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PSP Association

9,266 members • 11,356 posts

All posts for May 2018

Memory bears

Lots of you lovely people have asked for details of the lady who made the bears, i have asked anna and she is more than happy to share her email within the...

Lots of you lovely people have asked for details of the lady who made the bears,...

Julieandrog

•6 years ago

1 Reply

Kind words and heart felt sympathies

We just wanted to say a very heartfelt thank you for all of your kind supporting words given after my post on Geoff’s passing. This site and its followers and...

We just wanted to say a very heartfelt thank you for all of your kind supporting...

Flutterbyes

•6 years ago

15 Replies

Hubby has a chest infection

Hello all Neil has a minor chest infection I hope, I had some backup antibiotics so jump on it right away,time will tell if we caught it in time.I gave him...

Hello all Neil has a minor chest infection I hope, I had some backup antibiotics...

Hidden

•6 years ago

11 Replies

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At your request Amanda.. Adventures in China

I can only get one photo at a time so hopefully Anne will do better. One chap said he was “All Buddhad Out”. We saw loads and they were all the biggest...

I can only get one photo at a time so hopefully Anne will do better. One chap ...

NannaB

•6 years ago

13 Replies

Late diagnosis

Hello everyone our nan has been in a nursing home for a number of years now she was admitted for fear of her safety at home due to falls, she has been severely...

Hello everyone our nan has been in a nursing home for a number of years now she ...

Hidden

•6 years ago

6 Replies

Emotional suport

I used to think that stress was something that other people had until I began caring for Mary. The simple thought about a future without her would have me in...

I used to think that stress was something that other people had until I began ca...

Willow_rob

•6 years ago

27 Replies

Memory Bears

Thought these might make you smile. A work colleague has started to make these memory bears, they are bespoke and made from clothing items, i was delighted as...

Thought these might make you smile. A work colleague has started to make these m...

Julieandrog

•6 years ago

23 Replies

my hero geoff

I know my daughter in law michelle [flutterbyes] has let you know Geoff has passed away she has been a star as has the whole family I feel so empty we would...

I know my daughter in law michelle [flutterbyes] has let you know Geoff has pass...

wheelrace

•6 years ago

9 Replies

Falls Risk / Nursing Home Search

Hi all, We live in Plymouth, Devon. Mum, 72 has PSP diagnosed a couple of years ago lives in a Nursing Home but we have been told she is now too much of a...

Hi all, We live in Plymouth, Devon. Mum, 72 has PSP diagnosed a couple of years ...

sennen7

•6 years ago

16 Replies

They Shoot Horses Don't they?

Trying to get to the bottom of CHC funding is becoming ever draining and I am minded of the film title above whereby competitors in a Dance contest would win...

Trying to get to the bottom of CHC funding is becoming ever draining and I am mi...

Willow_rob

•6 years ago

7 Replies

My mum is 70 and has PSP 😢

Hi, I’m not sure if anyone is still using this site as I have noticed posts were 4 years ago but I am desperate to talk to people that have had a loved one...

Hi, I’m not sure if anyone is still using this site as I have noticed posts were...

Kezzamum

•6 years ago

24 Replies

My best friend and soulmate has gone.

After battling this evil illness for so long, my best friend and soulmate of 50+ years has gone. He died at 8.30 yesterday morning. We have had lots of laughs...

After battling this evil illness for so long, my best friend and soulmate of 50+...

NanBabs

•6 years ago

59 Replies

Respite but not respite

Hi After all the problems over the last couple of weeks, with me not being able to get Colin out of bed to the commode, his continuous leg shaking, and pain in...

Hi After all the problems over the last couple of weeks, with me not being able ...

Helen119

•6 years ago

24 Replies

Of joy and love

PSP, hooded stranger who rhymes with nought. I once did rhyme with life. I swam the sea, the water sun sparkled, as did I. My arms were strong, my legs too, my...

PSP, hooded stranger who rhymes with nought. I once did rhyme with life. I swam ...

Kevin_1

•6 years ago

51 Replies

Update on prospect study

I went to the LGI last Tuesday and was seen by a neurologist. Who asked me lots of questions about the history of my condition. she gave me a full examination,...

I went to the LGI last Tuesday and was seen by a neurologist. Who asked me lots ...

Mamapiggle

•6 years ago

7 Replies

A fighter and Doreen’s hero

Geoff lost his battle to PSP early hours this morning. He died peacefully at home which was what he always wished for. It’s been a gruelling few days for all...

Geoff lost his battle to PSP early hours this morning. He died peacefully at hom...

Flutterbyes

•6 years ago

26 Replies

Pacing

I am a little overwhelmed today. I read these posts each day from my newsfeed of the demise of loved ones and newly diagnosed PSP/CBD individuals. Those posts...

I am a little overwhelmed today. I read these posts each day from my newsfeed of...

Beads0122

•6 years ago

19 Replies

Thank you

Thank you for the responses to my rant re hubs catheter experience, he’s home now. Every time something happens it seems to diminish him a little. I hope I...

Thank you for the responses to my rant re hubs catheter experience, he’s home no...

Rocksbeb

•6 years ago

9 Replies

He’s gone now and resting

Hi all Last night Archie finally gave in to this illness and so what a journey this has been I’ve had brilliant help with the carers and who has been helping...

Hi all Last night Archie finally gave in to this illness and so what a journey t...

Suebatt

•6 years ago

64 Replies

Internal trembling

Hi all Well we had our holiday to Corfu which was great. Monday a bit overcast so went round the local villages in the car, wish life here could be so laid...

Hi all Well we had our holiday to Corfu which was great. Monday a bit overcast s...

Aprilfool20

•6 years ago

27 Replies

This is how we were 2 yrs ago

I added an avatar also. Thanks for all your responses. You are the only ones who truly understand. I'll be back soon. Hugs, Liz

I added an avatar also. Thanks for all your responses. You are the only ones w...

Mikey12345

•6 years ago

22 Replies

Carer duties

I would like to ask about what caters in Australia can do for patients. My husband cannot get out of bed without me to lift him to get on the commode to go to...

I would like to ask about what caters in Australia can do for patients. My husba...

Kathleen52

•6 years ago

11 Replies

Carer duties

I would like to ask about what caters in Australia can do for patients. My husband cannot get out of bed without me to lift him to get on the commode to go to...

I would like to ask about what caters in Australia can do for patients. My husba...

Kathleen52

•6 years ago

3 Replies

The message I've dreaded to write.

After only 9 days on hospice care, on Thurs. May 24 ,my precious Michael changed his address and went home to God to live again in health and wholeness. Can...

After only 9 days on hospice care, on Thurs. May 24 ,my precious Michael changed...

Mikey12345

•6 years ago

46 Replies

Feeling down

My husband has PSP and has slowed down a lot lately. We now have a stairlift and an adjustable bed. He tends to lean to tbe right and this seems worse in the...

My husband has PSP and has slowed down a lot lately. We now have a stairlift and...

LindaK12

•6 years ago

19 Replies

Another from my bucket list.............

Last night I spent a wonderful evening with my two daughters in London, we went to see and hear a Russian singer who I love ........... She sang this aria that...

Last night I spent a wonderful evening with my two daughters in London, we went ...

Bargiepat

•6 years ago

26 Replies

Suction machines

My wife is now having saliva problems ,I have spoken to gp and dn but nobody seems to know who to contact about suction. Your help as always is appreciated.

My wife is now having saliva problems ,I have spoken to gp and dn but nobody see...

Javan

•6 years ago

10 Replies

Radio 4 today CHC funding

Dear All For members in England - I have just caught the end of a Radio 4 Moneybox programme on CHC funding. It went out at 15.00 today and runs 30 mins...

Dear All For members in England - I have just caught the end of a Radio 4 Mone...

Tippyleaf

•6 years ago

4 Replies

This is torture - it is so cruel.

P had a `cardiac episode` on Friday. Very obvious to me as soon as I walked in to the nursing home. Since then he has stopped eating and drinking (although he...

P had a `cardiac episode` on Friday. Very obvious to me as soon as I walked in t...

NanBabs

•6 years ago

45 Replies

PSP

Good morning all well today we are going to try one more doctor, a new neurologist for Charlie. I had reached out a few months ago and Deb answered me with a...

Good morning all well today we are going to try one more doctor, a new neurologi...

Marg52

•6 years ago

7 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for May 2018

Memory bears

Kind words and heart felt sympathies

Hubby has a chest infection

At your request Amanda.. Adventures in China

Late diagnosis

Emotional suport

Memory Bears

my hero geoff

Falls Risk / Nursing Home Search

They Shoot Horses Don't they?

My mum is 70 and has PSP 😢

My best friend and soulmate has gone.

Respite but not respite

Of joy and love

Update on prospect study

A fighter and Doreen’s hero

Pacing

Thank you

He’s gone now and resting

Internal trembling

This is how we were 2 yrs ago

Carer duties

Carer duties

The message I've dreaded to write.

Feeling down

Another from my bucket list.............

Suction machines

Radio 4 today CHC funding

This is torture - it is so cruel.

PSP

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive