Posts - PSP Association | HealthUnlocked

PSP Association

9,625 members•11,552 posts

All posts for April 2021

OxQuip study recruiting for participants again

We are pleased to confirm the PSP phase of the Oxford Quantification in Parkinsonism study or OxQUIP study, led by Professor Chrystalina Antoniades at John...

We are pleased to confirm the PSP phase of the Oxford Quantification in Parkinso...

Administrator•4 years ago

Ice Cream Challenge 2021

Where is #4 you ask... Gone.

Where is #4 you ask... Gone.

•4 years ago

Ice Cream Challenge 2021

•4 years ago

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The Ice Cream Challenge

•4 years ago

Unexpected news

Hello everyone, My darling husband died on Monday, April 26. He had been admitted to hospital last Thursday because he had been having increasing swallowing...

Hello everyone, My darling husband died on Monday, April 26. He had been admitte...

•4 years ago

Talking out of character

My wife has had PSP for about 8 years, surprisingly other than falling once in awhile and having other related issues she is doing quite well. Lately she has...

My wife has had PSP for about 8 years, surprisingly other than falling once in a...

•4 years ago

The Ice Cream Challenge 5

The Ice Challenge for PSP-CBD awareness - coming to a cone near you. Tim

The Ice Challenge for PSP-CBD awareness - coming to a cone near you. Tim

•4 years ago

Loss of appetite suddenly with PSP

My mom was diagnosed with CBD (one of the PSP variants). Since then her health was deteriorated and now suddenly she is eating very slow and doesn't look like...

My mom was diagnosed with CBD (one of the PSP variants). Since then her health w...

•4 years ago

Watery Eyes

My wife has had PSP for about 3 years now. It was difficult to get the right diagnosis going from allergy issues to sleep apnea to possible heart attack to...

My wife has had PSP for about 3 years now. It was difficult to get the right di...

•4 years ago

The Ice Cream Challenge

6 days remaining. Tim x

6 days remaining. Tim x

•4 years ago

The Ice Cream Challenge

Good morning/day to my extended PSP-CBD family everywhere. 'Mottsie' has suggested I explain to our newest and established (sounds better than old) members...

Good morning/day to my extended PSP-CBD family everywhere. 'Mottsie' has suggest...

•4 years ago

Nursing home

Hi, my mum has PSP and has been in a nursing home since November 2020. Since she has been there her mobility has gone from walking short distances with a frame...

Hi, my mum has PSP and has been in a nursing home since November 2020. Since she...

•4 years ago

U-step 2 walker to new home in Alberta

I would like to start by thanking everyone here for sharing your stories and helping so many others understand this terribly confusing and scary diagnosis....

I would like to start by thanking everyone here for sharing your stories and hel...

•4 years ago

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The Ice Cream Challenge

7 Think ice cream... think PSP-CBD.

7 Think ice cream... think PSP-CBD.

•4 years ago

8 Days... and counting

The Ice Cream Challenge

The Ice Cream Challenge

•4 years ago

The Ice Cream Challenge

9 days... and counting. Tim x

9 days... and counting. Tim x

•4 years ago

The Ice Cream Challenge for PSP-CBD Awareness

10 days... and counting

10 days... and counting

•4 years ago

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The Ice Cream Challenge Countdown

Tee minus 12 days... yes, I know I'm running behind. Tim x

Tee minus 12 days... yes, I know I'm running behind. Tim x

•4 years ago

PSPA Newly Diagnosed Group

The next block of Newly Diagnosed Group meetings will begin in May. The first session will take place on Wednesday 26 May and Neurological Conditions Clinical...

The next block of Newly Diagnosed Group meetings will begin in May. The first se...

Administrator•4 years ago

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Fact

Having a braincation moment... bare with me.

Having a braincation moment... bare with me.

•4 years ago

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Fact

I'm lost among the facts... uhg.

I'm lost among the facts... uhg.

•4 years ago

Fact # 5

Ugh, Ugh, Ugh, Ugh, Ugh, Ugh!

Ugh, Ugh, Ugh, Ugh, Ugh, Ugh!

•4 years ago

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Fact # 4

Ugh, Ugh, Ugh, Ugh, Ugh!

Ugh, Ugh, Ugh, Ugh, Ugh!

•4 years ago

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Fact # 4

Ugh, Ugh, Ugh, Ugh!

Ugh, Ugh, Ugh, Ugh!

•4 years ago

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Fact # 3

•4 years ago

Fact # 2

•4 years ago

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Fact # 1

•4 years ago

5 Facts About PSP

5 facts about PSP. More like 5 separate facts... couldn't figure out a way to put them all together. Someone stole the Detour sign, and since I can only post...

5 facts about PSP. More like 5 separate facts... couldn't figure out a way to pu...

•4 years ago

Advice on making my mom happy inspite of her situation

Hello, first time i write here, my dear mom have psp, and now she can barly walk , she is very upset and sad that suddenly her situation got worse ( 2 weeks...

Hello, first time i write here, my dear mom have psp, and now she can barly walk...

•4 years ago

Excess saliva, swallowing issues, PEG

Hello everyone, My husband was just diagnosed with PSP a few weeks ago, mostly because he suddenly developed swallowing difficulties. This has progressed very...

Hello everyone, My husband was just diagnosed with PSP a few weeks ago, mostly b...

•4 years ago

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