Posts - PSP Association | HealthUnlocked

PSP Association

9,232 members • 11,335 posts

All posts for June 2019

Loss of ability to communicate causing extreme frustration

Does anyone here have the issue of the PSP sufferer having lost the ability to communicate verbally? Dad 72 recently diagnosed with a very aggressive...

Does anyone here have the issue of the PSP sufferer having lost the ability to c...

Cazash

•5 years ago

36 Replies

PSP - numbness

Is numbness in feet and ankles a symptom of PSP? My husband has this as well as loss of sensation when he has a BM. I recall the movement disorder neurologist...

Is numbness in feet and ankles a symptom of PSP? My husband has this as well as ...

journeyofjoy

•5 years ago

1 Reply

Friday’s Meet

Yesterday I left my house at the crack of dawn , well 7.45 am but that is crack of dawn post PSP . Actually I was up at 6.30 , force of habit over the past few...

Yesterday I left my house at the crack of dawn , well 7.45 am but that is crack ...

Georgepa

•5 years ago

40 Replies

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Toilet slings

Toilet slings. My big problem is getting the padded toilet sling on my husband from his chair. He has very painful arms,and is rigid and stiff.although he has...

Toilet slings. My big problem is getting the padded toilet sling on my husband f...

Upword

•5 years ago

4 Replies

Apathy and motivation PSP

Hello My mum has recently been diagnosed with PSP. She has moved into sheltered accommodation and lives with her husband. She has carers on site who through...

Hello My mum has recently been diagnosed with PSP. She has moved into sheltered...

manda42

•5 years ago

17 Replies

Row row row your boat ...

I treated mom to a day on the river! We went on a boat called the Nautica Queen; enjoyed a lunch buffet and a sightseeing cruise! She wore a new top that she...

I treated mom to a day on the river! We went on a boat called the Nautica Queen;...

bazooka111

•5 years ago

7 Replies

Patience

It’s now 01.40 am. We went to bed at 22.30, I have yet to sleep. I found myself shouting at him and I feel awful. We sleep in separate rooms as I still work...

It’s now 01.40 am. We went to bed at 22.30, I have yet to sleep. I found myself ...

Unicorn2022

•5 years ago

18 Replies

PSP - Hospital bed in our home?

I think a hospital bed is our next step. Sandy has not been able to sleep in our bed for a couple of months. He wakes up in pain (back, bum & feet) and has to...

I think a hospital bed is our next step. Sandy has not been able to sleep in our...

journeyofjoy

•5 years ago

18 Replies

PSP - Are any two cases alike?

My husband (Sandy) and I went to our first Atypical Parkinsonism support group. He was just diagnosed a week ago although we had been expecting this diagnosis...

My husband (Sandy) and I went to our first Atypical Parkinsonism support group. ...

journeyofjoy

•5 years ago

6 Replies

Birthday treat where did you get that hat

Horace’s 81st Birthday, managed to get him out to our little cafe at Hunmanby Gap

Horace’s 81st Birthday, managed to get him out to our little cafe at Hunmanby Ga...

Chrissmitch

•5 years ago

14 Replies

Virtual meet ups?

Hi everyone, I lost my hubby to PSP nearly 2.5 years ago now, and although I haven't been as active on the forum as I needed to 'get away' from PSP for a...

Hi everyone, I lost my hubby to PSP nearly 2.5 years ago now, and although I hav...

Sawa

•5 years ago

16 Replies

Ranting time about a confusing time

I haven't posted in awhile. I tried to get to a PSP support group for caregivers in my area. I felt frustrated wondering what was going to happen next. I feel...

I haven't posted in awhile. I tried to get to a PSP support group for caregivers...

Uscarol

•5 years ago

15 Replies

Changes

Hi All I am writing this to let you all know that I have my home back. Fiona and Paul moved into their own flat last Tuesday. Fiona's reaction was to tell me I...

Hi All I am writing this to let you all know that I have my home back. Fiona and...

Baileyboo

•5 years ago

32 Replies

prevent a fall

Tillie now forgets suddenly to hold the grab rail of handles of her walker. And falls backwards I bought a transfer belt. It has two handles in the back and I...

Tillie now forgets suddenly to hold the grab rail of handles of her walker. And ...

Tillie281

•5 years ago

7 Replies

PSP constipation and UTI

Dear community, I haven't been active here as I am struggling being away from my mother with PSP in Italy and the guilt I have. I have a demanding job and...

Dear community, I haven't been active here as I am struggling being away from my...

Zibo

•5 years ago

8 Replies

Sudden Decline

My friend, who is yet to be diagnosed "officially", has suddenly said she feels "miserable". She is still positive and upbeat - so her saying this means she...

My friend, who is yet to be diagnosed "officially", has suddenly said she feels ...

Mybeautifulfriend

•5 years ago

7 Replies

Sore eyes

Jim has been in hospital for 6 weeks now. He is late stage and in need of nursing care and fortunately that has been accepted and he has been fast tracked for...

Jim has been in hospital for 6 weeks now. He is late stage and in need of nursin...

5cutler

•5 years ago

2 Replies

Madopar

Hello all My husband has been prescribed Madopar 50 mg which is levodopa and benserazide. He has CBD this is to help jerks. I have not given this to him as...

Hello all My husband has been prescribed Madopar 50 mg which is levodopa and ben...

Northstar1

•5 years ago

12 Replies

CBD caregiver

I'm new here. My husband was diagnosed with corticobasal syndrome 3 years ago, has been symptomatic for 5 years. I work full time and have care givers who...

I'm new here. My husband was diagnosed with corticobasal syndrome 3 years ago, ...

Obsidian62

•5 years ago

15 Replies

Carer

First post for me mum has PSP in respite care this week needs assistance cannot walk without aid cannot bend knees difficulty speaking often coughs / chokes...

First post for me mum has PSP in respite care this week needs assistance cannot ...

Teddies

•5 years ago

19 Replies

Swallowing issues & coughing

Hi all. My husband, Steve, was diagnosed with CBD in 2015 but was showing signs for a few years before. Recently, he has had problems swallowing and is...

Hi all. My husband, Steve, was diagnosed with CBD in 2015 but was showing signs...

Kahia

•5 years ago

7 Replies

Yay! Finally...a PSP diagnosis.

Who would ever think you'd be happy to get a PSP diagnosis? Well, we are. Maybe "happy" isn't exactly the right word, but at least relieved. After waiting and...

Who would ever think you'd be happy to get a PSP diagnosis? Well, we are. Maybe ...

journeyofjoy

•5 years ago

10 Replies

Night Out!

Well, I discovered that going to a Japanese Steak House - Hibachi is not only entertaining, but they will cut that food up in small bites! Momma loved this...

Well, I discovered that going to a Japanese Steak House - Hibachi is not only en...

bazooka111

•5 years ago

9 Replies

I'm new

My husband was diagnosed with PSP in April 2018. I am his primary caregiver and I work full time. Our adult son lives with us and helps a lot.

My husband was diagnosed with PSP in April 2018. I am his primary caregiver and ...

1Kingskid

•5 years ago

8 Replies

Eye infection

Hi all. My dad is in a care home and has deteriorated quite quickly in the past 5 months. His eyesight is getting worse, as in he has an eye infection in both...

Hi all. My dad is in a care home and has deteriorated quite quickly in the past ...

Emilysmarties34

•5 years ago

8 Replies

CBD

Thank you to all that replied to my recent post regarding CBD. You are all so positive and so helpful. It is good to know that I am not alone with this problem...

Thank you to all that replied to my recent post regarding CBD. You are all so po...

Yve2018

•5 years ago

2 Replies

Giving up

I can't do this anymore had enough of this awful illness. Ì still have full mental capacity I use to draw detailed animal portraits. Ride my horse now I can't...

I can't do this anymore had enough of this awful illness. Ì still have full ment...

Kimmyliz12

•5 years ago

24 Replies

Thank you for your support

Good morning everyone I received a message this morning from Nanny857 and have written a very long reply. I have been able to manage what is happening in my...

Good morning everyone I received a message this morning from Nanny857 and have w...

Baileyboo

•5 years ago

36 Replies

Jim`s story

Hello everyone reading this, thank you first of all for taking time to do as as we all know how precious and valued our time is. I have joined here hoping to...

Hello everyone reading this, thank you first of all for taking time to do as as ...

BEST7

•5 years ago

9 Replies

Suggestions

Morning everyone. I am looking for some recommendations on where to holiday. I am going to be quite specific so you may not be able to help as I know people...

Morning everyone. I am looking for some recommendations on where to holiday. I ...

Unicorn2022

•5 years ago

10 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for June 2019

Loss of ability to communicate causing extreme frustration

PSP - numbness

Friday’s Meet

Toilet slings

Apathy and motivation PSP

Row row row your boat ...

Patience

PSP - Hospital bed in our home?

PSP - Are any two cases alike?

Birthday treat where did you get that hat

Virtual meet ups?

Ranting time about a confusing time

Changes

prevent a fall

PSP constipation and UTI

Sudden Decline

Sore eyes

Madopar

CBD caregiver

Carer

Swallowing issues & coughing

Yay! Finally...a PSP diagnosis.

Night Out!

I'm new

Eye infection

CBD

Giving up

Thank you for your support

Jim`s story

Suggestions

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive