Posts - PSP Association | HealthUnlocked

PSP Association

9,255 members • 11,351 posts

All posts for December 2023

Local Authority Funding

This has been mentioned recently in several posts. What seems often to be missed is that the cap on savings applies to individual finances, not to a couple....

This has been mentioned recently in several posts. What seems often to be misse...

Epsilon12

•4 months ago

1 Reply

Incontinence

My husband was diagnosed with PSP in June 2021 and we have seen a marked decline in his health over recent months. He has now almost entirely lost control of...

My husband was diagnosed with PSP in June 2021 and we have seen a marked decline...

JAK63

•4 months ago

18 Replies

PSPA Support Group Meet up January 2024 Leicester

It's nearly that time again, we'll be there, if anyone wants a lift from Nottingham area drop me a private message. We hope you can come along and join our...

It's nearly that time again, we'll be there, if anyone wants a lift from Notting...

Zerachiel

•4 months ago

1 Reply

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CHC funding uk based

My husband with advanced stage PSP had an assessment where the DST was completed just before Christmas and the assessor indicated she would recommend him for...

My husband with advanced stage PSP had an assessment where the DST was complete...

Sun-flowerwearer

•4 months ago

27 Replies

aperation

help with risk feeding aspiration pneumonia

spindle58

•4 months ago

2 Replies

Restless legs/PSP

My 85 year old mum was diagnosed 4 weeks ago with psp. She's in a nursing home now and seems more comfortable reclined although the staff have a lap belt on...

My 85 year old mum was diagnosed 4 weeks ago with psp. She's in a nursing home n...

MrClifton12

•4 months ago

12 Replies

galantamine

How effective for PSP? Available on NHS prescription? TimbowPSP

timbowPSP

•4 months ago

3 Replies

riser chair

We are considering getting a riser chair for my wife. Has anyone any tips please? I can see the advantage for two motors so the foot rest is independent of the...

We are considering getting a riser chair for my wife. Has anyone any tips please...

Pspuser

•4 months ago

18 Replies

Merry Christmas

Christmas is a time when families come together to celebrate; as hard as it may be for those suffering from PSP, their carers and those left behind who have...

Christmas is a time when families come together to celebrate; as hard as it may ...

Zerachiel

•4 months ago

6 Replies

Galantamine ER Cap 16mg

Just in case this well others suffering from PSP. I believe my husband has greatly improved his memory with taking Galantamine It has REALLY improved his...

Just in case this well others suffering from PSP. I believe my husband has gr...

Sparky137

•4 months ago

4 Replies

PTSD?

Hi all I posted a couple of months ago that my dad had passed away after a suffering from CBD. My issue is I am struggling to remember my dad before he was...

Hi all I posted a couple of months ago that my dad had passed away after a suff...

Stormtrooper4

•4 months ago

8 Replies

The End

My beloved husband tormented with CBD for the past ten years, slipped away from me in the last couple of weeks after a week of hospitalization with Covid...

My beloved husband tormented with CBD for the past ten years, slipped away from ...

COcaregiver

•4 months ago

15 Replies

Mum grew her angel wings

hi all, I just wanted to write a post on here as I sadly lost my mum last week after a 7 year battle with PSP. Although it was pneumonia that took her in...

hi all, I just wanted to write a post on here as I sadly lost my mum last week...

Janice52

•4 months ago

15 Replies

life after cbd

wife passed away 3 months ago. This will be the first Xmas without her. Luckly i have two daughters that -even if they live faraway- they support me...

wife passed away 3 months ago. This will be the first Xmas without her. Luckly i...

racewalk

•4 months ago

11 Replies

How much worse can/will it get :(

My MIL can't bear any weight anymore and needs 2 people to lift her from bed to transfer device and back. She sits on her recliner all day with TV on but she's...

My MIL can't bear any weight anymore and needs 2 people to lift her from bed to ...

Jodi999

•4 months ago

5 Replies

Update - Oxygen Saturation

My husband had his follow up with the respiratory nurse today (as per my earlier post we were worried about his low oxygen saturation levels during a previous...

My husband had his follow up with the respiratory nurse today (as per my earlier...

Bergenser

•5 months ago

1 Reply

Parkinson's Nurse update

Hi all, thank you for all your previous posts, they were most helpful. Since then we have had a few medical professionals visit. The Parkinsons Nurse is...

Hi all, thank you for all your previous posts, they were most helpful. Since the...

Loveispatient23

•5 months ago

5 Replies

End Game

My wonderful mum has taken her last breath this evening. Whilst the last few weeks have seen days of deterioration and then stabilising, this final stage has...

My wonderful mum has taken her last breath this evening. Whilst the last few wee...

Willowden

•5 months ago

19 Replies

Can’t sleep

I was diagnosed in May of this year.. Started with double vision. I also have seizures, mostly controlled. I can’t sleep hardly at all. Tried several...

I was diagnosed in May of this year.. Started with double vision. I also have ...

Cinjav

•5 months ago

6 Replies

driving with psp

At my hospital appointment this week I have been told by the neuro speciaist that I ought to stop driving pending a driving assessment. Does anyone know if an...

At my hospital appointment this week I have been told by the neuro speciaist tha...

Rosewellian

•5 months ago

17 Replies

204010

My lovely husband has lost his fight with this terrible disease PSP. He died this morning after a long & very hard struggle. The last month he was bed ridden,...

My lovely husband has lost his fight with this terrible disease PSP. He died thi...

204010

•5 months ago

23 Replies

PSP-Patient Details Phoolchand Ram Pal

Please find below details for treatment of patient e-mail ID : brijesh1ec@gmail.com Age : 63 Years...

Please find below details for treatment of patient e-mail ID : brij...

1Brijesh

•5 months ago

2 Replies

succumbed with guilt and what if….

Hello friends I don’t know why I am posting, maybe to get advice from people who understand but my dear father lost his battle 2 weeks ago due to sepsis and...

Hello friends I don’t know why I am posting, maybe to get advice from people w...

Khalissi

•5 months ago

25 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for December 2023

Local Authority Funding

Incontinence

PSPA Support Group Meet up January 2024 Leicester

CHC funding uk based

aperation

Restless legs/PSP

galantamine

riser chair

Merry Christmas

Galantamine ER Cap 16mg

PTSD?

The End

Mum grew her angel wings

life after cbd

How much worse can/will it get :(

Update - Oxygen Saturation

Parkinson's Nurse update

End Game

Can’t sleep

driving with psp

204010

PSP-Patient Details Phoolchand Ram Pal

succumbed with guilt and what if….

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive