Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for December 2014

Please pray.

The love of my life has severe pneumonia and may not last the night.Please pray for him.xxxx

The love of my life has severe pneumonia and may not last the night.Please pray ...

•10 years ago

Feeling very down today New Year's Eve.

I visited my sister (81) yesterday has PSP for about 4/5 years not communicating now getting very thin eyes closed most of the time. I keep thinking is she...

I visited my sister (81) yesterday has PSP for about 4/5 years not communicating...

•10 years ago

Oh what a day

After a bad nights sleep it turns out that I have paseed my cough/cold onto Brian so he is very unsteady on his feet. It also puts me in a quandary do I just...

After a bad nights sleep it turns out that I have paseed my cough/cold onto Bria...

•10 years ago

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Sleep Medication

Many thanks to all who shared their experiences with sleep medication. I am going to see if I can find 5HTP in the interim and, if that fails, zopiclone sounds...

Many thanks to all who shared their experiences with sleep medication. I am goin...

•10 years ago

Not coping today

My wife's OCD behaviour has taken on a new twist . If I am making a coffee or tea and I ask her if she would like one she now almost always says 'no" but...

My wife's OCD behaviour has taken on a new twist . If I am making a coffee or te...

•10 years ago

Tolfenamic Acid

Has anybody info regarding the use of Tolfenamic acid? It is an existing drug commonly prescribed for migraine: TOLFENAMIC ACID IS AN ANTIINFLAMMATORY......

Has anybody info regarding the use of Tolfenamic acid? It is an existing drug co...

•10 years ago

Anyone?!!

I am so done. I just can't take being screamed at 24/7. Am I the only one dealing with a loved one with PSP who is angry and violent? I am tired of the nasty...

I am so done. I just can't take being screamed at 24/7. Am I the only one dealin...

•10 years ago

Is it time??

My dad was fitted the peg few months back and post that his condition has detail rated quite a bit. He has had a lot of cough congestion and he looks thinner...

My dad was fitted the peg few months back and post that his condition has detail...

•10 years ago

Sleep medication

Season's greetings one and all. I trust this festive season has seen bright moments amidst the ongoing pressures of caring. I'm desperately hoping that...

Season's greetings one and all. I trust this festive season has seen bright mom...

•10 years ago

Reflection

Even amongst all the horrible decisions and adversities that PSP sufferers and their carers are facing there is always time for a moments reflection. I...

Even amongst all the horrible decisions and adversities that PSP sufferers an...

•10 years ago

Hi everyone

Hi I missed you all and hope everyone had the best holiday with your familys. MY computer was down and running back and forth to the rehab they send Aunt Bev...

Hi I missed you all and hope everyone had the best holiday with your familys. MY...

•10 years ago

Question regarding post mortem

Please accept my apologies for this morbid subject but I need the the help of this forum to give me advice advice, which is as follows: My wonderful mother...

Please accept my apologies for this morbid subject but I need the the help of th...

•10 years ago

Refusal of PEG feeding

My husband is considering refusing PEG feeding. Has anyone any experience of this or advice to offer?

My husband is considering refusing PEG feeding. Has anyone any experience of th...

•10 years ago

Father with CBD - anyone out there?

Dear all, Thanks for taking the time to read this. My father, 69, was diagnosed with CBD about a year ago. For some years before that he had various problems...

Dear all, Thanks for taking the time to read this. My father, 69, was diagnosed...

•10 years ago

BEST POSSIBLE

What is the best med to combat psp?

What is the best med to combat psp?

•10 years ago

Life expectancy

Happy Boxing day everyone I just wondered if anyone knew the life expectancy of some with CBD, my mum was diagnosed in 2007 & has gone down hill fast over the...

Happy Boxing day everyone I just wondered if anyone knew the life expectancy of ...

•10 years ago

Raise a glass

Raise a glass at 3pm to all those associated in whatever way with PSP The toast is " TO US ALL "

Raise a glass at 3pm to all those associated in whatever way with PSP The toas...

•10 years ago

Season's Greetings

Greetings to one and all- I have made so many friends through this forum and you have all helped me .with your words of encouragement and kindness from...

Greetings to one and all- I have made so many friends through this forum and ...

•10 years ago

To all of you- enjoy this holiday, forget about tomorrow. Love and hugs, Maddy

•10 years ago

Happy Christmas

I just thought I'd drop all you wonderful people a line before I start my journey to my Mum & Dads for Christmas. I have to admit to being a little...

I just thought I'd drop all you wonderful people a line before I start my journe...

•10 years ago

Good Night God Bless

At 2 am this morning I loss my Jim my soul mate to this horrible illness. At 67 and only had it for 4 years . I am absolutely devastated . He was my life my...

At 2 am this morning I loss my Jim my soul mate to this horrible illness. At 67 ...

•10 years ago

Happy Christmas!

Hi everyone, I would like to wish you all the happiest Christmas you can manage. I know a lot are facing their first Christmas alone, to you I say, I am...

Hi everyone, I would like to wish you all the happiest Christmas you can manage....

•10 years ago

HI EVERYONE

I WOUILD LIKE TO TAKE THIS OPPERTUNITY TO WISH ALL OF YOU A VERY HAPPY CHRISTMAS AND HAVE TOLERENCE AND UNDERSTANDING AND PATIENCE THIS COMING YEAR AND...

I WOUILD LIKE TO TAKE THIS OPPERTUNITY TO WISH ALL OF YOU A VERY HAPPY CHRISTMA...

•10 years ago

When should a child be told about her father's terminal illness?

My husband has been diagnosed with PSP since 2012. We have a twelve year old daughter. I was just wondering if I should let her know about her father's...

My husband has been diagnosed with PSP since 2012. We have a twelve year old da...

•10 years ago

An unexpected pleasure

This afternoon some friends phoned me from Killlerton , our local National Trust house, to say that if I could get Veronica there , they would push her round...

This afternoon some friends phoned me from Killlerton , our local National Trus...

•10 years ago

Cannabis?

It seems that every time I write about the successful use of cannabis medically with my husband to treat his "sundowning" problem, the post disappears? Am I...

It seems that every time I write about the successful use of cannabis medically ...

•10 years ago

Incontinence

Is incontinence another effect of PSP? My husband is having more & more problems with this. It is becoming difficult for him to be out of the home for long...

Is incontinence another effect of PSP? My husband is having more & more problem...

•10 years ago

Mince pies

Just incase there were any doubters out there ! Please help yourselves .

Just incase there were any doubters out there ! Please help yourselves .

•10 years ago

Fright over..

Jim was taken into hospital last Monday with a chest infection only to be told he would not last the day but he has and slowly but surely he is recovering....

Jim was taken into hospital last Monday with a chest infection only to be told h...

•10 years ago

Hyperbaric oxygen therapy.

Hi, I have just been told about this treatment. You sit in a pressurised room, with pure oxygen. It is being used to help MS, but it could help with the...

Hi, I have just been told about this treatment. You sit in a pressurised room, ...

•10 years ago

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