Posts - PSP Association | HealthUnlocked

PSP Association

9,625 members•11,552 posts

All posts for November 2013

Sleeping position

One thing we have discovered, to help reduce the coughing and choking at night, is to sleep my brother-in-law Victor in the "recovery" position (I think...

One thing we have discovered, to help reduce the coughing and choking at night, ...

•11 years ago

CAN ANYONE ADVISE ME

I was diagnosed with PSP in March thi year, I have had bad fit like spasams and instabilety But although falling from chaires I have not fallen backward I have...

I was diagnosed with PSP in March thi year, I have had bad fit like spasams and ...

•11 years ago

My dad has psp for six years. He sleeps a lot , can barely walk., or talk. He takes mostly purée foods. I am wondering is the last stages.

•11 years ago

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My mum is 54 and has psp my dad is struggling to care and work at same time so I'm looking to try to pay for a carer part time

Would like some help on where to start please

Would like some help on where to start please

•11 years ago

Has anyone got experience or views on Ubiquinol please?

Hi I am about one year in to having PSP. I tried Co-enzyme 10 and it seems to help my speech and I think a little clearer too. There is a derivative called...

Hi I am about one year in to having PSP. I tried Co-enzyme 10 and it seems to he...

•11 years ago

LOCKING JAW

My husband who as PSP as suddenly started having his jaw locking and he cannot open his mouth at all, the panic in his eyes is awful and wonder if anyone else...

My husband who as PSP as suddenly started having his jaw locking and he cannot o...

•11 years ago

Is there any more information on coconut oil?

I was browsing through the forum and noticed an exchange about coconut oil 7 months ago. Peterjones recommended it. Did anyone else try it? Was there any...

I was browsing through the forum and noticed an exchange about coconut oil 7 mon...

•11 years ago

Has anyone experience of controlling far too frequent bladder emptying?

Margaret was diagnosed with PSP 3 years ago and has now limited mobility, unable to stand or walk unaided but our main difficulty is she has the urge to go up...

Margaret was diagnosed with PSP 3 years ago and has now limited mobility, unable...

•11 years ago

Hi kind folks.my wife is going through tests for cognitive problems..been told it may be PSP..what ARE early symptoms?

•11 years ago

I'm Back. With mileage.

I've been off-the-grid for some months now. Holy cow, I was sick. But I'm happy to report I'm doing MUCH better now. I actually feel stable. What is stable?...

I've been off-the-grid for some months now. Holy cow, I was sick. But I'm happy...

•11 years ago

Starting a support group in Lincoln, Nebraska USA

Starting a support group through CurePSP in January 2014. If you would like more info. please respond. My husband blux (on this sight) has PSP.

Starting a support group through CurePSP in January 2014. If you would like mor...

•11 years ago

Possible Useful Information on Supplements

There is often an interest in supplements on this forum. Unfortunately, some Internet sites may have a bias in their presentation, and it can be difficult to...

There is often an interest in supplements on this forum. Unfortunately, some Int...

•11 years ago

Medical Update on PSP.

The point he makes near the end of this video but does not enlighten us with is this: @ 37:02 'There is probably a Non-genetic component for most...

The point he makes near the end of this video but does not enlighten us with is ...

•11 years ago

Broken Hearted

My dear hubby Richard was hospitalised last Friday with aspiration pneumonia. He bravely has fought that off but it has left him so weak that the doctors have...

My dear hubby Richard was hospitalised last Friday with aspiration pneumonia. He...

•11 years ago

This Video is on Swallowing and Speech in Atypical Parkinsonism Disorders and was produced by curePSP on the 9th october 2013.

http://youtu.be/Se9Vdn9sLYE

http://youtu.be/Se9Vdn9sLYE

•11 years ago

Yet another urine infection

Just had the Dr out to hubby hes got another urine infection he's only been home from hospital for 3 weeks from a urine sepsis,more antibiotics again! My...

Just had the Dr out to hubby hes got another urine infection he's only been hom...

•11 years ago

Has anyone tried antidepressants for psp?

Our GP suggests trying something like Prozac, since, he says, sometimes that helps stroke victims regain motor function and we've tried everything else to no...

Our GP suggests trying something like Prozac, since, he says, sometimes that hel...

•11 years ago

Tough day and more to come

Yesterday was not a good day,Trying to get so many things done and I keep running in to road blocks. I have to be so blunt to get things done and you know the...

Yesterday was not a good day,Trying to get so many things done and I keep runnin...

•11 years ago

Reason for PSP Neck Survey

When investigating the symptoms of PSP on the internet, there seems to be little information about neck position/flexure. Many descriptions tend to borrow off...

When investigating the symptoms of PSP on the internet, there seems to be little...

•11 years ago

Moaning noises

Hi my hubby has frontal temporal dementia and psp he has recently started making loud moaning noices when he breathes out and some time he seems to hold his...

Hi my hubby has frontal temporal dementia and psp he has recently started makin...

•11 years ago

Query about symptom of neck position in PSP!

I would like to assess the symptom of neck flexure in PSP. The typical position repeated in most descriptions of PSP is "backwards" (called retrocollis)....

I would like to assess the symptom of neck flexure in PSP. The typical position ...

•11 years ago

JOHN HILL

Sadly yesterday my dad passed away so peacefully surrounded by all his loving family , it was a long hard fight for 4 long weeks but he give it all he had .May...

Sadly yesterday my dad passed away so peacefully surrounded by all his loving fa...

•11 years ago

Search Engine Use

Often when creating a post or asking a question, you may find this forum has made previous comments on that subject. The updated search engine can be very...

Often when creating a post or asking a question, you may find this forum has mad...

•11 years ago

Is it ok to ask how long?

I hate thinking this way - is it better to have an idea of timescales or not to think about it? Articles say 'within 10 years' or 6-8 years (re CBD) but is...

I hate thinking this way - is it better to have an idea of timescales or not to ...

•11 years ago

Can you use atropine sulfate for ear problems

•11 years ago

I would like to say a VERY BIG THANK YOU to everyone who uses this site. My Beautiful Mum Passed away yesterday from this terrible illness.

It is somewhere that I have been able to go for advise throughout Mums illness and felt that I wasn't alone in this long hard journey as her daughter and...

It is somewhere that I have been able to go for advise throughout Mums illness a...

•11 years ago

Taking pills issues

I had one heck of a time getting medications into my wife last night. She eats normal food with only a little coughing and drinks clear liquids well. Some...

I had one heck of a time getting medications into my wife last night. She eats n...

•11 years ago

Loosing weight/ putting on weight

Hubby has always been thin and would loose weight quickly ( wish I had that 'problem'), just by missing a meal. Now that mealtimes take a long time he tends...

Hubby has always been thin and would loose weight quickly ( wish I had that 'pro...

•11 years ago

Wish we can help

Hello to everyone in this supportive and kind community.It’s a very tough time for me and my family as we lost our father a month ago.My dad was very generous,...

Hello to everyone in this supportive and kind community.It’s a very tough time f...

•11 years ago

Cause of PSP....reflections:

Recently, there have been many posts relating to the cause of PSP, so I would like to give you some food for thought. I will have to leave out extensive...

Recently, there have been many posts relating to the cause of PSP, so I would li...

•11 years ago

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