Posts - PSP Association | HealthUnlocked

PSP Association

9,247 members • 11,346 posts

All posts for March 2013

TIME TO ACT

Hi I definitely want to make sure that PSP isn't forgotten in the Healthcare reforms!! Does anyone know where the template letter is for me to download to...

Hi I definitely want to make sure that PSP isn't forgotten in the Healthcare r...

•11 years ago

Gathering Myself.

I need it. Think I'm going to take a few days and do just that. Read parts of my blogs, & some of my replies I posted today, and came away with a "I need to...

I need it. Think I'm going to take a few days and do just that. Read parts of my...

•11 years ago

DRIVING: Raising the while flag, Part 2.

I will do my best to keep this concise. I spent hours researching a few things last night and discovered a surprise that may help me, but might be an uphill...

I will do my best to keep this concise. I spent hours researching a few things l...

•11 years ago

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DRIVING: I'm starting to raise the white flag...Part 1.

A lot of time has been spent either by me wanting to continue to drive, or by my lovely, thoughtful, caring PSP community, who mostly advocated to stop driving...

A lot of time has been spent either by me wanting to continue to drive, or by my...

•11 years ago

Hi All, I Have CBD, my skin is getting very sensitive, it hurts when blood tests are taken. Does anybody have the same symptom?

I have to have blood test taken every month for warfarin check. Today it was really painfull, she had to try both arms as she could'nt find a vein. Usually...

I have to have blood test taken every month for warfarin check. Today it was re...

•11 years ago

WHAT HAPPENS TO ALL OF YOU THAT WAS ENROLED IN DAVUNETIDE STUDY WHEN IT STOPPED?

Hi to all of you. As I write in the title, I'd like to know if someone of you ,that was enroled in the Davunetide study, noticed some difference in his state...

Hi to all of you. As I write in the title, I'd like to know if someone of you ,t...

•11 years ago

Hi Guys

I am new to this web site but i have a father who has been diagnosed with this nasty disease since Sept 2011. Before then they had diagnosed him with...

I am new to this web site but i have a father who has been diagnosed with this n...

•11 years ago

Northamptonshire Local Group Meeting. Saturday 30th March at 2.30

The Northamptonshire Local Group meet on Saturday 30th March, 2.30 at Grangefield Residential Care Home in Earls Barton. As always this will be a friendly and...

The Northamptonshire Local Group meet on Saturday 30th March, 2.30 at Grangefiel...

•11 years ago

Aggression

Has anyone had experience with aggression and PSP. When dad gets upset over change in routine due to doctors appt or gets over tired or sometimes because he...

Has anyone had experience with aggression and PSP. When dad gets upset over ch...

•11 years ago

It's A Happy, Happy Day!

My other favorite daughter, Melissa Maria (aka Missy) is coming home for the week for Spring Break!!!!!!!!!!!!! She's always been an 'old soul' but very...

My other favorite daughter, Melissa Maria (aka Missy) is coming home for the wee...

•11 years ago

Loss Of Memory Event Last Night; Very Scary

I was feeling a little disorientated before I fell asleep last night. My daughter who lives with me has a bedroom downstairs of our large rambler & on the...

I was feeling a little disorientated before I fell asleep last night. My daughte...

•11 years ago

Hi all, with CBD i seem to cry easily , even reading something out i get choked, the slightest thing starts me off. Anybody else suffer?

•11 years ago

PSPA Regional Open Meeting in Preston - 28th March, 12.30 - 4pm

The 2nd North West Open Meeting takes place next Thursday at the Barton Grange Hotel, Barton near Preston. The aim of the meeting is to provide an...

The 2nd North West Open Meeting takes place next Thursday at the Barton Grange H...

•11 years ago

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NEW STUDY OF PSP AND CBD UNDERWAY

Hi, Don't know how many of you may have seen this on the internet so I thought I'd post it here for all to see. There is a study of PSP and CBD underway in...

Hi, Don't know how many of you may have seen this on the internet so I thought I...

•11 years ago

Wanted - designer to assist with special project

Anyone out there with a design background who can design a spouted beaker for an adult with disabilities that ISN'T made in patronisingly juvenile coloured...

Anyone out there with a design background who can design a spouted beaker for an...

•11 years ago

Ooops, I DiD It Again

On 2-8-13, I wrote a blog entitled "PSP Story With A Touch Of Humor". The gist of it was I'd laid down about 1:30 for a nap. I awoke around 6:30, feeling...

On 2-8-13, I wrote a blog entitled "PSP Story With A Touch Of Humor". The gist o...

•11 years ago

PROTRUSION OF THE TONGUE

Hi, my mum has another problem. Her speech is very difficulty from two or three months, but now, from 15 days, she has another disorder. The involuntary...

Hi, my mum has another problem. Her speech is very difficulty from two or three ...

•11 years ago

Thickened liquid

When did you know it was the right time to start thickening the liquid and grinding food? I've been grinding dads food when something that has to be chewed is...

When did you know it was the right time to start thickening the liquid and grind...

•11 years ago

SEB COE!

Very pleased to hear Lord Coe is on Who wants to be a Millionnaire tonght trying to raise money for PSP., GO SEB!

Very pleased to hear Lord Coe is on Who wants to be a Millionnaire tonght trying...

•11 years ago

psp video

http://www.youtube.com/watch?v=VVWGutY0xbw

http://www.youtube.com/watch?v=VVWGutY0xbw

•11 years ago

My Neurology Appointment Didn't Go So Well This Week.

But I wasn't surprised, either. My existing symptoms seem to be escalating i.e. loss of balance and falls, and a few new ones that have snuck in there that...

But I wasn't surprised, either. My existing symptoms seem to be escalating i.e. ...

•11 years ago

Burning heels - like they are actually resting above hot flames or resting on hot read charcoals.

I know the question is waaaay out there, since my Docs don't have an answer for it. I had my R hip replaced 4-2-12. I was born with malaligned hips and...

I know the question is waaaay out there, since my Docs don't have an answer for ...

•11 years ago

PSP doesn't take a break, but I had to!

I'm just back home from a week on Maui. My husband, Bob was finally diagnosed the end of November after years of increasing and worsening symptoms. At the time...

I'm just back home from a week on Maui. My husband, Bob was finally diagnosed th...

•11 years ago

Any benefit from oxygen

Mum has had PSP for about 5 years and resides in a care home......she fell and broke her hip on Tuesday and had a replacement fitted yesterday ( Thursday ) ....

Mum has had PSP for about 5 years and resides in a care home......she fell and b...

•11 years ago

Simple ?. I've not been able to set my location on my Profile. Have checked the site for answers but except for members; help?

•11 years ago

PSP AND SEX

I'm wondering if PSP has an effect on sex life. My wife and I were happily having sex until about one or two years into PSP. Suddenly she said she no longer...

I'm wondering if PSP has an effect on sex life. My wife and I were happily havi...

•11 years ago

Give This Advice To Someone You Know & Tell Them To Pass It On

My best friend, Connie, left town yesterday, after spending several days with me helping accomplish several things. One of those 'things' was to meet with...

My best friend, Connie, left town yesterday, after spending several days with me...

•11 years ago

My Mom keeps snezzing but only when eatting?

Wonder if any body else experiences this and how do you over come it!

Wonder if any body else experiences this and how do you over come it!

•11 years ago

Has anyone with CBD experienced problems with extreme tidiness!?

My Dad has CBD and (as well as some aggression problems) we are really struggling with his fanatical tidiness. He has to have things put in a very particular...

My Dad has CBD and (as well as some aggression problems) we are really strugglin...

piggyinthemiddle

•11 years ago

Taking off

My dad just started taking off his pants while sitting in his chair. He lifts his shirt up also. When I ask him if he's hot he says no. I don't know if...

My dad just started taking off his pants while sitting in his chair. He lifts h...

•11 years ago

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