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PSP Association

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Home adaptations

Hi, My Dad has PSP and I’m wondering if others can give advice on the most suitable adaptions to the home (particualry bathroom) for the months ahead please....

Hi, My Dad has PSP and I’m wondering if others can give advice on the most sui...

Woodstock80

•14 hours ago

8 Replies

Heartbroken 😢

My darling Mum took her last breath last night. We’re heartbroken but happy that she is free from PSP. This community has been amazing and I have been...

My darling Mum took her last breath last night. We’re heartbroken but happy that...

GeorgeMMXVI

•5 days ago

21 Replies

What Should Be The Most Loving tribute to PSP, CBD and MSA Fellows ?

What could be the most loving tribute to PSP, CBD and MSA people who leave this world ? Quotes, eulogies, and stories etc do serve as tributes. However,...

What could be the most loving tribute to PSP, CBD and MSA people who leave th...

PineEater

•5 days ago

2 Replies

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CHC - offer of some guidance if required

** UPDATE ** * I don't know how to share the documents so I will add some helpful documents I created at the bottom of this post. There is so much experience...

** UPDATE ** * I don't know how to share the documents so I will add some helpf...

Harshacceptance

•6 days ago

26 Replies

Home or Nursing Hime

hello, my husband has PSP , he was diagnosed 3 years ago , but had a lot of symptoms before . He’s now at the stage where his mobility is so poor. but he...

hello, my husband has PSP , he was diagnosed 3 years ago , but had a lot of symp...

bladesmad

•7 days ago

14 Replies

psp and sitting in chair sliding over to right side

My husband Jim is about 5 years in with psp has nearly lost all speech has no balance on his own he sits in his recliner nearly all day and we have carers in 4...

My husband Jim is about 5 years in with psp has nearly lost all speech has no ba...

Morag1952

•8 days ago

6 Replies

Hand or wrist splint

My husband has CBD and it is quite late stage now. His hands grip tightly and are hurting him. He has botox every three months but is not due another dose any...

My husband has CBD and it is quite late stage now. His hands grip tightly and ar...

SunriseLegend

•8 days ago

6 Replies

psp help

hello, my husband is a young 79 who has been diagnosed with psp last year, how ever he’s had this for at least three years prior but was misdiagnosed with...

hello, my husband is a young 79 who has been diagnosed with psp last year, how e...

Lillian44

•8 days ago

10 Replies

sleeping longer

My husband was diagnosed with PSP 3 years ago, but probably suffered longer. He is now sleeping much more each day & doesn’t communicate with me very much,...

My husband was diagnosed with PSP 3 years ago, but probably suffered longer. He...

HowDoglover

•10 days ago

12 Replies

Fungal Rash

Several months ago my husband developed a fungal rash in the groin area. He saw the Practice Nurse at our surgery and was told it's Jock Itch. Dakarin cream...

Several months ago my husband developed a fungal rash in the groin area. He saw ...

Oumarusk

•10 days ago

11 Replies

45 year old partner could these be CBD symptoms? no sleep, leaning over slumping, tremors, burping, hiccups, irritable?

Hi, I came across this site by chance after typing in some strange symptoms I’ve noticed in my male partner who’s only 45. He’s had no end of seemingly...

Hi, I came across this site by chance after typing in some strange symptoms I’ve...

Mogsygirl

•11 days ago

14 Replies

Mum's mobility

So this week has not been great! Mum has been told that the carer's are now having to hoist her and she is devastated by this. She feels that this is the end...

So this week has not been great! Mum has been told that the carer's are now havi...

Pudsey123

•13 days ago

12 Replies

Diet and PSP-CBD

https://l.facebook.com/l.php?u=https%3A%2F%2Fpspawareness.com%2Fblogs%2Fpsp-q-a%2Fdiet-and-nutrition-for-atypical-parkinsonism-best-practices-for-health-and-wel

https://l.facebook.com/l.php?u=https%3A%2F%2Fpspawareness.com%2Fblogs%2Fpsp-q-a%...

daddyt

•14 days ago

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Biting on the spoon whilst being fed

My wife has started biting down hard on the spoon when being fed. I am concerned she will damage her teeth. She doesn't do it all the time but I never know...

My wife has started biting down hard on the spoon when being fed. I am concerned...

Wombatz

•14 days ago

4 Replies

Help with advice

Hello there Whilst our PSP journey ended some five years ago I still keep in touch. When you post a query, it would be most helpful if you could put the...

Hello there Whilst our PSP journey ended some five years ago I still keep in tou...

AnneandChris

•14 days ago

5 Replies

Agitation and insomnia

Hi all. Hoping for some advice regarding my Dad who was diagnosed with PSP about 18 months ago. His condition has declined rapidly after a few spells in...

Hi all. Hoping for some advice regarding my Dad who was diagnosed with PSP about...

Leither1

•15 days ago

5 Replies

Any successful treatments for dizziness? Botox injection?

My sister is virtually immobile due to PSP and suffers with dizziness, sometimes for hours on end. She has lost her eyesight so the dizziness causes her to...

My sister is virtually immobile due to PSP and suffers with dizziness, sometimes...

Beachut100

•15 days ago

22 Replies

PSP - agitation and bowel problems

Hello, my Dad is going into the later stages of PSP. We have had a horrendous journey. Lots of falls, broken bones, black eyes, UTI infections, swallowing...

Hello, my Dad is going into the later stages of PSP. We have had a horrendous jo...

A-nnie

•15 days ago

4 Replies

Mum's on going double vision.

I start with thank you reading My mum has had this horrendous condition for 3 years now ,Ive been so concerned with her double vision for the last year ,we...

I start with thank you reading My mum has had this horrendous condition for 3 ye...

Blitzford72

•17 days ago

6 Replies

Anybody in Leicester, my husband has PSP.. 3-4 years in now.

Anybody in Leicester, my husband has PSP.. 3-4 years in now. We just got referred back to the General Hospital Neurology, after spending 3 years under the...

Anybody in Leicester, my husband has PSP.. 3-4 years in now. We just got referre...

Bestwestie1

•17 days ago

9 Replies

Hypnotherapy

Diagnosed PSP Dec 22,, have issues with balance, swallowing, voice and vision. I am freezing a lot especially at doorways. Has anyone tried hypnosis

Diagnosed PSP Dec 22,, have issues with balance, swallowing, voice and vision. ...

SaintsandHawks

•17 days ago

7 Replies

Breathing control and PSP

Hi all, I hope you are all well. may dad was diagnosed with PSP recently. His main symptom at present is his speech which is not fluent and sounds straining....

Hi all, I hope you are all well. may dad was diagnosed with PSP recently. His m...

Umzain

•17 days ago

4 Replies

The Dreaded UTI

https://l.facebook.com/l.php?u=https%3A%2F%2Fpspawareness.com%2Fblogs%2Fpsp-q-a%2Futis-and-atypical-parkinsonism-symptoms-impacts-and-management-tips%3Ffbclid%3

https://l.facebook.com/l.php?u=https%3A%2F%2Fpspawareness.com%2Fblogs%2Fpsp-q-a%...

daddyt

•18 days ago

1 Reply

Five years on from Christmas Day 2019

My wife first showed signs of something being wrong on Christmas Day 2019, when we noticed she could not use a peeler to peel the vegetables for our Christmas...

My wife first showed signs of something being wrong on Christmas Day 2019, when ...

HildaandHank

•19 days ago

13 Replies

Messages of Hope

To the Atypical Parkinsonism community—patients, caregivers, family, friends, and the public— You are not alone. Every challenge faced, every moment of...

To the Atypical Parkinsonism community—patients, caregivers, family, friends, an...

daddyt

•20 days ago

1 Reply

PSP and catheters!

Dad, 80, (PSP for approx 4 years) had a catheter fitted in hospital in Sept. This was huge relief for both Mum and Dad. The last time the district nurses came...

Dad, 80, (PSP for approx 4 years) had a catheter fitted in hospital in Sept. Thi...

SurreyK

•20 days ago

10 Replies

For the Caregiver

https://l.facebook.com/l.php?u=https%3A%2F%2Fpspawareness.com%2Fblogs%2Fpsp-q-a%2Fthe-dual-facets-of-love-sorrow-and-strength%3Ffbclid%3DIwZXh0bgNhZW0CMTEAAR0FS

https://l.facebook.com/l.php?u=https%3A%2F%2Fpspawareness.com%2Fblogs%2Fpsp-q-a%...

daddyt

•21 days ago

1 Reply

Love and Loss

https://l.facebook.com/l.php?u=https%3A%2F%2Fpspawareness.com%2Fblogs%2Fpsp-q-a%2Fthe-unseen-journey-of-love-and-loss%3Ffbclid%3DIwZXh0bgNhZW0CMTEAAR3GsZ_rmnfyA

https://l.facebook.com/l.php?u=https%3A%2F%2Fpspawareness.com%2Fblogs%2Fpsp-q-a%...

daddyt

•21 days ago

5 Replies

Support groups in London

Hello, My mother has been diagnosed with PSP, 3-4 years ago. Fortunately the disease has been progressing slowly but other conditions make it increasingly...

Hello, My mother has been diagnosed with PSP, 3-4 years ago. Fortunately the d...

dario73

•22 days ago

8 Replies

PSP Variants

And now you know... more....

daddyt

•23 days ago

5 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

Home adaptations

Heartbroken 😢

What Should Be The Most Loving tribute to PSP, CBD and MSA Fellows ?

CHC - offer of some guidance if required

Home or Nursing Hime

psp and sitting in chair sliding over to right side

Hand or wrist splint

psp help

sleeping longer

Fungal Rash

45 year old partner could these be CBD symptoms? no sleep, leaning over slumping, tremors, burping, hiccups, irritable?

Mum's mobility

Diet and PSP-CBD

Biting on the spoon whilst being fed

Help with advice

Agitation and insomnia

Any successful treatments for dizziness? Botox injection?

PSP - agitation and bowel problems

Mum's on going double vision.

Anybody in Leicester, my husband has PSP.. 3-4 years in now.

Hypnotherapy

Breathing control and PSP

The Dreaded UTI

Five years on from Christmas Day 2019

Messages of Hope

PSP and catheters!

For the Caregiver

Love and Loss

Support groups in London

PSP Variants

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive