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PSP Association
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Is there Blood donations of children for research?

I live in Perth Western Australia. I am very willing to even donate my blood for...

Vitalstim therapies

Vitalstim for dysphagia? Any comments or results ? Please advise

Can PSP be passed onto children?

Hi all. My father passed away with this dreadful disease at 67 years of age 12 y...

Positive Change

Adjustable bed purchased! A step in the right direction. As some of you know, ...

2 years on

Exactly 2 years ago my very best friend and partner died. I miss her words of wi...

CBD

Hi all I have joined recently and this is my first post Looks like my husband ha...

Home Sweet Home

I’m back! Spent the day back with Momma! I missed her so much, but I feel so re...

Progressing very rapidly

Hi my brother Larry having PSP for almost 9 years is on a rapid decline, last 4 ...

Vitalstim for dysphagia

is anyone familiar with vitalstim for dysphagia ? Currently on it or any result...

Dave is in peace

Dear PSP Family, My David is in peace now. He had intentiste necrosis and he bro...

Up before the Sun

Caught this other day. It was amazing in person but first couple pictures I tri...

Forever Friends - Respite Care

And this is what RESPITE CARE looks like to me! Our friends really have steppe...

PIP

Hello all has anyone been granted PIP benefit then at review had it stopped plea...

Voice Therapy

What good is Voice Therapy if after a 40 minute session you ask your loved one w...

Severe leaning - new way to get patient into bed.

The left leaning was so bad today that Sandy had to get back into bed after only...

Do we forget the dental appointments?

Sandy has a 9am dental appointment tomorrow for a deep cleaning (first of two se...

It is nearly Christmas Already.

How are you all? I don't know how the time is flying by since March when I lost...

New Interactive Resource For PSP & CBD

PSPA are thrilled to launch their new online interactive resource aimed at helpi...

Thanks for your suggestions

Thanks to everyone,I now have some ideas to go forward with.Acorneater.

Suggestions please

I have always enjoyed Christmas especially buying gifts for my nearest and deare...

Collect Stamps for PSPA

PSPA are collecting stamps in the UK to raise money. They accept any stamps (UK ...

Amazon

If you shop on Amazon, if you log in via smileamazon you can select a charity th...

Mobility

Hi everyone Just wondering about when LO's have lost their mobility. Was it sudd...

CBD OIL IN PARKINSINS.

what do you think about useing CBD for Parkinson's Disease.Is it safe to use and...

Larry is home

He’s sitting on the shelf in the living room. It feels good to have him back. No...

Advice on breaking PSP to my father in a way he can understand.

Hello, my dad was diagnosed with PSP yesterday, a friend went with him as I was ...

My sister

Very proud of my sister Brigid and her recent award............... https://youtu...

Another Sunrise

We have lost cherished members over the last few months and it got me to thinkin...

How is this going to go?

I saw my Dad today. I don’t think I was ready for the change in him. Early days ...

My mum.

Hi i'm lyndas daughter. As you know from my mums feed my lovely grandma died. Th...
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