Posts - PSP Association | HealthUnlocked

PSP Association

9,255 members • 11,351 posts

All posts for January 2016

Cbd

Hi, Mike my husband has been dx. 2012 Current state still working on dopamine. To much dementia and or hallucinations, to little the same except he stays out...

Hi, Mike my husband has been dx. 2012 Current state still working on dopamine. T...

•8 years ago

New to CBD

I have numbness in left side of body and now has moved to right side. Just been told it's CBD. My mouth wants to stay open alot, like my tongue is too big for...

I have numbness in left side of body and now has moved to right side. Just been ...

•8 years ago

Pneumonia

A family member of mines passed away today at 7:00 AM. She was on morphine since Tuesday, everyday thats what the hospital gave her. Was that ok? or is there...

A family member of mines passed away today at 7:00 AM. She was on morphine since...

•8 years ago

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CBD

Evenin all. This is my first time posting. My mum's been diagnosed with CBD about 6 months ago and has probably had it the last 2 years. We had a stair lift...

Evenin all. This is my first time posting. My mum's been diagnosed with CBD abou...

•8 years ago

Beetroot, nitrates and the brain

Brain function and age related neurological problems Ingesting beetroot juice increases blood flow to the brain, which in older adults is very important, and...

Brain function and age related neurological problems Ingesting beetroot juice ...

•8 years ago

Respite!!!

Well, after a lot of phone calls, an assessment on S, the care home have agreed that they will accept him!!! Not sure that I am happy, still very hurt and...

Well, after a lot of phone calls, an assessment on S, the care home have agree...

•8 years ago

FRUSTRATED

The PT told me today that they have decided not to continue therapy because he is not progressing as he should. I am very upset and don't know what to do.

The PT told me today that they have decided not to continue therapy because he i...

•8 years ago

A bright start

Today I woke to a bright crisp day - the sky blue and the sun beginning to rise over the finger frosted rooftops .It lifted my spirits which have...

Today I woke to a bright crisp day - the sky blue and the sun beginning to ris...

•8 years ago

Medisana Neck Massage Cushion

Don't know if anyone read the article in this months PSPA magazine about a neck massager. Here the article. At the end of 2014 Maureen from East Kilbride...

Don't know if anyone read the article in this months PSPA magazine about a neck ...

•8 years ago

A link between tau build up and the neurotoxin BMAA. And a possible preventative treatment using L-Serine Amino Acid

*I am not a doctor, plz research everything for yourself. Consult your doctor before taking anything mentioned in this thread* Ok, so I bought a nice big bag...

*I am not a doctor, plz research everything for yourself. Consult your doctor be...

•8 years ago

Saliva

Hello everyone. I don't post often but read daily posts but was wondering how people find the illness progressing in as far as their loved one beginning to...

Hello everyone. I don't post often but read daily posts but was wondering how pe...

•8 years ago

What next

Hi all . Well finally plucked up the courage to write a post . Please excuse the spelling and punctuation as I'm not that we'll educated. Well I...

Hi all . Well finally plucked up the courage to write a post . Please ex...

•8 years ago

OK! Now what do I do????

Hi all, had a really bad weekend! Crashed again. My wonderful daughter had to come and sort me out. Wasnt capable of doing anything. Yes, I knew it was...

Hi all, had a really bad weekend! Crashed again. My wonderful daughter had to...

•8 years ago

The end of my father's PSP journey.

My father, Duncan, died on Saturday aged 91. He was ready to leave his frail body and PSP and as a man of faith to move on to a so much better place. He...

My father, Duncan, died on Saturday aged 91. He was ready to leave his frail bod...

•8 years ago

Rare Diseases UK

If you are UK based, would you be interested in taking part in a survey? The Cambridge Rare Disease Network http://www.camraredisease.org/ is looking for your...

If you are UK based, would you be interested in taking part in a survey? The Ca...

PSPA•8 years ago

Be the first to reply

Serrapeptaze to reduce mucus and saliva.

https://examine.com/supplements/serrapeptase/

https://examine.com/supplements/serrapeptase/

•8 years ago

clicking sound

My husband is making a gurgling/clicking sound in the night. Has anyone experienced their spouse's doing that. I do not think it is aspiration phenomena...

My husband is making a gurgling/clicking sound in the night. Has anyone experien...

•8 years ago

end of PSP

Our Dad has PSP, and he recently suffered a fall where he sustained a fracture in his neck and two in his pelvis. Prior to this fall he was able to ambulate...

Our Dad has PSP, and he recently suffered a fall where he sustained a fracture i...

•8 years ago

Neurotoxin BMAA linked to Alzheimers and other neurological conditions

http://www.cbsnews.com/news/algae-bloom-toxin-linked-to-alzheimers-and-other-neurodegenerative-diseases/

http://www.cbsnews.com/news/algae-bloom-toxin-linked-to-alzheimers-and-other-neu...

•8 years ago

Who tried the Pneumonia vaccine?

Good morning everyone, Doctor suggested we give my dad the pneumonia vaccine he said it protects from 10 type of pneumonia (out of 12). Do you know if it...

Good morning everyone, Doctor suggested we give my dad the pneumonia vaccine he...

•8 years ago

Closing Eyes

My husband has PSP and the about 3 years he has been receiving botox to keep his eyes open. Unfortunately now the botox is not as effective, and our eye...

My husband has PSP and the about 3 years he has been receiving botox to keep his...

•8 years ago

New Years resolution aborted!!

Was determined to pick myself up and dust myself down!! An stop feeling sorry for myself. All gone belly up already!! And I love reading everyone's messages...

Was determined to pick myself up and dust myself down!! An stop feeling sorry fo...

•8 years ago

mPower App Users

Documentary film project on medicine and technology seeks Parkinson's patients who have downloaded and are actively using the "mPower" app. If you are...

Documentary film project on medicine and technology seeks Parkinson's patients w...

•8 years ago

Research

L had his last MRI and PET scan with the research doctor yesterday. They told us that he could participate in another research for PSP patients. I wanted to...

L had his last MRI and PET scan with the research doctor yesterday. They told us...

•8 years ago

Through the Keyhole

Bill seems to be going further and further away from me. Only occasionally now does he look directly into my eyes with the feeling that he really knows who I...

Bill seems to be going further and further away from me. Only occasionally now d...

•8 years ago

Bathroom and the amount of time .

We only have one bathroom and there are days I feel like he is never going to go pee or have that illusive bowel movement we are always chasing after and this...

We only have one bathroom and there are days I feel like he is never going to go...

•8 years ago

Sad. News

Chris died at noon yesterday in his arm chair by the fire. I was out and my daughter was printing in her workshop, the cleaner was busy vacuuming and thought...

Chris died at noon yesterday in his arm chair by the fire. I was out and my dau...

•8 years ago

Coming home

Aunt Bev will finally be coming home tomarrow , the doc says no more food in mouth shes not going to like that one bit , boy am I in for a hell of a ride. She...

Aunt Bev will finally be coming home tomarrow , the doc says no more food in mou...

•8 years ago

How do I get a liquid capsule inside a PEG tube?

I'm not sure if I can open a gelcap as they're called and I cannot find any info even from the company....if anyone has an answer, please share.... Thank You......

I'm not sure if I can open a gelcap as they're called and I cannot find any info...

•8 years ago

Sister's infections not under control

My sister has been in and out of the hospital for many years. Started with Asthma. Then one day they came back from Utah and sister thought she had been bitten...

My sister has been in and out of the hospital for many years. Started with Asthm...

•8 years ago

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