Posts - PSP Association | HealthUnlocked

PSP Association

9,255 members • 11,351 posts

All posts for August 2023

Legs not working

Hi All Can immobility be sporadic? Mum said on Thursday night she couldn’t get her legs to work, but after help into bed and sleeping they were working...

Hi All Can immobility be sporadic? Mum said on Thursday night she couldn’t ge...

Kelmisty

•8 months ago

13 Replies

Has any one used Carbocisteine Capsules?

Hello, has anyone used Carbocisteine Capsules to help with coughing and mucus problems with PSP? I searched in Health Unlocked and could see it used with Lung...

Hello, has anyone used Carbocisteine Capsules to help with coughing and mucus pr...

Rose1sunflower

•8 months ago

6 Replies

PSPA Leicestershire Support Group

If anyone can make it we'll see you there.... We are pleased to invite you to our next face-to-face meeting on Saturday, 9 September 2023 at...

If anyone can make it we'll see you there.... We are pleased to invite you to ...

Zerachiel

•8 months ago

2 Replies

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Runny

My nose keeps running and I have to cough to clear throat what can it be?

amberrose2

•8 months ago

8 Replies

Inconsiderate/Personality Changes

My husband was diagnosed March 2023 but he has had symptoms for between two and three years. I have noticed very recently that he seems more inconsiderate of...

My husband was diagnosed March 2023 but he has had symptoms for between two and ...

Granny29335

•8 months ago

23 Replies

Lost in France

I'm new to this blog thing and am making my way around the site. Hopefully someone will get to see this.I'm Leosta and I'm caring for my husband aged 83 who...

I'm new to this blog thing and am making my way around the site. Hopefully someo...

Leosta

•8 months ago

20 Replies

Acupuncture

I am in the early stages of PSP. I have a question for you all- has anyone tried acupuncture? Was it any good?

I am in the early stages of PSP. I have a question for you all- has anyone tried...

Bristolgirl

•8 months ago

4 Replies

Laughing & CBD

Hi,My dad has CBD. He is in the final stages of this evil disease. He has episodes of laughing, where he can't stop himself. Sometimes it goes on for half...

Hi,My dad has CBD. He is in the final stages of this evil disease. He has episo...

RW22

•8 months ago

13 Replies

CHC assessment - UK feedback

Hi all, My dad had his assessment yesterday (via Teams) and I wanted to share my personal feedback of the experience in case helpful to anyone else. the...

Hi all, My dad had his assessment yesterday (via Teams) and I wanted to share ...

Khalissi

•8 months ago

21 Replies

Sleep Depravation

Our Dad was diagnosed with PSP last year but as a family we feel he has been living with this condition for 5 years. He no longer has any balance which he can...

Our Dad was diagnosed with PSP last year but as a family we feel he has been liv...

Northants1

•9 months ago

8 Replies

204010

Hi every one I am finding it so hard now caring for my husband who has PSP. He can not walk, talk & coughs all the time after eating & in bed at night....

Hi every one I am finding it so hard now caring for my husband who has PSP. H...

204010

•9 months ago

16 Replies

Blinking

My husband has very dry eyes. I thought PSP caused people to not blink as often as usual, but my husband often has rapid eye blinking to the point, it...

My husband has very dry eyes. I thought PSP caused people to not blink as often ...

Granny29335

•9 months ago

7 Replies

Cortico Basal Degeneration

My husband has CBD Cortico Basal Degeneration. He has had it for 5 years. He can't walk, his speech is going, his swallowing is bad and his hands are...

My husband has CBD Cortico Basal Degeneration. He has had it for 5 years. He...

G0lfinggirl

•9 months ago

5 Replies

Vision problems with PSP?

Moms been complaining about not being able to focus her eyes lately is this related to PSP or old age?

Moms been complaining about not being able to focus her eyes lately is this rela...

harleybsa

•9 months ago

6 Replies

Query!

I wonder what the best food supplement is for PSP? At present I am having multivitamins, turmeric and black pepper and L-Theanine…

I wonder what the best food supplement is for PSP? At present I am having multiv...

Bristolgirl

•9 months ago

9 Replies

Travel insurance with PSP

Hi All I am the sole carer for my wife who has PSP , I am seeking a company in the UK which will provide travel insurance for to cover a weeks holiday in...

Hi All I am the sole carer for my wife who has PSP , I am seeking a company in ...

Skywalker72

•9 months ago

18 Replies

PSP Challenge

My husband was diagnosed in 2021 after a lengthy investigation with memory clinics and hints of dementia. Two years on he has deteriorated physically but I...

My husband was diagnosed in 2021 after a lengthy investigation with memory clin...

Claptonfan

•9 months ago

10 Replies

Here we are, then

28 months ago, I went to my GP with minor loss of dexterity in my right thumb & forefinger, which everyone assured me was carpal tunnel. 24 months ago, I saw...

28 months ago, I went to my GP with minor loss of dexterity in my right thumb & ...

Zumbruk

•9 months ago

6 Replies

Phlegm with blood

Adoey here, I haven't written in a while. I'm having a problem with Phlegm. Lately, I'm coughing phlegm with blood. Has anyone had this happen to them?...

Adoey here, I haven't written in a while. I'm having a problem with Phlegm. La...

Adoey

•9 months ago

8 Replies

Question and other experiences with PSP, CBD & Lewy Body Dementia.

Hello, I have not commented on here for quite some time, primarily for lack of time caregiving for my husband with the above diagnoses as well as my...

Hello, I have not commented on here for quite some time, primarily for lack of t...

TBoyles

•9 months ago

4 Replies

CHC Funding - Upcoming assessment hits and tips please

Hi all I have managed ti finally get an assessment booked for my dad for CHC funding. I know from reading your posts that this is going to be a super...

Hi all I have managed ti finally get an assessment booked for my dad for CHC f...

Khalissi

•9 months ago

25 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for August 2023

Legs not working

Has any one used Carbocisteine Capsules?

PSPA Leicestershire Support Group

Runny

Inconsiderate/Personality Changes

Lost in France

Acupuncture

Laughing & CBD

CHC assessment - UK feedback

Sleep Depravation

204010

Blinking

Cortico Basal Degeneration

Vision problems with PSP?

Query!

Travel insurance with PSP

PSP Challenge

Here we are, then

Phlegm with blood

Question and other experiences with PSP, CBD & Lewy Body Dementia.

CHC Funding - Upcoming assessment hits and tips please

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive