Posts - PSP Association | HealthUnlocked

PSP Association

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Video PSP

This video is the first actual human story I have seen about PSP. It is sad but actually tells a real story with both the patient (Pierre) and his wife...

This video is the first actual human story I have seen about PSP. It is sad but ...

•14 hours ago

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Prednisolone (steroid) tablets 5mg

My husband has PSP officially diagnosed end of 2022 but had symptoms since about 2017. He has recently been diagnosed with irritable bowel disease probably...

My husband has PSP officially diagnosed end of 2022 but had symptoms since about...

•22 hours ago

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sleep up and stress down

I am doing my bit - sleep up and stress down - https://fightingparkinsonss.com/2025/04/15/sleep-and-stress/ -

I am doing my bit - sleep up and stress down - https://fightingparkinsonss.com/2...

•2 days ago

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rare?

Hope all are well. I found out today that 300million people have rare diseases….not such a rare club after all...

Hope all are well. I found out today that 300million people have rare diseases…....

•3 days ago

vaccine or not?

It’s that time of year when the Covid vaccine is being rolled out. Last year my husband reacted quite badly to the flu vaccine and wasn’t well enough to have...

It’s that time of year when the Covid vaccine is being rolled out. Last year my ...

•5 days ago

Glyco

I've found Glycopyrronium Bromide clears up excess saliva production for my wife really well. Was advised away from Atropine eye drops (not licensed for...

I've found Glycopyrronium Bromide clears up excess saliva production for my wife...

•6 days ago

EYES - !

EYES - I can’t look people in the eye and it took so long to ‘see it’. It is one of the reasons I love writing blogs - it is my way to talk to people. Not I...

EYES - I can’t look people in the eye and it took so long to ‘see it’. It is one...

•6 days ago

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When is the right time

Good morning My poor mum of 89 has just come out of hospital after breaking her arm ,not by falling over . But by sitting down in her chair her bone density...

Good morning My poor mum of 89 has just come out of hospital after breaking her ...

•7 days ago

Big and Bold

Big and Bold are key in the fight with PD/PSP etc - https://fightingparkinsonss.com/2025/04/09/big-and-bold-are-beautiful/ Thanks to Care PSP for the...

Big and Bold are key in the fight with PD/PSP etc - https://fightingparkinsonss...

•8 days ago

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Beat the odds

So many people have said to me that I shouldn't believe the statistics regarding PSP. It is normally a statement made based on faith and emotion. I, of course,...

So many people have said to me that I shouldn't believe the statistics regarding...

•8 days ago

Excess saliva

Hi,My father has PSP and is really struggling with excessive saliva production. Someone has suggested Botox might help. Does anyone have experience of this?

Hi,My father has PSP and is really struggling with excessive saliva production. ...

•10 days ago

Hubby recently diagnosed

Hi, I'm new to this, hubby was originally diagnosed with Parkinson's, but now turns out it's PSP. He seems to have periods where he's very down and wants to...

Hi, I'm new to this, hubby was originally diagnosed with Parkinson's, but now tu...

•10 days ago

Thank you

Thank you to everyone for your replies of advice and support . This is such a good community.

Thank you to everyone for your replies of advice and support . This is such a go...

•11 days ago

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PEG - what are the alternative options

I have been advised to get a lasting power of attorney in place for my husband’s care and our financial situation whilst he still has capacity to make...

I have been advised to get a lasting power of attorney in place for my husband’s...

Licquoricelover

•11 days ago

brandysuki

With my wife’s PSP progression she can now hardly stand or walk but also now often has vomit coming up into her mouth, is this a further sign of progression of...

With my wife’s PSP progression she can now hardly stand or walk but also now oft...

•12 days ago

Impulsivity. How do you cope

How do you cope with a loved ones impulsivity. Im sorry to say, I lost my patience with my husband on Wednesday. I had joined the carers zoom meeting rather...

How do you cope with a loved ones impulsivity. Im sorry to say, I lost my patie...

•13 days ago

Hope the winner but not by KO

I have just been witnessed an inner battle between hope and far darker thoughts - hope won out but on points - A positive attitude needs daily and constant...

I have just been witnessed an inner battle between hope and far darker thoughts...

•13 days ago

Poor bone density

Good morning My mum of 89 was diagnosed with psp 2 years ago ,although I think she had it for some time before that . She managed to fracture her upper arm...

Good morning My mum of 89 was diagnosed with psp 2 years ago ,although I think s...

•15 days ago

Revisit shocks me

Revisiting the rehab unit was a shock but we must power on https://fightingparkinsonss.com/2025/04/02/rehab/

Revisiting the rehab unit was a shock but we must power on https://fightingparki...

•15 days ago

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Working with CBD

Morning . My husband is now 3 year in too his CBD diagnosis, his symptoms start two years before that . He has managed to carry on working ,but over the last...

Morning . My husband is now 3 year in too his CBD diagnosis, his symptoms start...

•16 days ago

Learning to Fall

Learning to fall properly….not quite Jackie Chan but it saved me - this one is thanks to my former trainer who I can’t visit now I don’t drive but who I owe...

Learning to fall properly….not quite Jackie Chan but it saved me - this one is t...

•16 days ago

My psp spouse is suddenly leaning to the right. He cannot straighten up his body in his wheelchair. He says there is no pain.

My husband was diagnosed by a Neurologist as having Parkinson’s disease in July 2021. The diagnosis was changed in December 2024 to PSP as there were symptoms...

My husband was diagnosed by a Neurologist as having Parkinson’s disease in July ...

•16 days ago

advice needed

hello, my dad has a PSP diagnosis which he received 18 months ago. We suspect he had psp for about 2 years before this at least. My dad fell about 2 weeks ago...

hello, my dad has a PSP diagnosis which he received 18 months ago. We suspect he...

•17 days ago

Driving

https://blogs.timesofisrael.com/the-big-taboo-my-driving-when-no-longer-fit/ I wrote about it once but this needed saying even if you don’t like me me for...

https://blogs.timesofisrael.com/the-big-taboo-my-driving-when-no-longer-fit/ ...

•17 days ago

Choose Hope - Always

https://www.researchgate.net/publication/390265687_AZP2006_Ezeprogind_a_Promising_New_Drug_Candidate_in_the_Battle_Against_Neurodegenerative_Diseases?fbclid=IwY

https://www.researchgate.net/publication/390265687_AZP2006_Ezeprogind_a_Promisin...

•18 days ago

0k then 5k

It is simply strange and only people with PD or PSP etc could understand - how at night I can’t walk and have to be helped home and by morning can fast walk 5k...

It is simply strange and only people with PD or PSP etc could understand - how a...

•18 days ago

Out of crisis

Time to come out of crisis mode and live LIFE adjusting to the huge decisions I have made which an expert I saw on Friday fully supports....

Time to come out of crisis mode and live LIFE adjusting to the huge decisions I ...

•18 days ago

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Caregiver Burnout

A great read:...

A great read:...

•20 days ago

toilet frame recommendation

Hi, this is a very practical question- can anyone please recommend a very sturdy toilet frame? We have an NRS toilet frame which has been good up until now,...

Hi, this is a very practical question- can anyone please recommend a very sturd...

•20 days ago

brandysuki

thanks for your helpful replies everyone re my wife’s right side leaning. She is also now having very great difficulty in walking, both her feet/legs keep...

thanks for your helpful replies everyone re my wife’s right side leaning. She is...

•20 days ago

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