Posts - PSP Association | HealthUnlocked

PSP Association

9,625 members•11,552 posts

All posts for March 2023

Pneumonia in CBD

Hi I’ve just found out my mum is in hospital with pneumonia and I’m on holiday in Australia - I’m looking for flights and trying to get home asap. Has anyone...

Hi I’ve just found out my mum is in hospital with pneumonia and I’m on holiday i...

Chelle1981uk

•2 years ago

10 Replies

PSP hElp advice

my husband was diagnosed with PSP late January ...back in 2019 he was thought to have Parkinson’s.. after a fall ...dr...ambulance ect his GP was involved and...

my husband was diagnosed with PSP late January ...back in 2019 he was thought to...

Tubbybru

•2 years ago

8 Replies

In response to Troubleandstrife's request the poem I wrote about my husband no longer being crippled by CBD

Niggly (Nigel B) His wicked sense of humour will have now come to the fore His love of birds and insects will have now returned once more. His ability...

Niggly (Nigel B) His wicked sense of humour will have now come to the fore ...

AliBee1

•2 years ago

20 Replies

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Getting care

Hi My father in law has psp last 3 years. Up till now he has his wife help getting up washed and dressed. Long story short yesterday care was put in place from...

Hi My father in law has psp last 3 years. Up till now he has his wife help getti...

Happysole

•2 years ago

6 Replies

End stages of PSP

Because it took so long for Mom to get a diagnosis of PSP, we can only guess how long she has suffered with it. Her symptoms of visual problems and feeling...

Because it took so long for Mom to get a diagnosis of PSP, we can only guess how...

anniesfirst

•2 years ago

5 Replies

Waiting for an ambulance….

My mum is 69, has CBD and as I type we are waiting for an ambulance. The GP has called it and we have been waiting for 3.5 hours already. Mum has been...

My mum is 69, has CBD and as I type we are waiting for an ambulance. The GP has ...

bichonbear1

•2 years ago

3 Replies

Final stages of CBD

Hi all My dad is in the final stages of CBD and in fact the Palliative Care Consultant seems to think we have less than 3 months left with him. I am really...

Hi all My dad is in the final stages of CBD and in fact the Palliative Care Con...

Stormtrooper4

•2 years ago

13 Replies

Joy 204010

Want to know how you all cope with your PSP journey.. My husband has had PSP for 5 years. But only got the diagnosed 3 years ago. Now can’t talk, walk &...

Want to know how you all cope with your PSP journey.. My husband has had PSP fo...

204010

•2 years ago

15 Replies

Psp testing

Hi. I lost my mum in october to this horrible illness. I'm still struggling with this. What I would like to know is there any test to see if I carry the gene....

Hi. I lost my mum in october to this horrible illness. I'm still struggling with...

Beckany

•2 years ago

14 Replies

Heavy Breathing through Nose

Just wondering if anyone else has run across this -- my mom (PSP/CBD, near late stage) suddenly, out of nowhere, for seemingly no reason, starts breathing very...

Just wondering if anyone else has run across this -- my mom (PSP/CBD, near late ...

LARWLSN

•2 years ago

5 Replies

Eating problems

My mum has been diagnosed with PSP for 2 years now( though she had a lot of symptoms for at least 2 years prior) she has lost her mobility and is transferred...

My mum has been diagnosed with PSP for 2 years now( though she had a lot of symp...

Walking18

•2 years ago

13 Replies

Hand tremors when eating

My wife was diagnosed with PSP nearly two years ago. Recently she has been having problems when eating a meal with a knife and fork. The hand with the knife...

My wife was diagnosed with PSP nearly two years ago. Recently she has been havin...

Wombatz

•2 years ago

4 Replies

Tomorrow is moving day

Patient here. I’m moving to assisted living tomorrow and I feel like I’m preparing for prison. My daughter and I have gone through stuff she might like...

Patient here. I’m moving to assisted living tomorrow and I feel like I’m prepar...

Kayelless

•2 years ago

17 Replies

Exposure to environmental contaminants and how it relates to increase in Parkinson's disease...

I know that PSP, MSA, and CBD and Parkinsons are not one and the same but this headline caught my eye about the most recent studies involving what effect...

I know that PSP, MSA, and CBD and Parkinsons are not one and the same but this h...

Troubleandstrife

•2 years ago

4 Replies

manonfire

hi, Just joined, husband has psp for 9 years +, nice to meet you all.

Manonfire

•2 years ago

15 Replies

District nurses

Hi all. I read lots of posts and many of you talk about being supported by district nurses. Just wondering what they do and how you get their support.?Mum's...

Hi all. I read lots of posts and many of you talk about being supported by dist...

Joluu

•2 years ago

3 Replies

Frequent Urinating

My husband has PSP and is constantly waking up at night to use his urinal bottle. The OT has advised me to get him to drink more fluids to try to help this,...

My husband has PSP and is constantly waking up at night to use his urinal bottl...

Redjune1

•2 years ago

18 Replies

recently diagnosed with PSP

I’m hoping to connect with others who have this disease. I want to learn more about PSP and what it does to my body and functioning how it will affect me...

I’m hoping to connect with others who have this disease. I want to learn more a...

Johno12345

•2 years ago

4 Replies

help re: fast track chc

Hi all. Just wondering if anyone has any experience of the fast track process for trying to get ChC funding? Thanks

Hi all. Just wondering if anyone has any experience of the fast track process fo...

Stormtrooper4

•2 years ago

7 Replies

Still here ...

Remarkably still here despite some close calls. Mum is very frail, 6 stone 2 at 5ft 6. She is managing some milky drinks which are keeping her going with a...

Remarkably still here despite some close calls. Mum is very frail, 6 stone 2 at ...

MRSYafffle

•2 years ago

16 Replies

Chc when is the right time to apply?

Hi All,I read a lot on here about CHC funding applications, some successful and some not, some gain it when there loved ones are still mobile but at risk, some...

Hi All,I read a lot on here about CHC funding applications, some successful and ...

Millidog

•2 years ago

7 Replies

My dad and PSP

My dad has just recently been diagnosed with PSP. We are wondering if he has had this already for quite some time. Me and my husband and my mum had noticed a...

My dad has just recently been diagnosed with PSP. We are wondering if he has ha...

Hidden

•2 years ago

11 Replies

My lovely mum has gained her angel wings

my mum passed away on Thursday 9th March after being officially diagnosed with PSP in 2018 (although she had definitely suffered with it since 2016). What a...

my mum passed away on Thursday 9th March after being officially diagnosed with P...

ep12345

•2 years ago

23 Replies

last two weeks

things have been better for the last couple of weeks, however, leg pains and cramps still a problem. muscle relaxers are helping, but still wake up early with...

things have been better for the last couple of weeks, however, leg pains and cra...

horseandwolf

•2 years ago

2 Replies

Blood tests for PSP

Does anyone know what the blood test is called that, I have heard, you can get to check the potential for getting PSP/Parkinson's? Mum has PSP, her brother...

Does anyone know what the blood test is called that, I have heard, you can get t...

REOC

•2 years ago

4 Replies

Mom-questions

Hello, My mom was diagnosed about a year ago with PSP. She uses a walker and they installed stairlifts last summer. She is sad, feels trapped, is in denial...

Hello, My mom was diagnosed about a year ago with PSP. She uses a walker and ...

christie329

•2 years ago

34 Replies

Why I’m moving to assisted living

Patient here. I’m the one who has stopped fighting what can’t be stopped. My plan was to move to my daughter’s next month but I’ve reconsidered. I’m moving to...

Patient here. I’m the one who has stopped fighting what can’t be stopped. My pl...

Kayelless

•2 years ago

20 Replies

PSPDrugs

hello, I am looking for advice regarding PSP drugs and struggling to swallow them. My husband was diagnosed with PSP and his swallowing is getting...

hello, I am looking for advice regarding PSP drugs and struggling to swallow the...

Purp23

•2 years ago

18 Replies

severe apnea during sleep day/night

I've been informed by physician this condition is normal in PSP patients. Any advice?

I've been informed by physician this condition is normal in PSP patients. Any ad...

diroca

•2 years ago

1 Reply

Imaginary mucus

Hello lovely people, my mam complains about mucus in her throat, however we have had it investigated with a camera and nothing shows up, could this be...

Hello lovely people, my mam complains about mucus in her throat, however we have...

AvonJane

•2 years ago

6 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for March 2023

Pneumonia in CBD

PSP hElp advice

In response to Troubleandstrife's request the poem I wrote about my husband no longer being crippled by CBD

Getting care

End stages of PSP

Waiting for an ambulance….

Final stages of CBD

Joy 204010

Psp testing

Heavy Breathing through Nose

Eating problems

Hand tremors when eating

Tomorrow is moving day

Exposure to environmental contaminants and how it relates to increase in Parkinson's disease...

manonfire

District nurses

Frequent Urinating

recently diagnosed with PSP

help re: fast track chc

Still here ...

Chc when is the right time to apply?

My dad and PSP

My lovely mum has gained her angel wings

last two weeks

Blood tests for PSP

Mom-questions

Why I’m moving to assisted living

PSPDrugs

severe apnea during sleep day/night

Imaginary mucus

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive