Posts - PSP Association | HealthUnlocked

PSP Association

9,232 members • 11,334 posts

All posts for June 2020

Celebrating

Projects during lockdown. We may not be able to celebrate Independence Day but we can still dress up 😂

Projects during lockdown. We may not be able to celebrate Independence Day but w...

•4 years ago

South Wales Regional Meeting

Thanks to everyone who joined us during our first Regional Meeting for the South West Peninsula on Zoom last week. The next Regional Zoom Meeting is for South...

Thanks to everyone who joined us during our first Regional Meeting for the South...

Administrator•4 years ago

overwhelmed

Thanks guys for all the lovely messages of condolence you have sent me,I have cried my eyes out reading them.I have now started to sort things out but it's...

Thanks guys for all the lovely messages of condolence you have sent me,I have cr...

•4 years ago

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Many causes?

From the posts on here, I think it is safe to say that PSP and CBD and many related neurological conditions have a variety of ‘triggers.’ And, as such, are...

From the posts on here, I think it is safe to say that PSP and CBD and many rela...

•4 years ago

Today's special moments ...

Our days are changing, and can be quite overwhelming, yet I treasure the simple things that I once took for granted. I have decided that this horrific disease,...

Our days are changing, and can be quite overwhelming, yet I treasure the simple ...

•4 years ago

Always like receiving these emails from Amazon

These are the smile quarterly updates for the charity donations to the PSPA from peoples purchases. If you use Amazon for shopping, you can select a charity...

These are the smile quarterly updates for the charity donations to the PSPA fro...

•4 years ago

free at last from psp

My lovely wife Kathleen lost her battle with psp when she passed away in nursing care on Friday 26th June.I had not been allowed in to see her since the first...

My lovely wife Kathleen lost her battle with psp when she passed away in nursing...

•4 years ago

PSP- When to begin using a wheelchair?

My mum currently has a walker and is able to get herself up from sitting and can walk, although it’s worrying to watch as she is unsteady a lot of the time....

My mum currently has a walker and is able to get herself up from sitting and can...

•4 years ago

Mottie's Little Hummer Video

https://www.facebook.com/rebecca.helmkamp/videos/130931438634864/?t=13 Tim x

https://www.facebook.com/rebecca.helmkamp/videos/130931438634864/?t=13 Tim x

•4 years ago

Communication Aids

Hello Does anyone have any tips on non verbal communication, my dad was diagnosed just under 2 years ago and can no longer talk normally we play a guessing...

Hello Does anyone have any tips on non verbal communication, my dad was diagnose...

•4 years ago

Time to say goodbye and thankyou

My amazing husband David passed away on 28th April from CBD. Thankyou for all the support and advice you have given to me as we faced different challenges, I...

My amazing husband David passed away on 28th April from CBD. Thankyou for all th...

•4 years ago

Frog

Frog in the garden heading for the pond

Frog in the garden heading for the pond

•4 years ago

End of a Journey

I am happy and sad to report that my poor mother passed away on Saturday. She was officially diagnosed with PSP in 2016 after a fall which put her in hospital...

I am happy and sad to report that my poor mother passed away on Saturday. She wa...

•4 years ago

Rigid muscles

Hi I am just wondering if anybody else has problems with Skeletal muscle? I can’t seem to find much information on this aspect. Mum was diagnosed with PSP...

Hi I am just wondering if anybody else has problems with Skeletal muscle? I can...

•4 years ago

Granni B

White poppy in the garden

White poppy in the garden

•4 years ago

Down on the Farm ...

✅ Another accomplishment on her list of favorite things to do! Spent the afternoon (maybe 2 hours) at a friends farm, along with a beautiful picnic under the...

✅ Another accomplishment on her list of favorite things to do! Spent the aftern...

•4 years ago

Participants wanted for prism glasses study

Researchers at Durham University are looking for people living with PSP to help them with their study, looking into the use of prism glasses. The researchers...

Researchers at Durham University are looking for people living with PSP to help ...

Administrator•4 years ago

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Swallowing / Deglutition problems

Hello everyone Is there anything that helps with PSP swallowing/deglutition problems/Symptoms ? Mashed food , little portions, and slowly drinking are always...

Hello everyone Is there anything that helps with PSP swallowing/deglutition pro...

•4 years ago

PSPA Regional Meetings

To extend our support out in communities, we will be hosting a series of Regional Meetings on Zoom. The first Regional Meeting will be for the South West...

To extend our support out in communities, we will be hosting a series of Regiona...

Administrator•4 years ago

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Progress in PSP patient after 3 weeks of CBD oil

Hi All I reported my wife's case suffering from PSP for the last 6 years. She is almost immobile and cant walk even with help. Of late she is...

Hi All I reported my wife's case suffering from PSP for the last 6 years....

•4 years ago

Giggles, Wiggles and Squiggles!

Sit back, relax and enjoy this 13 minute video of Giggles, Wiggles, and Squiggles. If you’re tech savvy it’s best if you can play it on your TV. Happy Early...

Sit back, relax and enjoy this 13 minute video of Giggles, Wiggles, and Squiggle...

•4 years ago

Rose

A rose in the garden

A rose in the garden

•4 years ago

Music Therapy ...

So Momma and I have spent this past week at the lake house, enjoying summer-like weather. Beautiful blue skies, the sound of birds singing, along with porch...

So Momma and I have spent this past week at the lake house, enjoying summer-like...

•4 years ago

Looking for advice!

Happy Monday! I’m searching for a lift to help my husband in and out of bed as his condition worsens. I intend to keep him home with me throughout this journey...

Happy Monday! I’m searching for a lift to help my husband in and out of bed as h...

•4 years ago

Take part in our Ask the Helpline session

Get online support during a 'Ask the Helpline' Zoom session on Wednesday 10 June. Taking place at 2pm, two members of PSPA’s Helpline will be on hand during...

Get online support during a 'Ask the Helpline' Zoom session on Wednesday 10 June...

Administrator•4 years ago

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the time has come - 3 years from diagnosis

It has taken me 2 weeks to be able to tell the final chapter. On the Saturday it was stormy and the palliative care helps came to give Ch a shower. Then the...

It has taken me 2 weeks to be able to tell the final chapter. On the Saturday it...

•4 years ago

Spasms / mini seizures

Hi everyone, My mum is in the later stages of PSP, not able to walk, speech is minimal and her liquid intake is all by PEG and some solid food. A few weeks...

Hi everyone, My mum is in the later stages of PSP, not able to walk, speech is ...

•4 years ago

Thoughts please vomiting followed by spasms.

My FIL has recently started to have bouts of vomiting followed by episodes of spasams which last about 15-20 mins. He has been well for such a long time. So...

My FIL has recently started to have bouts of vomiting followed by episodes of sp...

•4 years ago

Baclofen ... Personal Experiences?

I hope all is well in your corner of the world. If you watch the news, you know what our part of the world is looking like -- sigh. Mom is dealing with...

I hope all is well in your corner of the world. If you watch the news, you know...

•4 years ago

Ask the Helpline - Live Q&A session

On Wednesday 10 June, to help mark Carers Week, PSPA is launching the first of regular PSP & CBD Q&A sessions using Zoom. The live Q&A session, titled ‘Ask...

On Wednesday 10 June, to help mark Carers Week, PSPA is launching the first of r...

Administrator•4 years ago

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