Posts - PSP Association | HealthUnlocked

PSP Association

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Caregiving, Physiotherapy, Destressing and Romance

For quite sometime, I have been feeling that perhaps I should write herein a love story I know of that centers on a husband who cares 24×7 for his wife...

For quite sometime, I have been feeling that perhaps I should write herein a ...

PineEater

•10 minutes ago

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Behaviour advice

Hi Mum was diagnosed with PSP in late 2023 and has gone downhill since then. She is now in a care home and for the last few months has had an increasing...

Hi Mum was diagnosed with PSP in late 2023 and has gone downhill since then. S...

Catvegas

•21 minutes ago

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Faces and Voices

PSP-CBD, MSA and DLB awareness. Faces and Voices Campaign - Share your story and make a difference towards raising awareness, understanding and support for...

PSP-CBD, MSA and DLB awareness. Faces and Voices Campaign - Share your story an...

daddyt

•5 days ago

4 Replies

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HELP MEDICATION ENQUIRY

V best friend in Seville, Spain..with PSP end stage...there is NO palliative care avail..i am senior pall care nurse from UK.Recent DRUG CHANGES..VIA PEG TUBE...

V best friend in Seville, Spain..with PSP end stage...there is NO palliative car...

Tobias1234

•6 days ago

5 Replies

when to seek palliative care

mum seems to be deteriorating daily over the last month. Her left arm is rigid and stays by her side, her posture is slumped over and tilted to the right, her...

mum seems to be deteriorating daily over the last month. Her left arm is rigid a...

Girvangal

•6 days ago

18 Replies

Japanese Toilet

Has anyone bought a japanese toilet for their bathroom to be used by someone with PSP? I am thinking of buying one for my husband to make things easier for...

Has anyone bought a japanese toilet for their bathroom to be used by someone wit...

StockLover

•7 days ago

15 Replies

I forgot

When I posted the photo of my Nativity Scene I realise that I actually forgot to add the story that I wrote to go with it so I have just alterred it slightly...

When I posted the photo of my Nativity Scene I realise that I actually forgot to...

AliBee1

•10 days ago

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RIP Jim xxx

Hi all, It's so hard to write, but I just want to let you know that my dear FIL passed away on Friday 20th December 2024. Christmas and the start of 2025...

Hi all, It's so hard to write, but I just want to let you know that my dear FI...

Loveispatient23

•10 days ago

17 Replies

My mum

Hi everyone It's been quite a year for my poor mum 😞 Falls,speech rapidly detoriating and to top it off ripping some bone from her hip .so unfortunately they...

Hi everyone It's been quite a year for my poor mum 😞 Falls,speech rapidly deto...

Blitzford72

•11 days ago

2 Replies

Faces and Voices

Be the change. https://www.facebook.com/share/p/1B5XceZy7g/ Tim

daddyt

•12 days ago

2 Replies

Sudden Change

Hi All, Has anyone experienced a massive sudden change (overnight)in their loved one with PSP and may be able to offer any ideas and advice. My husband went to...

Hi All, Has anyone experienced a massive sudden change (overnight)in their loved...

Millidog

•12 days ago

7 Replies

Medication

Can anyone give me advice please? I have been diagnosed PSP, and been prescribed Sinemet but it doesn't agree with me. The side effects are not good. I am...

Can anyone give me advice please? I have been diagnosed PSP, and been prescribed...

Hotshots81

•12 days ago

27 Replies

My husbands recent diagnosis of CBD.

My husband has recently been diagnosed with CBD, He was struggling with certain things ie, buttons zips, holding things in his left hand. Our GP referred him...

My husband has recently been diagnosed with CBD, He was struggling with certain ...

Birdie04

•13 days ago

17 Replies

PSP and my husband

No it isn't my husband who has it, it is ME and he basically doesn't accept it This site seems to have only good people who care are for someone I have...

No it isn't my husband who has it, it is ME and he basically doesn't accept it ...

rocklady73

•17 days ago

13 Replies

CHC advice

My Mum is in a care home as a resident but was finally diagnosed with FTD (Frontal Temporal Dementia) plus PSP. She falls regularly - is covered in bruises -...

My Mum is in a care home as a resident but was finally diagnosed with FTD (Front...

Justbekind

•19 days ago

8 Replies

Ebony..7

Why do we hear so much about Rob Burrows......?.What about the same level ve support ..care and finance for PSP sufferers?...My only brother has this condition...

Why do we hear so much about Rob Burrows......?.What about the same level ve sup...

DSCN66

•19 days ago

10 Replies

in answer to Respite

I have been diagnosed with PSP. The problem is, you remove to much of their independence from them and you will do it forever. My wife, granddaughter and...

I have been diagnosed with PSP. The problem is, you remove to much of their inde...

Redalfie

•20 days ago

5 Replies

saying hi

hi my mum has been diagnosed with PSP, it’s taken me some time to reach out, so thought this group would be a massive help for me to deal with this.

hi my mum has been diagnosed with PSP, it’s taken me some time to reach out, so ...

Kell83

•20 days ago

11 Replies

Respite

thank you all for replying to my post 3 days ago. I have a question about respite. My current concern about putting my husband into a care home or hospice...

thank you all for replying to my post 3 days ago. I have a question about respi...

Toddet

•20 days ago

16 Replies

I am a 24/7 caregiver (carer in UK)

My wife of 55 years was diagnosed with Parkinson’s disease in 2012 in 2019. She was diagnosed as having M multiple systems apathy. In September 2024, she was...

My wife of 55 years was diagnosed with Parkinson’s disease in 2012 in 2019. She ...

Flatprairie

•20 days ago

4 Replies

Holiday Sadness and more...

Good reads;...

daddyt

•21 days ago

3 Replies

chest infections

hi All, our mum has really gone downhill recently after taking antibiotics for a suspected chest infection. We stopped them as she was becoming unresponsive,...

hi All, our mum has really gone downhill recently after taking antibiotics for a...

REOC

•22 days ago

15 Replies

Bone tired

Dear all, I’ve never posted before. My husband was diagnosed with Parkinson’s in 2013 and with PSP (finally) in 2017. He is a bit of a miracle - but that’s...

Dear all, I’ve never posted before. My husband was diagnosed with Parkinson’s i...

Toddet

•23 days ago

18 Replies

Christmas greetings

I was thinking about you all today so decided to send you a Christmas wish. I know that for some of you you are still in the middle of the PSP/CBD chapter of...

I was thinking about you all today so decided to send you a Christmas wish. I kn...

AliBee1

•25 days ago

15 Replies

Christmas

Martin, my husband, was diagnosed in September 2023 but had symptoms since 2017. I’ve posted before about this but it’s especially painful at this time of...

Martin, my husband, was diagnosed in September 2023 but had symptoms since 2017....

Darlingtonian

•25 days ago

6 Replies

Dad (77) was diagnosed a year ago but is still in denial…

… how can I help him not only accept what’s happening but get him to engage with others who are going through the same thing? Mum is his carer (married 55...

… how can I help him not only accept what’s happening but get him to engage with...

RedWriter

•1 month ago

33 Replies

keller levetiracetam)?

hi! do you know if Keller can improve RLS ? Thank you

BluesHealer

•1 month ago

1 Reply

PSPA Christmas Bauble Appeal 2024

Your attention is drawn to the following:https://www.pspassociation.org.uk/christmas/ If you have found the Association helpful, please give what you can....

Your attention is drawn to the following:https://www.pspassociation.org.uk/ch...

MullerRice

•1 month ago

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Spouse CBD Diagnosis

My spouse was initially diagnosed as having Parkinson's Syndrome. In February a different Neurologist suspected that it might rather be CBD and this has just...

My spouse was initially diagnosed as having Parkinson's Syndrome. In February a...

Oumarusk

•1 month ago

19 Replies

I just need to talk .. 😁 CHC looming

This forum really helps me to process - the advice and wisdom has been invaluable yet I still cannot make sense of it all. I try to box it but it overflows …...

This forum really helps me to process - the advice and wisdom has been invaluabl...

Harshacceptance

•1 month ago

8 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

Caregiving, Physiotherapy, Destressing and Romance

Behaviour advice

Faces and Voices

HELP MEDICATION ENQUIRY

when to seek palliative care

Japanese Toilet

I forgot

RIP Jim xxx

My mum

Faces and Voices

Sudden Change

Medication

My husbands recent diagnosis of CBD.

PSP and my husband

CHC advice

Ebony..7

in answer to Respite

saying hi

Respite

I am a 24/7 caregiver (carer in UK)

Holiday Sadness and more...

chest infections

Bone tired

Christmas greetings

Christmas

Dad (77) was diagnosed a year ago but is still in denial…

keller levetiracetam)?

PSPA Christmas Bauble Appeal 2024

Spouse CBD Diagnosis

I just need to talk .. 😁 CHC looming

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive