easterncedar2 hours ago
Here's one on a cloudy April day, with wild plums, forsythia and daffodils to cheer the lowery view.
4 Replies3 Likes
easterncedar5 hours ago
A long time back, someone asked me for a picture of the place I was always talking about, my man's home in the western mountains of Maine. I...
7 Replies6 Likes
Willow_rob11 hours ago
My name is Rob and I care for my wife Mary who was misdiagnosed with Parkinson's disease in August when she had reasonable mobility and func...
Christmas poem to friends, family & PSPers 2017
crab209315 hours ago
What’s happening with us?
Firstly, Charlie was struck by a stroke
I’m sure you’ll agree, it was no joke.
But he didn’t get better, he began t...
6 Replies6 Likes
Aggression towards spouse
2vonniea day agoPOPULAR
Has anyone experienced very aggressive behaviour and nasty words from their loved ones? My husband presses my arms so tightly it really...
Julieandroga day ago
Rog going into hospice today, wise daughter with me. I needed someone to take over the care i need to be his wife not his nurse, i owe him t...
16 Replies7 Likes
Time to regain strength after PEG tube fitting?
abilitydesigns2 days ago
Hi, a question for those who got the PEG tube fitted for their loved ones suffering from PSP; How much time did it take for regaining some s...
the cough and phlem
Kaka12342 days ago
Davids had a cold for a couple of weeks but its left him with a terrible cough mainly in the mornings its causeing a lot of phlem which make...
Zeberdee3 days agoPOPULAR
Syringedriver been in place a couple of weeks. Hyoscine to help dry up secretions created by the terrible coughing and morphine for the pai...
Julieandrog3 days ago
Have had to make the decision today that Rog is too ill to attend our niece's wedding on the 27th dec.
His deterioration has been quite rapid...
Mnd0vrmnky3 days ago
4 Replies1 Like
Here we again
Georgepa3 days agoPOPULAR
Sorry folks just when you thought I had vanished into the ether and was long gone - here I am back again like a bad penny . Well I have ha...
38 Replies6 Likes
Spanishv4 days ago
Has anyone heard of this and would you recommend for Psp? Mum recently diagnosed. Thanks
Mnd0vrmnky4 days ago
We've been given a printout from the pspa website by our neurologist regarding an upcoming trial. I'm pretty s...
A little tranquillity
Kevin_14 days ago
I thought I would share a small joy and our tranquillity.
Since Liz went into care her cat developed new habits. One is liking to sleep on th...
19 Replies10 Likes
Does anybody need any supplies?
Mogi20025 days ago
My father was a victim of this horrible disease. I would like to help anybody who needs any supplies to care for their love ones. I am on L...
2 Replies3 Likes
Mum is now at peace
Robmatlol5 days agoPOPULAR
It is with a heavy heart that I write this post. My dear dear mum passed away at home last Sunday the 3rd December. Myself and my sister wer...
45 Replies7 Likes
An extremely controversial subject
Satt20155 days agoPOPULAR
Firstly absolutely no offence meant to anyone here!
But this is a subject I would like thoughts and opinions on
Personally I agree with puttin...
80 Replies6 Likes
Going down quickly
Kevin_15 days agoPOPULAR
Liz seems to be going downhill fairly rapidly since being in care.
Here ability to speak, she can't open her mouth much at all and fe...
50 Replies5 Likes
My lovely dad has gone
sasmock5 days agoPOPULAR
Dad passed at the hospice at 6am today. So glad his battle is over and he's now free. We were all with him, and the end was so peaceful. It ...
21 Replies6 Likes
The Dreaded Catheter
Cuttercat6 days ago
Well today was D day. Catheter inserted and counting down. The Hospice nurse said when the catheter goes in the countdown begins. Right n...
Are there good days and bad?
tlovins6 days ago
The first day after receiving Sinemet (not sure how to spell that), Dad seemed to perk up a little and come out of the "death stare." It wa...
Karibu6 days agoPOPULAR
I wonder if anyone can please help me with this. My husband who is still ' query psp' had a dat scan. ( investigations being done at Queens ...
Looking for advice on equipment to transfer loved one from wheelchair to car
Etoile6 days ago
It's getting harder to transfer my brother from his wheelchair to my van (Honda CRV).
He's still able to stand up but has great diffi...
My Barry passed on 27th November
Althea-c6 days agoPOPULAR
The last few months of his life were unbearable for him and all his family and friends.
He was a fighter who eventually succumbed because he ...
41 Replies8 Likes
Ratcliffe7 days ago
NannaB's post about memories has made me think of a few things/times that me and David had together, and follows on from my reply to that po...
11 Replies11 Likes
NannaB7 days agoPOPULAR
This photo just popped up on Facebook reminding me of a “memory” from 3 years ago today. I went to book a table for 6 for a Christmas Lunch...
30 Replies19 Likes
And don't forget the potholes - Chuckles
Kevin_18 days agoPOPULAR
Thank you everyone for your lovely supportive and insightful posts to my previous post.
I am writing this fresh post so that its more visible...
23 Replies8 Likes
New to PSP and to this site-not so new to PSP symptoms
tlovins8 days ago
My family and I are new to this diagnosis of PSP. Unfortunately, not so new to the symptoms. I have read quite a few posts on here about t...
13 Replies8 Likes
"No plain not followed by a slope"
Kevin_19 days agoPOPULAR
An old Chinese saying. They do the obvious so wonderfully well.
Well I have had the slope and now, please, have arrived at the easy plain.
61 Replies16 Likes
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