Posts - PSP Association | HealthUnlocked

PSP Association

9,625 members•11,552 posts

All posts for March 2019

Tattoo as a memory ?

I’m considering a small tattoo in memory of David. Not a big one, just a little one on the upper arm so it can be covered easily when I want it to be. I’m...

I’m considering a small tattoo in memory of David. Not a big one, just a littl...

Ratcliffe

•6 years ago

24 Replies

Commander and Chief - PSP Warrior

Raising PSP awareness. Meet Keith Swankie who recently managed to pry 25,000 pounds away from the Scottish Parliament for the PSPA to help raise support for...

Raising PSP awareness. Meet Keith Swankie who recently managed to pry 25,000 pou...

daddyt

•6 years ago

2 Replies

Grief

I found this to be very helpful today. I didn’t know that “anticipatory grief” is actually a thing. Until now......

I found this to be very helpful today. I didn’t know that “anticipatory grief” ...

SewBears

•6 years ago

26 Replies

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Bucket list ✅

Spent the evening with Tyler Perry’s Madea’s Farewell Tour! My Momma loves Madea ... 4 rows from the stages ... perfect!!! Priceless moments tonight!

Spent the evening with Tyler Perry’s Madea’s Farewell Tour! My Momma loves Madea...

bazooka111

•6 years ago

9 Replies

Freezing

My patient often "freezes" during the toileting process. She will be standing and I will have the chair behind her and ask her to "sit" and she will freeze...

My patient often "freezes" during the toileting process. She will be standing a...

792Kumulani

•6 years ago

16 Replies

co-careldopa

My wife is taking co-careldopa for her PSP but I am not sure she is getting any positive results.Is anyone else using this drug and finding it helps?

My wife is taking co-careldopa for her PSP but I am not sure she is getting any ...

acorneater

•6 years ago

12 Replies

Negative attitude

Hi anyone had to deal with their LO having a very negative attitude towards everything and anything, constantly moaning about carers, the news on tv, noise,...

Hi anyone had to deal with their LO having a very negative attitude towards ever...

Helen119

•6 years ago

27 Replies

Sadness

Has anyone had any experience with antidepressants to help with the challenges of sadness and loss of abilities associated with PSP. Thank you.

Has anyone had any experience with antidepressants to help with the challenges ...

ncgardener799

•6 years ago

12 Replies

Full on Spring

Today ,in glorious sunshine , I drove past fields once rich Devon red after ploughing but now baked terracotta . Already the hint of yellow appearing as the...

Today ,in glorious sunshine , I drove past fields once rich Devon red after plo...

Georgepa

•6 years ago

30 Replies

U.K. hotels with in house carers

Whilst having her latest assessment my wife's consultant mentioned that he knew of two highly rated hotels with in house carers.One near Sandringham Norfolk...

Whilst having her latest assessment my wife's consultant mentioned that he knew ...

acorneater

•6 years ago

7 Replies

Good bye for now.

I have health issues from grieving. I have not taking care of myself since my hubby passed away in December. I only eat when I feel very hungry and not much....

I have health issues from grieving. I have not taking care of myself since my hu...

stephanotis

•6 years ago

51 Replies

This is a final update of my Mother in-law has PSP

Early 3 am of March 25, 2019, after 8 days of being confined in the hospital, Mom, finally put an end to all her sufferings and pain.. We stood by her and...

Early 3 am of March 25, 2019, after 8 days of being confined in the hospital, Mo...

ErzaTitania

•6 years ago

38 Replies

Grinding teeth at night

Husband has just started grinding his teeth at night in his sleep. I am able to wake him and he'll stop but doesn't remember . Has anyone else had this problem...

Husband has just started grinding his teeth at night in his sleep. I am able to ...

Khartt

•6 years ago

8 Replies

UTI and suspected chest infections again two plus months

Just wondering if anyone else has gone through this. My guy is now had a uti and chest infection since January 15 and is now on his 4th different...

Just wondering if anyone else has gone through this. My guy is now had a uti an...

Hidden

•6 years ago

9 Replies

Advice/Experience

I have posted a few times with my woes and appreciate the support. I think I have almost made the decision to have Mum home with me. Almost 1 year in nursing...

I have posted a few times with my woes and appreciate the support. I think I hav...

eurolynch

•6 years ago

14 Replies

Rest or RESPITE

I am currently in Shropshire having a respite break. Today has been a fine day though there has been a cold wind. So I went out on my bike up and down the...

I am currently in Shropshire having a respite break. Today has been a fine day t...

kenh1

•6 years ago

22 Replies

Anyone in Bedfordshire and has family with cbd

Hi I'm in Bedfordshire. My dad doesn't live with me and has cbd. My sister doesn't contact me much. Mum has mixed dementia. They both have live in carers so...

Hi I'm in Bedfordshire. My dad doesn't live with me and has cbd. My sister doesn...

144jim

•6 years ago

17 Replies

Food for the Brain

Sometimes I keep wondering whether most of our brain disorders are of our own making or not? Considering that over 65% of our brain is cholesterol, should not...

Sometimes I keep wondering whether most of our brain disorders are of our own ma...

Bhakthan

•6 years ago

3 Replies

Mum can still make me giggle

The Physio came this week and gave us some more exercises to do including one where I sit in front of Mum and she has to reach forward & across to touch my...

The Physio came this week and gave us some more exercises to do including one wh...

AJK2001

•6 years ago

21 Replies

Happy Hols!!!

Two of our members are off on holiday to Morocco in the next few days. Have a fabulous time girls. I know you will, having already been on holiday with one of...

Two of our members are off on holiday to Morocco in the next few days. Have a fa...

Heady

•6 years ago

13 Replies

Winner winner!

Tonight was the best by far in this trip!! Smmonna absolutely LOVED sitting and playing the slots tonight ...she won $300 🙌🏻🙌🏻🙌🏻

Tonight was the best by far in this trip!! Smmonna absolutely LOVED sitting and ...

bazooka111

•6 years ago

13 Replies

Suggestion please

Mums chin is now permanently on her chest and her eating is so difficult because of the position of her head and the fact she can barely open her mouth. She...

Mums chin is now permanently on her chest and her eating is so difficult because...

Sarah1972

•6 years ago

11 Replies

Light headed

Sorry, Auto correct changed spelling on title of my previous post- Looking for information or anyone having any experience with feeling lightheaded with PSP...

Sorry, Auto correct changed spelling on title of my previous post- Looking for i...

ncgardener799

•6 years ago

8 Replies

light headless

It has been over 3 years and we are still searching for a conclusive diagnosis for my husband. So far PSP has been mentioned, but not confirmed ,as it is not...

It has been over 3 years and we are still searching for a conclusive diagnosis f...

ncgardener799

•6 years ago

8 Replies

Let’s Dance like no one is watching!

When in doubt ...dance it out! We managed to get back down to the beach yesterday ... before we return to chilly Ohio weather. She’s holding on for dear...

When in doubt ...dance it out! We managed to get back down to the beach yester...

bazooka111

•6 years ago

14 Replies

Blood shot eye

A week or so I had asked if anyone had their loved one have burst blood vessels in their eyes as my husband use to get them off and on. He hasn't had any in a...

A week or so I had asked if anyone had their loved one have burst blood vessels ...

Michigan341

•6 years ago

8 Replies

Praise & Thanksgiving

I took Mom to the beach this morning in Hilton Head Island ... what a great morning to offer our gratefulness .. appreciating what we do have. So many lives...

I took Mom to the beach this morning in Hilton Head Island ... what a great morn...

bazooka111

•6 years ago

4 Replies

PSP double vision - eyes problems

Dear all, I am trying to figure out what my mother needs eyes wise. As she is not in the Uk we have a different system in Italy, so I will be needing to...

Dear all, I am trying to figure out what my mother needs eyes wise. As she is no...

Zibo

•6 years ago

14 Replies

Theatre Tickets

My wife Anne who has CBD loves the theatre. The west end shows are so expensive. I heard that theatre offer discounted prices for suffers & carers. Has any...

My wife Anne who has CBD loves the theatre. The west end shows are so expensive....

Amth_1948

•6 years ago

8 Replies

Villa Night in Hilton Head Island, SC

So ... this is the picture before the highlight of our night. I searched for a Villa, so that we would have comfortable seating for the night, so Mom could be...

So ... this is the picture before the highlight of our night. I searched for a ...

bazooka111

•6 years ago

13 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for March 2019

Tattoo as a memory ?

Commander and Chief - PSP Warrior

Grief

Bucket list ✅

Freezing

co-careldopa

Negative attitude

Sadness

Full on Spring

U.K. hotels with in house carers

Good bye for now.

This is a final update of my Mother in-law has PSP

Grinding teeth at night

UTI and suspected chest infections again two plus months

Advice/Experience

Rest or RESPITE

Anyone in Bedfordshire and has family with cbd

Food for the Brain

Mum can still make me giggle

Happy Hols!!!

Winner winner!

Suggestion please

Light headed

light headless

Let’s Dance like no one is watching!

Blood shot eye

Praise & Thanksgiving

PSP double vision - eyes problems

Theatre Tickets

Villa Night in Hilton Head Island, SC

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive