JCRy9 hours ago
Can anyone tell me if riser chairs are worth the investment? Particularly for tall people.
CBD and Neck issues
Marilyn_cbd122 days ago
Hello. Just joined. Wonderful husband is 12 years into CBD. Can't get his chin off his neck -- severe torticallis-- following a Botox inj...
12 Replies1 Like
Spiralsparkle2 days agoPOPULAR
It will be Mum's birthday this Friday.
I am at a total loss at what to get her as a present. Any ideas for late stages of these dis...
Blots2 days agoPOPULAR
My father died on Saturday. Too many of you hear know the mix of loss and relief.
Thanks to everyone for the support you’ve given me when I c...
Temporary shower cubicle
SallySmith2 days ago
Just wondering if anyone would like to purchase a temporary shower cubicle ( if that is allowed on this site ... please delete if no...
JCRy2 days agoPOPULAR
Sorry I am asking another question. I really am stuck with getting quick and expert advice here in Spain
I am very aware that Ian is becoming...
It's over now
laroux3 days agoPOPULAR
Bob is gone. Left us on Friday. What a battle he fought!! I can remember thinking I'd never get to this point... to the point of posting thi...
41 Replies2 Likes
Helen1193 days agoPOPULAR
Hi can you tell me what dosage of baclofen ( if your using) people are taking. Is it helping anything?
Love and hugs Helen xx
My dad's seeing the Angels.
Karre3 days ago
My dad is nearing the end of this life. After 2 years living with us, his deterioration has been relatively quick. His end stage COPD made...
EricaE3 days ago
I just wanted to share this poem (written by my late father-in-law, translated from the original Welsh by my husband). It speak to me, it ma...
18 Replies11 Likes
The new normal
EricaE4 days agoPOPULAR
I haven't been on here for a very long time but I promise I haven't forgotten you all, I just haven't been able to to post anything.
25 Replies4 Likes
steff1234 days ago
What are the main symptoms of psp? Eye pain?
Extha4 days ago
I wish you all well. I'm sending a link on how to sleep to improve health as per vedas. I hope this is useful.
Be the first to reply
My Darling Man is Gone
raincitygirl5 days agoPOPULAR
Dear Community: I still cannot believe this: I am in shock and heartbreak: My beautiful, intelligent, independent, industrious, hilarious ma...
174 Replies3 Likes
Left Side problems
racinlady5 days agoPOPULAR
I've been noticing that quite a few of you who are either PSP caregivers or PSP patients mention stiffness and/or weakness on the left side....
Joy735 days agoPOPULAR
Hello I am new to this site. I am new to a diagnosis of CBT for my husband age 55.
What have people's experience been of applying for PIP pl...
29 Replies1 Like
Rebound / improvements
dw1234566 days ago
Checking my old post and it was about 6 month that Neil had the same rebound,getting himself out of his recliner,walking around to find me. ...
Loosing the battle..............
Bargiepat6 days agoPOPULAR
I know many of you ask me " how it is going "........ sadly life is getting harder.
I have decided to stop driving and doing this now ...
46 Replies5 Likes
Another battle won.
toyota116 days agoPOPULAR
My dear wife Margaret left us early on Monday after six and a half years of fighting her PSP. She was a very brave lady and never once compl...
21 Replies2 Likes
beau19886 days agoPOPULAR
Would like some opinions on best method. My husband is still mobile but needs help with all ADLs. He is starting to have trouble sitti...
Is it always obvious when aspiration pneumonia is starting?
forourcarlo7 days ago
I'm new here. I care for my son-in-law who has PSP (for 4 years now). He does have swallowing difficulties, but has not had pneumonia yet....
Sailorwoman7 days ago
Does anyone know where I could get genetic testing for PSP please? My mother died of it in 2008 - I've heard the symptoms usually start in ...
7 Replies1 Like
Lisa_Jane7 days ago
My dad was diagnosed in 2017. He passed away on Tuesday. It seemed to me that every six months he seemed to have some sort of progression of...
19 Replies2 Likes
Updated Summary: Time from First Symptom to PSP or CBD Diagnosis
raincitygirl7 days ago
A most unscientific summary! Thank you to all who participated (19 respondents).
Average time to PSP/CBD Dx: 3.7 years
Shortest wait time:...
16 Replies7 Likes
It's been awhile....
Abrecheisen538 days agoPOPULAR
I apologize that I have been hit or mis. I try to read the various posts before I go to sleep each night, but sometimes the fatigue wins ou...
30 Replies1 Like
PSP - how to meet rapidly changing needs
Halftimeoranges8 days ago
My dad has been diagnosed with PSP about 2 years ago. He has sadly declined very rapidly and has had numerous falls over last 2 years. He ...
13 Replies2 Likes
How Long from First Symptoms to PSP or CBD Diagnosis?
raincitygirl9 days agoPOPULAR
Hi All: I'm curious to see people's experience of the time between symptom onset and the "real" diagnosis of PSP or CBD. I know many of us...
99 Replies3 Likes
Gems,what a lovely way of looking at dementia !
patch339 days ago
2 Replies6 Likes
Spiralsparkle10 days ago
Wanted to pop in to give an update.
So Mum has been in the hospice since 28th June. It hasn't been as I had imagined & I've had to mak...
Donation of Furniture
Dtns10 days ago
To the admin, sorry if this breaks the rules, please remove if it does
Hi, my father pasted away from PSP 2years ago, and we have a couple of...
2 Replies3 Likes
Start a Community