Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for May 2024

CHC Funding For PSP

Hi , just wanted to tell you my husband who has PSP, has just been awarded fully funded CHC funding .I’m not going to say the process isn’t difficult or...

Hi , just wanted to tell you my husband who has PSP, has just been awarded full...

bladesmad

•7 months ago

14 Replies

levodopa side effect

hello, My mom has not been diagnosed officially yet. Her doctor said it might be psp mixing with ftd. Her cognitive deficits can easily be recognized....

hello, My mom has not been diagnosed officially yet. Her doctor said it might b...

Hopeless03

•7 months ago

6 Replies

Bowl exploration

My mum has had diahorea for about 2 months. Gp thinks that psp has effected stomach and bowl muscles and has suggested she goes to hospital for exploration. We...

My mum has had diahorea for about 2 months. Gp thinks that psp has effected stom...

nanwoo

•7 months ago

5 Replies

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PEG feed methods - pros and cons

my husband is having a PEG fitted tomorrow. The nurse has given us two options for feeding - either a pump that runs all day or bolus (?) feeds 4 or 5 times a...

my husband is having a PEG fitted tomorrow. The nurse has given us two options f...

SunriseLegend

•7 months ago

13 Replies

chronic constipation

My husband is suffering with chronic constipation. I am sure this is contributing to his mood, not sleeping and restlessness. He seems more confused not...

My husband is suffering with chronic constipation. I am sure this is contributin...

Licquoricelover

•7 months ago

17 Replies

PSP story

My dad has been living with PSP for over 5 years his feet have turned in so unable to walk, his eyes don’t shut even when asleep, his frustration is...

My dad has been living with PSP for over 5 years his feet have turned in so unab...

Independenceday

•7 months ago

6 Replies

Flashing lights

Mum has recently started having problems not being able to see due to flashing lights in her eyes ,this is all new Mum has only been diagnosed in the last...

Mum has recently started having problems not being able to see due to flashing l...

Blitzford72

•7 months ago

2 Replies

Managing Burnout

My husband was recently diagnosed with PSP, which comes on the tail of a stage 4 cancer diagnosis (he's in remission as of now). We're both already deep into...

My husband was recently diagnosed with PSP, which comes on the tail of a stage ...

MLea

•7 months ago

18 Replies

CBD - do sufferers always end up needing wheelchairs?

I posted a while ago re whether we convert my parents’ house into having a downstairs bedroom and shower room for my mum, who has CBD. Thank you so much for...

I posted a while ago re whether we convert my parents’ house into having a downs...

PeterPanandLostBoys

•7 months ago

14 Replies

dreaming or hallucinating?

My husband has psp. I’m trying to figure out if he is dreaming or hallucinating. When he is asleep, sometimes he does hand movements, calls out the strangest...

My husband has psp. I’m trying to figure out if he is dreaming or hallucinating....

Pinkcamelia

•7 months ago

11 Replies

15.17

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Guddukumar

•7 months ago

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15.17

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Guddukumar

•7 months ago

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Covid and PSP

My husband who has PSP has Covid now (for the first time). He is in our community hospital for IV fluids and antibiotics. They said Covid medication is...

My husband who has PSP has Covid now (for the first time). He is in our communit...

Rose1sunflower

•7 months ago

4 Replies

Raynor Winn

Nice to have a chat with Raynor after her show with Gigspanner in Worcester last night.

Nice to have a chat with Raynor after her show with Gigspanner in Worcester last...

AnnesHusband

•7 months ago

5 Replies

Peg Feeding

Hi all my husband dx in 2018 currently in hospital having had aspiration pneumonia, urine infection, bowl infection, COVID and a further chest infection. He is...

Hi all my husband dx in 2018 currently in hospital having had aspiration pneumon...

Northstar1

•7 months ago

23 Replies

2024 PSP & CBD Ice Cream Challenge

My bad friends. I've been extremely busy with this year's Ice Cream Challenge and getting the fourth book ready for publication, that I forgot to post this...

My bad friends. I've been extremely busy with this year's Ice Cream Challenge an...

pspchronicles

•7 months ago

15 Replies

Progression

My mum got diagnosed with PSP just last October,but that took 18 months .She is now in a residential home ,but I fell so guilty I couldn't keep her at home 😞...

My mum got diagnosed with PSP just last October,but that took 18 months .She is ...

Blitzford72

•7 months ago

14 Replies

Husband diagnosed with CBD

My 76 year old husband has just been diagnosed with CBD. His symptoms began about a year ago but now that I know what the beginning symptoms really are, he was...

My 76 year old husband has just been diagnosed with CBD. His symptoms began abou...

Sylviawil

•7 months ago

10 Replies

Cough After Eating

This is the most recent episode of my mum’s PSP, she barely chokes, now we are dealing with after a meal cough, she coughs few mins after having her...

This is the most recent episode of my mum’s PSP, she barely chokes, now we are d...

Candor8

•7 months ago

8 Replies

severe constipaion to severe diarrhea

Good Morning! My husband was diagnosed with CBD in 2019. He is now bed bound, has difficulty making himself heard and his words are very slurred. He has been...

Good Morning! My husband was diagnosed with CBD in 2019. He is now bed bound, h...

Indiana-Girl

•8 months ago

4 Replies

Can you help me...

Hi! As I told you before, my father was diagnosed with PSP.Last week he had a respiratory infection with a fever and everything got worse. My father fell 3...

Hi! As I told you before, my father was diagnosed with PSP.Last week he had a re...

angy24

•8 months ago

5 Replies

PSP Diagnosis Changed to PD

For over a year now, two neurologists have told us they believed my husband had PSP. He has all of the symptoms. The way his eyes don't go vertically was one...

For over a year now, two neurologists have told us they believed my husband had ...

Granny29335

•8 months ago

17 Replies

PD to PSP ?

Has anyone heard, read or experienced that someone who having been treated successfully for many years for Parkinson's has evolved into having PSP? I know...

Has anyone heard, read or experienced that someone who having been treated succ...

Gymsack

•8 months ago

4 Replies

A poetry book about dealing with PSP

I would like to share information about this book, as so little is written about this horrible disease. The author's husband was diagnosed with...

I would like to share information about this book, as so little is written about...

ElMarsam

•8 months ago

12 Replies

Botox Around the eyes

I have seen few articles about relaxing muscle around the eyes area for psp patients with affected eyes problems, Any experience from anyone will be helpful,...

I have seen few articles about relaxing muscle around the eyes area for psp pati...

Candor8

•8 months ago

9 Replies

speech therapist questions

my mum will be visiting a speech therapist tomorrow, what are the areas you suggest the speech therapist should focus on? What questions do you think will be...

my mum will be visiting a speech therapist tomorrow, what are the areas you sugg...

Candor8

•8 months ago

3 Replies

Progressive supranuclear palsy and lightheaded

I’ve had psp for almost 4 years and always feel dizzy/lightheaded. Has anyone else experienced this and if so what have you done to resolve issue?...

I’ve had psp for almost 4 years and always feel dizzy/lightheaded. Has anyone ...

Wayne18

•8 months ago

5 Replies

Our mum was recently diagnosed with CBD

Our lovely, independent and previously very active mum, Chris, was diagnosed with CBD on 16th April 2024. Her symptoms started out over 3 years ago with loss...

Our lovely, independent and previously very active mum, Chris, was diagnosed wit...

joshwr

•8 months ago

3 Replies

CHS advise- Surrey heartlands

Hi all, I am wondering if anyone has had any success with securing or appealing CHC funding under the Surrey heartlands ICB? My dad's assessment was in March...

Hi all, I am wondering if anyone has had any success with securing or appealing ...

CJFreckles

•8 months ago

10 Replies

Practical aids

A few years ago, one kind member here sent me a memory aid alarm clock. Mum no longer needs this. Happy to post in UK if it could be of use to someone...

A few years ago, one kind member here sent me a memory aid alarm clock. Mum n...

Doublereeder

•8 months ago

4 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for May 2024

CHC Funding For PSP

levodopa side effect

Bowl exploration

PEG feed methods - pros and cons

chronic constipation

PSP story

Flashing lights

Managing Burnout

CBD - do sufferers always end up needing wheelchairs?

dreaming or hallucinating?

15.17

15.17

Covid and PSP

Raynor Winn

Peg Feeding

2024 PSP & CBD Ice Cream Challenge

Progression

Husband diagnosed with CBD

Cough After Eating

severe constipaion to severe diarrhea

Can you help me...

PSP Diagnosis Changed to PD

PD to PSP ?

A poetry book about dealing with PSP

Botox Around the eyes

speech therapist questions

Progressive supranuclear palsy and lightheaded

Our mum was recently diagnosed with CBD

CHS advise- Surrey heartlands

Practical aids

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive