first post. I am not from UK...

Paulaaaa

•1 year ago

15 Replies

Jaw Pain - CBD

Hi wonderful people. I think I will be visiting this forum more often as mum (85) with CBD has now come to live with us. She was diagnosed in late 2020 but...

Hi wonderful people. I think I will be visiting this forum more often as mum (85...

Araucana

•1 year ago

7 Replies

Voice Aid - any reviews/advice

Hello everyone. My dad is 86 and although only having been diagnosed officially with PSP in October ‘22, he has been displaying symptoms for a number of...

Hello everyone. My dad is 86 and although only having been diagnosed officially...

Plainswimmer

•1 year ago

4 Replies

Lack of Mobility

My brother has just been diagnosed with PSP and been in hospital for last 3 months. He is 70 and had poor mobility for over a year before going into hospital...

My brother has just been diagnosed with PSP and been in hospital for last 3 mont...

Jockyspaniel

•1 year ago

9 Replies

Sound startle reflex

Hello everyone. I’ve posted a few times but never formally introduced myself to this amazing and compassionate group of caregivers and warriors. I’ve had...

Hello everyone. I’ve posted a few times but never formally introduced myself to ...

Burtz

•1 year ago

11 Replies

Dat scan waiting 4-5 months

I have been waiting for this scan for over four months now. My neurology consultant has not been able to get it for me yet. Just anybody know what it is and...

I have been waiting for this scan for over four months now. My neurology consul...

ChocolateFaceTeddy

•1 year ago

11 Replies

Intro

My father has PSP. He's 85 yrs of age. He was officially diagnosed with PSP later part of 2020, but i suspect that he started showing some visible symptoms...

My father has PSP. He's 85 yrs of age. He was officially diagnosed with PSP late...

Jewel23

•1 year ago

6 Replies

204010

can any one out there advise please. Husband has PSP, later stages. I drive a Ford Focus est. his wheel chair goes in the back. The problem now he is finding...

can any one out there advise please. Husband has PSP, later stages. I drive a Fo...

204010

•1 year ago

24 Replies

Elizabeth Norrie

I’ve been unsure of what was wrong with me, just knew something wasn’t right. Had a CAT scan late 2021 which didn’t reveal anything and had an MRI Summer...

I’ve been unsure of what was wrong with me, just knew something wasn’t right....

Brown1957

•1 year ago

2 Replies

Thinning hair when taking Sinemet

My wife has PSP and has been taking Levadopa brand name Sinemet for nearly a year but currently on a low dosage. For many months her hair has been getting...

My wife has PSP and has been taking Levadopa brand name Sinemet for nearly a yea...

Wombatz

•1 year ago

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loss of taste

been a while i have been having some changes. still having leg pains and cramps mainly at night. muscle relaxants help some. starting to have some swallowing...

been a while i have been having some changes. still having leg pains and cramps ...

horseandwolf

•1 year ago

5 Replies

New study just out (3/31/23) on natural therapies for tau aggregation (PSP included)

My father was recently diagnosed with PSP and I have been researching like crazy. I searched all 125 clinical trials on the Government website and all the...

My father was recently diagnosed with PSP and I have been researching like crazy...

ShellTaylor

•1 year ago

16 Replies

where do I go….

Hi, my mam was diagnosed with PSP Feb 14th this year, the consultant thinks she may have had it for about 5 years., she chokes at least twice a day and coughs...

Hi, my mam was diagnosed with PSP Feb 14th this year, the consultant thinks she ...

AvonJane

•1 year ago

6 Replies

Hello - I’m a new member and first post.

Hello! My name is Allan. A 67 year old male living with my wife Julie who has been diagnosed with PSP. I’m new to this group and having recently moved to a...

Hello! My name is Allan. A 67 year old male living with my wife Julie who has be...

bst23

•1 year ago

22 Replies

what happens next

hi, my mum is in her 6th or 7th year of psp she is now in a wheelchair although she can still stand her feet just won’t move. Her speech is barely there...

hi, my mum is in her 6th or 7th year of psp she is now in a wheelchair although ...

Flowersinyouhair

•1 year ago

10 Replies

204010

Hi every one My husband who has PSP is making a lot of grunting noises & coughs so load it makes me jump. He is also obsessed with kitchen roll paper, moves...

Hi every one My husband who has PSP is making a lot of grunting noises & cough...

204010

•1 year ago

20 Replies

Goodbye Mum, good riddance PSP

Yesterday was the day of my brave mum’s funeral. She had PSP for about 7 years. She was only formally diagnosed 2 years ago, but researching the backward falls...

Yesterday was the day of my brave mum’s funeral. She had PSP for about 7 years. ...

TheBay

•1 year ago

19 Replies

CBD - Swelling

My Mum was diagnosed with CBD almost 2 years ago although her symptoms started 6/7 years ago, she was first diagnosed with MND but the diagnosis was changed to...

My Mum was diagnosed with CBD almost 2 years ago although her symptoms started 6...

JoannaW1978

•1 year ago

6 Replies

Movers and Shakers podcast

I know we're members of an exclusive Parkinson's Plus club but came across the new Movers and Shakers podcast at the weekend and it was well worth a...

I know we're members of an exclusive Parkinson's Plus club but came across the n...

Doublereeder

•1 year ago

Be the first to reply

Uncontrollable use of toothbrush

My wife has PSP and in the last week when brushing her teeth she starts normally but then starts scrubbing them extremely hard and fast I have had to take the...

My wife has PSP and in the last week when brushing her teeth she starts normally...

Wombatz

•1 year ago

14 Replies

Title

PSP Carer

CarerPSP

•1 year ago

1 Reply

Joy204010

Can any one advise on the best thing for constipation. Husband who has PSP is really struggling. Have tried fruit, prone juice, suppositories, Senokot at...

Can any one advise on the best thing for constipation. Husband who has PSP is re...

204010

•1 year ago

22 Replies

Tiredness

is it normal that a hour trip to a shop to buy some clothes can result is days of extreme tiredness? My mum has PSP and CBD, but is still exhausted from a...

is it normal that a hour trip to a shop to buy some clothes can result is days o...

Kelmisty

•1 year ago

9 Replies

epileptic attack in CBD

I have question whether epileptic attacks do occur frequently with CBD. My wife has CBD since 2017 and as husband I take care of her since then. Just last...

I have question whether epileptic attacks do occur frequently with CBD. My wif...

Tindb

•1 year ago

12 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for April 2023

Extra long Hospital bed sheets ...

Father with PSP

Illness, PSP & CBD

Very vague

how can I help?

Onset/diagnosis after years

Jaw Pain - CBD

Voice Aid - any reviews/advice

Lack of Mobility

Sound startle reflex

Dat scan waiting 4-5 months

Intro

204010

Elizabeth Norrie

Thinning hair when taking Sinemet

loss of taste

New study just out (3/31/23) on natural therapies for tau aggregation (PSP included)

where do I go….

Hello - I’m a new member and first post.

what happens next

204010

Goodbye Mum, good riddance PSP

CBD - Swelling

Movers and Shakers podcast

Uncontrollable use of toothbrush

Title

Joy204010

Tiredness

epileptic attack in CBD

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive