Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for May 2020

Brain Donations - in the U.S.

There were many responses to my post on brain donation. I tried to answer all of you but apologize if I missed you. The following information was sent to me...

There were many responses to my post on brain donation. I tried to answer all of...

journeyofjoy

•5 years ago

4 Replies

Jerks and Depression

Hi all my husband age 57 has CBD. He has jerks which can be quite severe, the Consultant has tried sodium valproate which made him ill, modopar which had no...

Hi all my husband age 57 has CBD. He has jerks which can be quite severe, the Co...

Northstar1

•5 years ago

16 Replies

Stay Strong

I hope everyone is staying strong out there! We are trying to maintain the power of positive thinking, but oh the challenges each day seems to bring .. can be...

I hope everyone is staying strong out there! We are trying to maintain the powe...

bazooka111

•5 years ago

29 Replies

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Brain studies

Hello Friends, I haven't been on the site much for a couple of months. Even with this Covid business, I've been busy taking care of things. There is a lot to...

Hello Friends, I haven't been on the site much for a couple of months. Even with...

journeyofjoy

•5 years ago

45 Replies

garden

wild flowers, happy bees planted for them

fishponds

•5 years ago

8 Replies

I feel heartbroken

I’m sorry to write this but I know this is the only place anyone will understand. My dad has suffered such a steep decline in his health in the last few weeks-...

I’m sorry to write this but I know this is the only place anyone will understand...

Kellsbelles

•5 years ago

30 Replies

My incredible grannie

So I haven’t posted anything on here for a few years so I just wanted to say hi, I used to help My auntie care for my grannie a few days a week but post...

So I haven’t posted anything on here for a few years so I just wanted to say hi,...

Ns1994

•5 years ago

6 Replies

PSPA benefit information sheet

If you're newly diagnosed with PSP & CBD, you might be wondering what financial support you could be eligible for. Our useful information sheet contains...

If you're newly diagnosed with PSP & CBD, you might be wondering what financial...

HelenPSPA

Administrator•5 years ago

2 Replies

He left us before we were ready

My darling husband, Ronnie, left to go to heaven a week ago today, May 18th. He had been in the hospital the week before with pneumonia and a UTI. Tested for...

My darling husband, Ronnie, left to go to heaven a week ago today, May 18th. He ...

Babowen898

•5 years ago

40 Replies

Strange times thoughts

We were just rambling on and the mind went off in an odd direction, other uses of psp and cbd....

We were just rambling on and the mind went off in an odd direction, other uses ...

Javan

•5 years ago

3 Replies

Thanks to everyone for your advice

It's so difficult to control what is going on when there is no admissions allowed in the nursing home.As I said in my last message I have not seen her since...

It's so difficult to control what is going on when there is no admissions allowe...

acorneater

•5 years ago

6 Replies

More UTIs/Urinary tract infections/bladder problems

Hello again, all, I have a question about antibiotics for UTIs. I haven't been posting much, as I'm been trying to squint my eyes at the realities of...

Hello again, all, I have a question about antibiotics for UTIs. I haven't been p...

LostinHeadSpace

•5 years ago

12 Replies

Rivastigmine question

Rivastigmine improves mental function (such as memory and thinking) by increasing the amount of a certain natural substance in the brain. My husband is using...

Rivastigmine improves mental function (such as memory and thinking) by increasin...

SewBears

•5 years ago

15 Replies

Suggestions please

Hi all, My wife is in nursing care with P.S.P and I have not been able to see her since the first week in March.She is now declining normal type food and will...

Hi all, My wife is in nursing care with P.S.P and I have not been able to see h...

acorneater

•5 years ago

16 Replies

Home hub testers needed

Kraydel have just started a trial of five Home Hubs to see how they could help people living with PSP & CBD. Three more testers are currently needed for the...

Kraydel have just started a trial of five Home Hubs to see how they could help p...

HelenPSPA

Administrator•5 years ago

1 Reply

Such a short space of time so many changes

My dad is 77 he was diagnosed in October 2018 with CBD at the time he could walk although with a stick, have a conversation, dress and feed himself now he can...

My dad is 77 he was diagnosed in October 2018 with CBD at the time he could walk...

Scoobydoo70

•5 years ago

2 Replies

The Journey of PSP

We all start out at the beginning of the same road but each of us will be facing a different journey with varying bumps, turns, hills and valleys. Our path...

We all start out at the beginning of the same road but each of us will be facing...

Jkhakh2

•5 years ago

14 Replies

The final days

It is a very long time since I have had the energy to talk with you all. I feel I must do so before Ch passes from this life. It is hard to find the words. I...

It is a very long time since I have had the energy to talk with you all. I feel ...

crab2093

•5 years ago

22 Replies

PSPA funded research update

Since the lockdown began, many medical researchers who also usually hold clinical posts such as neurologists have been redeployed to the NHS to help fight...

Since the lockdown began, many medical researchers who also usually hold clinica...

HelenPSPA

Administrator•5 years ago

Be the first to reply

Kathy soul is free

After a long 6 years battle with PSP brain disorder Kathy is now free,I looked after her all that time except the last 6 months. I was with her till the...

After a long 6 years battle with PSP brain disorder Kathy is now free,I looked a...

Birdman34265

•5 years ago

31 Replies

Memory Lane Jar

I just wanted to share this wonderful idea! My daughter presented a "Memory Jar" to my Mom yesterday; I have to say it was an absolute home run! All of the...

I just wanted to share this wonderful idea! My daughter presented a "Memory Jar...

bazooka111

•5 years ago

26 Replies

Sister in the UK with CBD

I live in Southern California and my sister lives in Manchester England. I just read Skye04's post and it could be talking about my sister. Identical...

I live in Southern California and my sister lives in Manchester England. I just...

Scionaw65

•5 years ago

18 Replies

Just need a chat

Your post moved me so much . . . my beloved brother is in a care home as it is impossible for either his daughter or I to have him at home. And this breaks...

Your post moved me so much . . . my beloved brother is in a care home as it is i...

redkilt

•5 years ago

2 Replies

I'm new here! Solutions to bed stripping and fidgeting?

Hi all, I've been trying to find a solution to an issue we've been having which only started a few nights ago - bed stripping. My mum (has PSP - aged 64)...

Hi all, I've been trying to find a solution to an issue we've been having which ...

artycarer

•5 years ago

18 Replies

Nominate PSPA for Movement for Good

This May PSPA could be in with a chance of receiving £1000 donation from Movement for Good. To give PSPA the best chance of being one of 500 charities to...

This May PSPA could be in with a chance of receiving £1000 donation from Movemen...

HelenPSPA

Administrator•5 years ago

4 Replies

Just need a chat

Hi guys, I just wanted to talk for a minute, I’m scared, I’m worried, I don’t know how to do this next bit. Colins is in the later stages, several times I have...

Hi guys, I just wanted to talk for a minute, I’m scared, I’m worried, I don’t kn...

Helen119

•5 years ago

37 Replies

Mental Health Awareness Week - Carers Stress

Today marks the beginning of #MentalHealthAwarenessWeek. During the week we will be sharing information and tips to help you look after your mental health....

Today marks the beginning of #MentalHealthAwarenessWeek. During the week we wil...

HelenPSPA

Administrator•5 years ago

Be the first to reply

Car problems!

Actually, the problem isn't so much the car, the problem is getting Ian into it from the wheelchair. In the last several months his legs have been getting even...

Actually, the problem isn't so much the car, the problem is getting Ian into it ...

JCRy

•5 years ago

12 Replies

Quarantine discoveries

I trust everyone is hanging in there. We have been taking things one day at a time, and have pulled out all the board games. Re-established game night with our...

I trust everyone is hanging in there. We have been taking things one day at a ti...

bazooka111

•5 years ago

17 Replies

Spectator faces

Two weeks old from the day that Wiggles and Squiggles hatched. They are beginning to lift their heads up. Giggles’ head cannot be seen in the picture. She’s...

Two weeks old from the day that Wiggles and Squiggles hatched. They are beginnin...

SewBears

•5 years ago

4 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for May 2020

Brain Donations - in the U.S.

Jerks and Depression

Stay Strong

Brain studies

garden

I feel heartbroken

My incredible grannie

PSPA benefit information sheet

He left us before we were ready

Strange times thoughts

Thanks to everyone for your advice

More UTIs/Urinary tract infections/bladder problems

Rivastigmine question

Suggestions please

Home hub testers needed

Such a short space of time so many changes

The Journey of PSP

The final days

PSPA funded research update

Kathy soul is free

Memory Lane Jar

Sister in the UK with CBD

Just need a chat

I'm new here! Solutions to bed stripping and fidgeting?

Nominate PSPA for Movement for Good

Just need a chat

Mental Health Awareness Week - Carers Stress

Car problems!

Quarantine discoveries

Spectator faces

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive