Posts - PSP Association | HealthUnlocked

PSP Association

9,625 members•11,552 posts

All posts for November 2012

Support Group for the Leeds/Bradford area

My friend, Pamela and I would like to invite, patients and carers to a coffee morning to discuss the possibility of starting a support group in the area. We...

My friend, Pamela and I would like to invite, patients and carers to a coffee mo...

PAT0

•12 years ago

7 Replies

Pneumonia and Morphine

My Dad is now being kept comfortable. After 4 rounds of antibiotics and iV antibiotics the Drs. said his pneumonia was continuing to get worse and that...

My Dad is now being kept comfortable. After 4 rounds of antibiotics and iV anti...

ddspan

•12 years ago

4 Replies

PSP takes another victim

It is with great sadness that I have to report the death of my beloved mother Sheila Baker from PSP. Her condition followed the usual cycle of late diagnosis...

It is with great sadness that I have to report the death of my beloved mother Sh...

Richteab

•12 years ago

17 Replies

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Charity Bike Ride

My sister, my oldest friend and I want to do a moonlit charity bike ride to raise money for the PSP association but, at present, the PSPA isn't one of their...

My sister, my oldest friend and I want to do a moonlit charity bike ride to rais...

Kathy

•12 years ago

5 Replies

Sanomit

Hello to everyone.My father takes Q10 in liquid form for about 2 and a half months.It's called Sanomit and i was able to find it in some german websites...

Hello to everyone.My father takes Q10 in liquid form for about 2 and a half mont...

john_z

•12 years ago

13 Replies

Leaving PSP sufferers on their own

This is a strange question but we have now got continuting care for my Mum who is being cared for at home by my Dad who has 1 hr assistance 5 days a week to...

This is a strange question but we have now got continuting care for my Mum who i...

saz16

•12 years ago

16 Replies

dauventide update

the following link : http://biotuesdays.com/2012/10/23/allon-on-target-for-pivotal-psp-data-by-year-end/comment-page-1/#comment-28014 link has had a...

the following link : http://biotuesdays.com/2012/10/23/allon-on-target-for-...

kades

•12 years ago

9 Replies

Help in understanding PSP

Hi Gail, One thing my journey in looking after someone with PSP has taught me is that you have to educate people on the nature of PSP because it is so rare....

Hi Gail, One thing my journey in looking after someone with PSP has taught me i...

maeve

•12 years ago

1 Reply

My Mum has just been diagnosed with PSP

Hi everyone, I've just been reading your answers and questions on this shocking disease. It is rather heart renching to read and to see your loved ones...

Hi everyone, I've just been reading your answers and questions on this shocki...

gazza63

•12 years ago

21 Replies

Something amazing-could this help our loved ones?

Hi everyone, just found this breaking news item; I am thinking it might be a godsend to PwPSP!...

Hi everyone, just found this breaking news item; I am thinking it might be a god...

Hidden

•12 years ago

7 Replies

A Big Thank you.

Dear PSPA staff and volunteers, Thank you for organizing and making the family symposium day at Sandbach so informative and friendly. Both my husband and I...

Dear PSPA staff and volunteers, Thank you for organizing and making the family ...

Peter3

•12 years ago

1 Reply

mouthy and loud

has anyone with psp gotten mouthing very loud and rude even out in public, We are not sure if this is part of the psp or if this is normal for him because...

has anyone with psp gotten mouthing very loud and rude even out in public, We ar...

rochestermn

•12 years ago

13 Replies

THE PHASE 2/3 TRIALS OF DAVUNETIDE FOR PSP ARE INDICATING WORTHWHILE IMPROVEMENT. IS THE DRUG LIKELY TO BE OF VALUE FOR CBD SUFFERERS?

dezzie

•12 years ago

13 Replies

Side effects of drugs

Has anyone experienced the compulsive behaviour side effects of taking Mirapexin? My husband has been taking it together with co-beneldopa for over a year but...

Has anyone experienced the compulsive behaviour side effects of taking Mirapexin...

gp1943

•12 years ago

3 Replies

Nursing Home Tears.. :-(

Hi All, well my father in law finally got a weeks respite sorted for my mother in law, you'd think he would be relieved. Far from it, he has been trying to...

Hi All, well my father in law finally got a weeks respite sorted for my mother i...

Bubbles1

•12 years ago

3 Replies

Standards of Care

Hi all I have just read the sad blog from Cate about the poor care her Mum recieved and thought I'd let you know that I have found a Care Pathway Guide for...

Hi all I have just read the sad blog from Cate about the poor care her Mum reci...

Lorri-2

•12 years ago

3 Replies

Davunetide update

Allon Therapeutics announced today that the Company is on track to release top-line data from the clinical trial in the second half of December.Let's wish...

Allon Therapeutics announced today that the Company is on track to release top-l...

john_z

•12 years ago

3 Replies

does psp make your eye sight blurrry one day and better the next , could someone tell me how psp does effect the eyes.

rochestermn

•12 years ago

7 Replies

Nil per mouth

My mum has been in and out of hospital quite a bit recently. On Friday she was admitted with a chesty cough but she had had a cold and so far (today is Monday)...

My mum has been in and out of hospital quite a bit recently. On Friday she was a...

CateT

•12 years ago

16 Replies

Does anyone have any suggestions to cope with oral thrush?

It is very difficult to clean my husband's teeth because either as a reflex action he bites down on the brush and/or cannot follow instructions or suggestions...

It is very difficult to clean my husband's teeth because either as a reflex acti...

SheilaN

•12 years ago

12 Replies

Another stage

Palliative care consultant has been to see mum today and thinks that we have just weeks left. In my heart I knew it really but the wind has been knocked out of...

Palliative care consultant has been to see mum today and thinks that we have jus...

jac001

•12 years ago

19 Replies

How do you know what stage you are in ?

Mum has PSP and is really awful at the moment. Hospice consultant has put up a morphine driver and last week they done bowel preps to try and ease the chronic...

Mum has PSP and is really awful at the moment. Hospice consultant has put up a ...

jac001

•12 years ago

11 Replies

No rinse shampoo cap

Thought I'd let you know that I have been able to shampoo Tony's hair this morning using one of the no rinse shampoo and conditioner caps that a Community...

Thought I'd let you know that I have been able to shampoo Tony's hair this morni...

Lorri-2

•12 years ago

8 Replies

Swallowing Progression

My name is Len and I am new to this so please bear with me. My wife is 86 and was PSP diagnosed approximately 8 years ago. She is now wheelchair bound, has a...

My name is Len and I am new to this so please bear with me. My wife is 86 and wa...

Len23

•12 years ago

16 Replies

Where is the old Psp forum?

Seem to have lost the old forum, anyone know where it now is? There is a lot of very helpful information on there, surely it hasn't just dissapeared?

Seem to have lost the old forum, anyone know where it now is? There is a lot of ...

daughter_Julie

•12 years ago

6 Replies

Just need to share

I really don't know who else to turn to, but my Dad has had 3 rounds of antibiotics and is now getting them through an IV for pneumonia that won't go away but...

I really don't know who else to turn to, but my Dad has had 3 rounds of antibiot...

ddspan

•12 years ago

5 Replies

Is there any actual medical test related information about PSP that explains the differences between "slow" and "fast" PSP symptoms?

Is there any actual medical test related information about PSP that explains the differences between "slow" and "fast" PSP symptoms? While I've seen these...

Is there any actual medical test related information about PSP that explains the...

Dennis-Wburg

•12 years ago

8 Replies

I am a contributor to this forum but I no longer get any copies of emails, does anyone know why? dorothy-thompson

dorothy-thompson

•12 years ago

1 Reply

Continuing Care

Hi Everyone, This is my story of the CC saga as you have been following my blogs. Had a phone call asking my if I would like to be present at a meeting when...

Hi Everyone, This is my story of the CC saga as you have been following my blog...

maeve

•12 years ago

9 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for November 2012

Support Group for the Leeds/Bradford area

Pneumonia and Morphine

PSP takes another victim

Charity Bike Ride

Sanomit

Leaving PSP sufferers on their own

dauventide update

Help in understanding PSP

My Mum has just been diagnosed with PSP

Something amazing-could this help our loved ones?

A Big Thank you.

mouthy and loud

THE PHASE 2/3 TRIALS OF DAVUNETIDE FOR PSP ARE INDICATING WORTHWHILE IMPROVEMENT. IS THE DRUG LIKELY TO BE OF VALUE FOR CBD SUFFERERS?

Side effects of drugs

Nursing Home Tears.. :-(

Standards of Care

Davunetide update

does psp make your eye sight blurrry one day and better the next , could someone tell me how psp does effect the eyes.

Nil per mouth

Does anyone have any suggestions to cope with oral thrush?

Another stage

How do you know what stage you are in ?

No rinse shampoo cap

Swallowing Progression

Where is the old Psp forum?

Just need to share

Is there any actual medical test related information about PSP that explains the differences between "slow" and "fast" PSP symptoms?

I am a contributor to this forum but I no longer get any copies of emails, does anyone know why? dorothy-thompson

Continuing Care

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive