Posts - PSP Association | HealthUnlocked

PSP Association

9,247 members • 11,346 posts

All posts for January 2015

Personal Health Budget

I am being assessed for the above on Monday 2nd feb so I will let you know how i get on.

I am being assessed for the above on Monday 2nd feb so I will let you know how i...

•9 years ago

Hearing Loss or Trouble with Language

I want to revisit the hearing loss problem. My husband has always had hearing loss but now he really has problems. However, I don't believe it is hearing loss....

I want to revisit the hearing loss problem. My husband has always had hearing lo...

•9 years ago

This horrible psp

I just wanted to ask you all about the feelings that I am feeling, I feel like part of me has died, we had gone to Cyprus on holiday and George was very...

I just wanted to ask you all about the feelings that I am feeling, I feel like p...

Yvonneandgeorge

•9 years ago

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Don't send me shopping

I popped into the post office today to get some money and buy the birthday cards for February. Grandaugter (1yr) Brian then comes son and grandson (4yrs old)...

I popped into the post office today to get some money and buy the birthday cards...

•9 years ago

Spring is Early

This year spring seems to be arriving early in Devon . I feel a particular affinity with this season as I was born in Springtime . Being a typical male , not...

This year spring seems to be arriving early in Devon . I feel a particular affin...

•9 years ago

Trying...

Today I am not trying. I realize that these days I am always trying. Trying to keep things together, trying to keep the house clean even though Bob is in...

Today I am not trying. I realize that these days I am always trying. Trying to k...

•9 years ago

Driving

This is what Brian did

This is what Brian did

•9 years ago

Feeling like a 'grass'

I am feeling very bad about reporting my own husband to the neurologist about the deterioration in his driving ability. I have felt quite unsafe in the...

I am feeling very bad about reporting my own husband to the neurologist about th...

•9 years ago

My father

My dear father passed away on Sunday 25 jan 2015 at 1:30 am after a long suffering from psp he was in the hospital the doctor call us and my dad wait till...

My dear father passed away on Sunday 25 jan 2015 at 1:30 am after a long sufferi...

•9 years ago

Hospice day

Brian had his first day at the hospice today and I am shattered. Got him ready and the taxi dropped us off for ten. As it was his first day I went in with him...

Brian had his first day at the hospice today and I am shattered. Got him ready a...

•9 years ago

I AM BACK

HI EVERYONE I MISSED YOU ALL BEEN SICK COMPUTER DOWN AND I AM UP AT THIS TIME BECAUSE IF I HAVE TO STAY IN BED ONE MORE DAY I AM GOING TO SNAPP, I SEE I HAVE...

HI EVERYONE I MISSED YOU ALL BEEN SICK COMPUTER DOWN AND I AM UP AT THIS TIME BE...

•9 years ago

Moments of joy

I've just got back from a weekend at Mum & Dads and I'm pleased to report we managed to have some really lovely times. I was a little apprehensive on my...

I've just got back from a weekend at Mum & Dads and I'm pleased to report we man...

•9 years ago

So fed up

Hi everyone, just a wee rant. My wonderful mum's been in local hospice for the last week. Home tomorrow thank goodness. Consultant met me today to inform me...

Hi everyone, just a wee rant. My wonderful mum's been in local hospice for the ...

•9 years ago

Anger issues

Hi everyone out there I wanted to ask if anyone else out there with PSP/CBD has a lot of angry spiteful times with name calling and hateful things said and...

Hi everyone out there I wanted to ask if anyone else out there with PSP/CBD has ...

•9 years ago

Remote control

Hi everyone hope you are all having a lovely Sunday I was wondering if any ones partner loves the remote control he loves playing with eg turning it over when...

Hi everyone hope you are all having a lovely Sunday I was wondering if any ones ...

Yvonneandgeorge

•9 years ago

Falls

Fifteenth fall of the month this morning - poor V black and blue- thank god for the arrival of the Elk and slide sheets. There's no pattern -place or time...

Fifteenth fall of the month this morning - poor V black and blue- thank god for...

•9 years ago

One of the saddest things

I wanted to talk about one of the saddest things ....and there are a few.........about my husband having CBD. We have only moved to where we live now for a...

I wanted to talk about one of the saddest things ....and there are a few...........

•9 years ago

Neurologist help

I have read so much on hear about neurologists visiting patients and I wondered how and if I could get this for my sister (81) fully dependant bed/chair bound...

I have read so much on hear about neurologists visiting patients and I wondered ...

•9 years ago

Tips... might be useful

We ( hats off to my sister for it) managed to make modifications for dad in the house to make sure the falls were avoided.. and many other things.. my dad...

We ( hats off to my sister for it) managed to make modifications for dad in the ...

•9 years ago

Sleep deprivation!

Morning everyone. Just wondering how other loved ones with PSP sleep during the night... I care for my mum and the sleep issue is the one I really struggle...

Morning everyone. Just wondering how other loved ones with PSP sleep during the ...

•9 years ago

Eyes are the window to the brain

The NeuroOpthomolgist said something interesting about the eyes being our window to the brain. After the examination he noted my husbands eyes do not move...

The NeuroOpthomolgist said something interesting about the eyes being our windo...

•9 years ago

Personal Health Budget

I read a post the other day about this and thought it might help those out there who don't know about it to look into it. In April 2014 the NHS rolled the...

I read a post the other day about this and thought it might help those out there...

•9 years ago

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Rollercoaster

I visited mum on Sunday and I've noticed that more and more often she is asleep or her eyelids just remain closed. On Sunday she just slept. I sat watching...

I visited mum on Sunday and I've noticed that more and more often she is asleep ...

•9 years ago

Driving Skills

Now I have always thought of myself to be a good driver, something of a cross between a formula one world champion racing driver and the Queens chauffeur...

Now I have always thought of myself to be a good driver, something of a cross ...

•9 years ago

Coming off Sinemet

Hi all and Heady in particular, I am new to posting here...I have been reading all your posts learning and waiting in the wings until I could find something...

Hi all and Heady in particular, I am new to posting here...I have been reading ...

•9 years ago

Stopping taking drugs?

Hi all. Advise please! S wants to cut down on his drugs! None of them do that much good and is taking a shed full a day. Causes so many rows, as he never...

Hi all. Advise please! S wants to cut down on his drugs! None of them do that...

•9 years ago

Feedback from email.....

Thank you to all those who gave me advice and support for the email I sent to friends regarding Mum. I've had very interesting responses, mainly positive...

Thank you to all those who gave me advice and support for the email I sent to fr...

•9 years ago

Hospice decision

Can anyone help me with decision about hospice care? My Sister age 81 has PSP for about 4/5 years in a nursing home which is o.k. she is fully dependant now...

Can anyone help me with decision about hospice care? My Sister age 81 has PSP fo...

•9 years ago

Videofluroscopy

A few weeks ago I posted my concern as my husband was booked to have a swallowing video. Several kind folk here encouraged me by recounting their experiences....

A few weeks ago I posted my concern as my husband was booked to have a swallowin...

•9 years ago

Hospital Assessment

Hi Everyone, Des has been in hospital for 10 days now. I am seeing a social worker this afternoon and hope to get carers coming in when they send him home.If...

Hi Everyone, Des has been in hospital for 10 days now. I am seeing a social work...

•9 years ago

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