Posts - PSP Association | HealthUnlocked

PSP Association

9,625 members•11,552 posts

All posts for August 2012

Behaviour changes

I have noticed with my sister changes in her behaviour. This disease of PSP has so many facets to it - every sufferer is different but there is always a...

I have noticed with my sister changes in her behaviour. This disease of PSP has...

•12 years ago

My Dad has PSP which as you know effects the eye sight. He can now listen to his favourite books again.

My Dad has PSP and I’m always trying to find things that can make his life easier. He always loved to read books but now his eye sight is not very good due to...

My Dad has PSP and I’m always trying to find things that can make his life easie...

•12 years ago

Liskeard Support Group

The Liskeard Support Group meeting will take place on Monday 10th September 2012 from 11am to 1pm (please note new time) at Echo Centre, Barras Place,...

The Liskeard Support Group meeting will take place on Monday 10th September 2012...

Partner•12 years ago

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Pocklington Support Group

The Pocklington Support Group meeting will take place on Saturday 8th September 2012 between 10am and 2pm at Burnby Hall Room (next to Burnby Hall Gardens),...

The Pocklington Support Group meeting will take place on Saturday 8th September ...

Partner•12 years ago

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Exeter Support Group

The next Exeter Support Group meeting will take place on Wednesday 5th September 2012 from 11am to 1pm at Longdown Village Hall, Longdown, Exeter, EX6 7SN...

The next Exeter Support Group meeting will take place on Wednesday 5th September...

Partner•12 years ago

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How do you know when to call in Hospice?

•12 years ago

Does anyone else take Modafinil?

Mum has just been prescribed it to help reduce daytime sleepiness. Watch this space - will let you know if it helps! ;-)

Mum has just been prescribed it to help reduce daytime sleepiness. Watch this sp...

•12 years ago

Northamptonshire Support Group

The next Northamptonshire Support Group Meeting social is being hosted by Lynne & Bob Richards at Le Peloton, 4 Meadow Farm Close, Flore, Northants, NN7 4NT...

The next Northamptonshire Support Group Meeting social is being hosted by Lynne ...

Partner•12 years ago

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My husband has PSP and his mobility is very limited. Can I expect him to be confined to a wheelchair eventually?

The reason I am asking is we would need to move to a more suitable house.

The reason I am asking is we would need to move to a more suitable house.

•12 years ago

Brentwood Support Group

I am pleased to tell you that the next Brentwood meeting will be at 2.30pm at The Marillac, Eagle Way, Warley, Brentwood, Essex, CM13 3BL....

I am pleased to tell you that the next Brentwood meeting will be at 2.30pm at Th...

Partner•12 years ago

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I have been dreading the day that I would post this message.

Jeff, passed way on Aug. 16. He had been declining at an accelerated rate over the last couple of weeks but did have days of awareness. His daughter made it...

Jeff, passed way on Aug. 16. He had been declining at an accelerated rate over ...

•12 years ago

Does anyone with PSP also have Essential thrombocytosis?

We have just been told that my mum has this and requires a chemotherapy drug. Essentially she has too many platelets in her blood and is at increased risk for...

We have just been told that my mum has this and requires a chemotherapy drug. Es...

•12 years ago

Judy, David's death

Judy,I am truly sorry for you loss but happy that Dave is no longer suffering. I will pray for you for strength to get through this. KJW-MN

Judy,I am truly sorry for you loss but happy that Dave is no longer suffering. ...

•12 years ago

My sweet David passed on to be with our Lord Jesus Christ Aug 14 at 8:08 pm. I was with him at the timeand it was peaceful.

Dave no longer suffers nor is he a captive in his body. Love to all the families who continue to battle this illness.

Dave no longer suffers nor is he a captive in his body. Love to all the familie...

•12 years ago

Has anyone seen their loved one in a coma?

Dave has been in a coma for 5 days. He has not eaten or drinking anything during this time. It is heartbreaking to see him this way. I am so sad and I miss...

Dave has been in a coma for 5 days. He has not eaten or drinking anything durin...

•12 years ago

Tideglusib '

HAS ANYONE USED THIS DRUG/

HAS ANYONE USED THIS DRUG/

•12 years ago

DOES ANYONE WITH PSP HAVE HAD DRUGS THAT HELP

HI I`VE BEEN DIAGNOSED WITH PSP FOR ABOUT A YEAR BUT 5 YEARS AGO IT WAS PARKINSONS IVE HAD NUMEROUS AMOUNTS OF DRUGS BUT NOTHING HAS IMPROVED MY BALANCE OR...

HI I`VE BEEN DIAGNOSED WITH PSP FOR ABOUT A YEAR BUT 5 YEARS AGO IT WAS PARKINSO...

•12 years ago

Seizures

My mum has just started going rigid whilst her arms stick out in front of her and shake. She actually slid off her armchair almost like in a cartoon. She was...

My mum has just started going rigid whilst her arms stick out in front of her an...

•12 years ago

Praise where praise is due.

I know how difficult it can be in accessing services etc but I just wanted to highlight that there IS good practice "out there" as it seems that it seldom gets...

I know how difficult it can be in accessing services etc but I just wanted to hi...

•12 years ago

Pocklington Support Group

The Pocklington Support Group meeting will take place at Burnby Hall Room (next to Burnby Hall Gardens), The Balk, Pocklington, Yorkshire, YO42 2QF...

The Pocklington Support Group meeting will take place at Burnby Hall Room (next ...

Partner•12 years ago

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Brentwood Support Group

The Brentwood meeting will be at 2.30pm at The Marillac, Eagle Way, Warley, Brentwood, Essex, CM13 3BL (http://goo.gl/maps/P3Eu) on Saturday 25th August 2012....

The Brentwood meeting will be at 2.30pm at The Marillac, Eagle Way, Warley, Bren...

Partner•12 years ago

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Norwich Support Group

The next Norwich PSPA Support Group meeting will take place from 11.00 to 13.00 at Stoke Mill Restaurant, Mill Road, Stoke Holy Cross, Norwich, Norfolk, NR14...

The next Norwich PSPA Support Group meeting will take place from 11.00 to 13.00 ...

Partner•12 years ago

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Warrington Support Group

The next Warrington Support Group meeting will be Thursday 9th August 2012 from 2pm until 4pm at Fairfield and Howley Neighbourhood Project, Fairfield Street,...

The next Warrington Support Group meeting will be Thursday 9th August 2012 from ...

Partner•12 years ago

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Liverpool Support Group

The Liverpool Support Group meeting will take place on Wednesday 8th August 2012 from 11.00 to 13.00 at The Neurosupport Centre, Norton Street, Liverpool, L3...

The Liverpool Support Group meeting will take place on Wednesday 8th August 2012...

Partner•12 years ago

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Cranage Support Group

The Cranage Support Group meeting will take place on Tuesday 7th August 2012 from 13.30 to 15.30 at Cranage Village Hall, Knutsford Road, Cranage, Nr Holmes...

The Cranage Support Group meeting will take place on Tuesday 7th August 2012 fro...

Partner•12 years ago

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How long can he keep using the portable urinal? Hubby can't get to toilet alone and uses a urinal at night but now splashes and spills a lot

•12 years ago

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