Posts - PSP Association | HealthUnlocked

PSP Association

9,252 members • 11,348 posts

All posts for July 2013

At last, help!

Glory be! My husband was admitted into the hospice homecare program yesterday afternoon. I have been so lonely and often fearful with all the responsibility...

Glory be! My husband was admitted into the hospice homecare program yesterday af...

carolinesimmons

•11 years ago

From Vietnam to Vesicare in 50 Short Years

“It seems like only yesterday.” It’s an expression as worn out as those of us old enough to utter it routinely. But it captures our ethereal sense of time as...

“It seems like only yesterday.” It’s an expression as worn out as those of us o...

•11 years ago

I believe my husband has had PSP since 1996, My question is How long does the disease last he has many other symptoms. now it is distressi

•11 years ago

Want to take advantage of all our features? Just log in!

or

Husbands been diagnosed with psp

Hi I am new here my husband is 58 and 2 years ago was diagnosed with frontal temporal dementia I was just coming to terms and dealing with that when 3 months...

Hi I am new here my husband is 58 and 2 years ago was diagnosed with frontal tem...

•11 years ago

WARNING TO CAREGIVERS

Hi, We had an unfortunate thing happen to my PSP wife and I recently. Thought I'd share it so that others can prevent such a thing in their lives. We were in...

Hi, We had an unfortunate thing happen to my PSP wife and I recently. Thought I...

•11 years ago

Hearing issues with PSP?

My wife has been complaining that her one ear is blocked. I've put in drops to resolve the problem several times but it still blocks up from time to time (not...

My wife has been complaining that her one ear is blocked. I've put in drops to ...

•11 years ago

Aches and pains

My wife who has PSP is now complaining of pain in her elbows. Just started recently and may be PSP related. Jimbo

My wife who has PSP is now complaining of pain in her elbows. Just started rece...

•11 years ago

My husband has started leaning/falling to the left. Is this a common progression? Apart from one dramatic forward dive downstairs, until

4 days ago, he only fell backwards. He is now very unstable, even with his walker as although it stopped him falling backwards, it doesn't help with sideways...

4 days ago, he only fell backwards. He is now very unstable, even with his walke...

•11 years ago

Grief Comes Early

The somber expression on the neurologist’s face spoke volumes – correction: screamed volumes. A synopsis of Dale’s symptoms coupled with an overview of what...

The somber expression on the neurologist’s face spoke volumes – correction: scre...

•11 years ago

in your dreams

does anyome have PD or PSP in their dreams - or are you normal again ?

does anyome have PD or PSP in their dreams - or are you normal again ?

•11 years ago

What have other people's experiences been near the end stage of PSP - how infirm are you, what can you still do, do you spend all day in bed

•11 years ago

The Daily Shower

Oh, we humans love our ruts, our daily routines that we take for granted, and assume will be as constant as the sun rising in the East. We choose our ways of...

Oh, we humans love our ruts, our daily routines that we take for granted, and as...

•11 years ago

Filled with great sadness. I am no longer able to care for my lovely hubby and he is now in a nursing home. A very difficult decision.

I was recently diagnosed with lung cancer and having to care for Tony as well as deal with the effects of chemotherapy, etc has proved very difficult. As my...

I was recently diagnosed with lung cancer and having to care for Tony as well as...

•11 years ago

And so it goes...

My mother passed away Sunday am. It was peaceful and she was as comfortable as anyone could have been. Family was around all Saturday and those who wanted to...

My mother passed away Sunday am. It was peaceful and she was as comfortable as ...

•11 years ago

some days my husband goes into what I can only describe as "dementia mode" He will not wash or dress - although this applies to most days

but I can usually persuade him in the end - but his "dementia" is different, his behaviour is repetitive, he wants to be taken to the bathroom about 20 times a...

but I can usually persuade him in the end - but his "dementia" is different, his...

dorothy-thompson

•11 years ago

HOW GOOD WOULD IT BE IF I COULD BE WITHOUT THIS PSP FOR JUST 24 HOURS??

IT IS REALLY GETTING ME DOWN HAVING TO THINK ABOUT IT 24 /7 OTHERWISEI FALL/CRY OV ER NOTHING ETC ETC AND GET V FRUSTRATED WHEN I CANNOT DO THINGS FOR MYSLEF...

IT IS REALLY GETTING ME DOWN HAVING TO THINK ABOUT IT 24 /7 OTHERWISEI FALL/CRY ...

•11 years ago

Stability in instability!

Just about the time I think my husband has reached some point of stability, he either improves some part of his life or just the opposite. I tell my friend he...

Just about the time I think my husband has reached some point of stability, he e...

carolinesimmons

•11 years ago

Why is no one asking any questions? Is everybody stable?

carolinesimmons

•11 years ago

barbara daughtry

somebody pleaseeee answer me. where can i buy davunetide barbara daughtry mombcd1@yahoo.com

somebody pleaseeee answer me. where can i buy davunetide barbara daughtry mo...

•11 years ago

Thank goodness I've found you all again. I've had terrible trouble with this site and couldn't get anything but after advice from site

managers and several days of trying here I am again. I had a dreadful week last week with my poor hubby falling, grabbing hold of the wash basin and pulling...

managers and several days of trying here I am again. I had a dreadful week last...

•11 years ago

Necessity is a Mother, All Right

Glancing at the caller ID on my ringing cell phone, my stomach lurched. It was Dale, my husband, calling from another part of the house. These calls were...

Glancing at the caller ID on my ringing cell phone, my stomach lurched. It was ...

•11 years ago

It's My 55th Birthday...Do You Believe it?

I don't! My body feels it but my spirit remains youthful. It's been THE year of years. Precisely at this time last year, I was beginning the process of my...

I don't! My body feels it but my spirit remains youthful. It's been THE year of...

•11 years ago

I've got Caregiver burnout!!

I am pretty well spent. I get up 2,3 and sometimes more at night to help my hubby to the bathroom. I get up in the morning and get his meds in him, start...

I am pretty well spent. I get up 2,3 and sometimes more at night to help my hubb...

•11 years ago

Difficulty with feeding issues

Frequently my mother is not able to open her mouth wide enough to get food in. She typically has a voracious appetite. It is difficult to know if is she is...

Frequently my mother is not able to open her mouth wide enough to get food in. ...

•11 years ago

Some days are good, some days are bad

First diagnosed with bsb in June this year after head scans all sorts of blood and spine tests then full body scan , Nothing then the savere shakeing and...

First diagnosed with bsb in June this year after head scans all sorts of blood ...

•11 years ago

Just wondering

Not many people from the south seem to have PSP I have many questions and would like to hear PSP pt and caregivers response. My mom had weakness on left side...

Not many people from the south seem to have PSP I have many questions and would ...

•11 years ago

Does any one else suffeing with psp have urine infection

urine infetion and constibation

urine infetion and constibation

•11 years ago

Cathetre issues for stylish lady .

My lovely Mum in Law has had an indwelling catheter now for the past few months .Its great as she gets a good night sleep , but daytimes are stressfull as...

My lovely Mum in Law has had an indwelling catheter now for the past few months ...

•11 years ago

Travel now out of the question...........

Just returned from a car trip with my wife who has PSP. We went to Virginia to visit her son and three grandchildren then the wedding of a niece also in...

Just returned from a car trip with my wife who has PSP. We went to Virginia to ...

•11 years ago

MIGRAINE VARIANT ?

DOES ANY BODY SUFFER WITH SYMPTOMS, MY HEAD IS BUZZING AND MAKES ME FEEL SICK, LASTS ABOUT 24 HOURS, SYMPTOMS LIKE THOSE OF A MILD STROKE. CAN BE SCARY AS...

DOES ANY BODY SUFFER WITH SYMPTOMS, MY HEAD IS BUZZING AND MAKES ME FEEL SICK, ...

•11 years ago

Search posts

Latest poll

What are your main concerns as a carer?

Topics

All things PSP Association(134)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr

May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2023

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2013

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2012

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2011

Jan

Feb

Apr

May

Jun Jul Aug Sep Oct Nov Dec