Responding to why your doctor hasn't contacted a neurologist that is willing to share his knowledge using a drug that slows down PSP
grafixapna day ago
I received replies to my post about the lack of your doctor's contacting my wife's neurologist due to the high cost of the drug. The cost of...
Crushing tablets - guidance please
Tippyleafa day ago
I have booked 2 nights of respite for next week- I am really tired - usually up 8-10 times per night - hubby has not slept for more ...
13 Replies1 Like
Carers versus Sufferers
pandyjohna day ago
I have noticed that most of the replies I have had to various posts have come from people who are caring for someone, or who have already lo...
14 Replies4 Likes
Helen119a day ago
Hi can anyone taking morphene let me know if they are taking other pain killers with it besides paracetamol, Colin is still suffering with p...
8 Replies1 Like
One year today
Zeberdeea day ago
It is one year today that my hubby passed away after a four year PSP battle. It has been a long and difficult year and not a day goes by wi...
6 Replies1 Like
Yvonneandgeorge2 days ago
I didn’t finish the other post but would like to day I didn’t think it would, hope you are ok, just would love to see him one more than to t...
18 Replies3 Likes
Yvonneandgeorge2 days agoPOPULAR
I would like to thank you all for being there for me, Amanda was my life line she keep my sane, thank you Amanda love yo to the moon and bac...
39 Replies4 Likes
Merry Christmas Jillann!
raincitygirl2 days ago
So glad to see your 'likes' and know you are still in touch with us 👏
Hope your Christmas is good and full of love!
❤️💚❤️💚. Anne G.
6 Replies2 Likes
What you need to know if you are new to PSP
grafixapn2 days ago
Many have found out that it takes seeing the right doctor before you learn that you have PSP. It took 3 years for my wife who was seeing a N...
2 Replies2 Likes
daddyt2 days agoPOPULAR
Many on the site are aware that I'm a participant in Biogen Passport? clinical drug trial. This is an infused antibody drug that essentially...
21 Replies4 Likes
Contacting a Hospice
pandyjohn2 days ago
I contacted my local hospice, the Severn Hospice at Shrewsbury, yesterday afternoon. A nurse from their outreach team phoned back today and...
8 Replies2 Likes
Mum PSP , continuing health care.
Kaylewis2 days ago
Hi all , mum died last week and we did get continuing health care for her last six months. Today CHC phone me and ask if I would still like ...
15 Replies10 Likes
Nemo145 days ago
As you know I dont post on here very often I just update now and again....find it hard to respond to peoples post seeing all the different s...
10 Replies1 Like
Anyone watching Care on BBC1 ?
Ratcliffe6 days ago
I’m watching it, and oh my god, the home truths it’s hitting me with. Every scene is I did that, that happened with David’s care package, o...
13 Replies5 Likes
Urinary incontinence in PSP
Ruth19216 days ago
I’m worried about my husband’s sudden lack of bladder control. He seems not to be able to control when or how he urinates and I am constant...
Anxiety and irrational thinking/ hallucinations
Tina01201220157 days ago
Hi everyone, my mom is 70 and has been living with progressive (psp) Parkinson’s for about 4-5 years. It started with blank stares and stro...
16 Replies1 Like
Very upsetting day
Servena037 days ago
Forgive me, for not replying individually, all your replies, were honest correct and helpful, this morning I am acting at being normal, the ...
greenfarmer7 days ago
I have the best mother in law in the whole wide world. PSP has stolen her away and I don't know what to do for her. I sit with her all day...
17 Replies1 Like
Aslin8 days ago
Can anyone recommend a text to speak device please as my dad’s speech got worsened so he can hardly say a word? I was wondering ...
9 Replies1 Like
Very upsetting day
Servena038 days ago
Hi my friends, it been a exhausting day urgent doctors appointment, then long call from our PSP specialists, then help assistance to make ap...
12 Replies2 Likes
Leg held in the air
nayook8 days ago
My husband for the last couple of months, has been lifting his left leg when resting, as per the attached photo. He can lie like that for at...
Near the end
tlovins9 days agoPOPULAR
The Hospice nurse told me yesterday that dads bouts of unresponsiveness is him detaching from this life. So here comes the flood of emotions...
21 Replies3 Likes
Mum 81 PSP.
Kaylewis9 days agoPOPULAR
Hi everybody mum died peacefully yesterday afternoon 7 days after her swollow stopped working. On the day her swollow stopped she was given ...
27 Replies11 Likes
U.S. TV show Chicago Med.
Dadshelper9 days ago
If you watch it and haven't seen the Dec 5th episode, stop reading
A lady was brought in the ER after stabbing an intruder in her home. L...
bazooka11110 days ago
Does anyone have an opinion on the benefits of coconut oil in the diet?
3 Replies1 Like
Khartt10 days ago
My husband has a lot of pain in his neck, and limited mobility. Some of that is due to PSP (he is in his 6th year), some of it due to arthri...
Celebrity electric Dual Rise and Recliner chair for sale
iris210 days ago
For sale. £400
Celebrity Electric rise and recline leather chair, as new had little use. Buyer would have collect. Merseyside UK
Boyce360011 days agoPOPULAR
Can anyone tell me if your loved one leans back or to the side inconsistently and if so how you are dealing with this?
StayAtHomeDaughter11 days ago
I certainly understand there is no cure for neurodegenerative diseases. I also understand the philosophy of evidence based treatm...
Mum just been diagnosed with PSP
corkywool11 days ago
Hi all my mum 83 was diagnosed with PSP 2 weeks ago. She was initially told she had Parkinson's (this is common from what I've read) 3 year...
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