Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for December 2016

Wishing you all the best that 2017 can be.

I'm unable to wish everybody a happy new year as I have a feeling it won't be easy for most of us. I wish you all the best for 2017 and would also like to send...

I'm unable to wish everybody a happy new year as I have a feeling it won't be ea...

•8 years ago

Some thing good will come.

Hope springs eternal. I hope each of will have something happen to us in 2017. Be a breakthrough in Therapy , Funding, Medicine, personal relationships etc....

Hope springs eternal. I hope each of will have something happen to us in 2017. B...

•8 years ago

2017

To all you good people on this site, I wish you a peaceful 2017, which brings happy times and makes lovely memories. May you have strength and resilience when...

To all you good people on this site, I wish you a peaceful 2017, which brings ha...

•8 years ago

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US carers: apply for $2500 from this fund

http://www.psp.org/i-need-support/support-networks_2/curepsp-respite-fund/ I posted this last month - reposting because you may have missed this (did not get...

http://www.psp.org/i-need-support/support-networks_2/curepsp-respite-fund/ I po...

•8 years ago

Grand thought

I have been cleaning out my desk in preparation for 2017 when I found this powerful poem a friend gave me. It brings tears to my eyes each time I read it....

I have been cleaning out my desk in preparation for 2017 when I found this power...

•8 years ago

Untrue and helpful accusations

Hello, Just wanted to thank all of you who replied to my post. It really helps to put these thing into perspective when you hear that you are not alone and...

Hello, Just wanted to thank all of you who replied to my post. It really helps t...

•8 years ago

Happy New Year!

Wishing all my lovely friends on here as happy a new year as possible, I love you all to bits! xx

Wishing all my lovely friends on here as happy a new year as possible, I love yo...

•8 years ago

Happy new year !

Rog says happy new year ! Wishing everyone calm and peace. Julie and Rog xxxx

Rog says happy new year ! Wishing everyone calm and peace. Julie and Rog xxxx

•8 years ago

Question about urination

My first post here. I have been reading many of your posts during the past weeks and am impressed with the care you all are giving your loved ones. It's also...

My first post here. I have been reading many of your posts during the past weeks...

•8 years ago

I'm new here

My husband was diagnosed with PSP in August of 2015. As with so many others on this sight, I came looking for information that Doctors would not tell me. I...

My husband was diagnosed with PSP in August of 2015. As with so many others on ...

•8 years ago

Dec 31, are you here again???

Well here we are the end of yet another year. Another year older, another year wiser (or at least you would think) and another year of CBD/PSP. There isn't...

Well here we are the end of yet another year. Another year older, another year ...

•8 years ago

Next 48 hours

Fred not good. I've just had one of those conversations that I have got a bit familiar with the last 18 months, the 'the next 48 hours are crucial' one, the...

Fred not good. I've just had one of those conversations that I have got a bit fa...

•8 years ago

CONSIDERING LONG TERM CARE HEART BREAKING

My love has been falling more and more and I am petrified that he will break something again. I still can't get more than 2 hours a day of help at home. The...

My love has been falling more and more and I am petrified that he will break som...

•8 years ago

Shuddering and Vivid dreams

Charles is having a very difficult time sleeping. He does this "shuddering" through the night and is so restless. Then the vivid dreams. Can anyone weigh in...

Charles is having a very difficult time sleeping. He does this "shuddering" thr...

•8 years ago

Severe rigidity of neck

Hello, does anyone have severe rigidity of the neck where the neck is stuck at a 30 deg angle with the head tilted up. My mom is not able to move her neck...

Hello, does anyone have severe rigidity of the neck where the neck is stuck at a...

•8 years ago

Upside!

Upside to my last post, well 2 upsides: 1, F has aspiration pneumonia but seemed a touch better today so hopefully responding to treatment 2, of all the nurses...

Upside to my last post, well 2 upsides: 1, F has aspiration pneumonia but seemed...

•8 years ago

Steve.

5.40am Steve finally lost his battle with PSP. He passed very peacefully in his own bed, with me cuddling him, his daughter by his side and my daughter and...

5.40am Steve finally lost his battle with PSP. He passed very peacefully in his ...

•8 years ago

Christmas Story

Leading up to Christmas I wrapped F in cotton wool, so paranoid he'd have a fall prior to Christmas, which I was looking on as probably our last 'normal'...

Leading up to Christmas I wrapped F in cotton wool, so paranoid he'd have a fall...

•8 years ago

Rapid mental decline

Over the course of a week my husband seems to have progressed quite rapidly. He has psp and frontal tempural dementia, the dementia part has suddenly...

Over the course of a week my husband seems to have progressed quite rapidly. He...

•8 years ago

Mom has CBD

Hi everyone, I am new to this group and to learning about this awful disease. My 74 year old mom in Naples, Florida was just diagnosed with CBD the week...

Hi everyone, I am new to this group and to learning about this awful disease. ...

•8 years ago

Home for christmas

Hello all fellow carers/sufferers and families of PSP. Sorry i havent participated much lately but i have read all your posts, be they tearful sad, heady, or...

Hello all fellow carers/sufferers and families of PSP. Sorry i havent participat...

•8 years ago

New to online support group

I am new to this on-line support community. My Sister has CBD with strong PSP traits. I am caring for her in my home along with my 28 year old son who has...

I am new to this on-line support community. My Sister has CBD with strong PSP tr...

•8 years ago

This stage.

Hi, thank you all so much for your kind words. They have meant so much to me. I can't sleep, so I thought I would tell you how I am feeling, if you don't......

Hi, thank you all so much for your kind words. They have meant so much to me. I ...

•8 years ago

Christmas Day chores

Hi all, taking time out to catch up with you all. My son has told me he wants a proper Christmas lunch/supper (35 going on 10) so I am preparing veggies,...

Hi all, taking time out to catch up with you all. My son has told me he wants a...

•8 years ago

Merry Christmas

I want to wish everyone a Merry Christmas. My family always gets together on Christmas Eve for lunch/dinner and just spending time together. Today we took...

I want to wish everyone a Merry Christmas. My family always gets together on Ch...

•8 years ago

Tis Christmas eve

Hard day today just cannot stop the tears, not like me. Wise daughter tells me it's ok mum to cry! Tomorrow will be better, spending the day with lots of...

Hard day today just cannot stop the tears, not like me. Wise daughter tells me i...

•8 years ago

Prayers needed please

Steve is on the final part of his journey. We need all the stength you can spare, to get us through this heartbreaking moment in our lives. Lots of love...

Steve is on the final part of his journey. We need all the stength you can spare...

•8 years ago

A Christmas Prayer

Dear fellow 'Travellers', In this Wondrous Season, may Love, Joy, Hope and Peace fill your hearts, renewing your Strength and Purpose for the New Year!...

Dear fellow 'Travellers', In this Wondrous Season, may Love, Joy, Hope and Peac...

•8 years ago

Sending love this Christmas.

Well I seem to have spent the majority of this week bursting into tears randomly, waking in the middle of the night desperate to get to my Mum & wrap my arms...

Well I seem to have spent the majority of this week bursting into tears randomly...

•8 years ago

Lots of tears, frustration, grief--yet thanks

Just wanted to say how exhausted I feel from all the mental and emotional energy I've had at times practically drained out of me the past four months since my...

Just wanted to say how exhausted I feel from all the mental and emotional energy...

•8 years ago

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