Posts - PSP Association | HealthUnlocked

PSP Association

9,232 members • 11,336 posts

All posts for September 2019

9+ years of brave-fight ended last month!

Hello All - this is just to thank all of you here for your support to me which helped my mom run with CBD for 9+ years of slowly acquiring this...

Hello All - this is just to thank all of you here for your support to me which h...

•5 years ago

Restore Gold?

I’m new to the forum. My husband is entering his third year with a formal diagnosis of PSP. A well-meaning relative insists that Restore Gold would help him,...

I’m new to the forum. My husband is entering his third year with a formal diagn...

•5 years ago

Heartbroken

Today I said goodbye to Craig, my wonderful, brave, kind beautiful husband took his last breath today. I can’t say he lost his battle as this awful disease he...

Today I said goodbye to Craig, my wonderful, brave, kind beautiful husband took ...

•5 years ago

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Sam 1947

Is there a psp day in Toronto like in the uk?

Is there a psp day in Toronto like in the uk?

•5 years ago

Tried ending her life

So last night my mum tried to od by taking to much insulin I'm running out of ideas on how I can make her life better and feel let down by our social team who...

So last night my mum tried to od by taking to much insulin I'm running out of id...

•5 years ago

Peg fitting

Hi all has anyone had experience of fitting peg well before patient experiencing difficulties swallowing (coughing is an issue at times) it has been suggested...

Hi all has anyone had experience of fitting peg well before patient experiencing...

•5 years ago

Letting go

Hi ,as I sit here alone,it's something I have to get use to,my Kathy in her Fourth year of psp is in hospital waiting for a bed in a rest home,in Napier NZ...

Hi ,as I sit here alone,it's something I have to get use to,my Kathy in her Four...

•5 years ago

swollen feet

My sister is in a long term care facility suffering from CBD....Recently when I was with her helping her put on her slippers I noticed how swollen her feet...

My sister is in a long term care facility suffering from CBD....Recently when I...

•5 years ago

Sam 1947

. Hello everyone I am new to this sight. My husband has psp since 2015. Was diagnose 2017. I have notice there is a big change in him this week aggressive and...

. Hello everyone I am new to this sight. My husband has psp since 2015. Was dia...

•5 years ago

The end is near..

Im sitting next to my dying father, who suffered 5 years from PSP. 5 years of his body slowly letting him down.. 5 years I watched an active man become a...

Im sitting next to my dying father, who suffered 5 years from PSP. 5 years of hi...

•5 years ago

Friday afternoon

Things got screwed up with the massage therapist who was to come Friday afternoon. When I talked to her to set the time it bounced around a bit. I chose 1:30....

Things got screwed up with the massage therapist who was to come Friday afternoo...

•5 years ago

Sorry about 2 pics in a row

Since the forum doesn't allow multiple pics per post I needed to make 2 posts. I am seriously thinking of making this one a wall hanger. Ron

Since the forum doesn't allow multiple pics per post I needed to make 2 posts. ...

•5 years ago

Didn't take long.

Winter storm forecast this weekend in mountains. I was there few hours ago checking out the situation. I needed a good picture for Sewbears :) Ron

Winter storm forecast this weekend in mountains. I was there few hours ago chec...

•5 years ago

Grandchildren... JOY!

They love her ... and came to spend the day with her today!

They love her ... and came to spend the day with her today!

•5 years ago

Ice Cream & Sunshine

Yesterday was a beautiful day for a ride ... and ice cream! Warning ... I bought a selfie stick ... you know what that means!! More pictures!!! Q: Why did...

Yesterday was a beautiful day for a ride ... and ice cream! Warning ... I bough...

•5 years ago

Hope for rare diseases?

I just read a very interesting article from CNN posted on September 14, 2019 titled “This med student was given last rights before finding a treatment that...

I just read a very interesting article from CNN posted on September 14, 2019 ti...

•5 years ago

Cruise Memory Moment ...

Believe it or not, this is a deck on the Symphony of the Seas Royal Caribbean ship! This is called Central Park (looks like we are in NYC), with real trees,...

Believe it or not, this is a deck on the Symphony of the Seas Royal Caribbean sh...

•5 years ago

Personal Call System

I just received this today! It’s a personal call system, and it doesn’t ring bells all over the house! So Momma just pushes the button and my wrist vibrates or...

I just received this today! It’s a personal call system, and it doesn’t ring bel...

•5 years ago

Helpless...

Really tough this week. Mum is crying an awful lot. All required needs are met and due to communication I cant fathom anything else. Have been in and out of...

Really tough this week. Mum is crying an awful lot. All required needs are met a...

•5 years ago

9 Hours of Sleep!

Last night Larry didn’t wake me once. No idea how long ago that last happened. Don’t expect it will occur any time soon again. I felt almost human most of the...

Last night Larry didn’t wake me once. No idea how long ago that last happened. D...

•5 years ago

The little things matter

Mom lives getting mail, and today she received a card in the from her sister ... all smiles!

Mom lives getting mail, and today she received a card in the from her sister ......

•5 years ago

Hey...PSP isn't so bad.

Things are going pretty well around here. Sandy seems to be doing okay. There haven't been any major changes for probably four months, only a few minor ones,...

Things are going pretty well around here. Sandy seems to be doing okay. There ha...

•5 years ago

Visitors for people in a nursing home.

My sister is in a nursing home she can't be left alone. She has PSP. Her daughter lives NEAR by but is working and can only go visit her 2 or three times a...

My sister is in a nursing home she can't be left alone. She has PSP. Her daughte...

•5 years ago

Going home

Sitting in the hospital waiting for transport to bring Craig home. Mixed emotions as I can’t wait for him to be back in familiar surroundings and with people...

Sitting in the hospital waiting for transport to bring Craig home. Mixed emotion...

•5 years ago

Love em moments

For those who don’t know me I’m a caregiver for my husband who has been diagnosed with Lewy Body Dementia, not CBD as initially thought. We had an appointment...

For those who don’t know me I’m a caregiver for my husband who has been diagnose...

•5 years ago

Incontinence solutions

I've been reading several posts from our community about incontinence, washing bedding everyday, etc. I've posted this before and it may or may not be helpful...

I've been reading several posts from our community about incontinence, washing b...

•5 years ago

Walking very difficult now

Has anyone found anything that will help with walking. Husband with PSP thinks he wants to go back on Carbadopa/Lapradopa. (sp). (Tried last year). Says he...

Has anyone found anything that will help with walking. Husband with PSP thinks ...

•5 years ago

Someone to talk to

Good evening My mum was diagonsed with psp about 2 years ago. My dad been struggling with looking after her turned to drink and I've given up work to help out...

Good evening My mum was diagonsed with psp about 2 years ago. My dad been strug...

•5 years ago

First Contact!

My Dad was finally diagnosed with PSP in December last year after being misdiagnosed with Parkinsonism. Since June 2018 he has lived at a Nursing Home but has...

My Dad was finally diagnosed with PSP in December last year after being misdiagn...

•5 years ago

Shaking

I have come to visit my mum and today she has been shaking from head to toe is this normal

I have come to visit my mum and today she has been shaking from head to toe is t...

•5 years ago

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