Posts - PSP Association | HealthUnlocked

PSP Association

9,252 members • 11,348 posts

All posts for May 2015

The story of PSP and Tom

My Dad was diagnosed with PSP 14 months ago after 4 years of being incorrectly diagnosed with early onset dementia and depression. It first started with him...

My Dad was diagnosed with PSP 14 months ago after 4 years of being incorrectly d...

•9 years ago

Incontinence

My husband has had stroke 5 years ago and my social life is at a standstill as he wets himself if he doesn't reach on time we have not been given any help till...

My husband has had stroke 5 years ago and my social life is at a standstill as h...

•9 years ago

talking in his sleep

Last night my husband was talking in his sleep.....He has done this many times before but this is the 2d time he was fully articulate. No slurred speech or...

Last night my husband was talking in his sleep.....He has done this many times b...

•9 years ago

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Upcoming family conference

Hi Folks, Anyone on here attending the 2015 Canadian Family Conference June 13th? http://www.psp.org/events/family-conferences.html Will be interesting to...

Hi Folks, Anyone on here attending the 2015 Canadian Family Conference June 13t...

•9 years ago

Sleep

My husband was diagnosed with Psp in February he's not been right for 2 years he cannot do anything for himself I'm his full time carer. I can cope ok but...

My husband was diagnosed with Psp in February he's not been right for 2 years ...

•9 years ago

Request for summer photos/home videos

Hello everyone. I posted recently about trying to acquire a specialist wheelchair for my father who has PSP - once again, thank you to those who replied. My...

Hello everyone. I posted recently about trying to acquire a specialist wheelchai...

•9 years ago

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Baclofen

Has anybody got news or veiws on baclofen. Brian has just been offerd it for his stifness and muscle tension. Janexx

Has anybody got news or veiws on baclofen. Brian has just been offerd it for his...

•9 years ago

I wish I had known

My Dad passed away yesterday of PSP and I just needed someone to talk to who understands. I just wish I had know this site existed all these years and things...

My Dad passed away yesterday of PSP and I just needed someone to talk to who und...

•9 years ago

Triking?

Has anyone tried an adult tricycle for a PSP sufferer? My husband would love a trike to use on the rail trail. I know it could not be recumbent as he would...

Has anyone tried an adult tricycle for a PSP sufferer? My husband would love a ...

•9 years ago

The story of hope

What a wonderful story. How fantastic you must be feeling. I envy you so much I know there is hope for all now God bless you Regards BPgail

What a wonderful story. How fantastic you must be feeling. I envy you so much...

•9 years ago

Happy morning

Half past six in the morning sitting on my patio well wrapped up in my fluffy dressing gown with a steaming cup of tea watching mum and dad blackbird being...

Half past six in the morning sitting on my patio well wrapped up in my fluffy dr...

•9 years ago

ANOTHER TRIP LOOMS ...

.....oFF on another trip on SATURDAY to SCOTLAND SO AGAIN NO INTERNET CONNECTION AND MY TYPING AMY BE A BIT BETTER BY THE TIME WE RETURN :-) LOL JILL

.....oFF on another trip on SATURDAY to SCOTLAND SO AGAIN NO INTERNET CONNECTION...

•9 years ago

After a long battle with PSP...

Many emotions are still flowing through me. Heaven gained an angel yesterday at 12:25pm yesterday Sunday, May 24th, 2015. I want to thank everyone that has...

Many emotions are still flowing through me. Heaven gained an angel yesterday at...

•9 years ago

BEAUTIFUL FLOWERS

THESE ARE THE WONDERFUL AZALEAS IN MY GARDEN THIS YEAR

THESE ARE THE WONDERFUL AZALEAS IN MY GARDEN THIS YEAR

•9 years ago

Its 3a.m.

I couldn't sleep so I snuck out to the hot tub and went skinny dipping ,just me and the stars.LOL

I couldn't sleep so I snuck out to the hot tub and went skinny dipping ,just me ...

•9 years ago

THANK YOU!!!

What can I say? Totally overwhelmed by the response to my previous post. Thought it would be easier to send this post, hoping you all will read it!...

What can I say? Totally overwhelmed by the response to my previous post. Thoug...

•9 years ago

Home

Well Aunt Bev is home had to fight her to get her out of the hot tub when it started raining, she so funny has any one had any shakes in just one arm seems...

Well Aunt Bev is home had to fight her to get her out of the hot tub when it sta...

•9 years ago

Mirror on the table!

I'm so excited everyone, B is able to see his meals again! Finoni mentioned using a mirror to reflect the image of the patients plate to their gaze path. It...

I'm so excited everyone, B is able to see his meals again! Finoni mentioned usi...

•9 years ago

Adventures of V and Georgepa The End

Today was an indifferent day weatherwise - it couldn't quite make its mind up whether to rain or not . On the deserted promenade a few solitary couples put...

Today was an indifferent day weatherwise - it couldn't quite make its mind up w...

•9 years ago

Time off!

Just had my two hours, that Marie Curie provide once a week. You know the one I really enjoyed last week! Disastrous this week!!! Popped in to see my Mum in...

Just had my two hours, that Marie Curie provide once a week. You know the one I...

•9 years ago

Hi

I've not been posting for a while. Mums very tired all the time now and her speech is practically non existent. She can't do anything for herself now.

I've not been posting for a while. Mums very tired all the time now and her spee...

•9 years ago

Adventures of V and Georgepa part 6

Boring boring boring domestic chores this morning - needed a degree in computer science to work the washing machine in the cottage - pre wash half wash...

Boring boring boring domestic chores this morning - needed a degree in comp...

•9 years ago

Adventures of V and Georgepa part 5

The sky scape was quite different today , Salvador Dali type flat white clouds which hang stationary in the air as though suspended below a deep blue...

The sky scape was quite different today , Salvador Dali type flat white cloud...

•9 years ago

CoQ10 or other beneficial supplements found?

My husband took CoQ10 (a natural substance found within the body and a memory supplement made from Ginko), and other leaf extracts, each at separate times. He...

My husband took CoQ10 (a natural substance found within the body and a memory su...

•9 years ago

COMING HOME

My Don is coming home on Saturday. Don't know if its the med or therapy but he can walk with a walker, get out of bed himself and is a completely different...

My Don is coming home on Saturday. Don't know if its the med or therapy but he c...

•9 years ago

Drooling

Does anyone find the excessive drooling to be a problem and if so to what degree. How do you cope with it?

Does anyone find the excessive drooling to be a problem and if so to what degree...

•9 years ago

Adventures of V and Georgepa part 4

I think I could sit all day long in silence just watching the sea .It is an ever changing kaleidoscope of colour ,pattern and movement as the sun and clouds...

I think I could sit all day long in silence just watching the sea .It is an ever...

•9 years ago

Peg Feeding

We had an appointment for a SALT test, and results were that my husband is having difficulty with liquids and solids. A peg tube was mentioned, but we have to...

We had an appointment for a SALT test, and results were that my husband is havin...

•9 years ago

Inevitable but still devastating....

My dear wife, Marguerite, of 50 years, passed away peacefully and comfortably at home after over 6 years suffering with this horrific PSP disease. She was...

My dear wife, Marguerite, of 50 years, passed away peacefully and comfortably at...

•9 years ago

Nosey cups?

Hi, anyone know where I can buy decent China or glass nosey cups, mugs or wine glasses? ( I am in the UK) Speech Therapist has suggested S uses one. Has...

Hi, anyone know where I can buy decent China or glass nosey cups, mugs or wine g...

•9 years ago

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