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PSP Association
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Night Out!

Well, I discovered that going to a Japanese Steak House - Hibachi is not only en...

I'm new

My husband was diagnosed with PSP in April 2018. I am his primary caregiver and ...

Eye infection

Hi all. My dad is in a care home and has deteriorated quite quickly in the past ...

CBD

Thank you to all that replied to my recent post regarding CBD. You are all so po...

Giving up

I can't do this anymore had enough of this awful illness. Ì still have full ment...

Thank you for your support

Good morning everyone I received a message this morning from Nanny857 and have w...

Jim`s story

Hello everyone reading this, thank you first of all for taking time to do as as ...

Suggestions

Morning everyone. I am looking for some recommendations on where to holiday. I ...

Thank you all you lovely people

Thank you all for such lovely messages and kind thoughts following pete’s passin...

Cheers!

I thought I would share a moment that I had with mom this weekend at the lake h...

One Year today

It was one year today that my beloved passed away from the cruel disease of CBD ...

Meet Jim

I’d like to introduce you to Jim. He was diagnosed with PSP two months ago. Unfo...

The little things ...

We just spent a few days up at the lake house with our friend Linda. Mom loves r...

No Diagnosis

My friend has had symptoms of PSP for at least a year - falling backwards, gaze ...

An amusing film.........

https://youtu.be/1K23TTi4X1Q Click bottom right YouTube button and then watch fu...

Bad day of fishing...

...still beats most other things....didn't even get a nibble. Ron

Mr. 90%

This is a post I have thought about making for a long time. After the illness bo...

A good pamphlet to help people understand

I wasn't sure how PSP was different from CBD and MSA, so I looked and found this...

In Home Therapy - lots of opinions

I wrote the original post on whether people grew tired of in home therapists. Wo...

Biting inside of Mouth

I’m new to this. Does anyone have trouble with PSP and biting the inside of yo...

Feminine Itchiness

Mum has been suffering for months now with itichiness in her vulva region. If sh...

Psp kidney failure

Hi my dad is in kidney failure with psp. Anyone experience this? Thanks

Transferring to toilet

We are having a terrible time transferring from the wheelchair to the toilet. We...

CBD

Hi I was diagnosed with CBD last year but reading the messages here everyone see...

Dry, flaky skin

I read that Parkinson's Disease (and I'm assuming Atypical Parkinsonism) can cau...

Growing tired of therapists in and out of the house

Does anyone else get weary of having in home health care? Although I am thankful...

PEG feeding tube

I attended an appointment to discuss having a feeding tube put in. I still manag...

Am I hovering?

I’m just asking for another perspective ... I have cameras installed in Mom’s be...

Lovely husband gone but not forgotten

It is with mixed feelings that I have to tell you that my lovely husband, Pete, ...

CBD progression

Hello I'm looking for some advice. My mum got diagnosed with CBD 2 years ago she...
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