Posts - PSP Association | HealthUnlocked

PSP Association

9,233 members • 11,336 posts

All posts for August 2015

My head hurts

Feel like my head is going to explode it's not a headache, my head feels funny. Had the district nurse around today another form, the on the 7th September we...

Feel like my head is going to explode it's not a headache, my head feels funny. ...

Yvonneandgeorge

•9 years ago

CT scan and PET scan

I'm booked to have a CT scan followed by a PET scan. Can anyone tell me what am I likely to find out from these scans?

I'm booked to have a CT scan followed by a PET scan. Can anyone tell me what am...

•9 years ago

Sweet Potato Soup

I found this online. I used some cinnamon and honey: Sweet Potato Soup 2 teaspoons canola oil 1/2 cup chopped shallots 3 cups (1/2-inch) cubed peeled sweet...

I found this online. I used some cinnamon and honey: Sweet Potato Soup 2 teasp...

•9 years ago

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STRESSED AND FUSTRATED

Hello everyone.... I haven't written in a while, I have been so busy,tired and very frustrated. Back in May I moved my family to go live with my mom who has...

Hello everyone.... I haven't written in a while, I have been so busy,tired and v...

•9 years ago

Food for thought

My sister sent my mom this book, it looks very interesting. http://www.drperlmutter.com/about/brain-maker-by-david-perlmutter-md/ Obviously no way back for my...

My sister sent my mom this book, it looks very interesting. http://www.drperlmut...

•9 years ago

I AM GOING CRAZY

I don't know what to do with D. He is now walking around with his eyes closed. If I am on the phone or in another room he keeps on screaming my name. He isn't...

I don't know what to do with D. He is now walking around with his eyes closed. I...

•9 years ago

Hummingbird syndrome

I forgot to say that when the neurologist gave us the definite diagnosis of PSP, he said that P's MRI scans showed that he had "hummingbird syndrome" at the...

I forgot to say that when the neurologist gave us the definite diagnosis of PSP,...

•9 years ago

End of week 1 Respite

Well in 1 week I pick Jim up at his respite from me. Started the day with a call from home telling me he had a fall while trying to reach his glasses. He...

Well in 1 week I pick Jim up at his respite from me. Started the day with a call...

•9 years ago

LAST HOLS OF THE YEAR

THIS WILL BE ORU 5 TH B BREAJ AWAY IN THISCOUNTRY TJIIS YEAR ; AGAIN NO INTERNETWHERE WE R STAY8IHG SO WILL EN OIY OF Y TUCH AGAINF ,OR AOTHE RWEK I HAVE NOT...

THIS WILL BE ORU 5 TH B BREAJ AWAY IN THISCOUNTRY TJIIS YEAR ; AGAIN NO INTERNE...

•9 years ago

I'm a bit thick

Ok i have looked up the chc funding. It says about nursing care etc. We have carers comeing in twice a day funded by sociol services? If you get chc funding...

Ok i have looked up the chc funding. It says about nursing care etc. We have car...

•9 years ago

Respite break

Enjoying our time at Rothbury, Northumberland. Here's the view from my bedroom. Peter

Enjoying our time at Rothbury, Northumberland. Here's the view from my bedroom....

•9 years ago

CHC thoughts + advise needed

Lots are going through the CHC hoops at the moment. We are just about to get on that merry-go-round! Just a thought, perhaps we all ought to monitor the...

Lots are going through the CHC hoops at the moment. We are just about to get on...

•9 years ago

Just got excited

A delivery man just handed me a large camera case and said,"For you". Had someone bought me a present knowing I like photography? Had I won the photo...

A delivery man just handed me a large camera case and said,"For you". Had someo...

•9 years ago

Autumn on its way?

The front of our house and the Virginia creeper is already turning - what ever happened to summer ?

The front of our house and the Virginia creeper is already turning - what eve...

•9 years ago

PSP - Montreal, Quebec

I am indeed inspired after reading the many article on PSP and now know I am not alone - my husband was finally diagnosed with PSP in 2010-11 and we downsized...

I am indeed inspired after reading the many article on PSP and now know I am not...

•9 years ago

Respite

Well I collected P from respite earlier this morning and he is clean, well fed and as far as I can tell quite well cared for. Unfortunately, the care home has...

Well I collected P from respite earlier this morning and he is clean, well fed a...

•9 years ago

CHC funding

Through the instigation of the nurse at the hospice who was concerned about V's decline over the last couple of months , the OT and community nurse...

Through the instigation of the nurse at the hospice who was concerned abou...

•9 years ago

"Carer Words of Wisdom"

My son-in-law told me something tonight that really hit home: Why does God put us through these hard times? When we think things are the worst it can get....

My son-in-law told me something tonight that really hit home: Why does God put ...

•9 years ago

Just to say hallo.....

Hallo you lovely lot, Sorry I have been somewhat absent recently, a little too much juggling going on in this household so haven't had the time or the energy...

Hallo you lovely lot, Sorry I have been somewhat absent recently, a little too ...

•9 years ago

CHC

Hi all we have the social worker coming in the morning none of the children can be here to support me, any one have any advice for me. District nurse says...

Hi all we have the social worker coming in the morning none of the children can ...

Yvonneandgeorge

•9 years ago

Dad in late stage PSP

Hi Sorry for the long message but I would really appreciate some perspective... My father is in late stage PSP He was diagnosed with Parkinson's dementia -...

Hi Sorry for the long message but I would really appreciate some perspective......

•9 years ago

Tau Consortium

I have been reading as much information as I can find. I found this information regarding a billionaire from Texas who is piling a TON of money and hiring top...

I have been reading as much information as I can find. I found this information ...

•9 years ago

Thumbs up from the birthday"boy".

68 today. No lie in for the birthday boy though. Started well, let's hope the rest of the day is a happy one. X

68 today. No lie in for the birthday boy though. Started well, let's hope the ...

•9 years ago

PSP pains..

Hello all.. I am new to this forum. My dad has PSP for the last 4 some odd years. He barely speaks and just keeps making "humm" sound all day long. Moreover he...

Hello all.. I am new to this forum. My dad has PSP for the last 4 some odd years...

•9 years ago

Respite for 2 weeks begun

Jim has gone for respite for 2 weeks and I spent most of the day making sure he has everything he needs. Wonderful place with the most caring staff. Only wish...

Jim has gone for respite for 2 weeks and I spent most of the day making sure he ...

•9 years ago

Trolls

I know we have to be on our guard when we join a group but 2 trolls in less then a week. Don't these people realise we have enough to cope with without there...

I know we have to be on our guard when we join a group but 2 trolls in less then...

•9 years ago

Cakes

Tried to load it on Last one

Tried to load it on Last one

Yvonneandgeorge

•9 years ago

Cake

Granddaughter here and we have been baking cupcakes some with snickers in the middle some with rolo's in the middle with a bit of a twist with the butter icing...

Granddaughter here and we have been baking cupcakes some with snickers in the mi...

Yvonneandgeorge

•9 years ago

Having another down day today😔

Just when I thought I was feeling strong and positive and thought I could cope with everything I'm feeling really down again. I think Keith has a cold which is...

Just when I thought I was feeling strong and positive and thought I could cope w...

•9 years ago

jhon

hi everyone not been on since jhon died hope you are all well fighting like mad to get this illness reconised so there is more suporrt out there having a big...

hi everyone not been on since jhon died hope you are all well fighting like mad ...

•9 years ago

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