Mum is now at peace

[Robmatlol]

It is with a heavy heart that I write this post. My dear dear mum passed away at home last Sunday the 3rd December. Myself and my sister were at her side holding her hands and kissing her as she went. Mum was diagnosed with PSP 5 years ago and it had ravaged her body. She'd lost the ability to walk two and a half years ago and lost the ability to talk well over a year ago. She was basically trapped in her own body. For the past three months mum slept an awful lot and gradually lost her appetite and the ability to swallow. I know it is a happy release for her but after caring for her for so long it has left such a void. Now I'm left comforting dad. They had been married 64 years. God bless mum, sleep tight xxx

[easterncedar]

So sorry for your loss. I wish you the comfort of knowing you surrounded her with love to the last, and hope happier memories rise to return that love to you. Ec

[Robmatlol]

Thank you EC. You have been a great support over the past couple of years whilst visiting this site. Mums funeral isn't until the 22nd, I didn't quite realise just how much there was to think about. Poor dad's mind is all over the place, as is mine but things have to be done. Mum is free from PSP now and I'm trying to take comfort in that xxxxx

[Yvonneandgeorge in reply to Robmatlol]

Thinking of you all at this sad time, she can’t suffer no more, you are all in our prayers, your dad will need loads of comfort, you can confront each other . Yvonne xxxx

[Robmatlol in reply to Yvonneandgeorge]

Thank you dear Yvonne xxx

[JR61]

Sincere condolences to you and your family. Be content that you did well, you were with your mum when she most needed you and in the end thats as much as you can do. Your dad has an amazing 64 years of happy memories to help comfort him, be there for him as you were for your mum. You will get through this, as hard as it seems now, you will. JR61 x

[Hidden]

Condolences to you and your family. Take comfort in all the good memorirs you have.

Ron

[Kylie4951]

Cherish cherish cherish the memories before psp. God bless

Sue

[Althea-c]

My sincere condolences to you and your family. You have been an incredible daughter who now cares for your father. You are an example of true love. I pray you will be blessed for all you have put into caring for your parents. Find some time for yourself and mourn deeply.

Much love, Althea 🙏💛

[Robmatlol in reply to Althea-c]

Dear dear Althea, you always have such kind and loving words to share. Thank you so much for your support, much love Michele xxx

[Tippyleaf]

So sorry for your loss. Take care of yourselves as you adapt to this new life

Sending love and hugs

Tippy

[Robmatlol in reply to Tippyleaf]

Thank you Tippyleaf xxx

[Richanne]

So sorry for your loss and for the emptiness you're presently feeling.

I often look ahead and think that losing a loved one you have been caring for is both better and worse than other situations. On the one hand there is probably some sense of relief that they are out of their suffering but on the other you have been so bound up in their world that the sense of loss is more acute. You gradually lose your own activities and social life and everything comes to centre on them so the void is that much greater.

Well done for your part in the struggle and well done Mum for getting out of it with dignity and in peace.

Rosemary Rx

[Robmatlol in reply to Richanne]

Dear Rosemary, you are so right, I agree whole heartedly. Relief filled with sadness and emptiness. There are no winners with PSP. I'm so terribly sad at mums passing but also relieved that she is finally free. I do however take comfort that everyone on this site understands completely.

Much love Michele xxx

[Hidden]

Take a tremendous amount of pride in knowing you able to do for your mum when it was needed most.May your heart's heal in time.

Take care of yourself

Hugs to all.

Dee

[Robmatlol in reply to Hidden]

Thank you Dee xx

[Katiebow]

So sorry to hear that you have lost your dear Mum to this horrible disease but knowing she is no longer suffering. Sending you and your Dad my love and support through these difficult days ahead and hope that time heals and you are left with fond memories of her.

Much love

Kate xxx

[Robmatlol in reply to Katiebow]

Thank you dear Kate xxx

[Satt2015]

I’m so very sorry to read about your dear mum, the only consolation is that your mum is now free of Psp. Please look after yourself and your dear dad and sister x

[Robmatlol in reply to Satt2015]

Dear Satt, you have been so supportive on this site. Thank you so much for your kind words xxxxx

[Troubles]

so sorry for your loss, take comfort that she is free from this terrible terrible disease. Much love to you your family and poor Dad shower him with love OX

[Robmatlol in reply to Troubles]

God bless you. Thank you xxxx

[doglington]

So sorry for your loss. You will have so many good memories but first you all have to face the void and I know how that is. She is free now.

Love to you all, Jean xx

[Robmatlol in reply to doglington]

Bless you Jean. You share the same name as mum. There is no short cut with grief, I know that. It's a process we all have to eventually endure and with PSP its of mixed emotions. Take care my love xxx

[doglington in reply to Robmatlol]

Thank you and a big hug for you xx

[Heady]

Hi, I am sorry to,hear that your Mum has passed away. May she rest in peace, finally free from this evil disease. Of course there will be a void in your life and lots of time, that use to be filled with caring for your Mum. Use it to feel proud of yourself, caring and loving your Mum, as you did.

Sending big hug and much love

Lots of love

Anne

[Robmatlol in reply to Heady]

My dear Anne. You have been an inspiration to me over the last few years, the way you cared for Steve. Thank you for your kind words. God bless. Much love Michele xxx

[LuisRodicioRodicio]

A big hug.

Thank you for sharing.

Luis

[Baileyboo]

Hi Robmatlol

I am so sorry for your loss. PSP respects no-one.

I will be burying my husband on Friday 15th, he died Wednesday 29th November. He was diagnosed 4 years ago and this disease doesn't progress it gallop. We had been married 41 years and I am struggling knowing he gone. I didn't want him suffering but I hate where I am now. If love could cure this damned illness I am sure everyone on this site would be free of it.

Take care of yourself and your sister it is so hard to lose someone you love.

Love and hugs to you both

Pat x

[Robmatlol in reply to Baileyboo]

Dear Pat, I am so sorry for the loss of your husband. PSP takes no enemies eh. Keep strong love. We fought for them when they were with us and now we gave to stay strong for ourselves and all our loved ones left behind. Much love Michele xxx

[Kevin_1]

Hi Robmatlol

I am so sorry to hear your news and its so good your Dad has you. I cannot imagine, 64 years, my heart goes out to you both.

xx

[Robmatlol in reply to Kevin_1]

Bless you Kevin. Thank you for your kind words. Much love Michele xxx

[Careenh]

So sorry for your loss❤ this disease robs us of our loved ones day by day. God bless and stay strong. X

[homesupport223]

Sorry to hear of your loss. Our condolences to you and your family. May you experience peace knowing your mum is no longer in pain.

Henry

[Hidden]

I am not that active on this site but I want to send my condolences to you and your family.

God Bless

Rita

[sasmock]

I'm so sorry for your loss. I empathise completely, we lost my dad yesterday and we all feel completely lost. My parents had been married for 52 years. What a wrench it is for the ones left behind. Battle scarred and weary and left at sea x

[Robmatlol in reply to sasmock]

Sending you all my love. Although now free it's still sooo heartbreaking. Stay strong Sasmock. Sending you much love and hugs, Michele xxx

[Lucy602]

I'm so sorry to hear of your loss. It must be hard for your dad. My parents were married 60 years when dad passed. All mom wants at this point is to see dad. Although she is healthy except front temporal lobe dimentia affecting her ability to speak. When she gets to the point where we can no longer communicate maybe I'll be ready for her to see him again. Right now though I don't think I could handle it.

[Robmatlol]

Bless you Lucy. Life can be so cruel at times. Stay strong sweetheart. Sending you much love, Michele xx

[EricaE]

I am so sorry for your loss - I hope eventually you will only have happy memories of your dear mum. Wishing you and your sister and dad peace and better times.

[Ratcliffe]

Hi, I am sorry to hear the news, but rest in the knowledge that she is free of this evil disease.

It will take time, and you need to take as much time as you need, but you will get over this and come to remember the good times. Like many here, I have been there.

Good luck and big hugs for the future.

[aliciamq]

🥀Peace to you all😑

[F4rn12ley]

So sorry to hear your news. PSP is so cruel. My Mum is sounding much like yours near the end. Sleeping lots, little appetite and no speech. It is heartbreaking. Take care and know her struggle is over xx

[Robmatlol in reply to F4rn12ley]

Thank you so much for your kind words. God bless your mum in her battle with PSP xxx

[georgeg25]

My sincere condolences for your loss. I know how it feels. I said goodbye to my dear Liz 3 weeks ago and everything just feels empty. PSP is horrible and relief mixed with sadness is uppermost in our minds. May your Mum RIP. God Bless.

[Robmatlol]

Thank you George. I am sorry for your loss also. I know both our loved ones are free now but the void is so huge. Mum consumed so so much of my time too, transferring her and feeding her. I feel so lost xx

[Jimjam22]

Hi there, I'm so sorry for your loss of your mum, my mum passed this morning at 1.52 am, I'm just devastated and will miss her so much, it's a dreadful disease and so cruel, but she's at peace now and that's what she wanted, to be at home with her family.