crab20934 hours ago
We came across some old posts on possible benefits of turmeric for PSP sufferers. Does anyone have any recent info on this? Cheers Val and C...
I am feeling so happy......
Bargiepata day agoPOPULAR
Yesterday Jayne came and did an amazing job cleaning my flat.
She changed my bed and will now come every other week.
She loved my apartment a...
20 Replies4 Likes
1941marya day ago
So this week we had the funeral of my Uncle Frank who passed from PSP . He was diagnosed 4 years ago or there abouts . For those of you who ...
6 Replies5 Likes
Ratcliffe2 days agoPOPULAR
I don't even know if that is a word, but I'm feeling it right now.
As many of you know David died a couple of months ago, and the last two mo...
35 Replies13 Likes
Husband has psp feet ankles swelling
Marg522 days ago
Hello my husband Charlie has been suffering with swollen ankles and feet for a while now, been to the heart dr thank god his heart is fine. ...
stanny72 days ago
Hi all I have not been dxed with psp/cbd and my current dx is YOPD.
What I was wondering is when/how did you/loved one lose their strength? W...
Pjgil3 days ago
Some of you may know that I have been raising funds and awareness for PSPA. I have received a tremendous amount of support from my work coll...
4 Replies4 Likes
Spiralsparkle3 days agoPOPULAR
Any tips on how to keep the teeth and mouth clean?
Cordsyl mouth gel has been mentioned a few times, has it been useful to anyone ?
What a difference a day makes...😢
Careenh3 days ago
So mum has been doing relatively well all things considered but in the last few days it is proving almost impossible to get her to take her ...
11 Replies1 Like
Question about experience with finally being free of PSP
kulasdm4 days ago
I hope that this does not seem like an inappropriate question but it has been weighing on me for some time. I have read posts from ca...
Travelling with PSP
crab20934 days ago
TRAVELLING with PSP
Hi everyone. Thought I would tell you about how Ch and I managed to travel from Australia to Norway for grandchild christ...
12 Replies4 Likes
Back and Forth
Cuttercat4 days ago
Last 24 hours of coughing have been so stressful and sad, sad, sad. Seems there is nothing that helps when it starts. So the nights are lo...
Nanny8574 days ago
Thanks to all who answered Joanna8's post as I too was wondering what type of wheelchair is required. Your replies have been very helpful. ...
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The end is close
darell4 days ago
So sadly my father's battle against this disgusting disease is almost over. I would not wish what I have suffered over the past few days on ...
10 Replies2 Likes
My mum has PSP
AngelineAmy4 days ago
Hi I am Angeline Amy and my mum who is now 79yo was diagnosed with PSP in 2013 after a series of falls and hospitalization , her neurologist...
3 Replies2 Likes
Nearing the end
LookingafterDad4 days ago
My dear dad became very poorly last night. Paramedics were wonderful, apparently he's been in heart failure the past few days. He came throu...
Getting around - wheelchair
Joanna85 days ago
My father was diagnosed with PSP about six months ago. He is still walking every day, but he is finding it very hard now.
Slowly losing my Nan with cbd
Keiramurphy5 days ago
My nana left hospital on friday night aftee she caught a chest infection, the doctors gave my nan up to 2 weeks to live.
16 Replies1 Like
Marg526 days ago
Hello all Charlie has been worse his eating is getting bad I'm finding myself having to feed him, his feet and legs are swollen everyday. We...
7 Replies1 Like
As much infomation as possible.
Demziebee6 days ago
I hope/ wish high spirits to all today ☺️ I am a carer professionally.
Here to find out and hear anyone’s stories regarding PSP a...
Very difficult few weeks ..
Althea-c7 days agoPOPULAR
Barry had UTI which may / or may not have set off the new normal.
He is now bedridden and double incontinent which posses a new life of bed b...
21 Replies2 Likes
Flemingc7 days ago
2 Replies5 Likes
Mike’s son, Adam, designed this t-shirt for his Dad. Mike was an accomplished musician and singer, and a retired police sergeant with 31 y...
10 Replies6 Likes
Karynleitner7 days ago
Can anyone tell me if a Stand Aid can be used to move my husband from room to room. He is unable to walk alone and I am having a h...
sasmock9 days ago
Hi again - has anyone any experience with paraphimosis please? When the district nurse changed my dad's catheter today, she couldn't get the...
Riding the PSP Seesaw
Cuttercat9 days agoPOPULAR
One good day, three bad, two good, four bad. And then of course, one good hour, two bad, two good hours, three bad. The choking comes and ...
36 Replies9 Likes
End of life plan
sasmock9 days agoPOPULAR
Hi all, my dad has been home for two weeks now, having been fast tracked. It turns out he should have an end of life plan in place, but he h...
27 Replies1 Like
A bit of happiness....
Careenh9 days ago
Mum has started using a letter board to spell out words as her speech is pretty much non existent. It's been slow going and she gets a bit m...
6 Replies7 Likes
Home to family
Duffers10 days agoPOPULAR
Ive just spent 11 days in northwick park hospital with hubby ger. He had aspiràtion pneumonia which didnt respond to 3 different types of an...
36 Replies1 Like
allotmentartist10 days agoPOPULAR
Mick has a bee in his bonnet at the moment about turning the bathroom upstairs into a wet room I am undecided it will be OK short term but w...
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