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PSP Association

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Textspeak for speech difficulties. Input please

My mother who has PSP is losing her voice and we’re having a real difficult time...

Donating a body?

Does anyone on this site know of a place that might want to study my husbands br...

Help choose the PSPA Star Baker

If you've been following our #GreatPSPABakeOff on social media, you will know 19...
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Care homes, can they deal with PSP

We cared for my father for a year and finally couldn’t give him the 24/7 care he...

Walking with Willy... In A Winter Wonderland

Because some of you asked... Sleigh bells ring are you listening Down the lane s...

Diagnosis in Switzerland

My sister age 67 who lives in Switzerland, has just been diagnosed with psp. Had...

PSP starts how?

PSP starts how?

"Grandma's PSP has inspired my interest in research"

“Even though I was young, I knew my grandmother had been showing signs that some...

Speech difficulties

Has anyone any experience using AAC software with PSP sufferers? My wife gets v...

Rifton tram lift for CBD

Does anyone have a rifton tram in the states they would donate or lend? My dad ...

Winterized Willy

Thought I'd share a picture of Willy (my walker). Old man Winter... bring it on....

PSPA Network Meetings

We have a number of Network Meetings coming up on Zoom between now and Christmas...

Looking for Qualified Physio

Looking for Qualified Physio and speech therapist Gippsland

Mum just been diagnosed with psp

My mum has been treated for Parkinson's for the past 5 years, but now is in hosp...

Aspirating the formula

Hi, I am Looking for some advice My dad has PSP and had a Peg tube for a month w...

Youth Support Group

Our second Youth Support Group Meeting is scheduled to take place on Zoom at 7pm...

Partnering in PSP Research

If you are a caregiver or a patient with PSP living in the US and Canada - UK so...

Participants wanted for study looking into mechanisms of PSP

Participants are being sort for a research study looking into the mechanisms of ...

Tens machine

Anyone used a tens machine for easing the arm and hand that is clenched in CBD.....

Nominate PSPA for a £1000 donation

Please nominate PSPA for the Movement for Good 12 days of Giving. Each week, bet...

Not so alone

Thought you’d like to see my little companions

PSP carer available

Good evening , Im a self employed live in carer , with nursing background, look...

Final stage

My wife passed last week...thought i would tell her last stage * bed bound for...

Surgery

Does cataract surgery help with PSP And does it work

Smiles

My daughter's Girl Guide unit set them a challenge of decorating pebbles to leav...

Up date

Hi everyone just wanted you to know Rick is feeling better. Getting hard for him...

Swollen Arms & fingers

Is urine retention and swollen arms/fingers a symptom of moving from advanced to...

Sharing experiences of PSP & CBD

Sharing your experience of PSP & CBD not only helps other people, it enables PSP...

It’s that time

I was not looking forward to the stage my mum is entering. She has just had her ...

New report highlights challenges people with Rare Neurological Diseases face

Following nine months of consultation, the rare neurological disease report, tit...
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