Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for March 2020

Feeling Sad

As I've mentioned before my husband was in the hospital back in October for aspirated pneumonia and UTI that was septic. He had a feeding tube put in at that...

As I've mentioned before my husband was in the hospital back in October for aspi...

•4 years ago

Disability Benefits Consortium

As part of the Disability Benefits Consortium, yesterday we wrote to the government with a list of urgent actions they must take to make sure disabled and...

As part of the Disability Benefits Consortium, yesterday we wrote to the governm...

Administrator•4 years ago

SAM said “I want to go home”

I am posting this for my love, Sam. Sam “went home” March 28th at 11:15 am after a long courageous battle with PSP. 3 days before his passing & not hearing his...

I am posting this for my love, Sam. Sam “went home” March 28th at 11:15 am after...

•4 years ago

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I Spy (take 7)

Just getting my tan on! Hang tough everyone!

Just getting my tan on! Hang tough everyone!

•4 years ago

Lets not forget...

These are difficult times for all of us - including the charities that support awareness and research towards a treatment-cure for PSP-CBD. Whether your social...

These are difficult times for all of us - including the charities that support a...

•4 years ago

I Spy (take 6)

Am I seeing a newborn? It’s hard to tell but the white eggs are now little black dots. Right? Hum...

Am I seeing a newborn? It’s hard to tell but the white eggs are now little black...

•4 years ago

I Spy (take 5)

Here’s momma camouflaged against the vines. Can you see her?

Here’s momma camouflaged against the vines. Can you see her?

•4 years ago

Sending you all love

Just a message to let you all know, thinking golf everyone at this scary, strange time. As we all know it’s even scarier for those affected by PSP or CBD...

Just a message to let you all know, thinking golf everyone at this scary, strang...

•4 years ago

Birthday

I had a lovely day yesterday, children came one at the time, they sat in the garden myself in the kitchen even saw the grandchildren from a distance made my...

I had a lovely day yesterday, children came one at the time, they sat in the gar...

Yvonneandgeorge

•4 years ago

Posting photos test

Just seeing if they have fixed the photo posting. This is Rosa Norwich Castle... It brings a little joy to the garden every late Spring. Wishing everyone some...

Just seeing if they have fixed the photo posting. This is Rosa Norwich Castle.....

•4 years ago

Seizure

Hi, Colin has just had some sort of fit/seizure, he was twitching then his eyes were rolling and starring, and his breathing heavy and loud, only lasted a few...

Hi, Colin has just had some sort of fit/seizure, he was twitching then his eyes ...

•4 years ago

A big wave to all in these difficult times.

Hello folks It's quite quiet here at the moment. Please, if you can, do even a short post and let us know how you are doing. Wishing everyone the best in these...

Hello folks It's quite quiet here at the moment. Please, if you can, do even a s...

•4 years ago

I Spy (take 4)

Two hummingbird eggs. Momma returned and she’s sitting on them acting like a statue. I can’t wait to meet the babies!

Two hummingbird eggs. Momma returned and she’s sitting on them acting like a sta...

•4 years ago

End of life medication?

My father is in final stages of PSP, has been in bed for months including being on oxygen most of the time. He is currently running a temperature and had a...

My father is in final stages of PSP, has been in bed for months including being ...

•4 years ago

Day 15 Quarantine

I have had my sweet Momma in quarantine for 15 days, and tonight I decided to do a Facebook Live with some family and friends ... As you can see mission...

I have had my sweet Momma in quarantine for 15 days, and tonight I decided to do...

•4 years ago

Share your favourite local group photos

Local Group meetings might be suspended for the time being but that won’t stop us celebrating the fantastic support they provide when they are up running. This...

Local Group meetings might be suspended for the time being but that won’t stop u...

Administrator•4 years ago

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Dirty dog

But... she had to try on her Easter dress 😂

But... she had to try on her Easter dress 😂

•4 years ago

Feedback about the spring edition of PSPA Matters

The spring edition of PSPA Matters hit your doormats and inboxes at the beginning of March. Now you’ve had time to digest the contents, we’d like to hear what...

The spring edition of PSPA Matters hit your doormats and inboxes at the beginnin...

Administrator•4 years ago

I Spy (take 3)

Here she is from a top angle, with half of her beak inside the nest checking on her eggs. I am really enjoying natures entertainment!

Here she is from a top angle, with half of her beak inside the nest checking on ...

•4 years ago

Medical equipment available - U.S. - West Coast

In order to keep Sandy at home, I purchased many pieces of medical equipment. Each piece was useful but had a limited life span. As his condition changed, we...

In order to keep Sandy at home, I purchased many pieces of medical equipment. Ea...

•4 years ago

Brain study results received. CBD - instead of PSP

Hello Friends, We did a brain donation to Brain Support Network in order to further research and also to receive exact diagnosis of Sandy's condition. After...

Hello Friends, We did a brain donation to Brain Support Network in order to furt...

•4 years ago

Internal NHS info, by one trust, advice on Coronvirus

Hi Folks I got caught!! This post has been edited. The post that was here looked legitimate and the person who sent it to me gave the source and it seemed...

Hi Folks I got caught!! This post has been edited. The post that was here look...

•4 years ago

Spring Day in Maine

I went into the office today. Not too many cars in the parking lot. We are generally working from home. I hope all is well with you all, whatever your weather...

I went into the office today. Not too many cars in the parking lot. We are gener...

•4 years ago

ABN coronavirus guidance for people living with neurological conditions

The guidance from the Association of British Neurologists indicates any neurological condition that affects swallowing or breathing might increase the severity...

The guidance from the Association of British Neurologists indicates any neurolog...

Administrator•4 years ago

Alternatives to Sara Steady?

I have heard about Sara Steady, which sounds wonderful and we need one. If we can't fit one in our house, is there a good alternative to Sara Steady? Thank...

I have heard about Sara Steady, which sounds wonderful and we need one. If we ca...

•4 years ago

HUGS TO YOU ALL!

WE ALL NEED ONE OF THESE WHEREVER IN THE WORLD WE ARE! BIG HUG FROM ME TO AAAALL OF YOU. NOW I RAISE MY GLASS TO YOU AND WILL HAVE A STIFF DRINK. NOT A BIG...

WE ALL NEED ONE OF THESE WHEREVER IN THE WORLD WE ARE! BIG HUG FROM ME TO AAAALL...

•4 years ago

I Spy (take 2)

Tonight she is showing her good side 🥰

Tonight she is showing her good side 🥰

•4 years ago

I spy

A hummingbird’s nest with two little eggs inside. In a couple of weeks we should have babies! Forgot to mention that this is right outside my dining room...

A hummingbird’s nest with two little eggs inside. In a couple of weeks we should...

•4 years ago

First tulip

It is an early variety but this is early for this tulip.

It is an early variety but this is early for this tulip.

•4 years ago

The last straw

So now as well as self isolating, food shortages we now have the problem of alcohol stockpiling, all our local supermarkets have empty shelves today, luckily I...

So now as well as self isolating, food shortages we now have the problem of alco...

•4 years ago

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