Posts - PSP Association | HealthUnlocked

PSP Association

9,255 members • 11,351 posts

All posts for September 2023

Treatments for PSP

Has anyone. Looked at stem cell therapy for slowing down PSP. Also nano patches therapy?

Has anyone. Looked at stem cell therapy for slowing down PSP. Also nano patche...

SEADIVER

•7 months ago

4 Replies

My Dad has gained his Angel Wings

Hello, for those that have been following me on my journey with my Dad's CBD illness, I am extremely heartbroken to say that he passed away on Friday 22nd...

Hello, for those that have been following me on my journey with my Dad's CBD ill...

Stormtrooper4

•7 months ago

24 Replies

My Dad's PSP Journey

Hello everyone, this is my first post on the forum. My Dad has PSP and I feel we may have crossed a line into a new phase of the progress of this disease....

Hello everyone, this is my first post on the forum. My Dad has PSP and I feel w...

Army360

•7 months ago

30 Replies

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psp remission ?

My mom is now 81, she was diagnosed in 2018 with psp. Most notably her symptoms were a 90 degree slant of her body to the right, tremors (she has a battery and...

My mom is now 81, she was diagnosed in 2018 with psp. Most notably her symptoms ...

Aljosh2013

•7 months ago

9 Replies

SEADIVER

Like many of you my wife was diagnosed with Parkinsons in 2019 which changed after twelve months of medication that did nothing to PSP. This devastating...

Like many of you my wife was diagnosed with Parkinsons in 2019 which changed aft...

SEADIVER

•7 months ago

12 Replies

Rest in peace

my lovely mum… remembering the happy times together

Hdee

•7 months ago

2 Replies

Free at last

Hi everyone, My beautiful mum is free, my mum, Margaret, died on Friday 8th September, 3.5 years after diagnosis and 7 years of symptoms. Myself and her...

Hi everyone, My beautiful mum is free, my mum, Margaret, died on Friday 8th S...

Hdee

•7 months ago

13 Replies

improving my walk

I trying to get around but it’s more difficult every day. I am going to Parkinson’s Boxing 3 days a week and water fit classes 3 days per week but I’m not...

I trying to get around but it’s more difficult every day. I am going to Parkins...

Lilylulucat

•7 months ago

20 Replies

CHC Assessment

My Mum has a CHC assessment very shortly was wondering if there were any questions/comments I should be making at the review. Am hoping that the care home...

My Mum has a CHC assessment very shortly was wondering if there were any questi...

Doublereeder

•7 months ago

6 Replies

Feeding.

The shock I am dealing with this morning is the realisation that I might now have to liquidise my husband's meal. He has always loved and enjoyed his food....

The shock I am dealing with this morning is the realisation that I might now hav...

AutumnRiver

•7 months ago

17 Replies

1st time of posting

Hi my husband has recently been confirmed he has PSP, for seven years we’ve been told he has Parkinson’s. Over the weekend he’s spent a lot of time sleeping,...

Hi my husband has recently been confirmed he has PSP, for seven years we’ve been...

Spanielmom23

•7 months ago

7 Replies

Funded Nursing Care

Hi All We have received our outcome for CHC Funding but I am slightly confused as my dad is having his medical needs met at home and not in a care home. The...

Hi All We have received our outcome for CHC Funding but I am slightly confused...

Khalissi

•7 months ago

8 Replies

PSP and Psychosis- advice appreciated!

My mum’s health has been deteriorating for several years and in January she had a bad car crash. After a two month stay in hospital she developed psychosis and...

My mum’s health has been deteriorating for several years and in January she had ...

Artybex

•7 months ago

4 Replies

Eyesight problems

Hi just thought I'd share our recent eye appointment experience. Mum has had eyesight problems for years- always blamed on PSP but with no proper assessment....

Hi just thought I'd share our recent eye appointment experience. Mum has had eye...

Joluu

•8 months ago

2 Replies

Hospital discharge re: food

hi First time poster ! My mum diagnosed with psp in Jan has been in hospital nearly 4 weeks after having bowel obstruction operation. Communicating with...

hi First time poster ! My mum diagnosed with psp in Jan has been in hospita...

NicolaD15

•8 months ago

16 Replies

Anyone got a cover for bed lever?

The nursing home have taken away my mum’s bed lever because they decided it was a trap risk for her hand. She doesn’t use it to actually get out of bed because...

The nursing home have taken away my mum’s bed lever because they decided it was ...

messier

•8 months ago

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Rosecup available free

I’ve tried this dysphagia cup with my mum but she couldn’t cope with it as she can’t seem to coordinate putting her mouth around it and sucking. As with so...

I’ve tried this dysphagia cup with my mum but she couldn’t cope with it as she c...

messier

•8 months ago

4 Replies

Thank you

I just want to say thank you to all the contributors, past and present, to this forum. I am with my dad tonight wondering how he is feeling, how to make him...

I just want to say thank you to all the contributors, past and present, to this ...

Meringue261

•8 months ago

9 Replies

insomnia in PSP

I found Belsomra or Quviviq can help with Insomnia in PSP

ChesterJax

•8 months ago

3 Replies

aurore

doctors set a wewe drainage. Difficult to copy with. Miserable life.

racewalk

•8 months ago

7 Replies

Morphine & Oramorph.

Hi all, My dad is now bedridden with CBD. He appears to be in constant pain. Although he can't verbalise. Codeine is no longer keeping him comfortable. Today...

Hi all, My dad is now bedridden with CBD. He appears to be in constant pain. Alt...

RW22

•8 months ago

11 Replies

aspiration

my mum has been on a soft and moist diet for a while now and level 3 thickener in drinks but the coughing is getting worse again. We’ve had it confirmed she is...

my mum has been on a soft and moist diet for a while now and level 3 thickener i...

Flowersinyouhair

•8 months ago

16 Replies

Introduction to PSP

Hi, as you will see, from reading my profile, my wife has been diagnosed with PSP on Friday last and just now we are both wondering what happens now, and...

Hi, as you will see, from reading my profile, my wife has been diagnosed with P...

Danish21

•8 months ago

17 Replies

Mum’s nearly free

My poor mum is near the end I fear. She now is less than 5 stones in weight and is really struggling to open her mouth and swallow. Her doctor, who visits her...

My poor mum is near the end I fear. She now is less than 5 stones in weight and ...

Hdee

•8 months ago

24 Replies

Mum with CBD

Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was...

Good morning It's been a while since I wrote on here. My mum got diagnosed with ...

Bobbiejo21

•8 months ago

11 Replies

My mom has PSP and I'm wondering if there are any correlations with sleeping medications and PSP or Parkinsons.

I've been reading a lot about the correlation between sleep disorders and neurogenerative and cognitive diseases. So, I'm wondering if there are other people...

I've been reading a lot about the correlation between sleep disorders and neurog...

lasquacks

•8 months ago

11 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for September 2023

Treatments for PSP

My Dad has gained his Angel Wings

My Dad's PSP Journey

psp remission ?

SEADIVER

Rest in peace

Free at last

improving my walk

CHC Assessment

Feeding.

1st time of posting

Funded Nursing Care

PSP and Psychosis- advice appreciated!

Eyesight problems

Hospital discharge re: food

Anyone got a cover for bed lever?

Rosecup available free

Thank you

insomnia in PSP

aurore

Morphine & Oramorph.

aspiration

Introduction to PSP

Mum’s nearly free

Mum with CBD

My mom has PSP and I'm wondering if there are any correlations with sleeping medications and PSP or Parkinsons.

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive