Posts - PSP Association | HealthUnlocked

PSP Association

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Struggling to get comfortable when sleeping

Hello all, my wife is exhausted and 1) She's scared to sleep in case she doesn't...

very rapid decline

about two days ago my partner suddenly stopped being able to swallow or communic...

Worldwide Rare Disease Month

February is Worldwide Rare Disease month, culminating in Worldwide Rare Disease ...
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My wife has just been diagnosed, got a few questions if possible please.

Hello, my wife had just been diagnosed with PSP on Sunday last week. It's been a...

Double vision

Hi everyone, have been reading posts on this site for a while and found them ver...

sleep

anyone experienced long periods of sleep, i care for my mother im on a massive e...

PSP is dreadful. I’m not “giving up.” I’m giving in.

Hello, all. Patient here. I’ve been wanting to write this post for some time, bu...

Falls

My father in law has PSP diagnosed in March 2020.When he falls he never feels pa...

8 weeks — Keep Going RIP a momma

It’s been 8 weeks since you left this earth my sweet Momma, and my heart and sou...

Thick saliva

How do you deal with it

Incapable to brush teeth

Hello, My father has the last couple month been unable to not bit down on the t...

Bl--dy Wheelchair advice needed

Hi All, just had wheelchair delivered nhs standard variety with brake which is g...

Journeys end

Well after 6months in hospital, dad, last Friday, finally moved to his forever c...

In home care organisations and other support services in West Dorset

Thanks to everyone for your continued advise and helpful insights. I wondered if...

How are we still here ?

Bloody hell, still here, digging in ,being strong waiting for whatever is next. ...

Advice please - CBD

Hi all Just wondering if anyone can offer any words of advice. My dad has CBD ...

Muscle cramping/pain w/ PSP

My sis in law has PSP. What success has anyone had (what helped) with muscle cra...

Use of a hoist

the resthome has started using a hoist to move my Dad. Only twice so far. I wa...

Gastrostomy

My mother is suffering from PSP for last 6 years. She has already lost most of ...

Early days

II can’t type anymore I can’t type anymore considering I was a shorthand typist ...

Preparing for end of life care - what to discuss and where to get help

Hi, As my Mum approaches the end of journey with PSP she wants to prepare her e...

Some days it's too overwhelming

Hi friends hope you are all keeping strong. I'm writing this as my mum is sleepi...

Mum’s CBD progressing

Haven’t been on here much but know this forum is going to be a mental lifeline a...

GIVING AWAY FOR FREE

Hello everybody I’m new here. I spoke to a lovely lady from the PSPA yesterday w...

Electric wheelchair advice

Does anyone have any recommendations for an electric wheelchair? My stepdad (who...

Medicinal marijuana

Hi everyone, my stepdad has PSP and we have heard that there is evidence that TH...

No Help

Between Christmas and New Year my husband had 7 falls, three within half an hour...

Ceiling Hoist

Hi there, I am dealing with my late nans affairs and one of the last pieces of e...

Coping with a decline in mobility

My wife was diagnosed with PSP 18mths ago. Like many others her balance has dete...

Just tired?

Mum has been bed bound since Christmas Day but has managed to eat a little bette...
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